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by weisssoccermom
Thu Mar 14, 2019 9:50 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Colonoscopy coming up....gastroenterologist or surgeon?
Replies: 10
Views: 254

Re: Colonoscopy coming up....gastroenterologist or surgeon?

I'm 12+ years out from my diagnosis and still have mine done (trying to schedule now) by my surgeon. IF something should be there, I want my surgeon to be the one that found it, knows precisely where it is, what it looks like, etc. Sometimes it is a little more difficult to schedule but heck, for me...
by weisssoccermom
Mon Mar 11, 2019 12:46 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Just can't let it go
Replies: 31
Views: 1358

Re: Just can't let it go

Please don't take this as being offensive but one thing that seems to be coming through loud and clear in your posts is that you seem to not believe that a polyp can't just be benign....no cancer in situ, NO level of dysplasia, no cancer. Please understand that there are people everyday who have pol...
by weisssoccermom
Sun Mar 10, 2019 10:27 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Just can't let it go
Replies: 31
Views: 1358

Re: Just can't let it go

If it would make you feel better, go back and see the GI or consult with another doc. If you have a GP whom you trust, then talk to him/her. However, I do think that you need to be prepared that maybe you just have a benign polyp. Back in 2008, I was told that I had a polyp removed during my first s...
by weisssoccermom
Sat Mar 09, 2019 12:23 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Vaginal stenosis - an issue for women with rectal cancer
Replies: 27
Views: 1167

Re: Vaginal stenosis - an issue for women with rectal cancer

At least here in the US, it is by prescription only. Can you just call the GYN's office and see if he/she will send a script in before your appt.?
by weisssoccermom
Fri Mar 08, 2019 9:53 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Vaginal stenosis - an issue for women with rectal cancer
Replies: 27
Views: 1167

Re: Vaginal stenosis - an issue for women with rectal cancer

Please...do NOT wait on the Premarin cream. Using the dilators without that 'help' isn't going to be effective. You NEED to get either Premarin or another similar type of cream. I seriously cannot stress that enough.
Please don't wait!
by weisssoccermom
Fri Mar 08, 2019 8:52 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Just can't let it go
Replies: 31
Views: 1358

Re: Just can't let it go

dysplasia means that there are abnormal cells there. Your pathology report didn't mention anything because there was NOTHING there to mention. Polyps start as benign growths. Some turn cancerous, some never will. In your case, the polyp that they found had NOT started the process (if it ever was goi...
by weisssoccermom
Sun Mar 03, 2019 5:33 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery
Replies: 282
Views: 96910

Re: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery

PRS, SKB, Weisssoccermom, and other W&W-ers: Food/nutrition: Did you change your nutrition when you decided to do W&W? Add supplements? No to the first question. I don't drink.....never really did except LONG LONG ago in college. I don't smoke....never did that either. Yes, I still love my r...
by weisssoccermom
Sun Mar 03, 2019 3:13 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery
Replies: 282
Views: 96910

Re: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery

I can't speak to the W & W approach but you might want to look at: Loyola University and University of Chicago. Both facilities utilize the TEM approach and you might find a surgeon there who is more amenable to that particular avenue....a TEM, chemo with meticulous follow up. I would suggest go...
by weisssoccermom
Mon Feb 25, 2019 7:09 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery
Replies: 282
Views: 96910

Re: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery

I basically had the same as W & W (except my 'biopsy' was a full thickness excision) and I only had a CT chest/abdomen/pelvis every 6 months. I may be cynical here, but I highly doubt that you would get your insurance company to pay for an MRI every 3 months. Like the newer W&W, my protocol ...
by weisssoccermom
Mon Feb 18, 2019 9:01 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery
Replies: 282
Views: 96910

Re: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery

I've had my fill of flex sigs. My guess is that they are doing a modified one.....basically it just checks in the rectum. Here's my answers to your questions: 1. Prep: Day of procedure....2 enemas in the morning....that was it. You can see from my signature that I only had an excision...so I was on ...
by weisssoccermom
Sat Feb 16, 2019 12:24 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Vaginal stenosis - an issue for women with rectal cancer
Replies: 27
Views: 1167

Re: Vaginal stenosis - an issue for women with rectal cancer

You really need to get something like Premarin....an estrogen based vaginal cream.....to use WITH the dilators. Using the dilators alone isn't going to be comfortable or, in the long run, do the trick by themselves. When you went into menopause, your estrogen levels decreased significantly. Estrogen...
by weisssoccermom
Tue Feb 12, 2019 8:58 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Questions about surgery..
Replies: 3
Views: 435

Re: Questions about surgery..

Welcome to the board. A colostomy is different than an ileostomy which is what the second surgeon is likely referring to. Make sure that although the first surgeon doesn't think he will need a colostomy (generally a permanent ostomy), that your dad might not need an ileostomy. After some colon and m...
by weisssoccermom
Tue Feb 12, 2019 4:20 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Vaginal stenosis - an issue for women with rectal cancer
Replies: 27
Views: 1167

Re: Vaginal stenosis - an issue for women with rectal cancer

I thought....no I hoped it had changed from when I was in my treatment (2006). I can see from some of the concerns here and listening to my SIL's issues that too many doctors (particularly rad oncs), IMO are not putting the interests of their patients FIRST. For example, I used to hear around the ti...
by weisssoccermom
Tue Feb 12, 2019 1:23 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Vaginal stenosis - an issue for women with rectal cancer
Replies: 27
Views: 1167

Re: Vaginal stenosis - an issue for women with rectal cancer

Lakeswim...with respect to the hip achiness.....I was told by my rad onc (mind you, ONLY after I brought up the issue and showed him literature that I had found from Australia) that yes, it is a known fact (then tell us please) that pelvic radiation can damage the hip area resulting in a higher inci...
by weisssoccermom
Tue Feb 12, 2019 11:57 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Vaginal stenosis - an issue for women with rectal cancer
Replies: 27
Views: 1167

Re: Vaginal stenosis - an issue for women with rectal cancer

Jolene, First of all let me explain that when that first rad onc told me to have sex/use a dilator, the thought wasn't at all appealing.....even with his suggestive winks to my hubs. He explained that the sex didn't have to be drawn out or anything....just the act to help keep the vagina open was th...

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