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by Rob in PA
Tue Dec 10, 2019 4:44 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Memorial Sloan Kettering Hotel Option Question
Replies: 10
Views: 1159

Re: Memorial Sloan Kettering Hotel Option Question

Thank you all! I'll pass along the information.

Rob
by Rob in PA
Tue Dec 10, 2019 9:57 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Memorial Sloan Kettering Hotel Option Question
Replies: 10
Views: 1159

Re: Memorial Sloan Kettering Hotel Option Question

We have had good luck with rooms under $200 at the Maxwell. But lately the hotels have all been crazy expensive, maybe due to the holidays? I did contact MSK to ask about Hope Lodge or similar for my last surgery; that is available for free, but only if you have treatment 3 or more times a week. I ...
by Rob in PA
Tue Dec 10, 2019 6:47 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Memorial Sloan Kettering Hotel Option Question
Replies: 10
Views: 1159

Memorial Sloan Kettering Hotel Option Question

Hi folks, I've got a friend recently diagnosed with Stage IV pancreatic cancer and she is meeting tomorrow with a Doctor there to go over options with her. They booked a hotel room for around $390 a night and that was supposedly WITH the Sloan discount. That sounds like a lot and I was wondering if ...
by Rob in PA
Fri Dec 06, 2019 11:44 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: 10 Years and Counting
Replies: 30
Views: 3290

Re: 10 Years and Counting

From one "old timer" to another....CHEERS and CONGRATULATIONS!!!!! Us survivors smile instead of frown when someone complains about getting old. I just smile and think "Damn right I'm getting old...beats the alternative"! :shock: :shock: :shock: 8) Great news Fletch, and thanks f...
by Rob in PA
Fri Dec 06, 2019 11:31 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Surgery stories please! APR
Replies: 2
Views: 726

Re: Surgery stories please! APR

Hi Marie, I did not have APR surgery but I did have LAR surgery and involved many of the processes that the APR has. Basically, the LAR is a sphincter saving surgery and then they create a "j pouch" out of the lower end of my colon to mimic the removed rectum. So, back to your question.......
by Rob in PA
Fri Dec 06, 2019 11:07 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: 7 Year cancerversary
Replies: 20
Views: 2286

Re: 7 Year cancerversary

You da' man Kiwi!!!

I'll crack open a cold tinnie tonight in honor of your versary :D :D

Cheers!
Rob
by Rob in PA
Fri Oct 18, 2019 5:40 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: CRC Veteran Check-In! LAR Syndrome question
Replies: 34
Views: 3501

Re: CRC Veteran Check-In! LAR Syndrome question

Hey Rob, Have you tried seeing a physical therapist? I wonder if they can help break up some of the scarring. Scarring has caused some pelvic pain for me, but PT has definitely helped. Might be worth it if you can find a pelvic specialist to work with. P.s., thanks for the well wishes! Hey there Ph...
by Rob in PA
Wed Oct 02, 2019 1:15 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Tenesmus Pain
Replies: 5
Views: 910

Re: Tenesmus Pain

Unfortunately, this is a very real situation and I don't think that doctors, especially family doctors, understand the level of pain Tenesmus can cause during flare-ups. I truly believe that those of us battling and winning our cancer fights become "programmed" to tolerate more pain than m...
by Rob in PA
Wed Oct 02, 2019 1:08 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: So excited, had to share CEA results!!
Replies: 14
Views: 1444

Re: So excited, had to share CEA results!!

wooooohooooooo!!!!!! :D :D :D :D :D :D :D

Congrats!!!

Rob
by Rob in PA
Sat Sep 28, 2019 4:26 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: CRC Veteran Check-In! LAR Syndrome question
Replies: 34
Views: 3501

Re: CRC Veteran Check-In! LAR Syndrome question

At home I have a stool in the bathroom and I can place my laptop on it and work from the bathroom if I expect to be there for a long time. I've used it mainly for Colonoscopy Preps.


Oh yes, been there. I refer to the bathroom as my 2nd office!

Rob
by Rob in PA
Sat Sep 28, 2019 4:21 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Finally some good news
Replies: 3
Views: 809

Re: Finally some good news

Terrific news! Good luck with the follow up, hope it behaves.

Rob
by Rob in PA
Fri Sep 27, 2019 3:43 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: CRC Veteran Check-In! LAR Syndrome question
Replies: 34
Views: 3501

Re: CRC Veteran Check-In! LAR Syndrome question

I hear ya Rickimaroo, there are days that i'm ready to go back to the pouch but I have so much scar tissue from my 3 previous ostomies and numerous other surgeries that it would be quite risky and have potential for failure. Ugh.
by Rob in PA
Fri Sep 27, 2019 3:38 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: RC - I don’t understand why J Pouch
Replies: 8
Views: 1191

Re: RC - I don’t understand why J Pouch

Ditto what CRguy said. I had an LAR with colonic J-pouch and temporary loop ileostomy. Had my reversal done (although it failed the first time and had to have another ileostomy put in) and am going on 8 or 9 years with no ostomy. I have good days and bad days. I do have LAR syndrome and have discuss...
by Rob in PA
Fri Sep 27, 2019 3:22 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: LAR Syndrome and Water
Replies: 15
Views: 1607

Re: LAR Syndrome and Water

I like my water, but never really considered the positive or negative impact it had on my clustering. I'll try and pay a little more attention and see what my results are.
I hate carbonated stuff so that's not really a factor for me.

Good idea.
Thanks
Rob
by Rob in PA
Thu Sep 26, 2019 3:16 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: CRC Veteran Check-In! LAR Syndrome question
Replies: 34
Views: 3501

Re: CRC Veteran Check-In! LAR Syndrome question

I certainly remember the feeling of dealing with chemo AND the tenesmus on top of that. I won't tell you to hang in there because you already know that. All I can say is the clustering has definitely eased up from the early days, but i still get my share of it. Hang in there! Oops, crap, I promised ...

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