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by weisssoccermom
Mon Apr 22, 2019 8:57 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery
Replies: 368
Views: 104793

Re: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery

As I said, mine ONLY got tricky with the CT after 5 years....otherwise, I was getting CT's every 6 months (same as standard protocol) in years 3,4 and into 5 with flex sigs on the same schedule. NO issues with me.
by weisssoccermom
Sun Apr 21, 2019 10:22 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery
Replies: 368
Views: 104793

Re: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery

Mine had no issue...I believe because the standard of care protocol calls for testing every 3 - 6 months even following traditional methods. The only time my insurance pitched a fit was at after my 5 year mark. They didn't want to pay for the CT scan. Instead they told me that I could have a chest x...
by weisssoccermom
Mon Apr 15, 2019 6:24 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: O/T - my furbaby has cancer....hard last weekend - UPDATED
Replies: 18
Views: 681

Re: O/T - my furbaby has cancer....hard last weekend - UPDATED

Today was very very hard. Roxy was our last furbaby and I know that I just can't do this again. Hubby and I came home and cleaned up everything. Roxy had four beds....in various rooms. All of the blankets...and so much other stuff is now in a box my office chair came in (and all of it doesn't even f...
by weisssoccermom
Sun Apr 14, 2019 10:46 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: O/T - my furbaby has cancer....hard last weekend - UPDATED
Replies: 18
Views: 681

Re: O/T - my furbaby has cancer....hard last weekend

I'm not sure why I allow myself to revisit this over and over....but I need to. This is our last night in the house with our little Roxy. Tomorrow she will be able to join her sisters wherever our furbabies go and then not be in pain, have no more cancer and can once again enjoy the life that she so...
by weisssoccermom
Sat Apr 13, 2019 10:25 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: O/T - my furbaby has cancer....hard last weekend - UPDATED
Replies: 18
Views: 681

O/T - my furbaby has cancer....hard last weekend - UPDATED

I know this is O/T but so many of us on here are furbaby lovers I knew that you would understand. I've known for 6 months that my furbaby has TCC and her time is drawing near. This sounds cold and calculated but we are taking her in on Monday to allow her to leave this world in PEACE and relatively ...
by weisssoccermom
Thu Apr 11, 2019 10:42 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Vaginal stenosis - an issue for women with rectal cancer
Replies: 37
Views: 2527

Re: Vaginal stenosis - an issue for women with rectal cancer

I understand the doctors concerns about HRT....BUT....HRT from years ago is NOT the same as it is today. Obviously, if a person has a STRONG family history of estrogen based cancers, I do understand the concern. However, preparations like Premarin which ONLY absorb the hormones vaginally (and honest...
by weisssoccermom
Wed Apr 03, 2019 9:33 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery
Replies: 368
Views: 104793

Re: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery

Jolene, Just a quick reply as I am getting ready to go to work. My treatment was over 12 years ago so I will remember as best as I can. 1. A CEA every 3 months for the first 2 years....then I believe it went to every 6 months for years 3+. Since year 7 or so, I've been having it drawn yearly at my p...
by weisssoccermom
Tue Apr 02, 2019 12:19 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery
Replies: 368
Views: 104793

Re: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery

Hi Jolene, Here are the answers (I can't see your post so hope that I remember all of your questions) 1. My doctor didn't recommend oxi for me as a stage II patient. The studies don't necessarily show that oxi for the stage II patient (with no negative prognostic factors) shows a significant increas...
by weisssoccermom
Mon Apr 01, 2019 9:21 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery
Replies: 368
Views: 104793

Re: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery

My oncologist was of the totally opposite opinion than yours. Now, I had a full thickness excision which is by far better than a regular biopsy but falls short of the LAR. My pathology report from that came back as totally NEGATIVE. Again, my situation was different but let me fill you in on the sto...
by weisssoccermom
Fri Mar 29, 2019 9:43 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery
Replies: 368
Views: 104793

Re: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery

BTW....4.5 cm is NOT considered super low.

Patients with 2-3 cm ARE considered low.
by weisssoccermom
Thu Mar 28, 2019 9:50 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery
Replies: 368
Views: 104793

Re: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery

I had a local excision in 2007 after a complete clinical response to chemoradiation. I'm not sure what 'side effects' your doctor is talking about. Yes, I had a slight amount of pain (mine was due to the fact that the instruments were pushed against my tailbone for the duration of the surgery and I ...
by weisssoccermom
Tue Mar 26, 2019 8:01 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Vaginal stenosis - an issue for women with rectal cancer
Replies: 37
Views: 2527

Re: Vaginal stenosis - an issue for women with rectal cancer

I"m not surprised about the HRT but I am surprised that your GYN won't Rx some vaginal estrogen cream. Yes, it does contain hormones, however, the levels your body absorbs via the vaginal route are SO small that most doctors don't consider it to be 'dangerous' to a female unless you have a STRO...
by weisssoccermom
Tue Mar 26, 2019 9:56 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Pathological downstaging
Replies: 11
Views: 710

Re: Pathological downstaging

Of course it is a good sign that chemo and the radiation (no matter how short the course....that particular treatment works well on nodes) helped clean up nodes/shrink her tumor. What you don't know is exactly the extent of shrinkage. Your signature shows a T3 prior to treatment and a T2 after. So y...
by weisssoccermom
Mon Mar 25, 2019 9:04 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Pathological downstaging
Replies: 11
Views: 710

Re: Pathological downstaging

Please, understand that your mother is NOT 'downstaged'. True 'downstaging' happens very rarely and only happens when a mistake or some other such error was made in the initial staging. When a patient's tumor responds to ANY type of treatment....be that chemo, radiation, a combination of both, immun...
by weisssoccermom
Thu Mar 14, 2019 9:50 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Colonoscopy coming up....gastroenterologist or surgeon?
Replies: 10
Views: 413

Re: Colonoscopy coming up....gastroenterologist or surgeon?

I'm 12+ years out from my diagnosis and still have mine done (trying to schedule now) by my surgeon. IF something should be there, I want my surgeon to be the one that found it, knows precisely where it is, what it looks like, etc. Sometimes it is a little more difficult to schedule but heck, for me...

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