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by Rob in PA
Fri Oct 18, 2019 5:40 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: CRC Veteran Check-In! LAR Syndrome question
Replies: 34
Views: 3026

Re: CRC Veteran Check-In! LAR Syndrome question

Hey Rob, Have you tried seeing a physical therapist? I wonder if they can help break up some of the scarring. Scarring has caused some pelvic pain for me, but PT has definitely helped. Might be worth it if you can find a pelvic specialist to work with. P.s., thanks for the well wishes! Hey there Ph...
by Rob in PA
Wed Oct 02, 2019 1:15 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Tenesmus Pain
Replies: 5
Views: 762

Re: Tenesmus Pain

Unfortunately, this is a very real situation and I don't think that doctors, especially family doctors, understand the level of pain Tenesmus can cause during flare-ups. I truly believe that those of us battling and winning our cancer fights become "programmed" to tolerate more pain than m...
by Rob in PA
Wed Oct 02, 2019 1:08 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: So excited, had to share CEA results!!
Replies: 14
Views: 1284

Re: So excited, had to share CEA results!!

wooooohooooooo!!!!!! :D :D :D :D :D :D :D

Congrats!!!

Rob
by Rob in PA
Sat Sep 28, 2019 4:26 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: CRC Veteran Check-In! LAR Syndrome question
Replies: 34
Views: 3026

Re: CRC Veteran Check-In! LAR Syndrome question

At home I have a stool in the bathroom and I can place my laptop on it and work from the bathroom if I expect to be there for a long time. I've used it mainly for Colonoscopy Preps.


Oh yes, been there. I refer to the bathroom as my 2nd office!

Rob
by Rob in PA
Sat Sep 28, 2019 4:21 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Finally some good news
Replies: 3
Views: 701

Re: Finally some good news

Terrific news! Good luck with the follow up, hope it behaves.

Rob
by Rob in PA
Fri Sep 27, 2019 3:43 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: CRC Veteran Check-In! LAR Syndrome question
Replies: 34
Views: 3026

Re: CRC Veteran Check-In! LAR Syndrome question

I hear ya Rickimaroo, there are days that i'm ready to go back to the pouch but I have so much scar tissue from my 3 previous ostomies and numerous other surgeries that it would be quite risky and have potential for failure. Ugh.
by Rob in PA
Fri Sep 27, 2019 3:38 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: RC - I don’t understand why J Pouch
Replies: 8
Views: 1067

Re: RC - I don’t understand why J Pouch

Ditto what CRguy said. I had an LAR with colonic J-pouch and temporary loop ileostomy. Had my reversal done (although it failed the first time and had to have another ileostomy put in) and am going on 8 or 9 years with no ostomy. I have good days and bad days. I do have LAR syndrome and have discuss...
by Rob in PA
Fri Sep 27, 2019 3:22 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: LAR Syndrome and Water
Replies: 15
Views: 1412

Re: LAR Syndrome and Water

I like my water, but never really considered the positive or negative impact it had on my clustering. I'll try and pay a little more attention and see what my results are.
I hate carbonated stuff so that's not really a factor for me.

Good idea.
Thanks
Rob
by Rob in PA
Thu Sep 26, 2019 3:16 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: CRC Veteran Check-In! LAR Syndrome question
Replies: 34
Views: 3026

Re: CRC Veteran Check-In! LAR Syndrome question

I certainly remember the feeling of dealing with chemo AND the tenesmus on top of that. I won't tell you to hang in there because you already know that. All I can say is the clustering has definitely eased up from the early days, but i still get my share of it. Hang in there! Oops, crap, I promised ...
by Rob in PA
Wed Sep 25, 2019 12:53 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: CRC Veteran Check-In! LAR Syndrome question
Replies: 34
Views: 3026

Re: CRC Veteran Check-In! LAR Syndrome question

Protein foods help me avoid diarrhea, but I have to be careful not to get too far on the "other" side that I get constipated. I totallty stopped eating lettuce, broccoli, cauliflower as it tears me up. All foods I once loved, butt had to move on from them. I usually eat a bagel or toast in...
by Rob in PA
Tue Sep 24, 2019 8:15 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: CRC Veteran Check-In! LAR Syndrome question
Replies: 34
Views: 3026

Re: CRC Veteran Check-In! LAR Syndrome question

W2Jeff, that sounds exactly what is going on with me. Anastomosis site just near the anal verge, flares up during clustering. I think I'm in the minority of those with pain for so long so I wouldn't get too worried about Jeff and any lingering pain just yet. I've always been the oddball! 8) Once aga...
by Rob in PA
Tue Sep 24, 2019 2:24 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: CRC Veteran Check-In! LAR Syndrome question
Replies: 34
Views: 3026

Re: CRC Veteran Check-In! LAR Syndrome question

I am glad it settled down for you Mike. I only wish that was my case, its been 11 years since my LAR and still painful. In all honesty, when things were looking kind of grim I had to pick and choose my battles, and put that issue aside, now I'm fortunate to still be here and its something I have to ...
by Rob in PA
Tue Sep 24, 2019 12:53 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: CRC Veteran Check-In! LAR Syndrome question
Replies: 34
Views: 3026

Re: CRC Veteran Check-In! LAR Syndrome question

Thanks Dave and CRGuy, Yes, CR, I am on Gabapentin now...seems to have helped a little with the neuropathy in my feet butt not so much with the nerve pain in my arse. Staples have crossed my mind, butt the docs don't think thats the issue. Citolopram sounds interesting, I'll ask about that. Don't re...
by Rob in PA
Tue Sep 24, 2019 11:59 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: CRC Veteran Check-In! LAR Syndrome question
Replies: 34
Views: 3026

Re: CRC Veteran Check-In! LAR Syndrome question

Hi Dave, Dull achey internal pain in pelvis area pretty much all the time but tolerable, then I get sharp jagged pains that come out of nowhere that make me literally twitch in pain when it happens. My wife knows exactly when i am getting these flare ups because she can tell I'm fidgety. This pain i...
by Rob in PA
Tue Sep 24, 2019 10:40 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: CRC Veteran Check-In! LAR Syndrome question
Replies: 34
Views: 3026

CRC Veteran Check-In! LAR Syndrome question

Hello to all my old friends on here, and welcome new friends to the club that no one really wants to belong to...butt we are sooo thankful that it is here! Congrats Phuong on your new position within the Club....I hear the benefits are terrific :shock: 8) :wink: CRguy, as always, still offering up t...

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