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by weisssoccermom
Wed May 23, 2018 9:53 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: New cancer diagnosis. Ugh!!
Replies: 13
Views: 467

Re: New cancer diagnosis. Ugh!!

Look, if you are really uncomfortable with this surgeon, then by all means...STOP the surgery consult, don't schedule surgery and seek a second opinion. Unless your husband has a blockage or something equally emergent, waiting another week or two or even three is not going to impact the cancer. Now,...
by weisssoccermom
Tue May 22, 2018 9:18 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: New cancer diagnosis. Ugh!!
Replies: 13
Views: 467

Re: New cancer diagnosis. Ugh!!

Should have added that YES, the presence of affected nodes does change the staging. Staging is made up of three components. T, N & M The "T" 'stage' (do not confuse this with overall staging) indicates how deeply the tumor has invaded the colon/rectal wall. It is IMPOSSIBLE for a docto...
by weisssoccermom
Tue May 22, 2018 9:12 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: New cancer diagnosis. Ugh!!
Replies: 13
Views: 467

Re: New cancer diagnosis. Ugh!!

My one piece of advice.....DO NOT LET the surgeon tell you whether or not there should/should not be any follow up chemo and/or radiation. I don't care whether the surgeon is a board certified colorectal surgeon or not (my preference would be certified). NO surgeon should be giving advice like that....
by weisssoccermom
Sun May 13, 2018 11:06 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Happy Mother's Day
Replies: 2
Views: 163

Happy Mother's Day

Happy Mother's Day to all mothers on this board. I hope you all have a wonderful day...surrounded by your kiddos and other family members. Let your kiddos make you breakfast in bed, give you those adorable 'Mommy I made you something at school' projects, etc. Overall...have a wonderful Mother's Day....
by weisssoccermom
Fri May 11, 2018 11:42 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Newbie here: gallbladder or recurrence? Anyone know if gallbladder issues are common after folofox?
Replies: 6
Views: 241

Re: Newbie here: gallbladder or recurrence? Anyone know if gallbladder issues are common after folofox?

FYI....not all gallbladder problems are caused by gallstones and therefore don't show up on an ultrasound. I had my gallbladder out in 1996 after many episodes of upper right sided pain. Numerous ultrasounds didn't reveal any gall stones but the doctors still suspected gallbladder issues (especially...
by weisssoccermom
Wed May 09, 2018 8:02 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Long-term survival with spine mets??
Replies: 8
Views: 784

Re: Long-term survival with spine mets??

I have no idea....can only tell you that in my 11 years here on the board, I don't remember too many people with spinal mets. That's likely why you aren't getting a lot of responses. From what I know of people with other cancers who have had spinal mets (my friend had them with lung cancer and I hav...
by weisssoccermom
Wed May 09, 2018 7:56 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Surviving radiation for rectal cancer
Replies: 39
Views: 5173

Re: Surviving radiation for rectal cancer

That is likely why having a full bladder helps to minimize the effects of the radiation on the bladder itself. Makes sense.
by weisssoccermom
Wed May 09, 2018 6:42 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Surviving radiation for rectal cancer
Replies: 39
Views: 5173

Re: Surviving radiation for rectal cancer

Obviously no one wants a patient to be in 'distress'.....feeling so uncomfortable that they are going to pee on the table. I was also told to drink about 30 minutes before each procedure. A full bladder also helps to minimize the radiation effects on the bladder. Again though, it is a side effect th...
by weisssoccermom
Wed May 09, 2018 6:20 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Surviving radiation for rectal cancer
Replies: 39
Views: 5173

Re: Surviving radiation for rectal cancer

No actually a full bladder....for either sex....has been shown to be preferable. The bladder helps push some of the colon out of the way from the radiation field. No one may actually tell you not to have a full bladder....it's something you 'hear' about and realize that its one of those things that ...
by weisssoccermom
Thu May 03, 2018 6:30 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Capecitabine (Xeloda) and Hearing Loss ?!?!?!
Replies: 29
Views: 2021

Re: Capecitabine (Xeloda) and Hearing Loss ?!?!?!

There's so much that doesn't show up for a good 9+ months. End of radiation....figure an 8 week wait until surgery. Then surgery and a 4-6 week wait until the beginning of adjuvant chemoradiation. That phase usually lasts a good 6-7 months (or longer...count on the fact that although adjuvant chemo ...
by weisssoccermom
Wed May 02, 2018 8:41 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Capecitabine (Xeloda) and Hearing Loss ?!?!?!
Replies: 29
Views: 2021

Re: Capecitabine (Xeloda) and Hearing Loss ?!?!?!

I am not saying that a female shouldn't go through radiation/surgery BUT, as I said, there are ways to minimize or even avoid the radiation side effects and they just aren't discussed at all with women. Most rad oncs don't even bother to tell women about the very real and very painful sexual side ef...
by weisssoccermom
Wed May 02, 2018 7:46 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Capecitabine (Xeloda) and Hearing Loss ?!?!?!
Replies: 29
Views: 2021

Re: Capecitabine (Xeloda) and Hearing Loss ?!?!?!

This is my pet peeve. Most rad oncs will tell you that you likely will go into menopause due to radiation....that's pretty much a given (although my ovaries must be just outside of the radiation field...because I did NOT enter into menopause.) What the rad oncs and most oncs don't bother to mention ...
by weisssoccermom
Wed May 02, 2018 9:47 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Capecitabine (Xeloda) and Hearing Loss ?!?!?!
Replies: 29
Views: 2021

Re: Capecitabine (Xeloda) and Hearing Loss ?!?!?!

I have no idea....I can only tell you that platinum based drugs such as oxi can and do cause ear issues. IF you are worried about it....talk to your onc about potentially doing a different combo such as FOLFIRI (irinotecan instead of the oxi). IMO, don't expect oncs to be totally forthcoming about p...
by weisssoccermom
Mon Apr 30, 2018 6:09 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Capecitabine (Xeloda) and Hearing Loss ?!?!?!
Replies: 29
Views: 2021

Re: Capecitabine (Xeloda) and Hearing Loss ?!?!?!

Just an FYI......platinum based drugs such as cisplatin, oxaliplatin, etc. can cause damage to the ear (cochlea) in about 40 - 80% of all patients. When I first was diagnosed, I joined an internet support group for anal/rectal squamous cell cancer, not realizing that it was any different from the 't...
by weisssoccermom
Sat Apr 28, 2018 8:43 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Still scared after colonoscopy
Replies: 12
Views: 927

Re: Still scared after colonoscopy

You are not annoying anyone and we all do want the best for you. It is, however, concerning when someone is so filled anxiety that it is affecting his/her daily life. Be thankful that the doctors haven't found anything serious and that hopefully you can take the necessary time to get some help for y...

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