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by SkiFletch
Sat Nov 14, 2015 2:44 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Ablation Update
Replies: 36
Views: 2610

Re: Ablation Update

Hey old friend. Glad to see you're still kicking ass and taking names with your famous humor :). Got enough wood ready for the winter?
by SkiFletch
Sat Nov 14, 2015 2:34 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Six Years
Replies: 42
Views: 3808

Six Years

Greetings everyone, long time no talk. I'm back to make good on a promise I made six years ago to a 29 year old scared out of his mind having recently heard those fateful words. This was one of the first places I came on the old interwebs sitting in the hospital, waiting alone with my trusty laptop ...
by SkiFletch
Fri Dec 05, 2014 3:52 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: How many liver resections can you have?
Replies: 5
Views: 772

Re: How many liver resections can you have?

Yeah there's no specific answer for this. As long as the major vessels are not removed from a lobe, it can and will grow back. So if your surgeries are smaller wedge resections, they can be repeated many many times.
by SkiFletch
Thu Nov 20, 2014 3:02 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Six Feet Under in Buffalo
Replies: 22
Views: 2043

Re: Six Feet Under in Buffalo

Bro it's crazy here! My house specifically has escaped most of the pain. I'd say I have somewhere between 1-2 feet. There are a few townships just south and east of the city that set the national (including Alaska) all time record for 24 hour snowfall at 76"! Wrap your head around that for a mi...
by SkiFletch
Thu Nov 20, 2014 2:47 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Kicking and Screaming
Replies: 44
Views: 4994

Re: Kicking and Screaming

Thanks for all your kind words guys. Turns out there were many days in a row of celebration. I'm so glad I was able to help some of you out on your own journey.
by SkiFletch
Thu Nov 13, 2014 1:17 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Kicking and Screaming
Replies: 44
Views: 4994

Kicking and Screaming

Five years ago today (Friday the 13th no less) I woke up groggy from my first ever colonoscopy at the young age of 29 and heard those fateful words. Following surgery I learned initial testing was insufficient and what we thought was easily treatable colon cancer became a nearly lethal Stage IV diag...
by SkiFletch
Fri Oct 24, 2014 10:27 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Newbie colonoscopy result questions
Replies: 4
Views: 647

Re: Newbie colonoscopy result questions

Gotta wait for pathology for sure. 2cm is medium or medium-large in my non-doctor book. Who knows if it's trouble or not? The pathologist. Gotta wait for that. The number of polyps is somewhat concerning. Normally that would just shorten your time till your next scope. But the flat polyp sort of sho...
by SkiFletch
Mon Oct 20, 2014 10:55 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Need advice
Replies: 12
Views: 1170

Re: Need advice

An addition. Here's the thread I started following my procedure. Sorry its long :). Re-reading it, I had forgotten how much that NG tube made me want to stab someone by the end.
by SkiFletch
Mon Oct 20, 2014 10:43 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Need advice
Replies: 12
Views: 1170

Re: Need advice

Ray's journal is pretty excellent. HIPEC is often referred to as mother of all surgeries around here as it's intense. They probably average 10 hours for it. The rate of non life-threatening complications is HIGH and it's not be underestimated. But it CAN offer folks a shot at long term remission and...
by SkiFletch
Mon Oct 20, 2014 10:14 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Your Thoughts During CT n MRi Scans
Replies: 16
Views: 1109

Re: Your Thoughts During CT n MRi Scans

CT scan thoughts are "Don't pee yourself, don't poop yourself, don't throw up."

MRI thoughts are zzzzzzzzzzzzz as I'm napping
by SkiFletch
Wed Oct 15, 2014 10:38 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: update to update after appointment today
Replies: 41
Views: 2891

Re: update to update after appointment today

EPIC isn't used as often as HIPEC for cases like this, but some folks do it. I know it's practiced at MSKCC and is as you describe. That's about all I know though :)
by SkiFletch
Wed Oct 15, 2014 9:09 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Low-radiation CT
Replies: 14
Views: 762

Re: Low-radiation CT

Does anyone now exactly How dangerous CT scans are? Is there a fear they'll cause new cancer at some stage in the future, or is it a fear of weakening the body *now*? My oncologist is using over-exposure to radiation as a reason to only scan me once a year. I'm honestly more concerned about colon c...
by SkiFletch
Tue Oct 14, 2014 9:59 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: how long for PET results
Replies: 6
Views: 486

Re: how long for PET results

The availability of readers is what determines when the results (report) is available. At my center, if I am scanned early in the morning, the report will be done before the end of the day. The later the scan, the later the report. But if your new scan place does not have full time readers, it is h...
by SkiFletch
Tue Oct 14, 2014 9:52 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Need Tips for Best Bowel Prep Ever
Replies: 9
Views: 813

Re: Need Tips for Best Bowel Prep Ever

Try a different prep if the golytely doesn't work? Maybe Miralax/Gatorade?
by SkiFletch
Wed Oct 08, 2014 9:20 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Onset Of Side Effects
Replies: 11
Views: 1016

Re: Onset Of Side Effects

The one side effect constant seems to be cold sensitivity with Oxaliplatin. That one comes on quick. Sometimes even during infusion, if not shortly thereafter. Others typically rear their heads within the first 5 days. As a general rule with day 1 being infusion day, side effects tend to peak later ...

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