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by janklo
Thu Nov 14, 2019 6:38 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: 10 Years and Counting
Replies: 30
Views: 4627

Re: 10 Years and Counting

Thanks for the update! So glad you are doing well! Life goes on, I have two little granddaughters now and rarely check this forum, but I am so happy to hear your update on life! Yay! You are an inspiration Michael. :)
by janklo
Mon Jun 03, 2019 3:28 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Dr Henry Lynch
Replies: 3
Views: 826

Dr Henry Lynch

Dr Henry Lynch, a well known colon cancer researcher, died today. He is the one who named "Lynch Syndrome" I live in Omaha and that's where he worked.


https://www.ketv.com/article/dr-henry-l ... 1/27703593
by janklo
Mon Feb 19, 2018 8:27 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Health Insurance Help
Replies: 13
Views: 2728

Re: Health Insurance Help

Crystal, I work in Payroll,so I wanted to clarify that FMLA is actually 12 weeks times 40 hours and it can be taken intermittently, so if your can work at least half time, that stretches out the FMLA time period, it’s not just 12 weeks. Our company must be super generous, we allow people to miss the...
by janklo
Mon Oct 09, 2017 9:13 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Looking for HIPEC Experiences
Replies: 15
Views: 5294

Re: Looking for HIPEC Experiences

This is a blog I found awhile back of a woman with gastric cancer. I would definitely consult another oncologist for another opinion!

https://carmentotriumph.wordpress.com/2013/06/
by janklo
Thu Aug 10, 2017 12:43 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: My mom diagnosed with colorectal cancer
Replies: 17
Views: 3657

Re: My mom diagnosed with colorectal cancer

Deb--I live in Omaha. You could see about your mom going to UNMC. That is a university research hospital and I know others who have been treated there. It's in Omaha. PM me for the name of an oncologist/surgeon. I think you don't need to go to Mayo, your mom can get treatment close to home. My daugh...
by janklo
Sat May 27, 2017 9:14 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Alarming symptoms (constipation, long term pencil stool)
Replies: 6
Views: 2053

Re: Alarming symptoms (constipation, long term pencil stool)

Do you eat products with a lot of sugar? I cut sweets and sweet tea from my diet and that fixed my constipation issue. Laxatives didn't work that well for me. I tested it too and if I drink sweet tea, I have issues again. Just though I'd suggest thAt.
by janklo
Wed May 17, 2017 12:26 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: My forum family
Replies: 48
Views: 9958

Re: My forum family

I am so sorry. She must have been in a lot of pain. Praying for understanding for your family.
by janklo
Sat May 13, 2017 6:00 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Mom of an adult with Stage 4 CRC
Replies: 8
Views: 1938

Re: Mom of an adult with Stage 4 CRC

Hi Janet from another Janet! I had same situation. We live in Nebraska, our daughter lived in Dallas. She was living with a boyfriend when diagnosed but then that didn't last so she was single and alone. Lots of good friends who provided support and we made lots of trips to Texas. I'd be happy to gi...
by janklo
Fri Apr 21, 2017 12:30 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Back on the panic train!-UPDATE
Replies: 16
Views: 4162

Re: Back on the panic train!

Lydia, funny story, when my daughter was about a year out from diagnosis she had red in her stool and went to the ER. Tests revealed it was not blood but food dye. Them she remembered she had eaten red velvet cake.

So hopefully yours is the same kind of silly thing!
by janklo
Wed Nov 30, 2016 10:34 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: On a Dime
Replies: 11
Views: 2102

Re: On a Dime

My 25 year old daughter was diagnosed the same way--trip to ER. She lived 10 hours away from us. She had been used to living on her own. You will just have to be there when your son needs you but let him make his own decisions. One thing he may need advice on. . . .he must be sure to keep health ins...
by janklo
Tue Nov 29, 2016 5:45 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Signet Ring Cell Cancer of the Sigmoid Colon
Replies: 19
Views: 8419

Re: Signet Ring Cell Cancer of the Sigmoid Colon

Hi Becky! My daughter had signet ring cell. I've done a lot of research on it. My advice for you is to stay on top of all your appointments and testing. It can be aggressive, that's true. Just make sure to get your scans in, fight your insurance company if you have to. I believe SRC can be a chronic...
by janklo
Wed Aug 03, 2016 4:57 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Pretty sure I have hereditary colon cancer
Replies: 4
Views: 1063

Re: Pretty sure I have hereditary colon cancer

I've never heard of this disease and it's unlikely you have it. But--is there some kind of genetic testing you can get? That would put your mind at ease. Also online it says dentists can diagnose this. Have you talked with your dentist? Don't drive yourself sick worrying, get some answers.
by janklo
Fri Jul 29, 2016 12:40 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: 3 cancers- looking for positive stories
Replies: 13
Views: 2851

Re: 3 cancers- looking for positive stories

Will they test for signet ring cell? My moms bc went to her liver but it was bc cells.

The good news is that breast cancer has new treatments and is very close to being a chronic illness. Our family volunteers for Komen and so many new advances right now.

Keep on fighting!
by janklo
Thu Jul 14, 2016 5:05 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Evolution of breast cancer- update
Replies: 14
Views: 1979

Re: Evolution of breast cancer

My mom died from bc. Three times I've had something weird show up on mammograms and had ultrasound, mri and even 2 biopsies and it was nothing. There's a lot of false positives on mammograms. but--with signet ring cell, that is aggressive and it can spread to breast tissue, so definitely best to che...
by janklo
Tue Jul 12, 2016 8:16 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: CEA Levels >6000
Replies: 12
Views: 2870

Re: CEA Levels >6000

When my daughter was diagnosed hers was super high, like 4500. I thought she had heard wrong because on this board no one mentioned numbers that high but she was right. After surgery and chemo hers went to normal and never elevated again even when she knew she had peritoneal mets. But for her CA19-9...

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