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by GreenLakeGirl
Fri Dec 13, 2019 5:28 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Iliostomy or colostomy?
Replies: 8
Views: 1108

Re: Iliostomy or colostomy?

It might be optimistic to assume that you have a choice between an ileostomy or a colostomy. In order to have a colostomy, you will need to have some of your colon remaining, and if they are indeed taking "everything", that implies that they are removing your entire colon, and possibly you...
by GreenLakeGirl
Wed Dec 04, 2019 5:20 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Brother In Law's Total Colectomy - 40X a Day on Toilet
Replies: 4
Views: 719

Re: Brother In Law's Total Colectomy - 40X a Day on Toilet

You say he had a colectomy and no colostomy bag, but that doesn't really address what his new plumbing is like. He could have an internal pouch, like a j-pouch, in which case he might have pouchitis, which needs to be addressed by a doctor. If he has a straight connection, he might not have a lot of...
by GreenLakeGirl
Sun Oct 27, 2019 4:39 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: A journey of a thousand miles must begin with a single step.
Replies: 17
Views: 1211

Re: A journey of a thousand miles must begin with a single step.

CR, you are a treasure. 10K is no small feat! Thanks for keeping the forum conversations flowing.
by GreenLakeGirl
Fri Aug 16, 2019 1:18 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: I'm 10 years out!
Replies: 18
Views: 2203

Re: I'm 10 years out!

Congrats! I'm joining the decade club along with you. I feel the need to acknowledge this milestone, but haven't decided how. Are you doing anything?
by GreenLakeGirl
Thu Jul 18, 2019 5:20 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Family history
Replies: 3
Views: 725

Re: Family history

There is a guideline to be scoped ten years before the age at which your parent was diagnosed, but this applies to families in which the parent was younger than 55. The thinking is that many colorectal cancers that are diagnosed later in life are generally slow growing and need about ten years befor...
by GreenLakeGirl
Thu Jul 18, 2019 5:01 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Quick intro -- diagnosed Friday
Replies: 147
Views: 21128

Re: Quick intro -- diagnosed Friday

Congrats on the baby! Now...for you, the most important thing is that you stop the Googling, and try not to get ahead of yourself. You've got doctor appointments scheduled, so try not to do too much research on your own until you have a little more information to go on. You asked about staging; it c...
by GreenLakeGirl
Sat Nov 03, 2018 2:04 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: 23 years old with stage 4 colon cancer
Replies: 12
Views: 3263

Re: 23 years old with stage 4 colon cancer

I'm in Seattle, and we have a group that meets monthly for CRC patients, survivors, and caregivers. Anita Mitchell is a Stage IV survivor and former Colondar model who leads the group when she's not traveling for advocacy. Second Wednesday of the month, so Nov 14 is our next meeting. 7pm at the SCCA...
by GreenLakeGirl
Fri Feb 02, 2018 2:26 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Any Crohn's Disease or Ulcerative Colitis people out there?
Replies: 13
Views: 2566

Re: Any Crohn's Disease or Ulcerative Colitis people out there?

I was diagnosed with Ulcerative Colitis 13 years before my colon cancer diagnosis. The Crohn's and Colitis Foundation gives a lot of information saying that having an IBD raises your risk of colorectal cancer. They recommend yearly colonoscopies Starting ten years after diagnosis. Even if you have i...
by GreenLakeGirl
Sat Jan 27, 2018 2:23 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: What did you tell the kids?
Replies: 14
Views: 2980

Re: What did you tell the kids?

I just saw this thread, so even though it sounds like you are past this stage, Menreeq, I wanted to add a book recommendation in case others stumble upon it. Ellen Meyer wrote a book about having colon cancer, and her 11yo niece illustrated it: Mommy's Cancer: https://m.barnesandnoble.com/w/mommys-c...
by GreenLakeGirl
Wed Jan 10, 2018 9:23 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: For Stage III's: NED for how long now?
Replies: 774
Views: 291489

Re: For Stage III's: NED for how long now?

Saw your posts regarding Miss Molly and then read your history. Wow, your story is heartwarming and I'm so glad to know that you are here watching your daughter grow up! Take care and forever NED! Awww, thanks! She's a fifth grader! :shock: Congrats on the continued shrinkage! I can't say that ever...
by GreenLakeGirl
Wed Jan 10, 2018 3:34 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Miss Molly, Hope you are okay. . .
Replies: 18
Views: 3230

Re: Miss Molly, Hope you are okay. . .

Logging in to send you more support. Losing a companion is tough. Much love.
by GreenLakeGirl
Thu Jan 04, 2018 9:45 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Facing a permanent stoma
Replies: 41
Views: 5269

Re: Facing a permanent stoma

Varma is awesome. I don't think you can go wrong with her background in pelvic surgery. A friend of mine had her colostomy done by Varma (I think), and it's quite lovely. :)
by GreenLakeGirl
Wed Dec 20, 2017 11:26 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Dx at 28 with IIIb. What now?
Replies: 7
Views: 1755

Re: Dx at 28 with IIIb. What now?

If they haven't raised the issue yet, please talk to your team about your fertility. It may be less of an issue for you since your surgery was a hemi (versus full), and you don't have rectal cancer (so you probably won't need radiation). However, chemo can affect your options, even if it's only the ...
by GreenLakeGirl
Thu Jun 15, 2017 8:34 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: A sore bottom- diaper rash med recommendation?
Replies: 10
Views: 2378

Re: A sore bottom- diaper rash med recommendation?

Boudreaux Butt Paste: http://www.buttpaste.com Using toilet paper is irritating to skin that is already irritated by going multiple times a day. Consider using a squirt bottle of water to clean up (https://www.amazon.com/Medline-Perineal-Irrigation-Cleansing-Bottle/dp/B01M2BKNLE), or soft wet wipes ...

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