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by radnyc
Wed Dec 11, 2019 5:12 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: My recent significant CEA jump.
Replies: 26
Views: 1937

Re: My recent significant CEA jump.

Congrats! Enjoy it and try to forget about that dammed CEA for a while!
by radnyc
Sat Dec 07, 2019 9:09 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Folfiri and Nausea
Replies: 12
Views: 884

Re: Folfiri and Nausea

Folfiri made me feel a lot worse than folfox. Had that sick feeling right away. But it’s an effective treatment, talk to your onc, I ended up having to take strong anti nausea meds all the time. Stay strong.
by radnyc
Tue Nov 26, 2019 12:29 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Lymph node involvement
Replies: 5
Views: 555

Re: Lymph node involvement

I had two of 17. Stage 3b? Chemotherapy for 3-6 months to hopefully clean up any stray cancer. Stay strong.
by radnyc
Mon Nov 25, 2019 8:26 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: CEA Confusion
Replies: 5
Views: 308

Re: CEA Confusion

Your CEA well within the normal range, some of us dream of a CEA of 1. On the other hand CEA may not be an accurate marker for you as it was way low when you were diagnosed. In that case I’d be more concerned with good scans than with good bloodwork.
by radnyc
Thu Nov 21, 2019 2:10 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Why Cancer Patients Push Loved Ones Away
Replies: 2
Views: 363

Why Cancer Patients Push Loved Ones Away

I personally preferred to be left alone, people buzzing around me brought me down. Please let the person going through the disease deal with it the way they feel best.

https://www.roswellpark.org/cancertalk/ ... -ones-away
by radnyc
Mon Nov 18, 2019 8:41 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: 1st bad scanning... advice please!!
Replies: 52
Views: 2465

Re: 1st bad scanning... advice please!!

Hey radnyc- if you don't mind, can you share which oncologist you saw at MSK? No pressure, just wondering. Hi Rachel, I’ll send you a pm with my onc’s name. But, I’ll just say that he was always direct, not really beating around the bush. But, honest and was upbeat when things went well. I have no ...
by radnyc
Mon Nov 18, 2019 6:21 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: 1st bad scanning... advice please!!
Replies: 52
Views: 2465

Re: 1st bad scanning... advice please!!

Please remember that although dr. Kemeny is the go to expert on the HAI protocol, the decision is not automatically hers alone. The whole team over there works on the selection and treatment of all the patients. As a matter of fact when I originally went there I had no idea what HAI was or who Kemen...
by radnyc
Mon Nov 18, 2019 12:07 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Baseline CEA levels
Replies: 16
Views: 1562

Re: Baseline CEA levels

Your husband’s case is unusual. I found this case of someone with an extremely high CEA over 1500, who became disease-free and still had a CEA in the 300’s. Maybe he fits this pattern. https://watermark.silverchair.com/hyl110.pdf?token=AQECAHi208BE49Ooan9kkhW_Ercy7Dm3ZL_9Cf3qfKAc485ysgAAAlkwggJVBgk...
by radnyc
Mon Nov 18, 2019 7:59 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Baseline CEA levels
Replies: 16
Views: 1562

Re: Baseline CEA levels

Your husband’s case is unusual. I found this case of someone with an extremely high CEA over 1500, who became disease-free and still had a CEA in the 300’s. Maybe he fits this pattern. https://watermark.silverchair.com/hyl110.pdf?token=AQECAHi208BE49Ooan9kkhW_Ercy7Dm3ZL_9Cf3qfKAc485ysgAAAlkwggJVBgkq...
by radnyc
Tue Nov 12, 2019 7:47 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Surgery here, and done.
Replies: 25
Views: 1127

Re: Surgery here, and done.

Great news! Sounds like everything went as planned, stay positive and strong!
by radnyc
Mon Nov 11, 2019 8:16 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: DNA editing tool Crispr - can this be the one?
Replies: 3
Views: 278

DNA editing tool Crispr - can this be the one?

Let’s keep an eye on this trial, Crispr is in my opinion the best possibility for a cure at the moment. Only three patients have been recruited, very advanced cancers, seem to be stable. There’s still much to do. https://www.nytimes.com/2019/11/06/health/crispr-cancer-leukemia.html?smid=nytcore-ios-...
by radnyc
Mon Nov 11, 2019 3:34 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: My recent significant CEA jump.
Replies: 26
Views: 1937

Re: My recent significant CEA jump.

This discussion is worthy of its own topic, as it’s of interest to so many group members, mods? I found a very interesting article on pubmed: https://www.ncbi.nlm.nih.gov/m/pubmed/29579327/ The premise is that CEA by itself may not be such a useful metric for recurrence surveillance. The take away: ...
by radnyc
Fri Nov 08, 2019 2:10 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: My recent significant CEA jump.
Replies: 26
Views: 1937

Re: My recent significant CEA jump.

The search is on for a superior testing method based on individual tumor DNA, which is the way to go. I found this quote from Dr. Axel Grothey, a well known oncologist at the Mayo Clinic: “ Dr. Grothey says he considers CEA to be a valuable surveillance test, but that research into better tests is o...
by radnyc
Wed Nov 06, 2019 5:21 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: My recent significant CEA jump.
Replies: 26
Views: 1937

Re: My recent significant CEA jump.

Wow! Just reading your story stresses me out. My CEA has lived between 5 and 10, for 10 years, and no cancer has been found after numerous radiographic studies, CT, PET. Yes, if it’d jump to 60 it’d freak me out! It’s hard not to think about and I wish there were another simple blood test for those ...

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