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by radnyc
Thu Jul 23, 2020 11:14 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Happy 16 year birthday/cancerversary to me.
Replies: 12
Views: 962

Re: Happy 16 year birthday/cancerversary to me.

Congrats! Your journey gave me hope 10 years ago and still does, keep posting it!
by radnyc
Tue Jul 14, 2020 1:22 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: 10 years since diagnosed
Replies: 19
Views: 4684

Re: 10 years since diagnosed

Hi JC, pretty much this was my approach: In my research there are only three things readily available that have shown to be effective in keeping from recurring. VITAMIN D, ASPIRIN and PHYSICAL EXERCISE. This can be checked by doing a PUBMED or google scholar database search. Vitamin D blood levels h...
by radnyc
Mon Jul 06, 2020 11:56 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Girlfriend wants to come to appointments
Replies: 13
Views: 1551

Re: Girlfriend wants to come to appointments

Do not feel guilty if you tell her not to come. You need to do YOU at this time in your life. My experience was that I did not want ANYONE around me during, treatments or after surgeries. It helped me and them in my opinion.
by radnyc
Thu Jul 02, 2020 3:54 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Update (treatments & CEA)
Replies: 19
Views: 2347

Re: Update (treatments & CEA)

Please look at Jack&Katies mommy’s post above. Keytruda might be a life-saving option for your case! I would DEMAND my oncologist look into it: “The FDA has approved the immunotherapy Keytruda for solid tumors with a tumor mutation burden of 10 or greater. This means that CRC patients with MSS t...
by radnyc
Thu Mar 19, 2020 5:50 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Clear scans!
Replies: 20
Views: 2487

Re: Clear scans!

Fantastic!! Congratulations!
by radnyc
Wed Feb 26, 2020 6:38 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Cea on the rise
Replies: 73
Views: 11068

Re: Cea on the rise

This is why I refused to let my significant other or family get too involved in my treatment, I felt that as the person undergoing the rigors of cancer I was not going to dump on them more than they already have to deal with. I did my own research, found the medical facility and treatment that I wan...
by radnyc
Mon Feb 24, 2020 11:00 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Cea on the rise
Replies: 73
Views: 11068

Re: Cea on the rise

Sounds like it's time to go straight to MSK and find out what the hell is going on. Far from an expert here, but I had the impression that the pump with FUDR is supposed to work in tandem with systemic chemo, and for some reason your H was left off of systemic chemo for months, and his HAI pump has...
by radnyc
Mon Feb 24, 2020 7:11 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Cea on the rise
Replies: 73
Views: 11068

Re: Cea on the rise

Think hard about removing the pump at this point, remember once it’s out it CAN NOT BE PUT BACK AGAIN, ever.
by radnyc
Mon Feb 24, 2020 11:11 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Cea on the rise
Replies: 73
Views: 11068

Re: Cea on the rise

Darn! Sorry to hear this, sounds like the team at OSU weren't up to speed. Any chance you two can go to MSK to address these issues? I'm sure they'll know what to do fast.
by radnyc
Sat Feb 15, 2020 11:26 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Cea on the rise
Replies: 73
Views: 11068

Re: Cea on the rise

Try not too be too stressed about this. Seems that no one knows yet exactly what is causing the CEA rise. It’s possible that it’s temporary and not cancer related. I would concentrate on recovery, stress relief and healthy eating. Do the PET scan, take it from there. it’s a bit early to panic in my ...
by radnyc
Fri Feb 07, 2020 11:27 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: HELP its grown. Please I'm sick I can't breath
Replies: 18
Views: 2923

Re: HELP its grown. Please I'm sick I can't breath

I feel your pain, be strong. Are you been seen at a well regarded cancer hospital? If not try to find one. There are various treatments and therapies that your local clinic or oncologist does not have access to. Don’t give up hope.

Peace
Al
by radnyc
Sun Feb 02, 2020 7:52 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Versatile race-car driver John Andretti dies at 56
Replies: 2
Views: 1376

Re: Versatile race-car driver John Andretti dies at 56

Just pointing out that anal cancer is different from colorectal cancer. Anal cancer is of different cellular origin, cause and treatment, and more fatal
by radnyc
Tue Jan 28, 2020 9:13 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: 10 years since diagnosed
Replies: 19
Views: 4684

10 years since diagnosed

It was 10 years ago today when I found out I had cancer after a colonoscopy. What a trip, don’t wish it on anyone. But, things have turned out ok. A combination of good medical care, self care and luck got me to today. Being on the board helped me out a lot, grateful. Best to all in the middle of it...
by radnyc
Sun Jan 26, 2020 9:41 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Feeling good, Living Life even tho Stage 4
Replies: 2
Views: 921

Re: Feeling good, Living Life even tho Stage 4

Great news, I think your keto diet is something a lot of us cancer people should explore. Makes sense to me.
by radnyc
Tue Jan 21, 2020 6:55 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: HAI PUMP OUT TODAY!
Replies: 3
Views: 1270

Re: HAI PUMP OUT TODAY!

Awesome! He'll be so happy to have it out of him. Recovery was quick and painless, went home the same day.

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