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by janklo
Mon Oct 09, 2017 9:13 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Looking for HIPEC Experiences
Replies: 15
Views: 857

Re: Looking for HIPEC Experiences

This is a blog I found awhile back of a woman with gastric cancer. I would definitely consult another oncologist for another opinion!

https://carmentotriumph.wordpress.com/2013/06/
by janklo
Thu Aug 10, 2017 12:43 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: My mom diagnosed with colorectal cancer
Replies: 17
Views: 1538

Re: My mom diagnosed with colorectal cancer

Deb--I live in Omaha. You could see about your mom going to UNMC. That is a university research hospital and I know others who have been treated there. It's in Omaha. PM me for the name of an oncologist/surgeon. I think you don't need to go to Mayo, your mom can get treatment close to home. My daugh...
by janklo
Sat May 27, 2017 9:14 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Alarming symptoms (constipation, long term pencil stool)
Replies: 6
Views: 802

Re: Alarming symptoms (constipation, long term pencil stool)

Do you eat products with a lot of sugar? I cut sweets and sweet tea from my diet and that fixed my constipation issue. Laxatives didn't work that well for me. I tested it too and if I drink sweet tea, I have issues again. Just though I'd suggest thAt.
by janklo
Wed May 17, 2017 12:26 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: My forum family
Replies: 48
Views: 3948

Re: My forum family

I am so sorry. She must have been in a lot of pain. Praying for understanding for your family.
by janklo
Sat May 13, 2017 6:00 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Mom of an adult with Stage 4 CRC
Replies: 8
Views: 865

Re: Mom of an adult with Stage 4 CRC

Hi Janet from another Janet! I had same situation. We live in Nebraska, our daughter lived in Dallas. She was living with a boyfriend when diagnosed but then that didn't last so she was single and alone. Lots of good friends who provided support and we made lots of trips to Texas. I'd be happy to gi...
by janklo
Fri Apr 21, 2017 12:30 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Back on the panic train!-UPDATE
Replies: 16
Views: 2116

Re: Back on the panic train!

Lydia, funny story, when my daughter was about a year out from diagnosis she had red in her stool and went to the ER. Tests revealed it was not blood but food dye. Them she remembered she had eaten red velvet cake.

So hopefully yours is the same kind of silly thing!
by janklo
Wed Nov 30, 2016 10:34 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: On a Dime
Replies: 11
Views: 936

Re: On a Dime

My 25 year old daughter was diagnosed the same way--trip to ER. She lived 10 hours away from us. She had been used to living on her own. You will just have to be there when your son needs you but let him make his own decisions. One thing he may need advice on. . . .he must be sure to keep health ins...
by janklo
Tue Nov 29, 2016 5:45 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Signet Ring Cell Cancer of the Sigmoid Colon
Replies: 18
Views: 3881

Re: Signet Ring Cell Cancer of the Sigmoid Colon

Hi Becky! My daughter had signet ring cell. I've done a lot of research on it. My advice for you is to stay on top of all your appointments and testing. It can be aggressive, that's true. Just make sure to get your scans in, fight your insurance company if you have to. I believe SRC can be a chronic...
by janklo
Wed Aug 03, 2016 4:57 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Pretty sure I have hereditary colon cancer
Replies: 4
Views: 520

Re: Pretty sure I have hereditary colon cancer

I've never heard of this disease and it's unlikely you have it. But--is there some kind of genetic testing you can get? That would put your mind at ease. Also online it says dentists can diagnose this. Have you talked with your dentist? Don't drive yourself sick worrying, get some answers.
by janklo
Fri Jul 29, 2016 12:40 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: 3 cancers- looking for positive stories
Replies: 13
Views: 1373

Re: 3 cancers- looking for positive stories

Will they test for signet ring cell? My moms bc went to her liver but it was bc cells.

The good news is that breast cancer has new treatments and is very close to being a chronic illness. Our family volunteers for Komen and so many new advances right now.

Keep on fighting!
by janklo
Thu Jul 14, 2016 5:05 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Evolution of breast cancer- update
Replies: 14
Views: 941

Re: Evolution of breast cancer

My mom died from bc. Three times I've had something weird show up on mammograms and had ultrasound, mri and even 2 biopsies and it was nothing. There's a lot of false positives on mammograms. but--with signet ring cell, that is aggressive and it can spread to breast tissue, so definitely best to che...
by janklo
Tue Jul 12, 2016 8:16 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: CEA Levels >6000
Replies: 12
Views: 1722

Re: CEA Levels >6000

When my daughter was diagnosed hers was super high, like 4500. I thought she had heard wrong because on this board no one mentioned numbers that high but she was right. After surgery and chemo hers went to normal and never elevated again even when she knew she had peritoneal mets. But for her CA19-9...
by janklo
Sun Jul 10, 2016 6:53 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: New Member HIPEC questions ?
Replies: 14
Views: 1518

Re: New Member HIPEC questions ?

Hello--our daughter had the HIPEC surgery. Once attempted with Dr Loggie and then about 10 months later with a doctor in Dallas. It is possible for chemo to shrink peritoneal mets; however I think your husband will be in for more chemo. It's almost like an insurance policy against recurrence. So he ...
by janklo
Thu Jun 23, 2016 8:16 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Checklist for spouse upon my demise
Replies: 6
Views: 890

Re: Checklist for spouse upon my demise

When our daughter was sick at the end, we had a legal power of attorney so we could access her accounts and such. She kept all her account info in a spreadsheet in her computer with the website, account info and password. In the last few weeks, she was unable to make decisions about bills and things...
by janklo
Wed Jun 22, 2016 5:05 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Newly diagnosed and scared stiff
Replies: 25
Views: 2322

Re: Newly diagnosed and scared stiff

You did the hardest part--you have family history and you got the colonoscopy. The thing I would say is if you have to get cancer, now is the best time in history to get it. Scientists are so so close to way more effective treatments and even a cure. You just have to get through the surgery and get ...

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