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by radnyc
Thu Oct 10, 2019 11:04 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: How long does MSK take to get approval to install HAI pump?
Replies: 10
Views: 903

Re: How long does MSK take to get approval to install HAI pump?

Just FYI, the Codman pump is coming back. Bought by private group. Both UCSF and CIty of Hope are aware of this development, and ready to go once the pumps are back in production. I presume MSK knows of this, too. GREAT NEWS! It's an effective, inexpensive and proven piece of equipment. I had writt...
by radnyc
Mon Oct 07, 2019 9:57 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: My CRC with liver mets journey
Replies: 236
Views: 37419

Re: My CRC with liver mets journey

That’s great news! Means everything is going as planned.
by radnyc
Thu Oct 03, 2019 1:55 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Scared of surgery in need of wisdom...
Replies: 15
Views: 1329

Re: Scared of surgery in need of wisdom...

You’ll be fine. Makes no sense to worry, as you’ll have no control of the situation. Just keep thinking about the next day.
by radnyc
Sun Sep 29, 2019 10:30 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: How long does MSK take to get approval to install HAI pump?
Replies: 10
Views: 903

Re: How long does MSK take to get approval to install HAI pump?

Hi, I don’t get your question. Based on your case they decide whether the HAI protocol is appropriate or not. I actually hadn’t heard of the treatment at all. I was on chemo for a three months, my tumors shrunk and the next thing I know I was going in for pump placement. I don’t think you can ask up...
by radnyc
Wed Sep 25, 2019 4:55 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Codman vs Medtronic
Replies: 6
Views: 478

Re: Codeman vs Medtronic

You're on the best path for long-term, curative treatment, in my view. I got the Codman infusion pump almost ten years ago, an I'm at present free of cancer and no longer in any treatment. The important thing is that the doctors and nurses have been properly trained to implement this life-saving tre...
by radnyc
Tue Sep 24, 2019 8:23 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Thoughts on Stage IV...
Replies: 24
Views: 2130

Re: Thoughts on Stage IV...

When I first checked, 10 years ago it was 5%!! So the fact that is now 14% is a positive. As others have pointed out the problem is that they lump together people with a single, tiny met on the liver or the lung, with people who have cancer spread throughout their bodies, that’s why you get such low...
by radnyc
Sat Sep 21, 2019 1:29 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: All done...hard to believe
Replies: 13
Views: 827

Re: All done...hard to believe

Thanks all for your kind replies.
by radnyc
Sat Sep 21, 2019 12:18 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Questions regarding Folfox treatments
Replies: 15
Views: 1271

Re: Questions regarding Folfox treatments

Tell your doctor exactly what your side effects are, they can be pretty severe and can last a long time. When I told him about my neuropathy he cut down and also gave me a break a couple of times. Folfox is an effective concoction and the goal is to get through the recommended course even with break...
by radnyc
Fri Sep 20, 2019 2:46 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: All done...hard to believe
Replies: 13
Views: 827

All done...hard to believe

Went to MSK yesterday for scheduled blood work, after what seemed an interminable wait, my doctor tells me that: "You're finished" No more scans, bloodwork. After almost ten years of this journey, I was left a bit stunned. Happy, but, as I told him, it felt like a divorce. I will NOT miss ...
by radnyc
Sun Sep 15, 2019 7:31 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Screw Cancer, Hospice is Here
Replies: 25
Views: 3334

Re: Screw Cancer, Hospice is Here

Wishing you well in your journey, you gave it your best shot, enjoy to the fullest the time you have left.

Peace
by radnyc
Mon Sep 09, 2019 6:49 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: CEA jump from 2.8 to 33 in 6 weeks -- what to make?
Replies: 21
Views: 2080

Re: CEA jump from 2.8 to 33 in 6 weeks -- what to make?

You haven’t had surgery to resect the liver tumors yet? If you’re not out of the woods yet then it’s the main reason your CEA is rising. You need to get to resection.
by radnyc
Fri Aug 23, 2019 10:20 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: ...progression...
Replies: 27
Views: 3389

Re: ...progression...

HAI
by radnyc
Wed Aug 14, 2019 3:32 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: My CRC with liver mets journey
Replies: 236
Views: 37419

Re: My CRC with liver mets journey

Sounds like you're doing really well Gina, keep doing what you're doing. Enjoy life!

Peace Al
by radnyc
Thu Aug 08, 2019 10:09 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: How crucial is the HAI pump?
Replies: 42
Views: 2480

Re: How crucial is the HAI pump?

The HAI protocol is a combination of chemo directly injected into the pump which then goes straight to your liver and systemic chemotherapy delivered by traditional methods, usually a port in your chest. I don’t believe they’ll do colon surgery while you’re on HAI, they’d prefer to have any other tu...

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