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by weisssoccermom
Tue Sep 10, 2019 9:07 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Adjuvant chemo or not / Decision time for adjuvant chemo
Replies: 31
Views: 1818

Re: Adjuvant chemo or not / Decision time for adjuvant chemo

The doctors tend to give patients RELATIVE benefit as opposed to ACTUAL benefit. What I am stating is that the ACTUAL benefit of Oxi...IN THE STAGE II scenario with no negative prognostic factors.....is a small 2 -3%. When I was going through chemo, my onc recommended against the oxi....based on the...
by weisssoccermom
Mon Sep 09, 2019 11:13 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Adjuvant chemo or not / Decision time for adjuvant chemo
Replies: 31
Views: 1818

Re: Adjuvant chemo or not / Decision time for adjuvant chemo

The Xeloda (pills) or the infused 5FU (if you chose to go that route) is the drug that does MOST of the work anyway. For a stage II, studies have shown that the oxi adds only an extra 2-3%...IMO, not enough to warrant taking it. You have to make that decision.
by weisssoccermom
Sat Sep 07, 2019 10:45 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Adjuvant chemo or not / Decision time for adjuvant chemo
Replies: 31
Views: 1818

Re: Adjuvant chemo or not / Decision time for adjuvant chemo

That was my point....I think it is the OXI that is the problem....not the Xeloda. I'm surprised that the onc didn't suggest just doing the Xeloda or 5FU.
by weisssoccermom
Sat Sep 07, 2019 10:25 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Adjuvant chemo or not / Decision time for adjuvant chemo
Replies: 31
Views: 1818

Re: Adjuvant chemo or not / Decision time for adjuvant chemo

I was a stage IIA...rectal cancer and I did chemo. Now, I will say that I did NOT do the oxi. Personally, I don't know what your onc is talking about that XELOX is brutal. He may be referring to the fact that with XELOX being given it every THREE weeks as opposed to every TWO weeks with Folfox, the ...
by weisssoccermom
Mon Aug 26, 2019 1:07 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Father Just Diagnosed With Rectal Cancer
Replies: 6
Views: 501

Re: Father Just Diagnosed With Rectal Cancer

Crow23.. Sorry for the confusion. Let me try and explain it better. Because rectal cancer most oftentimes has some form of NEOADJUVANT treatment (before surgery), a CLINICAL staging is first done based solely on the tests (EUS, MRI/CT). Even after surgery, there is no definitive way to know how many...
by weisssoccermom
Sun Aug 25, 2019 10:21 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Father Just Diagnosed With Rectal Cancer
Replies: 6
Views: 501

Re: Father Just Diagnosed With Rectal Cancer

Hello and welcome to our board. First of all....take a breath and try to relax. I understand that you want to be involved, however, unless your father is incapable of making his own decisions, the doctors may very well not speak to you without his permission. I could be over analyzing your response....
by weisssoccermom
Sat Aug 10, 2019 2:10 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: I've graduated!
Replies: 9
Views: 1107

Re: I've graduated!

Thank you for the kind words. I actually liked my oncologist....specially because he was able to think 'outside of the box'. It was the surgeons that I saw that I really didnt like. They were never willing to deviate from the 'standard of care ' until I met my FINAL surgeon. When my own onc was diag...
by weisssoccermom
Wed Aug 07, 2019 2:40 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: I've graduated!
Replies: 9
Views: 1107

Re: I've graduated!

Like I've always said....I was more than willing to the surveillance in exchange for the less radical surgery. I just never envisioned 13 years of it!! Glad that that final test is now gone from my repertoire. While I would, of course, prefer the 10 year scope plan (who wouldn't???), I'm fine with t...
by weisssoccermom
Wed Aug 07, 2019 11:39 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: I've graduated!
Replies: 9
Views: 1107

I've graduated!

Thirteen years ago, I chose a different path for my rectal cancer treatment. Instead of the LAR surgery, I chose to undergo a full thickness transanal excision preceded by chemoradiation and chemo. When I finally convinced my surgeon that I was aware that my choice was against the 'standard of care'...
by weisssoccermom
Sat Aug 03, 2019 11:08 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: How often should a colonoscopy be done?
Replies: 2
Views: 509

Re: How often should a colonoscopy be done?

Unless you have a family history of colorectal cancer OR colorectal polyps, then it is usually every 10 years. While most people know if there is a family history of cancer, most do NOT know if their family members have had polyps....benign or precancerous. Unfortunately, that isn't something that m...
by weisssoccermom
Fri Jul 26, 2019 11:30 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Intro, and please give your feedback
Replies: 63
Views: 4703

Re: Intro, and please give your feedback

I am certainly no expert (or even mildly informative about this) but remember that what you read in the posted article is for people with PRIMARY LIVER CANCER That is NOT the same as someone having liver mets from another cancer. You need to remember that. You can't apply the statistics for someone ...
by weisssoccermom
Mon Jul 22, 2019 8:55 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: It was 15 years ago today
Replies: 13
Views: 1574

Re: It was 15 years ago today

I'm so glad to see you back again, posting this story. It truly is amazing!

Congratulations on 15 years and here's hoping you have another 15 or more years to continue to celebrate!
by weisssoccermom
Mon Jul 01, 2019 11:47 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: O/T Happy Canada Day to colorectal Canucks !
Replies: 6
Views: 554

Re: O/T Happy Canada Day to colorectal Canucks !

Now that sounds like a GREAT idea!

I'm all for it. ONE week of celebrations, holidays and just FUN!
by weisssoccermom
Mon Jul 01, 2019 8:48 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: O/T Happy Canada Day to colorectal Canucks !
Replies: 6
Views: 554

Re: O/T Happy Canada Day to colorectal Canucks !

Although not a Canadian...here's wishing all Canadians a wonderful and safe HAPPY CANADA DAY!

I was in Victoria once on July 1st and saw some awesome fireworks. Enjoy!
by weisssoccermom
Thu Jun 27, 2019 12:49 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Levsin (Hyoscyamine) for LARS
Replies: 6
Views: 1057

Re: Levsin (Hyoscyamine) for LARS

I was given Questran for severe diarrhea after gall bladder removal. I've mentioned it to a few people with LAR, their docs have Rx'd it and they've had good results with it. You have to tweak the dosage....too much and you're super constipated. Not enough and it doesn't do the job. I know one perso...

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