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by radnyc
Fri Nov 02, 2018 6:29 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: New and nervous
Replies: 6
Views: 516

Re: New and nervous

The fear that a colonoscopy causes on so many is probably the reason a big percentage of colon cancers are not found early. How do we make it less frightening? I never had a fear of it, but I suppose it’s different when you have to do it during treatment as opposed to doing it preventively. I’ve had...
by radnyc
Fri Nov 02, 2018 6:20 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: How young is too young for COLONOSCOPY
Replies: 9
Views: 532

Re: How young is too young for COLONOSCOPY

Your reaction is totally understandable, it seems very rare for a 14 year old to have colon cancer, but it has happened. With your husband’s history I would be a little worried too. 14 is not too young for a colonoscopy, if odd symptoms persist I would go that route, better to be sure.
by radnyc
Thu Nov 01, 2018 8:02 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: 23 years old with stage 4 colon cancer
Replies: 12
Views: 1639

Re: 23 years old with stage 4 colon cancer

I would seriously consider what rp1954 suggests. In your case it’s time to think outside the box. Peace!
by radnyc
Wed Oct 31, 2018 1:34 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Genome testing is back and looks really bad
Replies: 10
Views: 592

Re: Genome testing is back and looks really bad

Ok, I would not freak out about genetic testing. They’re not foolproof. I would concentrate on what I need to focus on now. Having family members regularly screened for CR is always a good idea. No need for genome test for that.
by radnyc
Tue Oct 30, 2018 11:24 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Hospitals that install HAI pump?
Replies: 39
Views: 2028

Re: Hospitals that install HAI pump?

As someone who had the Codman pump for five years, I asked for it to be removed, I find it odd that it was allowed to be decommissioned. It’s clearly a well designed device that was successfully used for decades. It requires no batteries and only needed maintenance once every three months. With the ...
by radnyc
Fri Oct 12, 2018 12:35 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Question about necessity of CEA labwork
Replies: 31
Views: 2289

Re: Question about necessity of CEA labwork

Pam, that all sounds very positive for your dad. Seems the oncologist is taking his age into account, as he should, to guide the treatment. Keep us informed.
by radnyc
Tue Oct 09, 2018 7:41 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Question about necessity of CEA labwork
Replies: 31
Views: 2289

Re: Question about necessity of CEA labwork

My two cents. Your dad is 87 years old. If the cancer is stage 2 and slow moving I would not subject myself to invasive procedures, surgeries or aggressive chemotherapy. I would be finding a way to fight the disease mildly and concentrate on quality of life. Your dad in fact might die from old age o...
by radnyc
Fri Sep 21, 2018 8:42 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Biopsy came back positive. Now what?
Replies: 10
Views: 1351

Re: Biopsy came back positive. Now what?

Since you don’t have mets anywhere else, you’re a great candidate for the HAI pump treatment at MSK. I would be calling them today.
by radnyc
Mon Aug 13, 2018 12:48 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Any Stage 4 long term survivors/cured ?
Replies: 23
Views: 6520

Re: Any Stage 4 long term survivors/cured ?

Clear, NED, cured? who knows, but cancer free since 2010. Just keep doing what you're doing, take care of your health, and try to enjoy living.

Peace,

Al
by radnyc
Tue Jun 26, 2018 7:44 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Is the day that chemo treatment ...
Replies: 17
Views: 3832

Re: Is the day that chemo treatment ...

I worked through chemo. Only took Friday, every other week off. Used that weekend to be as relaxed as possible. Went back to work Monday, that was the toughest day.
by radnyc
Mon Jun 18, 2018 7:45 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: A cautionary tale
Replies: 15
Views: 4769

Re: A cautionary tale

I believe that suppplements, meditation and other non “science based” alternatives are very useful and have helped enhance, ameliorate and yes helped people stay healthy and most probably cured some. Some of these are things that have been used for millennia. Yes, they need to be used as complimenta...
by radnyc
Wed Jun 13, 2018 2:51 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Got both good news and scary news (HAI pump)
Replies: 18
Views: 4407

Re: Got both good news and scary news (HAI pump)

Something minor to add here. The gall bladder is not an organ. It's just a storage sack for bile that is produced by the liver. Bile aids in digestion of lipids/fats as it helps dissolve lipids/fats into solution. People do have a pretty normal life after having their gall bladder removed. But you ...
by radnyc
Tue Jun 12, 2018 2:19 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Got both good news and scary news (HAI pump)
Replies: 18
Views: 4407

Re: Got both good news and scary news (HAI pump)

I only have one suggestion for you: GET THE PUMP! It has saved the lives of a lot of people. Kemeny and her team will take great care of you! Gallbladders are practically a useless appendage, like your appendix. Believe me I don’t miss it one day.
by radnyc
Fri Jun 01, 2018 5:00 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: No, we don't have the best healthcare system
Replies: 24
Views: 4392

No, we don't have the best healthcare system

Same results, half the cost. http://www.fredhutch.org/en/news/center-news/2018/05/canada-us-comparison-colorectal-cancer-cost-outcomes.html "Among patients newly diagnosed with metastatic colorectal cancer, the study found average per-patient costs across all chemotherapy treatments were $12,34...

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