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by weisssoccermom
Tue Jun 19, 2018 5:45 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: What should I expect for port placement???
Replies: 21
Views: 143

Re: What should I expect for port placement???

When I was taking Xeloda, yes, it was EXPENSIVE but back then, there were no restrictions from the insurance companies. Nowadays, with a generic form of Xeloda, I don't think any insurance companies have an issue with this option. I have heard, however, than some insurance companies require the pati...
by weisssoccermom
Tue Jun 19, 2018 5:05 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: What should I expect for port placement???
Replies: 21
Views: 143

Re: What should I expect for port placement???

You are correct that Xeloda has a much higher chance of hand/foot syndrome than infused 5FU but studies have shown that overall, people tolerate Xeloda much better than infused 5FU. I've had both and can only speak for myself but when I was on 5FU I felt TERRIBLE. The leucovorin exacerbates the side...
by weisssoccermom
Tue Jun 19, 2018 3:37 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: What should I expect for port placement???
Replies: 21
Views: 143

Re: What should I expect for port placement???

The combo you are given is FOLFOX and you will need a port. You may want to ask for XELOX instead. That way, you wouldn't have a pump for 48 hours. EVERY study has shown that Xelox is just as effective as Folfox and even if you have a port, you wouldn't need the pump for 48 hours and then wouldn't n...
by weisssoccermom
Tue Jun 19, 2018 2:40 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: What should I expect for port placement???
Replies: 21
Views: 143

Re: What should I expect for port placement???

I guess I should clarify my last post. The normal chemo protocol is one of the following: FOLFOX (infused 5FU....go home with a pump for 48 hours + infusion at center of oxaliplatin).....necessary to have a port XELOX (oral 'form' of infused 5FU.....still have infusion of oxi at center) possible to ...
by weisssoccermom
Tue Jun 19, 2018 2:35 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: What should I expect for port placement???
Replies: 21
Views: 143

Re: What should I expect for port placement???

Oh my goodness NO....the pain is not that bad. My breast was bruised (looked icky but didn't really hurt). Mostly you're just sore.....more like a bad bruise. Now, I'll be realistic....I was told that I wouldn't even feel it and yes, to go ahead and go on vacation the next day. Would I do that again...
by weisssoccermom
Mon Jun 18, 2018 9:10 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: What should I expect for port placement???
Replies: 21
Views: 143

Re: What should I expect for port placement???

Hi Kathie, Welcome to the club. Others will certainly chime in but I will give you my take on it. Most people aren't technically put out but rather given a light sedation for the port placement. For me, I felt nothing so I truly wouldn't worry about it. On a side note, I was wide awake when they too...
by weisssoccermom
Sat Jun 16, 2018 7:36 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: blood clot in the in the brain and arms is it from Chemo?
Replies: 2
Views: 154

Re: blood clot in the in the brain and arms is it from Chemo?

A couple of facts that you should be aware of. 1. Cancer, by itself, predisposes a patient to blood clots. 2. Chemo can cause a patient to be diagnosed with a blood clot. Now, just because a patient has cancer doesn't mean that every can patient will end up having a clot. I was told that our bodies ...
by weisssoccermom
Mon Jun 04, 2018 10:26 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Stage 3 Sigmoid colon cancer metastasized to ovary, bladder, intestines, pelvic mass, unable to do surgery!!!
Replies: 13
Views: 603

Re: Stage 3 Sigmoid colon cancer metastasized to ovary, bladder, intestines, pelvic mass, unable to do surgery!!!

A CT isn't necessary if a PET, MRI or CT/PET was done. Some docs prefer a CT....some prefer a PET. Each test has its own benefits and it's own very different costs. My onc only did a CT UNLESS it showed something and then he would have ordered a PET. He personally wasn't a fan of the MRI. Other docs...
by weisssoccermom
Sun Jun 03, 2018 6:52 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Stage 3 Sigmoid colon cancer metastasized to ovary, bladder, intestines, pelvic mass, unable to do surgery!!!
Replies: 13
Views: 603

Re: Stage 3 Sigmoid colon cancer metastasized to ovary, bladder, intestines, pelvic mass, unable to do surgery!!!

I'm only guessing here, but even if the chemo shrinks the tumors, they are still likely going to take all of them out. When cancer is found, for example, on the outside of the colon, they remove that section of the colon. You are correct that cancer will almost certainly spread to the interior and/o...
by weisssoccermom
Sun Jun 03, 2018 4:17 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Stage 3 Sigmoid colon cancer metastasized to ovary, bladder, intestines, pelvic mass, unable to do surgery!!!
Replies: 13
Views: 603

Re: Stage 3 Sigmoid colon cancer metastasized to ovary, bladder, intestines, pelvic mass, unable to do surgery!!!

Welcome to our forum. I truly am sorry for the reasons you have to be here but welcome nevertheless. On to some of your questions. First of all, the surgery which I believe you are referring to is called a PELVIC EXENTERATION. Does that sound like the name the doctor stated? You need to understand t...
by weisssoccermom
Tue May 29, 2018 6:23 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Not sure if this is a stupid question, but ...
Replies: 6
Views: 386

Re: Not sure if this is a stupid question, but ...

I did my chemo and radiation locally. Oh, I went up to Seattle....to Fred Hutch ( part of Seattle Cancer Care Alliance rated as one of the top 5) and honestly, I didn't like it. While I was a stage IIA, they wanted to treat me as though I was some complicated case. They told me that they had better ...
by weisssoccermom
Mon May 28, 2018 11:00 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Chances of a 8mm or 15mm Polyp being cancerous?
Replies: 4
Views: 203

Re: Chances of a 8mm or 15mm Polyp being cancerous?

Most doctors will tell you that smaller polyps 'TEND' not to be cancerous BUT.....you can't know without getting the biopsy results. A few years back, my best friend had her scope and they found a very tiny polyp. Doc came into the recovery area and told her that it was a tiny polyp....not to worry....
by weisssoccermom
Wed May 23, 2018 9:53 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: New cancer diagnosis. Ugh!!
Replies: 32
Views: 1862

Re: New cancer diagnosis. Ugh!!

Look, if you are really uncomfortable with this surgeon, then by all means...STOP the surgery consult, don't schedule surgery and seek a second opinion. Unless your husband has a blockage or something equally emergent, waiting another week or two or even three is not going to impact the cancer. Now,...
by weisssoccermom
Tue May 22, 2018 9:18 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: New cancer diagnosis. Ugh!!
Replies: 32
Views: 1862

Re: New cancer diagnosis. Ugh!!

Should have added that YES, the presence of affected nodes does change the staging. Staging is made up of three components. T, N & M The "T" 'stage' (do not confuse this with overall staging) indicates how deeply the tumor has invaded the colon/rectal wall. It is IMPOSSIBLE for a docto...
by weisssoccermom
Tue May 22, 2018 9:12 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: New cancer diagnosis. Ugh!!
Replies: 32
Views: 1862

Re: New cancer diagnosis. Ugh!!

My one piece of advice.....DO NOT LET the surgeon tell you whether or not there should/should not be any follow up chemo and/or radiation. I don't care whether the surgeon is a board certified colorectal surgeon or not (my preference would be certified). NO surgeon should be giving advice like that....

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