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by sid1968
Fri Oct 25, 2019 3:23 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Tired of rectal pain, considering ostomy; Any thoughts?
Replies: 2
Views: 618

Tired of rectal pain, considering ostomy; Any thoughts?

I've been on this journey for almost 20 years: LAR at 43, "cured" at 49, local recurrence at 52: surgery (part of sacrum/coccyx removed) , chemo, radiation. It was after the radiation got going that the big pain started, and I lost my ability to sit. Pain was poorly managed by a pain doc n...
by sid1968
Mon Dec 17, 2012 2:36 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Power Port Question
Replies: 19
Views: 1671

Re: Power Port Question

I hated the idea of getting a port, but I got used to the creepy science-fictiony idea that I could be plugged into something. After the procedure, it might hurt to not have the bra on keeping everything still. I showered with my bra on for a couple of weeks before the soreness went away. Good luck!
by sid1968
Fri Sep 14, 2012 10:07 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: When oncologists disagree
Replies: 10
Views: 1371

Re: When oncologists disagree

Thanks to all who responded. I am impressed by the wisdom on display here.
by sid1968
Thu Sep 13, 2012 1:56 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: When oncologists disagree
Replies: 10
Views: 1371

When oncologists disagree

Five years after surgery for stage 1 rectal ca, my surgeon shook my hand, said I was probably cured. Two years later, I had a local met to the coccyx, sacrum, followed by radiation and 12 rounds of folfox, VERY poorly tolerated. The radiation oncologist, a great guy, said, "We are going to cure...
by sid1968
Tue Dec 22, 2009 5:40 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Skipped Stage III
Replies: 11
Views: 1563

Re: Skipped Stage III

I started with stage 1 rectal ca, negative lymph nodes and years later developed stage 4, also negative lymph nodes, My radiation onc said I have a good chance of being cured. But I never asked precisely what that chance was. Best of luck to you . . .
by sid1968
Sun Dec 13, 2009 3:43 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: How did you feel after your FOLFOX chemo tx?
Replies: 8
Views: 3062

Re: How did you feel after your FOLFOX chemo tx?

I just want to say that side effects are likely to worsen as one progresses through the rounds of folfox. I was sick enough to be hospitalized for the last few rounds. What made me feel almost normal was IV hydration: an hour of it after infusion on day 1 and day 2. I didn't feel dehydrated, so it t...
by sid1968
Wed Dec 09, 2009 1:57 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Fentanyl Patch
Replies: 20
Views: 4067

Re: Fentanyl Patch

I have been on the patch at various doses (up to 175) for a year, with other opiates for breakthrough pain. Constipation is a problem and there are lots of solutions: osmotic laxatives like oral, tasteless Miralax powder and glycerin suppositories are milder than stimulant laxatives (like Dulcolax)....
by sid1968
Wed Dec 09, 2009 1:43 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Bone mets treatment confusing
Replies: 10
Views: 1768

Re: Bone mets treatment confusing

I had rectal ca met to my coccyx and sacrum, the bottom bones of the spine. These were removed promptly, and my treatment was radiation and folfox, just finished in September. Nobody told me to wait. I don't know what these spheres are that you're referring to.
by sid1968
Thu Dec 03, 2009 8:09 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: I had rectal ca met to coccyx, sacrum: anybody else?
Replies: 3
Views: 1155

Re: I had rectal ca met to coccyx, sacrum: anybody else?

Thanks, Lee Yeah, I have talked to my docs about this. One of my surgeons has never seen such a sequence of events (haven't asked the other), nor has my oncologist. They recommend PT and laxatives. The laxatives made matters worse: the belladonna worked. Bravo belladonna. Yikes, stage IV. Ok, I'll d...
by sid1968
Thu Dec 03, 2009 4:37 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: I had rectal ca met to coccyx, sacrum: anybody else?
Replies: 3
Views: 1155

I had rectal ca met to coccyx, sacrum: anybody else?

Hi, all--I've been lurking for months and decided to enter the fray today. I was dx w/ rectal ca at 43, had a resection with no colostomy and went on my merry way. No lymph nodes, no chemo, no radiation. I think it was stage I. Five years later my surgeon shook my hand and pronounced me probably cur...

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