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by weisssoccermom
Sat Aug 10, 2019 2:10 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: I've graduated!
Replies: 8
Views: 558

Re: I've graduated!

Thank you for the kind words. I actually liked my oncologist....specially because he was able to think 'outside of the box'. It was the surgeons that I saw that I really didnt like. They were never willing to deviate from the 'standard of care ' until I met my FINAL surgeon. When my own onc was diag...
by weisssoccermom
Wed Aug 07, 2019 2:40 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: I've graduated!
Replies: 8
Views: 558

Re: I've graduated!

Like I've always said....I was more than willing to the surveillance in exchange for the less radical surgery. I just never envisioned 13 years of it!! Glad that that final test is now gone from my repertoire. While I would, of course, prefer the 10 year scope plan (who wouldn't???), I'm fine with t...
by weisssoccermom
Wed Aug 07, 2019 11:39 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: I've graduated!
Replies: 8
Views: 558

I've graduated!

Thirteen years ago, I chose a different path for my rectal cancer treatment. Instead of the LAR surgery, I chose to undergo a full thickness transanal excision preceded by chemoradiation and chemo. When I finally convinced my surgeon that I was aware that my choice was against the 'standard of care'...
by weisssoccermom
Sat Aug 03, 2019 11:08 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: How often should a colonoscopy be done?
Replies: 2
Views: 305

Re: How often should a colonoscopy be done?

Unless you have a family history of colorectal cancer OR colorectal polyps, then it is usually every 10 years. While most people know if there is a family history of cancer, most do NOT know if their family members have had polyps....benign or precancerous. Unfortunately, that isn't something that m...
by weisssoccermom
Fri Jul 26, 2019 11:30 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Intro, and please give your feedback
Replies: 63
Views: 3342

Re: Intro, and please give your feedback

I am certainly no expert (or even mildly informative about this) but remember that what you read in the posted article is for people with PRIMARY LIVER CANCER That is NOT the same as someone having liver mets from another cancer. You need to remember that. You can't apply the statistics for someone ...
by weisssoccermom
Mon Jul 22, 2019 8:55 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: It was 15 years ago today
Replies: 11
Views: 923

Re: It was 15 years ago today

I'm so glad to see you back again, posting this story. It truly is amazing!

Congratulations on 15 years and here's hoping you have another 15 or more years to continue to celebrate!
by weisssoccermom
Mon Jul 01, 2019 11:47 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: O/T Happy Canada Day to colorectal Canucks !
Replies: 6
Views: 403

Re: O/T Happy Canada Day to colorectal Canucks !

Now that sounds like a GREAT idea!

I'm all for it. ONE week of celebrations, holidays and just FUN!
by weisssoccermom
Mon Jul 01, 2019 8:48 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: O/T Happy Canada Day to colorectal Canucks !
Replies: 6
Views: 403

Re: O/T Happy Canada Day to colorectal Canucks !

Although not a Canadian...here's wishing all Canadians a wonderful and safe HAPPY CANADA DAY!

I was in Victoria once on July 1st and saw some awesome fireworks. Enjoy!
by weisssoccermom
Thu Jun 27, 2019 12:49 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Levsin (Hyoscyamine) for LARS
Replies: 6
Views: 909

Re: Levsin (Hyoscyamine) for LARS

I was given Questran for severe diarrhea after gall bladder removal. I've mentioned it to a few people with LAR, their docs have Rx'd it and they've had good results with it. You have to tweak the dosage....too much and you're super constipated. Not enough and it doesn't do the job. I know one perso...
by weisssoccermom
Sat Jun 22, 2019 8:23 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Just had my latest colonoscopy
Replies: 15
Views: 1535

Re: Just had my latest colonoscopy

My 5 year scope is coming up in August and I'm already anxious about it.....and, of course, the prep. They Rx'd me Preopik which hubs had a few years back BUT.....I am doing the Gatorade/Miralax/Dulcolax prep. I figure that if places like Mass General, Cleveland Clinic, and MSKCC (to name just a few...
by weisssoccermom
Sat Jun 22, 2019 8:10 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: 13 years ago today!
Replies: 16
Views: 1645

13 years ago today!

This week has been a really difficult one for me....lots of drama at work. It reminded me a lot of the fear, horror, etc. that I felt on 6/22/2006 when I heard those three words...YOU HAVE CANCER. I am still around, 13 years later, to tell people to always have hope. My journey was certainly not eas...
by weisssoccermom
Tue Jun 04, 2019 11:59 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: UPDATE ON PETE
Replies: 8
Views: 976

Re: UPDATE ON PETE

Good to hear from you Julie.....it's been a LONG time.
It's hard to believe it was 8 years ago when we first talked
about resections and such.
Glad to hear that you are all doing well!

Jaynee
by weisssoccermom
Sun Jun 02, 2019 1:04 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Laid off before Dx
Replies: 21
Views: 1514

Re: Laid off before Dx

I'm not trying to be confrontational here BUT.....the following statement is NOT correct for every situation: "In exchange for those $12k you get access to any approved therapies, limited wait times compared to other health systems and access to top oncologists." If you live in a state tha...
by weisssoccermom
Fri May 31, 2019 11:28 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Laid off before Dx
Replies: 21
Views: 1514

Re: Laid off before Dx

Please, keep the COBRA. I can't tell you how many people I talked to who have lost their job/retired (and were able to keep COBRA) but didn't keep their COBRA because of the expense. They opted for an Obamacare policy instead. Subsidies aside, there are some HUGE differences between employer sponsor...
by weisssoccermom
Sun May 12, 2019 7:18 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: HAPPY MOTHER'S DAY!
Replies: 6
Views: 481

Re: HAPPY MOTHER'S DAY!

Thank you for the congrats! Waiting to have an Alexa call with them...and I get to actually get to "see" my grandson!
I'm soooo in love with that baby. Being a Grammy is pretty cool!

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