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by GreenLakeGirl
Mon Dec 21, 2020 2:19 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Covid 19 vaccine
Replies: 68
Views: 6231

Re: Covid 19 vaccine

roadrunner wrote:Just for clarity, Pfizer and Moderna are mRNA vaccines, which means that there is not even a complete killed virus involved....


Thanks, roadrunner! Good info in your post.
by GreenLakeGirl
Wed Sep 30, 2020 12:13 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Blockage turned out to be Cancer
Replies: 12
Views: 1818

Re: Blockage turned out to be Cancer

There's a confusing aspect to cancer staging and tumor grading : they both used a 1 to 4 rating. My guess is that the surgeon wasn't giving you a stage IV diagnosis, but was giving a grade 4, based in the tumor's size and growth into the intestinal wall (assuming it did as part of the perforation). ...
by GreenLakeGirl
Mon Aug 31, 2020 7:28 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Checking I. From being MIA
Replies: 3
Views: 951

Re: Checking I. From being MIA

SIBO test is a breath test to check for bacteria overgrowth in the stomach or small intestine. I added a specific probiotic to balance my guts: Visbiome. It's available from a pharmacy, and mine has to special-order it since they don't keep it in stock. Some insurance will cover it; mine doesn't rig...
by GreenLakeGirl
Fri Dec 13, 2019 5:28 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Iliostomy or colostomy?
Replies: 8
Views: 1379

Re: Iliostomy or colostomy?

It might be optimistic to assume that you have a choice between an ileostomy or a colostomy. In order to have a colostomy, you will need to have some of your colon remaining, and if they are indeed taking "everything", that implies that they are removing your entire colon, and possibly you...
by GreenLakeGirl
Wed Dec 04, 2019 5:20 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Brother In Law's Total Colectomy - 40X a Day on Toilet
Replies: 4
Views: 905

Re: Brother In Law's Total Colectomy - 40X a Day on Toilet

You say he had a colectomy and no colostomy bag, but that doesn't really address what his new plumbing is like. He could have an internal pouch, like a j-pouch, in which case he might have pouchitis, which needs to be addressed by a doctor. If he has a straight connection, he might not have a lot of...
by GreenLakeGirl
Sun Oct 27, 2019 4:39 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: A journey of a thousand miles must begin with a single step.
Replies: 17
Views: 1562

Re: A journey of a thousand miles must begin with a single step.

CR, you are a treasure. 10K is no small feat! Thanks for keeping the forum conversations flowing.
by GreenLakeGirl
Fri Aug 16, 2019 1:18 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: I'm 10 years out!
Replies: 18
Views: 2554

Re: I'm 10 years out!

Congrats! I'm joining the decade club along with you. I feel the need to acknowledge this milestone, but haven't decided how. Are you doing anything?
by GreenLakeGirl
Thu Jul 18, 2019 5:20 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Family history
Replies: 6
Views: 1448

Re: Family history

There is a guideline to be scoped ten years before the age at which your parent was diagnosed, but this applies to families in which the parent was younger than 55. The thinking is that many colorectal cancers that are diagnosed later in life are generally slow growing and need about ten years befor...
by GreenLakeGirl
Thu Jul 18, 2019 5:01 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Quick intro -- diagnosed Friday
Replies: 147
Views: 24604

Re: Quick intro -- diagnosed Friday

Congrats on the baby! Now...for you, the most important thing is that you stop the Googling, and try not to get ahead of yourself. You've got doctor appointments scheduled, so try not to do too much research on your own until you have a little more information to go on. You asked about staging; it c...
by GreenLakeGirl
Sat Nov 03, 2018 2:04 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: 23 years old with stage 4 colon cancer
Replies: 12
Views: 3608

Re: 23 years old with stage 4 colon cancer

I'm in Seattle, and we have a group that meets monthly for CRC patients, survivors, and caregivers. Anita Mitchell is a Stage IV survivor and former Colondar model who leads the group when she's not traveling for advocacy. Second Wednesday of the month, so Nov 14 is our next meeting. 7pm at the SCCA...
by GreenLakeGirl
Fri Feb 02, 2018 2:26 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Any Crohn's Disease or Ulcerative Colitis people out there?
Replies: 13
Views: 2975

Re: Any Crohn's Disease or Ulcerative Colitis people out there?

I was diagnosed with Ulcerative Colitis 13 years before my colon cancer diagnosis. The Crohn's and Colitis Foundation gives a lot of information saying that having an IBD raises your risk of colorectal cancer. They recommend yearly colonoscopies Starting ten years after diagnosis. Even if you have i...
by GreenLakeGirl
Sat Jan 27, 2018 2:23 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: What did you tell the kids?
Replies: 14
Views: 3373

Re: What did you tell the kids?

I just saw this thread, so even though it sounds like you are past this stage, Menreeq, I wanted to add a book recommendation in case others stumble upon it. Ellen Meyer wrote a book about having colon cancer, and her 11yo niece illustrated it: Mommy's Cancer: https://m.barnesandnoble.com/w/mommys-c...
by GreenLakeGirl
Wed Jan 10, 2018 9:23 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: For Stage III's: NED for how long now?
Replies: 802
Views: 336224

Re: For Stage III's: NED for how long now?

Saw your posts regarding Miss Molly and then read your history. Wow, your story is heartwarming and I'm so glad to know that you are here watching your daughter grow up! Take care and forever NED! Awww, thanks! She's a fifth grader! :shock: Congrats on the continued shrinkage! I can't say that ever...
by GreenLakeGirl
Wed Jan 10, 2018 3:34 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Miss Molly, Hope you are okay. . .
Replies: 18
Views: 3685

Re: Miss Molly, Hope you are okay. . .

Logging in to send you more support. Losing a companion is tough. Much love.

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