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by weisssoccermom
Fri Feb 16, 2018 11:55 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Review of my Journey so far -> ⓊⓟⒹⒶⓉⒺ Feb/2018
Replies: 176
Views: 38293

Re: Review of my Journey so far -> ⓊⓟⒹⒶⓉⒺ Feb/2018

Ohhhh, that was nice. Having a REALLY bad day today...and that was just something nice and positive+++ THANK YOU CrGuy....much appreciated and very touching. Yep, this forum has a very special place in my heart. Coming up on 12 years since diagnosis....over 10 on this forum.. Mods have come and gone...
by weisssoccermom
Fri Jan 12, 2018 2:36 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Xeloda or 5fu only for adjuvant chemotherapy?
Replies: 7
Views: 322

Re: Xeloda or 5fu only for adjuvant chemotherapy?

Question with respect to your story. You state that you had about 50% shrinkage with neoadjuvant chemoradiation and the tumor (after radiation) was a T2. What was the 'T' designation BEFORE radiation? That is important. First of all, it's not usual for a patient to have chemoradiation with a stage I...
by weisssoccermom
Mon Jan 08, 2018 10:43 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Port Removal
Replies: 23
Views: 1044

Re: Port Removal

The removal was, IMO, a piece of cake. The shot itself hurt more than anything else. A little tugging/pulling but it was over so quickly and the ability to just get off the table and be able to DRIVE home without any help (hubby was still there) was a huge motivator for me. The doctor removing it ha...
by weisssoccermom
Mon Jan 08, 2018 1:55 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Anyone doing xelox and xeloda. Please help
Replies: 23
Views: 734

Re: Anyone doing xelox and xeloda. Please help

Hopegirl....if you are already experiencing the cold sensitivity and the 'first bite syndrome'.....you've already started with the side effects of oxi. Those are the first side effects to come. The definition of neuropathy is: disease or dysfunction of one or more peripheral nerves, typically causin...
by weisssoccermom
Mon Jan 08, 2018 12:15 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Anyone doing xelox and xeloda. Please help
Replies: 23
Views: 734

Re: Anyone doing xelox and xeloda. Please help

Hopegirl, I feel your pain....I didn't mind the pills for the first say 10 days but those last 4 days....I just wanted to be done. It's the pills....the 5FU that is doing most of the work to help kill off the cancer so while you may not like them, they are necessary. You could switch to FOLFOX but, ...
by weisssoccermom
Sun Jan 07, 2018 6:26 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Anyone doing xelox and xeloda. Please help
Replies: 23
Views: 734

Re: Anyone doing xelox and xeloda. Please help

Actually, the Genetech website (manufacturers of Xeloda) clearly states, "XELODA tablets should be swallowed whole with water within 30 minutes after a meal. XELODA is a cytotoxic drug. Follow applicable special handling and disposal procedures.1 If XELODA tablets must be cut or crushed, this s...
by weisssoccermom
Sun Jan 07, 2018 4:36 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Anyone doing xelox and xeloda. Please help
Replies: 23
Views: 734

Re: Anyone doing xelox and xeloda. Please help

Go to the Xeloda website. My pharmacist always told me to take it within 30 minutes after a meal....and that was on the label of the bottle. Took mine in 2006/2007..was ALWAYS that way. https://www.gene.com/download/pdf/xeloda_prescribing.pdf (section 2.1.....top of page 4) https://www.rxlist.com/xe...
by weisssoccermom
Sun Jan 07, 2018 4:29 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Port Removal
Replies: 23
Views: 1044

Re: Port Removal

Just two small pieces of info. 1. You usually are not sedated for the procedure. It's really easy coming out so I've only heard of people getting a local (novocaine) for port removal. Mine was done that way. Some tugging and it was a little creepy to hear the surgeon ask for a scalpel...I mean my po...
by weisssoccermom
Sun Jan 07, 2018 4:21 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Anyone doing xelox and xeloda. Please help
Replies: 23
Views: 734

Re: Anyone doing xelox and xeloda. Please help

A few things to remember about Xeloda. 1. As others have said take it within 30 minutes after you eat. NEVER NEVER take it on an empty stomach. In addition, DO NOT take it with the meal. 2. Get OTC Nexium or another GERD like medication. When I was taking Xeloda, that was the FIRST medication that w...
by weisssoccermom
Tue Jan 02, 2018 10:57 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Sooo O/T - son got engaged today & Happy New Years!
Replies: 11
Views: 523

Re: Sooo O/T - son got engaged today & Happy New Years!

Thank you everyone. I'm just excited to have another son get married. They called today and are all excited about wedding plans, etc. I only wish that I were closer.
by weisssoccermom
Mon Jan 01, 2018 9:53 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Polyp pathology! Help please
Replies: 6
Views: 449

Re: Polyp pathology! Help please

FYI - hyperplastic polyps 'can' turn cancerous but the instance of it happening is extremely rare. As you can see from my signature, I have had rectal cancer and after my surgery, my scopes have found hyperplastic polyps on more than one occasion and my colorectal surgeon is NOT concerned. Regardles...
by weisssoccermom
Sun Dec 31, 2017 3:39 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Sooo O/T - son got engaged today & Happy New Years!
Replies: 11
Views: 523

Sooo O/T - son got engaged today & Happy New Years!

So I'm getting all mushy and crying. I knew it was coming.....he showed me the ring on Christmas Day. I love his fiancee....she's a wonderful woman and she has totally stolen my son's heart (which is GOOD!!). When I was diagnosed 11 1/2 years ago, I wanted so badly to see my youngest graduate from H...
by weisssoccermom
Sat Dec 30, 2017 11:44 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: new. . trying to decide between xeloda? (sp) with iv chemo and modified folfax
Replies: 18
Views: 667

Re: new. . trying to decide between xeloda? (sp) with iv chemo and modified folfax

If you had a tumor big enough to be seen via a PET scan in your rectum it would have been seen on the colonoscopy. My guess is it is either OUTSIDE or in the vicinity of the rectum (pelvis) not inside the colon/rectum itself. Anything that is big enough to be seen via the PET scan AND is inside the ...
by weisssoccermom
Sat Dec 30, 2017 11:44 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: new. . trying to decide between xeloda? (sp) with iv chemo and modified folfax
Replies: 18
Views: 667

Re: new. . trying to decide between xeloda? (sp) with iv chemo and modified folfax

I"m a little confused about your story. It appears that your diagnosis is colon cancer, since you had your transverse colon removed. You state that you have masses in your rectum/middle which are not amenable to surgery but then you state that you had another colonoscopy this past week that rem...
by weisssoccermom
Thu Dec 28, 2017 5:14 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Question
Replies: 18
Views: 945

Re: Question

Just an FYI.....a villous adenoma is just a type of polyp that can become malignant....it doesn't mean that it is. USUALLY, if there was cancer.....I would have thought that the surgeon would have said......adenocarcinoma....totally different. What you NEED to get is a copy of the pathology report a...

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