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by Rob in PA
Thu Jul 02, 2020 2:46 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: All Chemo's have stopped working
Replies: 10
Views: 2388

Re: All Chemo's have stopped working

That's really great to read, Rob. My husband's oncologist does not plan to do any maintenance chemo, and although I know my husband is pretty happy about this (I can understand why), that gets me worried about recurrence (he had lung mets like you, among other things). It's great to know that you h...
by Rob in PA
Tue May 26, 2020 5:31 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: All Chemo's have stopped working
Replies: 10
Views: 2388

Re: All Chemo's have stopped working

I've had cyberknife on my lungs with great success and would recommend it to anyone as a treatment option...especially if your Mother "only" has on lung met. I'm assuming that since she has brain mets they won't do a lung resection since there is more than one organ involved. I made a pers...
by Rob in PA
Sat Apr 04, 2020 1:12 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: I will always be grateful I found Colon Talk
Replies: 12
Views: 2290

Re: I will always be grateful I found Colon Talk

Great post Mike! Almost every obstacle i faced in my journey was discussed at some point on this forum, and for that, I am forever grateful.

This Board got me through some of the darkest moments of my cancer journey.

Thanks again Mike!


Rob
by Rob in PA
Tue Dec 10, 2019 4:44 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Memorial Sloan Kettering Hotel Option Question
Replies: 10
Views: 1694

Re: Memorial Sloan Kettering Hotel Option Question

Thank you all! I'll pass along the information.

Rob
by Rob in PA
Tue Dec 10, 2019 9:57 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Memorial Sloan Kettering Hotel Option Question
Replies: 10
Views: 1694

Re: Memorial Sloan Kettering Hotel Option Question

We have had good luck with rooms under $200 at the Maxwell. But lately the hotels have all been crazy expensive, maybe due to the holidays? I did contact MSK to ask about Hope Lodge or similar for my last surgery; that is available for free, but only if you have treatment 3 or more times a week. I ...
by Rob in PA
Tue Dec 10, 2019 6:47 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Memorial Sloan Kettering Hotel Option Question
Replies: 10
Views: 1694

Memorial Sloan Kettering Hotel Option Question

Hi folks, I've got a friend recently diagnosed with Stage IV pancreatic cancer and she is meeting tomorrow with a Doctor there to go over options with her. They booked a hotel room for around $390 a night and that was supposedly WITH the Sloan discount. That sounds like a lot and I was wondering if ...
by Rob in PA
Fri Dec 06, 2019 11:44 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: 10 Years and Counting
Replies: 30
Views: 4559

Re: 10 Years and Counting

From one "old timer" to another....CHEERS and CONGRATULATIONS!!!!! Us survivors smile instead of frown when someone complains about getting old. I just smile and think "Damn right I'm getting old...beats the alternative"! :shock: :shock: :shock: 8) Great news Fletch, and thanks f...
by Rob in PA
Fri Dec 06, 2019 11:31 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Surgery stories please! APR
Replies: 2
Views: 1005

Re: Surgery stories please! APR

Hi Marie, I did not have APR surgery but I did have LAR surgery and involved many of the processes that the APR has. Basically, the LAR is a sphincter saving surgery and then they create a "j pouch" out of the lower end of my colon to mimic the removed rectum. So, back to your question.......
by Rob in PA
Fri Dec 06, 2019 11:07 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: 7 Year cancerversary
Replies: 20
Views: 3306

Re: 7 Year cancerversary

You da' man Kiwi!!!

I'll crack open a cold tinnie tonight in honor of your versary :D :D

Cheers!
Rob
by Rob in PA
Fri Oct 18, 2019 5:40 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: CRC Veteran Check-In! LAR Syndrome question
Replies: 34
Views: 4377

Re: CRC Veteran Check-In! LAR Syndrome question

Hey Rob, Have you tried seeing a physical therapist? I wonder if they can help break up some of the scarring. Scarring has caused some pelvic pain for me, but PT has definitely helped. Might be worth it if you can find a pelvic specialist to work with. P.s., thanks for the well wishes! Hey there Ph...
by Rob in PA
Wed Oct 02, 2019 1:15 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Tenesmus Pain
Replies: 5
Views: 1172

Re: Tenesmus Pain

Unfortunately, this is a very real situation and I don't think that doctors, especially family doctors, understand the level of pain Tenesmus can cause during flare-ups. I truly believe that those of us battling and winning our cancer fights become "programmed" to tolerate more pain than m...
by Rob in PA
Wed Oct 02, 2019 1:08 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: So excited, had to share CEA results!!
Replies: 14
Views: 1779

Re: So excited, had to share CEA results!!

wooooohooooooo!!!!!! :D :D :D :D :D :D :D

Congrats!!!

Rob
by Rob in PA
Sat Sep 28, 2019 4:26 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: CRC Veteran Check-In! LAR Syndrome question
Replies: 34
Views: 4377

Re: CRC Veteran Check-In! LAR Syndrome question

At home I have a stool in the bathroom and I can place my laptop on it and work from the bathroom if I expect to be there for a long time. I've used it mainly for Colonoscopy Preps.


Oh yes, been there. I refer to the bathroom as my 2nd office!

Rob
by Rob in PA
Sat Sep 28, 2019 4:21 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Finally some good news
Replies: 3
Views: 1003

Re: Finally some good news

Terrific news! Good luck with the follow up, hope it behaves.

Rob
by Rob in PA
Fri Sep 27, 2019 3:43 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: CRC Veteran Check-In! LAR Syndrome question
Replies: 34
Views: 4377

Re: CRC Veteran Check-In! LAR Syndrome question

I hear ya Rickimaroo, there are days that i'm ready to go back to the pouch but I have so much scar tissue from my 3 previous ostomies and numerous other surgeries that it would be quite risky and have potential for failure. Ugh.

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