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by weisssoccermom
Fri Nov 27, 2020 12:04 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: HAPPY THANKSGIVING!
Replies: 3
Views: 235

HAPPY THANKSGIVING!

A little late in the day but...better late than never! 2020 sure has been a WEIRD year.....one that I wish would go away and never come back. However, on this Thanksgiving Day, I am thankful for many things...my family, my friends and right now, I am thankful that I have not caught COVID. Yes, that ...
by weisssoccermom
Tue Oct 06, 2020 7:01 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Am I panicking for no reason? Slight rise in CEA levels
Replies: 13
Views: 2440

Re: Am I panicking for no reason? Slight rise in CEA levels

Years ago, on a test that I had a good 10 years out, my CEA jumped and the doctors were perplexed. I was talking to my surgeon at the time and she had the same issue with one of her patients. (BTW...this ....keep reading....still happens today). She (surgeon) told me that oftentimes labs switch from...
by weisssoccermom
Mon Aug 17, 2020 1:43 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Prep for colonoscopy
Replies: 14
Views: 2661

Re: Prep for colonoscopy

A few years back, my surgeon (she does my scopes) told me that the doctors in the surgery/GI clinic all had to do the preps to understand what the patient was going through. That was an eye opener for her. I NEVER am given the nasty stuff (although none of them are particularly pleasant). I did love...
by weisssoccermom
Sun Aug 09, 2020 3:49 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Not tolerating Xeloda. Are there any options?
Replies: 15
Views: 2877

Re: Not tolerating Xeloda. Are there any options?

Here is another suggestion that has worked for some people. Some doctors will use a 7 day on/7 day off Xeloda dosing. It may help you better tolerate the pills but first please try and reduce your carb intake. That may significantly help. Talk with your doctor about a different cycle....it's not a w...
by weisssoccermom
Thu Aug 06, 2020 9:05 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Not tolerating Xeloda. Are there any options?
Replies: 15
Views: 2877

Re: Not tolerating Xeloda. Are there any options?

If you think its the Xeloda, here are some questions you should answer. 1. When are you taking the pills? You should NEVER take Xeloda on an empty stomach nor should you take it with a meal. You SHOULD take it within 30 mins after finishing a meal. You can take it anywhere from 1 min to 30 mins AFTE...
by weisssoccermom
Wed Jul 29, 2020 1:34 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Prep for colonoscopy
Replies: 14
Views: 2661

Re: Prep for colonoscopy

Never had it....just wanted to say hi to another old timer :D Found this drug card for it online. As long as you aren't on Medicare or Medicaid.....this will work. Don't know how much it costs but every little bit helps. https://www.suprepkit.com/Savings Last year when I had my scope, my doctor Rxd ...
by weisssoccermom
Sat Jul 04, 2020 10:46 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: HAPPY 4TH OF JULY!!!
Replies: 3
Views: 624

HAPPY 4TH OF JULY!!!

This world is so crazy right now...COVID-19 and all that goes with that, protests and in the case with this board...cancer always lurking....lets just try to have this one day off from all of these problems and enjoy our 4th of July. That being said, just celebrate with your close, immediate family ...
by weisssoccermom
Sun May 31, 2020 3:42 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: O/T - surgery a few days ago, it hurts and need advice
Replies: 4
Views: 1039

O/T - surgery a few days ago, it hurts and need advice

Sorry for the O/T rant/vent. This is hard to type with one hand so likely won't be long. I had surgery on Tuesday (5/26) and it is still so swollen, ugly and totally bruised. When I wad around 9, I shattered my wrist pretty badly. Bones repaired themselves but the blood supply to one bone didn't. Ev...
by weisssoccermom
Sun Feb 16, 2020 6:17 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: High CEA, normal colonoscopy, need advise.(continuation)
Replies: 6
Views: 1599

Re: High CEA, normal colonoscopy, need advise.

Hello Michael, First of all, I want to reassure you that CEA can easily be influenced by inflammatory processes within the body. Now, that doesn't mean that a sprained ankle or a simple cold will raise one's CEA....both my surgeon and onc have debunked that. However, serious/widespread inflammation ...
by weisssoccermom
Sat Dec 28, 2019 11:43 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Off Topic: British Colombia Travel Question
Replies: 6
Views: 932

Re: Off Topic: British Colombia Travel Advice

Hey, I live in WA State and have traveled numerous times to Victoria (Vancouver Island). We took family vacations there, spent a few days here and there up in Victoria and have explored other parts of the island. PM me with specific questions that I might be able to answer. I absolutely LOVE the are...
by weisssoccermom
Sun Dec 01, 2019 12:25 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: 10 Years and Counting
Replies: 30
Views: 4626

Re: 10 Years and Counting

Hi Fletch, I've often wondered what happened to you....how you are doing, etc? I'm so glad you came back to give us all an update. For whatever reason, I always associated you with Eric (brownbagger) and CrGuy. It's like the three of you were the THREE MUSKETEERS. I remember when you got married and...
by weisssoccermom
Sat Nov 09, 2019 6:18 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery
Replies: 520
Views: 207982

Re: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery

Not everyone experiences radiation proctitis....and even for those that do....there is not one size fits all. We tend to forget that we can and do have changes in our bowels that oftentimes don't mean anything. Don't get me wrong, I am NOT saying to ignore certain changes that persist ....but you ar...
by weisssoccermom
Tue Sep 10, 2019 9:07 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Adjuvant chemo or not / Decision time for adjuvant chemo
Replies: 31
Views: 3171

Re: Adjuvant chemo or not / Decision time for adjuvant chemo

The doctors tend to give patients RELATIVE benefit as opposed to ACTUAL benefit. What I am stating is that the ACTUAL benefit of Oxi...IN THE STAGE II scenario with no negative prognostic factors.....is a small 2 -3%. When I was going through chemo, my onc recommended against the oxi....based on the...
by weisssoccermom
Mon Sep 09, 2019 11:13 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Adjuvant chemo or not / Decision time for adjuvant chemo
Replies: 31
Views: 3171

Re: Adjuvant chemo or not / Decision time for adjuvant chemo

The Xeloda (pills) or the infused 5FU (if you chose to go that route) is the drug that does MOST of the work anyway. For a stage II, studies have shown that the oxi adds only an extra 2-3%...IMO, not enough to warrant taking it. You have to make that decision.

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