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by smokeyjoe
Tue Dec 10, 2013 7:09 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: What test to take before seeing gastroenterologist?
Replies: 7
Views: 994

Re: What test to take before seeing gastroenterologist?

What province are you in, if you are in Ontario you should be able to get in to get a colonoscopy fairly quickly. Did you mention to your primary you want a colonoscopy? I don't think you have to get one through a G.I. doc. appt. first.
by smokeyjoe
Sat Dec 07, 2013 2:05 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: NEWS Dec 1st: CC researchers target *stem* cancer cells
Replies: 21
Views: 3848

Re: NEWS Dec 1st: CC researchers target *stem* cancer cells

Mia there is a clinical trial ongoing that targets cancer stem cells in Ontario at the Hamilton Health Sciences Centre. BBI608 is the most clinically advanced candidate in Boston Biomedical’s cancer stem cell (CSC) pathway inhibitor program. This first-in-class, orally-administered small molecule bl...
by smokeyjoe
Thu Oct 03, 2013 9:26 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Ashlee's Scan Report - Not good
Replies: 52
Views: 4911

Re: Ashlee's Scan Report - Not good

Sheesh I hate this friggen disease. Just wish someone would come up with a drug that has minimal side effects and keep things stable for a loooooong period of time!!!! I don't know what to say ..... ((((hugs))))
by smokeyjoe
Thu Sep 19, 2013 10:39 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Regorafenib - any good outcomes? info?
Replies: 13
Views: 1527

Re: Regorafenib - any good outcomes? info?

I've started on my 3rd month of the stivarga, side effects have been constipation and high blood pressure which is controlled with blood pressure meds., on my week off the drug my blood pressure drops back to normal. Actually so far this cycle blood pressure hasn't gone up yet. Constipation I'm stil...
by smokeyjoe
Sat Sep 14, 2013 8:39 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: CRC Spreading to skin/arm ... ever hear of it?
Replies: 8
Views: 1528

Re: CRC Spreading to skin/arm ... ever hear of it?

Interesting you'd post this....last night I was on Medscape because I wanted to see concernedrelatives article he was talking about regarding the RAS mutations and EGFR. Anyhow while there there was a place that showed photos, a slide show, of skin irritations that show up with cancer patients, and ...
by smokeyjoe
Thu Sep 05, 2013 10:58 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: CT Scan Results- please help----UPDATE
Replies: 22
Views: 3559

Re: CT Scan Results- please help----UPDATE

Really surprised at your onc's. position on Princess Margaret ..... my onc. referred me down there for genetic testing clinical trial, I get the feeling from him that this will be the go to place for a clinical trial. I got the results finally from the genetic testing, onc. from Princess Marg. phone...
by smokeyjoe
Wed Aug 28, 2013 8:36 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: CT Scan Results- please help----UPDATE
Replies: 22
Views: 3559

Re: CT Scan Results- please help

Where is your wife being treated? I'd check out Princess Margaret too, look on their clinical trials, they have a trial for treating mets with something (can't recall right now what it is .... I am thinking cyberknife). I would think they will do more tests and scans before they come to the conclusi...
by smokeyjoe
Tue Aug 27, 2013 3:00 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: It's the Big R now for me - UPDATE
Replies: 113
Views: 12897

Re: It's the Big R now for me

The only ongoing issue I have is the bloodpressure, but I got on top of it when I started the pills again, and am now finding I need less blood pressure pills to keep things in the normal range. Last month it took a lot of dr.'s appts. etc. keeping an eye on it .... the week off regorafinib my blood...
by smokeyjoe
Thu Aug 15, 2013 8:11 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Please help - unique situation
Replies: 56
Views: 8053

Re: Please help - unique situation

Just to let you know I did folfiri with Avastin, had minimal side effects, mostly diarrhea that was controlled with lomotil pills. My hair thinned some, I was the only one who noticed. Infusion day was the worst day I would have, and that came with some nausea, not throwing up, it was mostly a "...
by smokeyjoe
Thu Aug 15, 2013 7:40 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: My latest scan... not good...
Replies: 32
Views: 2905

Re: My latest scan... not good...

Uggh, sorry about the scan. What did the Dr.'s from the trial you are participating in have to say about this? The new trial sounds interesting, what's involved in that .... how often would you need shots etc., I'm sure you'll find out the details as you leave no stone unturned. (My sister sent me a...
by smokeyjoe
Sat Aug 10, 2013 5:52 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: scan this Monday
Replies: 23
Views: 2118

Re: scan this Monday

Fingers crossed you have great scan results. :D
by smokeyjoe
Sat Aug 10, 2013 9:54 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: regorafenib (stivarga) work for anyone?
Replies: 40
Views: 20273

Re: regorafenib (stivarga) work for anyone?

So far the only issue I've experienced is high blood pressure, it's taking some juggling to find the right meds. by my fam. Dr. to control this, as of today they are much better after getting new prescriptions and starting them yesterday. I finish this round on Sunday and am on my week off the drug,...
by smokeyjoe
Sat Aug 10, 2013 9:29 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: My latest CT
Replies: 19
Views: 2020

Re: My latest CT

I've been checking the boards looking for an update from you and wondering how things were going for you. So happy to see this post!!! WHY OH WHY IS THIS TREATMENT NOT AN OPTION FOR US!!!! I think I remember you saying the fellow locally is not carrying on with supply, how will you continue to boost...
by smokeyjoe
Fri Jul 26, 2013 9:08 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: regorafenib (stivarga) work for anyone?
Replies: 40
Views: 20273

Re: regorafenib (stivarga) work for anyone?

Concerned relative ..... go to the ACS website, it lists dexamethasone as one of the drugs that can interact with regorafinib ..... you may want to check it out, seems to imply it can make the regorafinib less effective.
by smokeyjoe
Fri Jul 26, 2013 8:24 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Any differences Canada versus USA treatment for stage 4
Replies: 4
Views: 986

Re: Any differences Canada versus USA treatment for stage 4

Does hubby have private insurance that will cover him in Canada?? I'm also in Ontario, was wondering about Zaltrap as several people on the board on this drug .... it's not avail. here yet, there is one hospital Dr. in Toronto area who is doing clinical trial on this. So, for that drug you'd have to...

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