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by Kathryn in MN
Wed Dec 18, 2013 5:37 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: hospital over 2 weeks - very ill
Replies: 43
Views: 3803

hospital over 2 weeks - very ill

I am in the Hospital with a third primary. Check with Facebook friend for details. I am too tired. PLEASE no PM. I cannot answer. Duodenum cancer.
by Kathryn in MN
Fri Nov 22, 2013 11:22 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Half way there and i'm just drained :(
Replies: 23
Views: 2777

Re: Half way there and i'm just drained :(

A suggestion that may or may not help you (depending on insurance coverage) - see if you can get your chemo on Thursday or Friday, so you can do disconnect at home, rather than having to go in for it (conserve your energy), and ALSO have them give you IV fluids at disconnect (and IV antiemetics if y...
by Kathryn in MN
Fri Nov 22, 2013 11:18 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: mCRC STAGE IV OR RECURRENT PATIENTS thread - ONGOING
Replies: 2268
Views: 314454

Re: mCRC STAGE IV OR RECURRENT PATIENTS thread - ONGOING

Hello I was diagnosed last January 2013 with stage 4 colon cancer. I have been in treatment for most of this time with a few weeks off in the summer. I just found the Colon Club and up until now I haven't really felt like joining in or contributing. I am not sure how this all works and I don't want...
by Kathryn in MN
Fri Nov 22, 2013 10:12 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: One year later
Replies: 27
Views: 2640

Re: One year later

This is exactly what I hope for my family - for everyone to go on LIVING and enjoying life to the fullest, every day. And I want them to carry on my mission to spread the word about CRC and fight for funding for research and advocate for patients. Thank you for continuing to participate here to help...
by Kathryn in MN
Fri Nov 22, 2013 9:46 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Traveler's update - good news overall.
Replies: 11
Views: 1484

Re: Traveler's update - good news overall.

Great news. I hope you can get your hands on some medical marijuana - makes a big difference with nausea, vomiting and appetite.
by Kathryn in MN
Wed Nov 20, 2013 4:22 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: What if surgeon is not board certified? 24 hours left.
Replies: 20
Views: 3028

Re: What if surgeon is not board certified? 24 hours left.

My surgeon was a general surgeon. Their office specializes in hernias and abdominal surgeries. He did a fantastic job for me - removing most of my sigmoid. If I had a rectal tumor, I would ONLY go to a board certified colorectal surgeon. For colon, it doesn't concern me personally so much. I would w...
by Kathryn in MN
Wed Nov 20, 2013 4:07 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Off Topic - Airfares
Replies: 3
Views: 664

Re: Off Topic - Airfares

Although I don't travel for treatment - I do travel on business. I live nearly equal distance between three airports. Lansing, Flint and Metro Detroit. I most often fly out of Flint, and even though the flight out of Detroit would be the same one I would book if I flew direct out of Detroit, the 15...
by Kathryn in MN
Wed Nov 20, 2013 3:44 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: mCRC STAGE IV OR RECURRENT PATIENTS thread - ONGOING
Replies: 2268
Views: 314454

Re: mCRC STAGE IV OR RECURRENT PATIENTS thread - ONGOING

I've been MIA for a week - out of town for my son's Army AIT graduation followed by 6 nights with my sister's family and some time with an old high school friend. I'm glad I was able to spend time with them. Overall I have not been feeling too well. I have nausea a lot, and I am not on any treatment...
by Kathryn in MN
Wed Nov 20, 2013 3:14 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Very tough desicion.. I'm seeking 2nd opinion .. catch 22
Replies: 15
Views: 1942

Re: Very tough desicion.. I'm seeking 2nd opinion .. catch 2

Stay on clear liquids and do what you feel you need to do. When my tumor was finally found during colonoscopy (after 2 years of misdiagnosis) I was told that I was within a few days of fully obstructing. My GI called a surgeon immediately. I was given instructions to stay on clear liquids only. So m...
by Kathryn in MN
Mon Nov 11, 2013 9:44 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: disney, kids and stage IV
Replies: 14
Views: 1564

Re: disney, kids and stage IV

I'm sorry the trip was a bit of a letdown for you. But in the world of kids, I bet they talk about this trip for decades to come - with fond memories. Before my cancer we did a big family camping trip out west. The kids were 15, 12, 9 and 7. The two youngest really enjoyed themselves most of the tim...
by Kathryn in MN
Mon Nov 11, 2013 9:20 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: 5 Years NED Stage 4!
Replies: 33
Views: 5008

Re: 5 Years NED Stage 4!

Woohoo! Great news!
by Kathryn in MN
Mon Nov 11, 2013 9:16 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Kras Mutation Codon 12
Replies: 11
Views: 1669

Re: Kras Mutation Codon 12

New testing has determined that the EGFR drugs do not work for any KRAS mutation patients - regardless of codon. Earlier they thought it might help a very small percentage of KRAS mutants with specific mutations. I'm G13D and for a while they thought it could be helpful for me. Now the studies say n...
by Kathryn in MN
Sat Nov 09, 2013 4:24 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Day 8 in the hospital - UPDATE at bottom
Replies: 16
Views: 2011

Re: Day 8 in the hospital

Sorry to hear he is still struggling so much. Some pain meds give me headaches. Maybe a switch in pain meds might help?
by Kathryn in MN
Sat Nov 09, 2013 3:00 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Any news from Rhea? ......UPDATED by Rhea !
Replies: 15
Views: 2223

Re: Any news from Rhea? ......UPDATED by Rhea !

Glad it went smoothly and you are home so soon and feeling well, albeit tired.
by Kathryn in MN
Sat Nov 09, 2013 2:57 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: GYRIG - Caregiver Grants - Apps accepted thru 11/30
Replies: 10
Views: 1439

Re: GYRIG - Caregiver Grants - Apps accepted thru 11/30

My husband was the recipient of one of these awards after I applied for him. My daughters helped out with being caregiver to me the first couple years, but he has been the sole caregiver for over 2 years now.

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