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by radnyc
Sat Mar 16, 2019 2:50 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Possibly still NED...our story to date
Replies: 90
Views: 6148

Re: Possibly still NED...our story to date

mpbser wrote:Were you instructed to do the spirometer breathing upon discharge?


Yes
by radnyc
Sat Mar 16, 2019 11:40 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Possibly still NED...our story to date
Replies: 90
Views: 6148

Re: Possibly still NED...our story to date

So, here is the latest. What a long week and half!!! I don't know what has been the most difficult: the drama during surgery regarding the conflicting decisions about the pump between the oncologist and surgeon (a story yet to be told), the last minute change of plans with a friend leaving me in a ...
by radnyc
Fri Mar 15, 2019 2:47 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Discharged with abnormal ECG
Replies: 11
Views: 346

Re: Discharged with abnormal ECG

He went in with heart issues, sounds to me like abnormal ECG is the norm for him. I’m sure they wouldn’t release him unless they were sure he’s ok.
by radnyc
Mon Mar 11, 2019 2:51 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Seeking advice of colorectal cancer Survivors
Replies: 5
Views: 439

Re: Seeking advice of colorectal cancer Survivors

What I believe helped me through chemo were three things: exercise, walking or running, acupuncture really helped and Coriolus versicolor or Turkey tail mushroom supplements. There are a few brands out there, but this is the one I used and still use: Mushroom science, https://mushroomscience.com/cor...
by radnyc
Mon Mar 11, 2019 11:45 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Marking time from first diagnosed or??
Replies: 10
Views: 335

Re: Marking time from first diagnosed or??

I believe it starts when there’s no evidence of disease. Not at the point of initial diagnosis.
by radnyc
Sat Mar 09, 2019 11:34 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Never mind
Replies: 18
Views: 781

Never mind

Deleted
by radnyc
Fri Mar 08, 2019 8:33 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Post surgery ALT and AST off the charts
Replies: 23
Views: 760

Re: Post surgery ALT and AST off the charts

Thank goodness I was there this afternoon when the fellows came in to do their second rounds of the day. They explained to me that it's very common when there are ablations for those liver enzymes to jump up that high. What a relief that it is totally normal. He said that they may go up still in th...
by radnyc
Fri Mar 08, 2019 2:06 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Just can't let it go
Replies: 31
Views: 1319

Re: Just can't let it go

Let it go
by radnyc
Fri Mar 08, 2019 10:45 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Possibly still NED...our story to date
Replies: 90
Views: 6148

Re: Possibly still NED...our story to date

I believe you made the right decision. You're in the best hands in the cancer business. Now, once he's healed up and moving around I recommend you lay off all the supplements at least for 6 months. And as your husband came in obese into this situation, concentrate in weight loss and nutrition. Organ...
by radnyc
Tue Mar 05, 2019 5:38 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Possibly still NED...our story to date
Replies: 90
Views: 6148

Re: Possibly still NED...our story to date

“>>> Given the track record we've had thus far, I don't hold my breath to get any answer.... I really hate this woman.“ Well, that’s pretty telling. I think that if you’re are so set against it, don’t bother. But make sure it’s your husband that makes the final decision, he’ll have to live with it.
by radnyc
Mon Mar 04, 2019 4:28 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: My CRC with liver mets journey
Replies: 66
Views: 7051

Re: My CRC with liver mets journey

On the drinking thing, as much as I enjoy an alcoholic beverage, for the first two years with the pump I abstained. Non-alcoholic beer occasionally. Yes the idea is to not stress the liver, it's getting hit with massive doses of poison, ehr chemo. After two years, you can pretty much go back to your...
by radnyc
Wed Feb 27, 2019 8:14 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Possibly still NED...our story to date
Replies: 90
Views: 6148

Re: Possibly still NED...our story to date

The woman is 70+ years old. She might kick the bucket soon! What I’ve been trying to say is that she’s not the only oncologist there that can do this. The HAI treatment has been studied at MSK for decades. There are a large group of oncologists trained by Kemeny and others. Give her a break. My reco...
by radnyc
Tue Feb 26, 2019 6:30 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Possibly still NED...our story to date
Replies: 90
Views: 6148

Re: Possibly still NED...our story to date

I feel the need to say something about MSK and Dr. Kemeny. First off she's not the ONLY oncologist there, they have several, well known, and experienced doctors. In fact and I just looked it up, they have 46 Gastroenterologist and Medical Oncologists dealing with colon cancer patients, that's a lot....

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