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by Ellen
Sun Apr 25, 2010 1:21 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Ellen Meyer
Replies: 10
Views: 3561

Re: Ellen Meyer

Thank you so much for your kind words, Diane, on behalf of my sister Ellen. I'll just note one tiny 'correction' that meant the world to Ellen: In fact, her daughter Lirit turned 6 last week. She and Ellen spent a tremendous amount of time planning a birthday party for her and I was so pleased that ...
by Ellen
Wed Mar 31, 2010 3:42 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: started Plan C today
Replies: 7
Views: 1091

Re: started Plan C today

Hi Dianne, My response to folfiri was much better than to folfox. I found it easier to tolerate physically and it did a good job of fighting my cancer for about a year (unlike you, I was unable to tolerate folfox for nearly that long.) I hope that your results are as good--or BETTER! In the meantime...
by Ellen
Wed Mar 31, 2010 3:36 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Tick....Tock... Insomnia chat line
Replies: 28
Views: 3156

Re: Tick....Tock... Insomnia chat line

just thought I'd say "hi" to the other non-sleepers out there! I tend to wake up for an hour or so around this time most nights, and here I am. The days I'm not in pain (I actually am in pain right now) it can be kind of pleasant to have a peaceful house and a little time to myself. Yet mu...
by Ellen
Tue Mar 23, 2010 11:50 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Chemo isnt working (Folfox second time around)
Replies: 32
Views: 4938

Re: Chemo isnt working (Folfox second time around)

You know I am thinking of you and sending you all my best. I wish I had words of wisdom to share. Instead I have tears. I know from all of our emails what a thoughtful person and mom you are, and that you will find whatever answer is best for you and your beautiful family at this time. Separate emai...
by Ellen
Tue Mar 23, 2010 12:09 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Leg/Ankle Edema
Replies: 11
Views: 5122

Re: Leg/Ankle Edema

wish I had an answer--I'm having the same problem! Lots of abdominal swelling, too. Ugh!!

Good luck!
by Ellen
Tue Mar 23, 2010 12:06 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Today's Treatment Uneventful
Replies: 19
Views: 2066

Re: Today's Treatment Uneventful

That's great. Hope the "eventulness" comes when the new regimen starts WORKING! Until then, here's to some uneventful, boring times!

Best,
Ellen
by Ellen
Fri Mar 19, 2010 3:34 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Treatment Withheld
Replies: 67
Views: 8287

Re: Treatment Withheld

Hi John, So glad your back is clear AND that you have an understanding and thoughtful onc. As you may remember, I, too recently returned to folfox for a bit, despite lots of concerns about side effects. I was on a 50 percent reduced dose, and the dreaded side effects were kept at bay. Unfortunately ...
by Ellen
Thu Mar 18, 2010 11:37 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: SkiFletch Signing Off
Replies: 20
Views: 2109

Re: SkiFletch Signing Off

I hope you have a wonderful trip and that it is a complete distraction from the world of the big C!

Best,
ellen
by Ellen
Thu Mar 18, 2010 11:35 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Scan Freaking Time
Replies: 19
Views: 2160

Re: Scan Freaking Time

I send all my best energy and prayers that you get good results showing the chemo is knocking that cancer clear outta your body. The waiting--before and after the scans--is always so difficult. I hope you find some fun ways to distract yourself.

Best,
Ellen
by Ellen
Mon Mar 15, 2010 1:36 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Ellen
Replies: 2
Views: 645

Re: Ellen

Hi Amy,

Just sent you an email to your "regular" account. Feel free to contact me with any questions.

Wishing you and your family all the best,
ellen
by Ellen
Mon Mar 15, 2010 1:28 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: PERSONALITY CHANGE
Replies: 18
Views: 3046

Re: PERSONALITY CHANGE

Hi, One other thought: steroids can affect personality...or at least ability to control temper. At one point when I changed chemo regimens they gave me a much higher dose of dexamethasone and I found myself doing/saying and, quite frankly SCREAMING things that I felt "popped out" despite m...
by Ellen
Mon Mar 15, 2010 1:20 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Mitomycin C
Replies: 4
Views: 950

Re: Mitomycin C

Hi, I just had my second dose of Mitomycin C last week. I am also on Xeloda. The first dose was uneventful in terms of side effects--the usual: fatigue, diarrhea etc. Similar to other chemo regimens that I've been on but perhaps a little more severe. I had scans last week (6 weeks after dose 1) and ...
by Ellen
Fri Mar 12, 2010 12:57 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Parp Inhibitor/Olaparib Clinical Trial
Replies: 13
Views: 2233

Re: Parp Inhibitor/Olaparib Clinical Trial

Hi, I'm the one that was on this trial over the summer. I live in Portland OR and traveled to Swedish Cancer Center in Seattle to be part of it. I was among the first participants.Travel is pretty challenging--getting there for treatment weekly for the first 6 weeks (I believe) and then every other ...
by Ellen
Thu Mar 11, 2010 12:40 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Still have one pesky lung met
Replies: 13
Views: 1271

Re: Still have one pesky lung met

I'm sorry to hear about that met, but I certainly agree with the other posters--with your track record, I see a DEFINITE favorite it the war of you against the met. Go get it outta there!! YOU will be the winner.

Sending strength for the continued fight!

Ellen
by Ellen
Thu Mar 11, 2010 12:35 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: CRguy PET results and ......
Replies: 35
Views: 4138

Re: CRguy PET results and ......

So sorry that you have to move into "high gear" again, but I know you will do so with your usual strength and positive attitude. So...get on with it, kick some ass, get that PET light out, and show us all how to keep moving forward.

All my best to you,
Ellen

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