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by weisssoccermom
Sun Feb 16, 2020 6:17 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: High CEA, normal colonoscopy, need advise.
Replies: 5
Views: 317

Re: High CEA, normal colonoscopy, need advise.

Hello Michael, First of all, I want to reassure you that CEA can easily be influenced by inflammatory processes within the body. Now, that doesn't mean that a sprained ankle or a simple cold will raise one's CEA....both my surgeon and onc have debunked that. However, serious/widespread inflammation ...
by weisssoccermom
Sat Dec 28, 2019 11:43 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Off Topic: British Colombia Travel Question
Replies: 6
Views: 499

Re: Off Topic: British Colombia Travel Advice

Hey, I live in WA State and have traveled numerous times to Victoria (Vancouver Island). We took family vacations there, spent a few days here and there up in Victoria and have explored other parts of the island. PM me with specific questions that I might be able to answer. I absolutely LOVE the are...
by weisssoccermom
Sun Dec 01, 2019 12:25 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: 10 Years and Counting
Replies: 30
Views: 3708

Re: 10 Years and Counting

Hi Fletch, I've often wondered what happened to you....how you are doing, etc? I'm so glad you came back to give us all an update. For whatever reason, I always associated you with Eric (brownbagger) and CrGuy. It's like the three of you were the THREE MUSKETEERS. I remember when you got married and...
by weisssoccermom
Sat Nov 09, 2019 6:18 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery
Replies: 435
Views: 143023

Re: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery

Not everyone experiences radiation proctitis....and even for those that do....there is not one size fits all. We tend to forget that we can and do have changes in our bowels that oftentimes don't mean anything. Don't get me wrong, I am NOT saying to ignore certain changes that persist ....but you ar...
by weisssoccermom
Tue Sep 10, 2019 9:07 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Adjuvant chemo or not / Decision time for adjuvant chemo
Replies: 31
Views: 2383

Re: Adjuvant chemo or not / Decision time for adjuvant chemo

The doctors tend to give patients RELATIVE benefit as opposed to ACTUAL benefit. What I am stating is that the ACTUAL benefit of Oxi...IN THE STAGE II scenario with no negative prognostic factors.....is a small 2 -3%. When I was going through chemo, my onc recommended against the oxi....based on the...
by weisssoccermom
Mon Sep 09, 2019 11:13 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Adjuvant chemo or not / Decision time for adjuvant chemo
Replies: 31
Views: 2383

Re: Adjuvant chemo or not / Decision time for adjuvant chemo

The Xeloda (pills) or the infused 5FU (if you chose to go that route) is the drug that does MOST of the work anyway. For a stage II, studies have shown that the oxi adds only an extra 2-3%...IMO, not enough to warrant taking it. You have to make that decision.
by weisssoccermom
Sat Sep 07, 2019 10:45 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Adjuvant chemo or not / Decision time for adjuvant chemo
Replies: 31
Views: 2383

Re: Adjuvant chemo or not / Decision time for adjuvant chemo

That was my point....I think it is the OXI that is the problem....not the Xeloda. I'm surprised that the onc didn't suggest just doing the Xeloda or 5FU.
by weisssoccermom
Sat Sep 07, 2019 10:25 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Adjuvant chemo or not / Decision time for adjuvant chemo
Replies: 31
Views: 2383

Re: Adjuvant chemo or not / Decision time for adjuvant chemo

I was a stage IIA...rectal cancer and I did chemo. Now, I will say that I did NOT do the oxi. Personally, I don't know what your onc is talking about that XELOX is brutal. He may be referring to the fact that with XELOX being given it every THREE weeks as opposed to every TWO weeks with Folfox, the ...
by weisssoccermom
Mon Aug 26, 2019 1:07 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Father Just Diagnosed With Rectal Cancer
Replies: 6
Views: 672

Re: Father Just Diagnosed With Rectal Cancer

Crow23.. Sorry for the confusion. Let me try and explain it better. Because rectal cancer most oftentimes has some form of NEOADJUVANT treatment (before surgery), a CLINICAL staging is first done based solely on the tests (EUS, MRI/CT). Even after surgery, there is no definitive way to know how many...
by weisssoccermom
Sun Aug 25, 2019 10:21 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Father Just Diagnosed With Rectal Cancer
Replies: 6
Views: 672

Re: Father Just Diagnosed With Rectal Cancer

Hello and welcome to our board. First of all....take a breath and try to relax. I understand that you want to be involved, however, unless your father is incapable of making his own decisions, the doctors may very well not speak to you without his permission. I could be over analyzing your response....
by weisssoccermom
Sat Aug 10, 2019 2:10 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: I've graduated!
Replies: 9
Views: 1333

Re: I've graduated!

Thank you for the kind words. I actually liked my oncologist....specially because he was able to think 'outside of the box'. It was the surgeons that I saw that I really didnt like. They were never willing to deviate from the 'standard of care ' until I met my FINAL surgeon. When my own onc was diag...
by weisssoccermom
Wed Aug 07, 2019 2:40 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: I've graduated!
Replies: 9
Views: 1333

Re: I've graduated!

Like I've always said....I was more than willing to the surveillance in exchange for the less radical surgery. I just never envisioned 13 years of it!! Glad that that final test is now gone from my repertoire. While I would, of course, prefer the 10 year scope plan (who wouldn't???), I'm fine with t...
by weisssoccermom
Wed Aug 07, 2019 11:39 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: I've graduated!
Replies: 9
Views: 1333

I've graduated!

Thirteen years ago, I chose a different path for my rectal cancer treatment. Instead of the LAR surgery, I chose to undergo a full thickness transanal excision preceded by chemoradiation and chemo. When I finally convinced my surgeon that I was aware that my choice was against the 'standard of care'...
by weisssoccermom
Sat Aug 03, 2019 11:08 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: How often should a colonoscopy be done?
Replies: 2
Views: 613

Re: How often should a colonoscopy be done?

Unless you have a family history of colorectal cancer OR colorectal polyps, then it is usually every 10 years. While most people know if there is a family history of cancer, most do NOT know if their family members have had polyps....benign or precancerous. Unfortunately, that isn't something that m...

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