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by KimT
Wed Feb 19, 2020 5:41 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: growing concerned about care
Replies: 5
Views: 358

Re: growing concerned about care

I think what you have described is typical for stage 4 treatment that is inoperable. This is a marathon, not a sprint so there is no reason to panic just yet. The fact that his cancer has only metastasized to the liver makes him a possible candidate for surgery if the liver Mets can be gotten under ...
by KimT
Wed Feb 19, 2020 11:49 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Colonoscopy?
Replies: 5
Views: 222

Re: Colonoscopy?

Only a colonoscopy can diagnose colon cancer.
by KimT
Sun Feb 16, 2020 1:49 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: HELP! Post surgery pain
Replies: 10
Views: 406

Re: HELP! Post surgery pain

Could be gas pain. Gas pain is the worst. Pain medicine doesn’t help it at all.
by KimT
Sun Feb 16, 2020 11:07 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Does anyone NOT feel supported
Replies: 10
Views: 1416

Re: Does anyone NOT feel supported

In my 11 years on this board, the ONLY discoed I have seen on this board has involved mpbser. She has a history of not playing nice with folks on this board or the group on Facebook. Let us not make this post about her as it is exactly what she wants. To hijack some one else’s post to get attention ...
by KimT
Wed Feb 05, 2020 1:39 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Lynch syndrome questions
Replies: 9
Views: 1071

Re: Lynch syndrome questions

I was diagnosed 11 years ago with lynch. It has gotten much better over the years. When I was first diagnosed, most doctors had not heard of it yet. I have moved around 4 times in the last 10 years so I’ve seen a lot of new doctors. In the past 5 years or so, all my doctors have been familiar with l...
by KimT
Fri Jan 31, 2020 10:41 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: New member thoughts on being "cured"
Replies: 8
Views: 1265

Re: New member thoughts on being "cured"

I think having cancer changes us. I am considered cured from two different cancers. While my body does not function as well as it used to, I count my blessings. There are many people who will never hear the word cured, many people who will never ring the bell upon completing chemo. I’ll take my lot ...
by KimT
Sun Jan 05, 2020 2:17 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: New member / ileo problem
Replies: 4
Views: 380

Re: New member / ileo problem

You might try the discussion boards at Ostomy.org.

https://www.uoaa.org/forum/index.php

This board is not super active anymore and not all of us have ostomies. A former member who passed a couple months ago used to direct people here for ostomy questions and concerns. Best of luck.
by KimT
Fri Dec 06, 2019 11:04 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Pill thru j tube
Replies: 4
Views: 861

Re: Pill thru j tube

I am a nurse and this is based on my own experience. Pills are meant to be digested in the stomach and absorbed in the intestines. When you crush them, it can change the absorption rate and efficacy. Some pills cannot be crushed at all. You have the added issue of a j tube. The problem with putting ...
by KimT
Wed Dec 04, 2019 1:22 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Very scared - would love feedback re mucus
Replies: 4
Views: 716

Re: Very scared - would love feedback re mucus

We aren’t doctors. You need to address any concerns with your doctor. Good luck.
by KimT
Tue Nov 19, 2019 2:15 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Airline experiences?
Replies: 10
Views: 811

Re: Airline experiences?

I lived in Thailand for several years. My experience with international flights in general is there is a lot less flexibility. There are limited flights to start with. Some of these long flights might be offered only once per day. Chicago to New York is a short flight with dozens of flights offered ...
by KimT
Sun Nov 17, 2019 10:09 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Just need to vent because I’m angry
Replies: 16
Views: 1426

Re: Just need to vent because I’m angry

Life isn’t fair. Your sister doesn’t owe it to you to put herself through chemo. Your love and support should not be dependent upon her choosing treatment you approve of. Not one of us is going to beat the clock. The only guarantee in life is that we are all going to die. You have an opportunity to ...
by KimT
Tue Nov 12, 2019 8:35 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: HELP! suspended treatment (nephrology)
Replies: 8
Views: 657

Re: HELP! suspended treatment (nephrology)

Have they mentioned dialysis? In my experience as a nurse, stage 4 kidney disease requires dialysis. They may not be able to resume chemo until dialysis is begun.
by KimT
Thu Oct 31, 2019 11:35 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Insurance question: Are colonoscopies considered preventative?
Replies: 4
Views: 416

Re: Insurance question: Are colonoscopies considered preventative?

I have to pay towards my deductible for mine. Most insurance don’t consider preventive once you have been diagnosed with cancer. It’s considered follow up.
by KimT
Wed Oct 30, 2019 11:45 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: I'm getting worried
Replies: 36
Views: 3279

Re: I'm getting worried

I get yearly colonoscopies. I’ve had several gi doctors as we have moved a lot in the last 10 years. I always get my pathology reports by mail. It’s pretty common to send it by mail if it’s benign. I wouldn’t worry. They would have called if there was a malignancy.
by KimT
Sat Sep 07, 2019 9:29 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rogaine! seems to be working for me
Replies: 14
Views: 1378

Re: Rogaine! seems to be working for me

I used rogaine for a few months. It works great but you do have to keep using it. When I stopped, my hair loss was more than before I had started using it. I’m now on a hair supplement called halo beauty. I’ve had amazing results with regrowth. My hair grows faster than ever before. It took a year t...

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