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by patricia
Fri Jul 01, 2011 1:17 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: How long did your neuropathy last?
Replies: 21
Views: 2187

Re: How long did your neuropathy last?

Chemo stopped mid February, 2011 for me. I can notice definite improvement in my feet and up my legs. One test I do is to curl my toes and rub them against each other. I can now feel something in my big toe and the one next to it. The neuropathy has never been bad in my hands, and they now feel norm...
by patricia
Wed Jun 29, 2011 9:58 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Long term chemo side effects? Even after done?
Replies: 22
Views: 3380

Re: Long term chemo side effects? Even after done?

My chemo ended mid-February, 2011. Last week I noticed significantly increased pain in elbows, knees and my left thumb became unusable - the joints spontaneously refused to bend in the thumb and it is so swollen. Was diagnosed with psoriatic arthritis about 10 years ago and it was under total contro...
by patricia
Wed Jun 29, 2011 9:44 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Chemo and your septic system
Replies: 18
Views: 8317

Re: Chemo and your septic system

Our plumber told us to leave milk out of refrigerator for a while and then pour it down the drain to introduce useful bacteria to the septic system. And..he said after system is cleaned out next time to throw some raw meat in before they close it up. He says it is better for the environment than poi...
by patricia
Fri Jun 17, 2011 3:24 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Bowel Prep Products
Replies: 10
Views: 1444

Re: Bowel Prep Products

thanks everyone. before I could make a choice, nurse called in script to CVS and they gave me their generic stuff. This is not going to be pretty...
by patricia
Wed Jun 15, 2011 1:04 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: How do you move on?
Replies: 12
Views: 1545

Re: How do you move on?

I loved SoCalSaz's post. Said everything I feel and believe way better than I've heard it before. My sweetheart said when I was diagnosed that it felt like "we were driving along a road minding our own business and a drawbridge went up. we weren't going anywhere we wanted until that drawbridge ...
by patricia
Wed Jun 15, 2011 12:55 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Bowel Prep Products
Replies: 10
Views: 1444

Re: Bowel Prep Products

Thanks everyone. Raygirl, if you can find that link, I'd love it. The endoscopy unit at Moffitt Cancer Center where I go doesn't seem very flexible about alternative products to the choices they gave me. Now they are wanting patients to split the bowel prep over 2 days (1/2 day before, and 1/2 early...
by patricia
Tue Jun 14, 2011 6:43 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Bowel Prep Products
Replies: 10
Views: 1444

Bowel Prep Products

Colytely/ NuLytely/ GoLytely/Trilytely

Is there any difference? The endoscopy folks are giving me a choice between which of these delights to get...
by patricia
Tue May 24, 2011 6:46 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Easiest New Prep
Replies: 4
Views: 1356

Re: Easiest New Prep

Thank you, thank you for posting this. Half Lytely and Go Lytely are close to torture. I will ask my surgeon for this, instead.
by patricia
Tue May 24, 2011 6:35 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: neuropathy - is this weird?
Replies: 21
Views: 4775

Re: neuropathy - is this weird?

I have the same thing. It's a little like having a sore tooth that you can't stop touching with your tongue. Sometimes I bend my head just to see if it is really tied to the feelings in my legs/feet. It is! Glad you posted this ~ I was too chicken to mention it. It has been 12 weeks since chemo ende...
by patricia
Thu May 12, 2011 1:48 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Another Angel in Heaven
Replies: 34
Views: 4946

Re: Another Angel in Heaven

I am so sorry to hear that your husband is gone. It is so unfair. My thoughts and prayers are with you so you may have the strength to carry on, for you and for your children.

Patricia
by patricia
Wed May 11, 2011 5:01 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Doing a survey - Rate your reversal success
Replies: 48
Views: 4389

Re: Doing a survey - Rate your reversal success

Don't have a number yet ~ reversal was 2 weeks ago. But, I gotta say that it is going way better than I thought it would. There has been little pain from the surgery and it was much less taxing that the original surgery. Yes, there is diarrhea, but that has been a long time annoying issue of mine wa...
by patricia
Tue Oct 26, 2010 1:01 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: PET results- not good
Replies: 69
Views: 7758

Re: PET results- not good

Starbuck, Like some others who have posted, I am at a loss for words. If I try to put myself in your place, there is no possibility that I could have been as eloquent as you were writing about this. While you are in a period of processing, a dear friend who battled cancer for years referred a book t...
by patricia
Mon Oct 25, 2010 9:43 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Reversal a success (although a little late posting)
Replies: 11
Views: 1246

Re: Reversal a success (although a little late posting)

thanks for posting. could you keep up posting on your progress? I am 6 months out from my reversal, (just did #6 of 12 Folfox today) but am having what I think is called diversion colitis - mucus, bloody looking liquid and stuff that smells a little like poop coming out my butt. It is freaking me ou...
by patricia
Mon Oct 25, 2010 9:21 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: How long before I can visit the esthetician?
Replies: 16
Views: 1826

Re: How long before I can visit the esthetician?

I also was told to live my live while on Folfox. The hair salon I go to (Aveda) has plenty experience dealing with chemo patients and I have not had any issues at all with coloring my hair. As a matter of fact, the lavendar oil they use around my hairline was wonderful for scalp dryness. The woman w...
by patricia
Sun Oct 17, 2010 9:57 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Who is sick of their guts today?
Replies: 17
Views: 1584

Re: Who is sick of their guts today?

I am sick of it - the smell, the warmth of liquid sitting in a bag on my body, the weight of it, the worry about explosions, worry about leakage. But don't get me wrong, I am often grateful for my ileostomy but only if I can remember to be thankful. Today, I can't remember to be thankful. I don't wa...

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