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by weisssoccermom
Sun Oct 14, 2018 9:01 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Stay local or travel for Surgeon?
Replies: 17
Views: 685

Re: Stay local or travel for Surgeon?

When I was in treatment, I consulted with a Dr. David Medich in Pittsburgh who actually was doing a study with Dr. Habr-Gama (who is now the main investigator on the wait and watch protocol). Dr. Medich and Dr. Habr-Gama (she and I corresponded) both told me that the rate for a TEM AND chemoradiatio...
by weisssoccermom
Sun Oct 14, 2018 4:08 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Stay local or travel for Surgeon?
Replies: 17
Views: 685

Re: Stay local or travel for Surgeon?

The surgeon is correct that an excision alone has about a 15% recurrence rate, HOWEVER, the rate with chemoradiation and an excision for early stage cancers is close to the same rate as an LAR surgery. Obviously there is no guarantee and no way to know which patient benefits from this protocol but, ...
by weisssoccermom
Sun Oct 14, 2018 9:57 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Stay local or travel for Surgeon?
Replies: 17
Views: 685

Re: Stay local or travel for Surgeon?

Honestly, as someone who has been around for 12 years, I wouldn't travel. You're not talking about a tumor that is super close to the anal verge that you are so concerned about the QOL issues. I understand people believing that we should all go to a major cancer center BUT....it really isn't necessa...
by weisssoccermom
Fri Oct 12, 2018 7:56 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Question about necessity of CEA labwork
Replies: 31
Views: 1600

Re: Question about necessity of CEA labwork

Pam....I agree....why the genetic testing unless the onc is wanting to make sure that if there is something he can tell the siblings and children?? Will Medicare even pay for that? I'd check that before he has that test done just in case your dad gets stuck with a pricey bill! That would stink!! Not...
by weisssoccermom
Thu Oct 11, 2018 8:08 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Question about necessity of CEA labwork
Replies: 31
Views: 1600

Re: Question about necessity of CEA labwork

Well Hi! Haven't seen you around in a LONG time! Sorry to hear about your dad though. I was a stage IIA (rectal cancer) and even though it was patently obvious that CEA was not a good marker for me (at diagnosis level was 0.5 with a fairly large 4 X 6 cm tumor), my onc ran a test every 3 months, the...
by weisssoccermom
Sat Oct 06, 2018 11:26 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Baseline CEA correlation with metastasis and survival??
Replies: 12
Views: 772

Re: Baseline CEA correlation with metastasis and survival??

STOP!!! Based on your signature....your mom's CT results came back and everything was CLEAR. Hey, that's a GOOD sign. While no test is 100% foolproof....that CLEAR result on the CT scan means an M0....or, at least based on radiological studies...it isn't a stage IV. Read what I said....based on thos...
by weisssoccermom
Wed Oct 03, 2018 12:15 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: I am so worried.
Replies: 39
Views: 3134

Re: I am so worried.

The "T" stage is the depth that the tumor invades the colon/rectal wall. It has absolutely NOTHING to do with the actual size of the mass. One could have what appears to be a large mass (based on colonoscopy which, remember, can only see what is in the colon or rectum itself) but it is gro...
by weisssoccermom
Tue Oct 02, 2018 9:35 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: I am so worried.
Replies: 39
Views: 3134

Re: I am so worried.

rtcaspar.....I would like to ask you a question about your staging. Who told you that you are a stage I? You are given a clinical stage upon diagnoses with rectal cancer and even with just 5 days of radiation (presumably a stronger dose), your pathology report is NOT indicative of your actual stage....
by weisssoccermom
Mon Oct 01, 2018 5:32 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: I am so worried.
Replies: 39
Views: 3134

Re: I am so worried.

First of all, take a DEEP DEEP breathe! There's nothing that you can do to change things.....right now the best advice I can give you is to try and put the 'what ifs' behind you and look to the future. Ok, your mom has a mass in her rectum which is, based on the doctor's best guess....likely cancer....
by weisssoccermom
Thu Sep 13, 2018 9:36 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Bev G
Replies: 47
Views: 13153

Re: Bev G

Like many others who had a sense of dread in seeing the thread topic, so did I. It's frankly SHOCKING to hear of Bev's passing. She was one of the 'old guard'.....and sadly, there are few of us left. Bev and Ashley were dear friends and Bev took Ashley's passing hard (for the life of me I can't reme...
by weisssoccermom
Thu Sep 06, 2018 9:48 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Surviving radiation for rectal cancer
Replies: 108
Views: 23796

Re: Surviving radiation for rectal cancer

I only said that radiation kills (or at least it is supposed to) the cancer in the FIELD of the radiation. In other words, radiation is used to help sterilize the nodes around the rectum. It certainly would NOT have any effect on distant lymph nodes that were outside of the field of radiation. In ad...
by weisssoccermom
Tue Aug 21, 2018 4:13 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Totally O/T
Replies: 23
Views: 5254

Re: Totally O/T

Hey, Just saw this. As many of you know, I was in Philly watching my son get married. Still, this forum is truly never far from my heart. CRguy....wonderful sentiments. This forum changes, evolves and new people come and go. There are new personalities, new problems etc but it basically it is all th...
by weisssoccermom
Fri Aug 10, 2018 10:43 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: O/T - some Pics from my son's wedding
Replies: 11
Views: 513

Re: O/T - some Pics from my son's wedding

Thank you all for the wonderful compliments. The kids put this wedding on all by themselves (ok, we helped a little) but they really pulled off a beautiful day! I wish they hadn't spent so much money but....it's what they wanted and being that they're older (he's 33, she's 31), they were going to do...
by weisssoccermom
Fri Aug 10, 2018 1:55 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: O/T - some Pics from my son's wedding
Replies: 11
Views: 513

Re: O/T - some Pics from my son's wedding

These are just a few that the photographer had on his blog. My son sent them to me. I am not in any of these... Thank you for all the lovely compliments. It really was a special day and the kids deserve all the credit. They paid for and put this entire wedding on themselves. I helped with some small...
by weisssoccermom
Thu Aug 09, 2018 4:31 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: O/T - some Pics from my son's wedding
Replies: 11
Views: 513

O/T - some Pics from my son's wedding

I hope I can get these to post. We just got back from Philly ....from our second son's (#3 child) wedding and wanted to share some of their pictures. Wedding was outside...Bartram's Garden....TERRIBLY hot and muggy. Some of the pictures were taken in downtown Philly. https://hofferphotography.com/wp...

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