Not the news anyone wants to hear.

I know that you must be concerned about your son. Sending strength, love and peace to you and your loved ones. You and your son and family remain in my thoughts and prayers ❤️

Hi there,

What are your CEA levels and is it creeping upwards or staying about the same?

Hi Kev, Welcome, you will find lots of support and assistance here. I know I did. I remember all too well how terrified I was, especially in those early days. It’s terrifying to learn you have cancer. I was diagnosed in 2009, with colon cancer. My only symptom was blood in my stool. My children were...

Yes, it sounds like cancer, but it seems that they caught it in the early stage so that’s good. During the surgery to remove the polyp, the surgeon will probably remove a section of his bowel including the lymph nodes and they will be tested for cancer. This is probably what he meant when he said th...

That was very similar to my diagnoses. I was 44. My oncologist recommended chemo as I was “young”. However, I remember him saying that if I was older, such as in my 80’s, he would not recommend it. He said that I could have been cured from surgery alone and that chemo was like an “insurance”. Have a...

Never a dull moment, hey? Did they not raise a concern in March when it first appeared? Has it grown since first reported? It sucks not knowing and having to wait for appointments, results etc. It’s a scary and unsettling time but it could well be benign. Good that your oncologist is following it up...

Mmmmm lemon lavender cupcakes...they sound delish.

So sorry that you lost your sister....20 is so young. Feeling unwell on her birthday is very strange. Wishing you the best and love to your mom too.

I see that it was 8.8 the time before that too, and it’s been as high as 11.4. Just wondering if it’s normal for yours to fluctuate. It’s normal for CEA to fluctuate somewhat, and very unlikely to ever be the same.

My heart breaks for your family

What a brave man your DH is.

Sending you strength and peace ❤️

Stage III - I had a CT every 12 months

Three months is a long time to wait, wonder and worry in my opinion. I had a small spot on my liver that was discovered on a CT scan. The same doctor sent me for an MRI and it turned out to be a cyst. Hope your son’s liver spot turns out to be nothing sinister. Sending positive vibes and best wishes

I only had FOLFIRI but it played havoc with my digestive system, my hair thinned and it affected my neutrophils and had to have neupogen injections a few times between treatments to help boost them. Best wishes to your mom.

Hi there, I think you are definitely doing the right thing by being proactive and getting a second opinion. I am a bit concerned about your CEA result. Have you ever had a CA19-9 test? My CEA was 4.7 prior to surgery and then was always between 0.5-2.0. However, I do realise that other people’s resu...

Great news Amy! Very happy for you

Hi there, I was you in 2009 and I’m still here! I have not given up red meat, I love it and it is very nutritious. I don’t believe it causes cancer but that’s my opinion. Probably best to limit refined sugar and refined grains, vegetable oils (not olive oil) and trans fats if you want to change your...