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by GreenLakeGirl
Fri Feb 02, 2018 2:26 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Any Crohn's Disease or Ulcerative Colitis people out there?
Replies: 13
Views: 1454

Re: Any Crohn's Disease or Ulcerative Colitis people out there?

I was diagnosed with Ulcerative Colitis 13 years before my colon cancer diagnosis. The Crohn's and Colitis Foundation gives a lot of information saying that having an IBD raises your risk of colorectal cancer. They recommend yearly colonoscopies Starting ten years after diagnosis. Even if you have i...
by GreenLakeGirl
Sat Jan 27, 2018 2:23 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: What did you tell the kids?
Replies: 14
Views: 1961

Re: What did you tell the kids?

I just saw this thread, so even though it sounds like you are past this stage, Menreeq, I wanted to add a book recommendation in case others stumble upon it. Ellen Meyer wrote a book about having colon cancer, and her 11yo niece illustrated it: Mommy's Cancer: https://m.barnesandnoble.com/w/mommys-c...
by GreenLakeGirl
Wed Jan 10, 2018 9:23 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: For Stage III's: NED for how long now?
Replies: 732
Views: 184206

Re: For Stage III's: NED for how long now?

Saw your posts regarding Miss Molly and then read your history. Wow, your story is heartwarming and I'm so glad to know that you are here watching your daughter grow up! Take care and forever NED! Awww, thanks! She's a fifth grader! :shock: Congrats on the continued shrinkage! I can't say that ever...
by GreenLakeGirl
Wed Jan 10, 2018 3:34 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Miss Molly, Hope you are okay. . .
Replies: 18
Views: 1996

Re: Miss Molly, Hope you are okay. . .

Logging in to send you more support. Losing a companion is tough. Much love.
by GreenLakeGirl
Thu Jan 04, 2018 9:45 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Facing a permanent stoma
Replies: 41
Views: 3036

Re: Facing a permanent stoma

Varma is awesome. I don't think you can go wrong with her background in pelvic surgery. A friend of mine had her colostomy done by Varma (I think), and it's quite lovely. :)
by GreenLakeGirl
Wed Dec 20, 2017 11:26 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Dx at 28 with IIIb. What now?
Replies: 7
Views: 1137

Re: Dx at 28 with IIIb. What now?

If they haven't raised the issue yet, please talk to your team about your fertility. It may be less of an issue for you since your surgery was a hemi (versus full), and you don't have rectal cancer (so you probably won't need radiation). However, chemo can affect your options, even if it's only the ...
by GreenLakeGirl
Thu Jun 15, 2017 8:34 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: A sore bottom- diaper rash med recommendation?
Replies: 10
Views: 1563

Re: A sore bottom- diaper rash med recommendation?

Boudreaux Butt Paste: http://www.buttpaste.com Using toilet paper is irritating to skin that is already irritated by going multiple times a day. Consider using a squirt bottle of water to clean up (https://www.amazon.com/Medline-Perineal-Irrigation-Cleansing-Bottle/dp/B01M2BKNLE), or soft wet wipes ...
by GreenLakeGirl
Thu Jun 08, 2017 1:58 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: For Stage III's: NED for how long now?
Replies: 732
Views: 184206

Re: For Stage III's: NED for how long now?

Bumping up.
Eight years since my stage III diagnosis, and six years since my lung surgery/scare.
by GreenLakeGirl
Thu Jun 08, 2017 1:53 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Parenting after surgery and during chemo
Replies: 10
Views: 1263

Re: Parenting after surgery and during chemo

My daughter was a little bit older when I had my ostomy surgery (she was about 30 months), but since she was also potty-training at the time, I had her "help" me with my bag changes. I would bring a step stool into the bathroom, line up my supplies at her level, and let her be my assistant...
by GreenLakeGirl
Sat May 27, 2017 5:09 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: New To Forum - Sigmoid Mass Treatment Question
Replies: 6
Views: 1102

Re: New To Forum - Sigmoid Mass Treatment Question

What kind of doctor? I would be reluctant to follow the sole treatment advice of a GP or a GI, and he should consider getting an opinion of a colorectal surgeon and an oncologist. I'm not knocking GPS or GIs, but this field of study is constantly changing, and in his shoes, I would consult with some...
by GreenLakeGirl
Fri Feb 17, 2017 12:53 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Free comfychemo longsleeve shirt mens medium
Replies: 2
Views: 528

Re: Free comfychemo longsleeve shirt mens medium

Bump. This is a super sweet thing for you to do.
by GreenLakeGirl
Wed Feb 08, 2017 8:42 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rant- Irinotecan and the inevitable finally happened
Replies: 13
Views: 1636

Re: Rant- Irinotecan and the inevitable finally happened

For those of you who struggle with Imodium, you might ask your doctor about Lomotil. It's also an anti-diarrheal med, but I find it's much easier on my guts, and I don't have the pain and cramping I got on Imodium.
by GreenLakeGirl
Tue Jan 03, 2017 3:32 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: To all, old and new
Replies: 27
Views: 3815

Re: To all, old and new

Those who forget history (or choose not to search for it) are condemned to repeat it. This is a natural ebb and flow of a discussion list. New members come and hopefully find what they are looking for. Experienced ones found it and hopefully stay to help the new ones. Many move on when their life wi...
by GreenLakeGirl
Tue Dec 20, 2016 1:38 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: CEA is a stupid test
Replies: 23
Views: 4538

Re: CEA is a stupid test

My oncologist yesterday told me that CEA was a stupid test for ME Yes, I've heard of this before. Honesty, I don't know why they "continue" use it for people it DOES NOT work well with. Lee CEA wasn't an indicator for me, but conversations with my onc led me to believe that that could cha...
by GreenLakeGirl
Sat Dec 17, 2016 6:00 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Safe to wait on Chemotheropy?
Replies: 23
Views: 2375

Re: Safe to wait on Chemotheropy?

With respect to side effects getting better, I found that some things improved while others got worse. The neuropathy, cold sensitivity and fatigue definitely got worse over time, but I'd say the nausea, body twitches and first bite pain were a little less severe after the first infusion. Same for ...

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