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by mymaria
Tue Dec 04, 2018 2:39 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: 9-year stage 2A survivor
Replies: 4
Views: 903

9-year stage 2A survivor

I haven't posted in quite a while, but wanted to give a short update. Nine years ago this afternoon I had a right hemicolectomy for stage 2 colon cancer. After the surgery, doctors determined in was grade 3. I had three rounds of chemo, then stopped after a specialist at Cleveland Clinic determined ...
by mymaria
Thu Dec 28, 2017 4:15 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Lynch Syndrome
Replies: 7
Views: 1709

Re: Lynch Syndrome

I am 100% in favor of you getting tested for Lynch. I was diagnosed with it about eight years ago following bouts with both colon and uterine cancer. These two distinct, primary cancers were found five months apart. My daughter, who is now 25, was tested when she was 18 and her test was positive. Sh...
by mymaria
Thu Mar 31, 2016 10:12 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: 2 cancers- genetic testing
Replies: 6
Views: 1183

Re: 2 cancers- genetic testing

I was 43 when diagnosed with uterine cancer. After my sister did a bunch of research, she bugged me to get a colonoscopy after I healed from the radiation and surgery. (My grandmother and father both died from colon cancer.) So four months after my hysterectomy, I had a colonoscopy and eventually wa...
by mymaria
Thu Nov 19, 2015 1:59 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: 6 years! :-)
Replies: 2
Views: 740

6 years! :-)

Six years ago today I woke up from my first-ever colonoscopy and heard the doctor tell me those dreaded words. Today I am cancer-free and things are going great! I have Lynch Syndrome and dealt with uterine cancer five months before the colon cancer diagnosis. I had a right hemicolectomy and had 54 ...
by mymaria
Fri Oct 23, 2015 1:54 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Story on Stage 4 patient
Replies: 2
Views: 1117

Re: Story on Stage 4 patient

Yes you are correct. I should have noted it started as cervical but is now Stage 4 because it's in her sigmoid colon. Thank you.
by mymaria
Fri Oct 23, 2015 12:56 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Story on Stage 4 patient
Replies: 2
Views: 1117

Story on Stage 4 patient

I am a fan of Joey and Rory and I read this article today. She has Stage 4 colon cancer. The article is so beautifully written I just wanted to share: http://thislifeilive.com/enough/
by mymaria
Tue Aug 11, 2015 2:01 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: what do the terms msh6 and other means and chemo required or not
Replies: 4
Views: 1486

Re: what do the terms msh6 and other means and chemo required or not

The terms mean you're Lynch Syndrome (HNPCC) positive. I am too. This is very important to know when you have discussions with your oncologist about chemo. There are studies that show certain chemo at Stage 2A (which I was too) doesn't offer any benefit. Please make sure you ask specifically about t...
by mymaria
Tue Jun 09, 2015 2:53 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: When do you stop seeing oncologist?
Replies: 9
Views: 1786

Re: When do you stop seeing oncologist?

Thank you for your reply! I have yearly scopes because I have Lynch Syndrome. I also have endoscopies every three years. The oncologist stopped the CT scans so I've been CT scan-less for about a year and a half. Even when I had a full-blown tumor my CEA was below 2, so it's not a good indicator for ...
by mymaria
Tue Jun 09, 2015 1:11 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: When do you stop seeing oncologist?
Replies: 9
Views: 1786

When do you stop seeing oncologist?

I am five and a half years NED with colon cancer and six years NED with uterine cancer. I see my colon cancer oncologist soon and just wondering if-and when-there's an end to the 10-minute check-ups. I have no pain, no problems, get a colonoscopy every year and am followed by other doctors. When is ...
by mymaria
Wed Feb 18, 2015 4:28 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: 21 years old sessile polyp?
Replies: 12
Views: 2434

Re: 21 years old sessile polyp?

Hi. If you have any family history of colon, uterine, kidney or bladder cancer, make sure you ask your doctor about the possibility of Lynch Syndrome.
by mymaria
Tue Dec 02, 2014 9:39 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Colectomy + hysterectomy?
Replies: 10
Views: 2822

Re: Colectomy + hysterectomy?

Julie-my advice, especially if you are Lynch positive, is get the hysterectomy. Yes, you will hit menopause at 100 mph and that's not fun, but if you have Lynch, the risk of uterine cancer is very high. I was 43 when diagnosed with uterine cancer, followed by a colon cancer diagnosis five months lat...
by mymaria
Tue Sep 09, 2014 11:46 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Hemi Vs. Semi colectomy
Replies: 3
Views: 1130

Re: Hemi Vs. Semi colectomy

Hello! Welcome to the board. I am Lynch positive and was diagnosed at age 43 with a right-sided tumor. Ended up stage 2A and had a right hemi-colectomy. I hadn't officially been diagnosed as having Lynch when it was time for my surgery, but my doctor did discuss removing my colon. We decided since I...
by mymaria
Mon Aug 25, 2014 2:23 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Lynch Syndrome 2013, just diagnosed colon cancer
Replies: 15
Views: 3039

Re: Lynch Syndrome 2013, just diagnosed colon cancer

Hello! I am 48 and was diagnosed with endometrial cancer at age 43, followed by colon cancer a few months later. Just celebrated my five year mark on the uterine and will reach the milestone for colon cancer on Dec. 4. I also have Lynch. My grandmother and father both died of colon cancer. I have fi...
by mymaria
Tue May 20, 2014 2:47 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Why Prep Amount Not Tailored to Your Size!!
Replies: 3
Views: 803

Re: Why Prep Amount Not Tailored to Your Size!!

I always wondered that too. While I am heavier than you, I am missing half my colon due to my resection. The last few years I've managed to get 7 of the 8 glasses down, which was more than adequate.
by mymaria
Fri May 09, 2014 11:56 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: 27 - sessile serrated polyp
Replies: 20
Views: 19266

Re: 27 - sessile serrated polyp

Your GI doctor didn't think you should be tested for Lynch? You are only 27 and have had the flat polyps, which tend to be indicative of Lynch, plus your father was diagnosed at a relatively young age. Is there any other colon, uterine or gastric cancers on that side of the family? Please meet with ...

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