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by supportingsister
Sat Nov 24, 2018 6:31 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: De Epstein Sloane Kettering
Replies: 0
Views: 1764

De Epstein Sloane Kettering

Hi I am in an emergency situation at mass general. My sister needs a hospital to hospital transfer to Sloane Kettering, we are having trouble getting in touch with her Oncologist Dr Epstein. He gave me his cell at one point but I don’t have. Can anyone share it. Again this is an emergency. We spoke ...
by supportingsister
Thu Sep 20, 2018 9:58 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Anyone with Kras and her2 mutations?
Replies: 2
Views: 772

Anyone with Kras and her2 mutations?

My sister was officially rejected for the hai pump at msk yestwrsay because of a 3mm nodule in her lung. She has several under 1cm mets on her liver that responded poorly to the last round of chemo. She has a Kras and Her2 mutation. According to dr Epstein, it disqualified her for several current cl...
by supportingsister
Mon Sep 17, 2018 6:43 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rejected at mskcc because of 3mm possible ling met
Replies: 5
Views: 1027

Re: Rejected at mskcc because of 3mm possible ling met

Thank you We are going to mskcc weds although they said no to the hai pump. DAna Farber next Tues. She’s in Boston. Stage 2 in 2011. Ned for 3 years. Cancer returned to her abdomen wall. Dana farther recommended chemo for the “remainder of her life” which they gave her a year. She’s since been at MG...
by supportingsister
Mon Sep 17, 2018 11:58 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rejected at mskcc because of 3mm possible ling met
Replies: 5
Views: 1027

Rejected at mskcc because of 3mm possible ling met

Hi my sister has been battling for 7 years. She currently has 7 inoperable >1cm on liver. She has been trying to get to mskcc for the hai pump. This morning they called her and said they would not see her due to a 3mm possible met on her lungs. Are there other hospitals that we should try?
by supportingsister
Tue Sep 11, 2018 4:05 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Hai pumps?
Replies: 8
Views: 1422

Re: Hai pumps?

Thank you so much for the information. Mgh does not offer hai pumps and sends people to SKM. As of this morning, my sister was still waiting on the appointment. Sounds like things have been sorted out in the last few weeks. You guys are far more in the know then many doctors.
by supportingsister
Tue Sep 11, 2018 9:40 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Hai pumps?
Replies: 8
Views: 1422

Re: Hai pumps?

Thank you. Her oncologist, Dr Nip, contacted Dr Epstein directly yesterday. We are waiting for an appointment. Dr Nip believes that SKM is no longer offering that treatment. I’m hoping he is wrong. I’m also hoping we can get some back up hospitals, like Anderson, who still have pumps available if SK...
by supportingsister
Tue Sep 11, 2018 9:22 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Hai pumps?
Replies: 8
Views: 1422

Hai pumps?

Hello, My sister has been fighting stage IV colon cancer four years. She currently has inoperatable mets on her liver. We were hoping to go to SKM this month and discuss the possibility of a hai pump, only to learn that the treatment is being discontinued since the company stopped making the pump. S...
by supportingsister
Fri Jun 22, 2018 11:54 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: New user. 4 months after HIPEC, spots on liver and peritoneum, please please help me
Replies: 5
Views: 1218

Re: New user. 4 months after HIPEC, spots on liver and peritoneum, please please help me

Yes. About one year after my suster’s Hipec surgery, they found a “reoccurance” in her abdominal wall. Drs were dismal convinced she was doomed. Well a month before, my sister thought she signed up for a 5k, but had accidentally signed up for a half marathon. And she ran it. It wasn’t cancer. Scar t...
by supportingsister
Wed Jun 13, 2018 1:43 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Recommendations for stage 4/liver mets
Replies: 6
Views: 1158

Re: Recommendations for stage 4/liver mets

Thank you. I’ve given her the information about Dr. Kemeny. Fingered-crossed that she makes an appointment. I’m extremely disappointed mgh didn’t even mention the possibility of a HAI pump, I did some research and it seems like a good option. My sister is not on this board, but anybody would be will...
by supportingsister
Mon Jun 11, 2018 5:43 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Recommendations for stage 4/liver mets
Replies: 6
Views: 1158

Recommendations for stage 4/liver mets

Hello, My sister 45 was diagnosed with stage 2b colon cancer in 2011. In 2015, she has hipec and was disease free until feb 2018 when a new tumor developed in her colon and 2 liver mets. They did a second resection and abalation. First scan was clear, but repeat last week showed 5 small liver mets. ...
by supportingsister
Mon May 11, 2015 1:58 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: HIPEC
Replies: 6
Views: 1313

Re: HIPEC

My sister is currently in the hospital, she had HIPEC on May 7th. She was diagnosed with stage II three years ago at age 39 ( OCt 2011). Three years of NED and then Dec 2014 they found small mets on her ovaries and her peritoneal lining. Her original oncologist 1% chance of remission and chemo for t...
by supportingsister
Tue Oct 18, 2011 8:02 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Colon cancer is helping our family heal.
Replies: 6
Views: 867

Colon cancer is helping our family heal.

My sister was diagnosed with colon cancer 3 weeks ago. , I have a brother, who I haven't seen in 18 years. He is wonderful person, but lives far away, his mother and our father divorced when he was young, our father died young, and there has always of unresolved issues with his relationship with our...
by supportingsister
Tue Oct 18, 2011 7:47 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Loss of my sister
Replies: 33
Views: 2504

Re: Loss of my sister

I am so terribly sorry. My sister, the mother of a 3 and 4 year old, was recently diagnosed. We also lost our parents young, so my heart breaks for you. You are in my thoughts and prayers. May you find comfort in your sister's spirit and in her memory.


Elizabeth
by supportingsister
Sun Oct 16, 2011 9:12 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: colon cancer ?
Replies: 6
Views: 844

Re: colon cancer ?

Well, it is normal to have bleeding with pregnancy. The same thing you are describing happened to my sister, and progressively got worse after my niece (now 3) was born. The doctors were very dismissive, telling my sister that it was just hemorroids related to giving birth. 3 weeks ago, she finally ...

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