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by radnyc
Sat Sep 21, 2019 1:29 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: All done...hard to believe
Replies: 11
Views: 414

Re: All done...hard to believe

Thanks all for your kind replies.
by radnyc
Sat Sep 21, 2019 12:18 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Questions regarding Folfox treatments
Replies: 13
Views: 229

Re: Questions regarding Folfox treatments

Tell your doctor exactly what your side effects are, they can be pretty severe and can last a long time. When I told him about my neuropathy he cut down and also gave me a break a couple of times. Folfox is an effective concoction and the goal is to get through the recommended course even with break...
by radnyc
Fri Sep 20, 2019 2:46 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: All done...hard to believe
Replies: 11
Views: 414

All done...hard to believe

Went to MSK yesterday for scheduled blood work, after what seemed an interminable wait, my doctor tells me that: "You're finished" No more scans, bloodwork. After almost ten years of this journey, I was left a bit stunned. Happy, but, as I told him, it felt like a divorce. I will NOT miss ...
by radnyc
Sun Sep 15, 2019 7:31 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Screw Cancer, Hospice is Here
Replies: 19
Views: 1030

Re: Screw Cancer, Hospice is Here

Wishing you well in your journey, you gave it your best shot, enjoy to the fullest the time you have left.

Peace
by radnyc
Mon Sep 09, 2019 6:49 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: CEA jump from 2.8 to 33 in 6 weeks -- what to make?
Replies: 21
Views: 1766

Re: CEA jump from 2.8 to 33 in 6 weeks -- what to make?

You haven’t had surgery to resect the liver tumors yet? If you’re not out of the woods yet then it’s the main reason your CEA is rising. You need to get to resection.
by radnyc
Fri Aug 23, 2019 10:20 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: ...progression...
Replies: 27
Views: 3141

Re: ...progression...

HAI
by radnyc
Wed Aug 14, 2019 3:32 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: My CRC with liver mets journey
Replies: 218
Views: 32893

Re: My CRC with liver mets journey

Sounds like you're doing really well Gina, keep doing what you're doing. Enjoy life!

Peace Al
by radnyc
Thu Aug 08, 2019 10:09 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: How crucial is the HAI pump?
Replies: 42
Views: 2242

Re: How crucial is the HAI pump?

The HAI protocol is a combination of chemo directly injected into the pump which then goes straight to your liver and systemic chemotherapy delivered by traditional methods, usually a port in your chest. I don’t believe they’ll do colon surgery while you’re on HAI, they’d prefer to have any other tu...
by radnyc
Tue Aug 06, 2019 11:03 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: How crucial is the HAI pump?
Replies: 42
Views: 2242

Re: How crucial is the HAI pump?

The pump has been shown to be very effective at shrinking liver tumors and allow patients to get to resection and also to keep tumors from coming back after liver resection. I strongly suggest, if you haven’t already, to make an appointment at MSKCC, you need the best people taking care of you.
by radnyc
Wed Jul 31, 2019 8:44 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: CEA and it’s anxiety
Replies: 9
Views: 842

Re: CEA and it’s anxiety

CEA anxiety is one of our favorite subjects here, and it sucks! I’m one of those whose CEA level creeps up on occasion. But it seems that there very high false-positives with some of us, almost up to 50%, and in some people 15 is the high normal, not 5! Of course it’s still important to keep an eye ...
by radnyc
Tue Jul 30, 2019 12:00 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Reminder: Don't forget your Vitamin D!
Replies: 7
Views: 701

Reminder: Don't forget your Vitamin D!

All the latest studies point to pretty good proof that Vit D is important and helps keep the beast at bay: https://www.yalemedicine.org/stories/vitamin-d-colorectal-cancer/ "A group of 139 patients with metastatic colorectal cancer were prescribed standard chemotherapy and vitamin D supplements...
by radnyc
Sat Jul 27, 2019 6:32 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Opinions on alternative treatments?
Replies: 40
Views: 2469

Re: Opinions on alternative treatments?

I find the outright dismissals of non-standard cancer interventions disappointing. She’s obviously under the care of a properly trained and licensed professional and it’s just asking for some advice on some alternatives. And what is this nonsense about “western medicine”?? Ancient Chinese and indige...
by radnyc
Wed Jun 26, 2019 10:24 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Mop up chemo - Port vs non-port for Oxi?
Replies: 21
Views: 1982

Re: Mop up chemo - Port vs non-port for Oxi?

Do the port, otherwise you'll be in a world of unnecessary pain!
by radnyc
Mon Jun 17, 2019 11:42 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Wives of husbands with Stage IV Colon Freaking Cancer
Replies: 3547
Views: 651753

Re: Wives of husbands with Stage IV Colon Freaking Cancer

"Fri Jun 14, 2019 LPL wrote: radnyc, do you want caregivers and loved ones to post in this thread and not participate elsewhere in ColonClub?" I have never insinuated that caregivers not post on this thread or anywhere else on the forum. My interest in bringing back to the top the Wives th...

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