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by weisssoccermom
Sun May 13, 2018 11:06 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Happy Mother's Day
Replies: 2
Views: 157

Happy Mother's Day

Happy Mother's Day to all mothers on this board. I hope you all have a wonderful day...surrounded by your kiddos and other family members. Let your kiddos make you breakfast in bed, give you those adorable 'Mommy I made you something at school' projects, etc. Overall...have a wonderful Mother's Day....
by weisssoccermom
Fri May 11, 2018 11:42 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Newbie here: gallbladder or recurrence? Anyone know if gallbladder issues are common after folofox?
Replies: 6
Views: 235

Re: Newbie here: gallbladder or recurrence? Anyone know if gallbladder issues are common after folofox?

FYI....not all gallbladder problems are caused by gallstones and therefore don't show up on an ultrasound. I had my gallbladder out in 1996 after many episodes of upper right sided pain. Numerous ultrasounds didn't reveal any gall stones but the doctors still suspected gallbladder issues (especially...
by weisssoccermom
Wed May 09, 2018 8:02 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Long-term survival with spine mets??
Replies: 6
Views: 551

Re: Long-term survival with spine mets??

I have no idea....can only tell you that in my 11 years here on the board, I don't remember too many people with spinal mets. That's likely why you aren't getting a lot of responses. From what I know of people with other cancers who have had spinal mets (my friend had them with lung cancer and I hav...
by weisssoccermom
Wed May 09, 2018 7:56 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Surviving radiation for rectal cancer
Replies: 39
Views: 5088

Re: Surviving radiation for rectal cancer

That is likely why having a full bladder helps to minimize the effects of the radiation on the bladder itself. Makes sense.
by weisssoccermom
Wed May 09, 2018 6:42 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Surviving radiation for rectal cancer
Replies: 39
Views: 5088

Re: Surviving radiation for rectal cancer

Obviously no one wants a patient to be in 'distress'.....feeling so uncomfortable that they are going to pee on the table. I was also told to drink about 30 minutes before each procedure. A full bladder also helps to minimize the radiation effects on the bladder. Again though, it is a side effect th...
by weisssoccermom
Wed May 09, 2018 6:20 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Surviving radiation for rectal cancer
Replies: 39
Views: 5088

Re: Surviving radiation for rectal cancer

No actually a full bladder....for either sex....has been shown to be preferable. The bladder helps push some of the colon out of the way from the radiation field. No one may actually tell you not to have a full bladder....it's something you 'hear' about and realize that its one of those things that ...
by weisssoccermom
Thu May 03, 2018 6:30 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Capecitabine (Xeloda) and Hearing Loss ?!?!?!
Replies: 29
Views: 1939

Re: Capecitabine (Xeloda) and Hearing Loss ?!?!?!

There's so much that doesn't show up for a good 9+ months. End of radiation....figure an 8 week wait until surgery. Then surgery and a 4-6 week wait until the beginning of adjuvant chemoradiation. That phase usually lasts a good 6-7 months (or longer...count on the fact that although adjuvant chemo ...
by weisssoccermom
Wed May 02, 2018 8:41 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Capecitabine (Xeloda) and Hearing Loss ?!?!?!
Replies: 29
Views: 1939

Re: Capecitabine (Xeloda) and Hearing Loss ?!?!?!

I am not saying that a female shouldn't go through radiation/surgery BUT, as I said, there are ways to minimize or even avoid the radiation side effects and they just aren't discussed at all with women. Most rad oncs don't even bother to tell women about the very real and very painful sexual side ef...
by weisssoccermom
Wed May 02, 2018 7:46 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Capecitabine (Xeloda) and Hearing Loss ?!?!?!
Replies: 29
Views: 1939

Re: Capecitabine (Xeloda) and Hearing Loss ?!?!?!

This is my pet peeve. Most rad oncs will tell you that you likely will go into menopause due to radiation....that's pretty much a given (although my ovaries must be just outside of the radiation field...because I did NOT enter into menopause.) What the rad oncs and most oncs don't bother to mention ...
by weisssoccermom
Wed May 02, 2018 9:47 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Capecitabine (Xeloda) and Hearing Loss ?!?!?!
Replies: 29
Views: 1939

Re: Capecitabine (Xeloda) and Hearing Loss ?!?!?!

I have no idea....I can only tell you that platinum based drugs such as oxi can and do cause ear issues. IF you are worried about it....talk to your onc about potentially doing a different combo such as FOLFIRI (irinotecan instead of the oxi). IMO, don't expect oncs to be totally forthcoming about p...
by weisssoccermom
Mon Apr 30, 2018 6:09 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Capecitabine (Xeloda) and Hearing Loss ?!?!?!
Replies: 29
Views: 1939

Re: Capecitabine (Xeloda) and Hearing Loss ?!?!?!

Just an FYI......platinum based drugs such as cisplatin, oxaliplatin, etc. can cause damage to the ear (cochlea) in about 40 - 80% of all patients. When I first was diagnosed, I joined an internet support group for anal/rectal squamous cell cancer, not realizing that it was any different from the 't...
by weisssoccermom
Sat Apr 28, 2018 8:43 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Still scared after colonoscopy
Replies: 12
Views: 902

Re: Still scared after colonoscopy

You are not annoying anyone and we all do want the best for you. It is, however, concerning when someone is so filled anxiety that it is affecting his/her daily life. Be thankful that the doctors haven't found anything serious and that hopefully you can take the necessary time to get some help for y...
by weisssoccermom
Sat Apr 28, 2018 7:37 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Still scared after colonoscopy
Replies: 12
Views: 902

Re: Still scared after colonoscopy

First of all, if your prep wasn't good enough OR if she couldn't get the scope through all the way...the report would say that AND I am sure she would have told you that as well. IF a doctor can't complete the scope due to an obstruction the doctor would have absolutely told you that and it would be...
by weisssoccermom
Wed Apr 18, 2018 11:44 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Freaking out after colonoscopy today 4/18/18
Replies: 6
Views: 678

Re: Freaking out after colonoscopy today 4/18/18

I realize that we oftentimes aren't very aware when the doc comes to tell us about the results of the scope (anesthesia and all), but I have been there when my friend has come out of the procedure as well as when my husband did as well. Each time (been with friend now twice) the doctor has told me a...
by weisssoccermom
Wed Apr 18, 2018 10:06 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Freaking out after colonoscopy today 4/18/18
Replies: 6
Views: 678

Re: Freaking out after colonoscopy today 4/18/18

Before you get all freaked out, make sure they are not referring to the location of the polyp. It's not uncommon to say, for example, that a polyp was located at 23 cm or 6 cm from the anal verge, etc. It may be something as simple as the procedure was done at that particular location....25 cm from ...

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