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by Jachut
Wed Sep 04, 2019 7:11 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Did anyone ever decide to go back to ileostomy after reversal
Replies: 34
Views: 6091

Re: Did anyone ever decide to go back to ileostomy after reversal

I went back for a permanent colostomy two years later. For me, the only acceptable outcome after all my treatment was over was normal bowel function. My surgeon spoke about eight bowel movements a day and never sitting through Titanic again as if that wasnt a big deal. I hated it, it made life miser...
by Jachut
Wed Sep 04, 2019 7:06 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: What can I do about diarrhea-like cramps?
Replies: 10
Views: 1229

Re: What can I do about diarrhea-like cramps?

I hate to say it but this has been a constant companion for me in the ten years since my ultra low anterior resection. Just diarrhoea cramps, a bit like period pain every time you eat. My bowel movements are also more often than not completely liquid. I have tried every combination of diet, fibre, i...
by Jachut
Wed Sep 04, 2019 6:58 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Daily Enema Therapy for LARS
Replies: 23
Views: 4631

Re: Daily Enema Therapy for LARS

I managed an obstruction problem for about 18 months with enemas. I had progressively worsening radiation damage which lead to obstructed defecation - I need an enema to go a t all, so I was not a typical post ULAR patient at all. However I found the enema process effective but a major drain on my q...
by Jachut
Thu Feb 07, 2019 2:41 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal cancer
Replies: 7
Views: 1450

Re: Rectal cancer

I was diagnosed with a low rectal tumour in 2010 at the age of 42. I've so much gotten on with my life that I barely visit here anymore. I was T2N0M0, had a complete response to radiation, had surgery and 6 months of chemo and have had all clean colonoscopies since. However, I'd say it had a fairly ...
by Jachut
Thu Oct 12, 2017 5:27 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Xeloda/IMRT Radiation Side Effetcs? Rectal Cancer
Replies: 8
Views: 3804

Re: Xeloda/IMRT Radiation Side Effetcs? Rectal Cancer

Immediate side effects were very minimal for me, maybe because I went in very fit, a healthy weight and not sick from having cancer. I needed a bit of nausea relief and that was it. I did lose alarming amounts of weight it literally fell off me. 10kg over the six weeks, without any diarrhoea, vomiti...
by Jachut
Thu Oct 12, 2017 5:12 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: One piece or two piece appliance?
Replies: 6
Views: 1507

Re: One piece or two piece appliance?

Its such a personal thing. For me, it was one piece all the way for both ileostomy and colostomy - drainable for the ileostomy, closed for the colostomy. I'm lucky that in Australia, our scheme is very generous so I put on a clean pouch every morning (even if there's been absolutely no output overni...
by Jachut
Thu Oct 12, 2017 5:01 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: 9yrs later..
Replies: 10
Views: 2074

Re: 9yrs later..

Funny, I dropped it in today after literally years too. Congrats on your good results - I probably dropped in because I just had a scan and bloodwork after seven years. It was supposed to be my last one, I had the scan and headed off to Thailand for a holiday. One night I sat bolt upright in the mid...
by Jachut
Tue Aug 23, 2016 3:58 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: LAR surgery - what to expect
Replies: 20
Views: 3443

Re: LAR surgery - what to expect

Also on a positive side note.. How does a cancer DX change your life or lifestyle. For me I'm thinking about selling all my investments, getting that fishing boat that I want, the 4wd I want and doing some house renovations for the family. Hey I might not see it through until 50 but why not enjoy l...
by Jachut
Sun Aug 21, 2016 3:42 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: LAR surgery - what to expect
Replies: 20
Views: 3443

Re: LAR surgery - what to expect

I always hesitate to answer this type of question because I really don't want to sound flippant, but I found ULAR really pretty easy. I had youth (42) and a very good physical fitness on my side, I was not overweight and I qualified for laparascopic surgery, nor was I yet sick, weakened or otherwise...
by Jachut
Sat Aug 20, 2016 4:23 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Well there goes the hair!
Replies: 16
Views: 2811

Re: Well there goes the hair!

I thought about this a lot - thinking about cancer was way too scary so I focussed on how I'd handle losing my hair instead. I know for me, I'd be a wig wearer. I am pretty fussy about hair. I am happy to spend $200 on a cut and colour every six weeks. I blow dry and straighten daily. I am blessed w...
by Jachut
Thu Aug 18, 2016 4:15 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Random dull side pain
Replies: 10
Views: 2272

Re: Random dull side pain

I have a complete catalogue of abdominal pains that I get now, some years post cancer surgery. The one I find most bothersome is the left side stitch after eating. I've learned to size my meals so that I stop a smidge before a full stomach. Past a certain point and I get a stitch in my side that is ...
by Jachut
Sat Aug 13, 2016 5:41 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Bowel obstruction
Replies: 12
Views: 3122

Re: Bowel obstruction

Chemo caused this problem for me too - I think I had 3 hospitalisations. They werent bad ones, but the first two times, I had a reduction in the 5FU (I had 24 weekly IV doses prescribed). The third time happened after the 18th dose and my onc decided to just finish me there. I was a stage II though.
by Jachut
Fri Aug 12, 2016 6:19 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Afraid to eat
Replies: 11
Views: 2263

Re: Afraid to eat

I agree - you have to do what you need to do. I've got a double whammy as I have a lap band too. Not that that makes eating difficult but there is no way I want to sit and eat a meal the size most people eat. I am not super skinny or wasting away - I eat plenty - but I don't eat a whole hamburger in...
by Jachut
Fri Aug 12, 2016 2:16 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Ferritin
Replies: 5
Views: 1515

Re: Ferritin

Blows your mind, doesnt it? My first symptoms (and in hindsight they were very clear symptoms) were at least seven years prior to my diagnosis. Because I was a female in her mid 30's docs felt confident chalking it up to menstrual issues and never ever suggested a colonoscopy or FOBT or even just re...
by Jachut
Wed Aug 10, 2016 3:55 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Ferritin
Replies: 5
Views: 1515

Re: Ferritin

If you've had a slow bleed, your body will have been using up all its stored iron to maintain normal hemaglobin levels. So you may not be "anaemic" but can have very low ferritin. It takes several months to build it up again with supplementation. The fact that you've bounced back to 14 is ...

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