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by sadysue
Sun Jul 07, 2019 6:27 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: CLUSTERINGGGGGGGGG!!!!!!!
Replies: 45
Views: 1815

Re: CLUSTERINGGGGGGGGG!!!!!!!

Clustering is miserable, painful and time consuming. My radiation onc told me to never wipe my bottom clean. He said always "pat, pat, pat" and get the same results without hurting yourself. He also gave me several peri-anal bottles (I think that is what they are called) to squirt myself c...
by sadysue
Sun May 05, 2019 12:06 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: InterStim after 10 years of LARS
Replies: 4
Views: 622

Re: InterStim after 10 years of LARS

Thank you so much for sharing this. I've never heard of InterStim and plan to speak to my GI doctor about it when I see him in July. I am almost 8 years out from my surgery and deal with many trips to the bathroom, sometimes all day long, before I can leave the house. My entire rectum has been remov...
by sadysue
Fri Mar 08, 2019 6:07 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Just can't let it go
Replies: 31
Views: 2384

Re: Just can't let it go

What are you complaining about? You got a good report - no cancer. Wish I was so lucky!
by sadysue
Wed Nov 07, 2018 2:58 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Did Daily Enema Users consult Doctors?
Replies: 14
Views: 1812

Re: Did Daily Enema Users consult Doctors?

Not sure this will help anyone but here goes. I am over six years out from my iliostomy reversal and I still have days that I need to be close to the bathroom. My entire rectum was removed and my muscles down below are not the best anymore. Ten months ago, my gut went crazy out of control and I was ...
by sadysue
Wed Aug 29, 2018 5:18 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: I got to update my signature!
Replies: 16
Views: 5571

Re: I got to update my signature!

Congratulations, Dave. That is such wonderful news!
Mary Ann :D
by sadysue
Sun Apr 22, 2018 1:04 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: New life after 25 years - Easy Enema
Replies: 4
Views: 1240

Re: New life after 25 years - Easy Enema

That is amazing and I am so happy for you. I tried a "vaginal/colon" cleansing kit from Amazon about 4 months ago. Unfortunately it didn't work well for me. The one I purchased had a tube that needed to be installed onto the bathroom sink. I had to change out the spigot head and filter in ...
by sadysue
Tue Apr 17, 2018 4:11 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Marijuana is helping with my bathroom trips
Replies: 7
Views: 1707

Re: Marijuana is helping with my bathroom trips

Thanks for posting this. I have tried THC and CBD. The THC naturally makes me feel much better but unfortunately it easily puts me to sleep. So I am reluctant to use it during the day. I tried CBD oil for about two months last year, hoping that it would help with pain, clustering and inflammation ~ ...
by sadysue
Wed Jan 03, 2018 1:51 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Scared & Would Love Some Advice
Replies: 4
Views: 868

Re: Scared & Would Love Some Advice

Hey Max....you are taking the correct/best path by seeing a good GI doctor. I think it's impossible (at least for me it was) to not dwell on the worries that come along with any "butt" issues. If you are extremely stressed and experiencing anxiety, you can always get help from your doctor....
by sadysue
Mon Nov 27, 2017 11:15 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Dysautonomia, a new thing?
Replies: 26
Views: 2753

Re: Dysautonomia, a new thing?

So sorry for what you are experiencing. Chemo has unfortunately left a large, lasting footprint on many of us. I have neuropathy that affects several parts of my body but nothing like what you have - I've never heard of it. I wish you the best and hope you find relief and peace of mind.
Mary Ann
by sadysue
Mon Nov 27, 2017 11:08 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Scans all normal/ NED 9 yrs post dx, etc. Stage IVa
Replies: 14
Views: 2577

Re: Scans all normal/ NED 9 yrs post dx, etc. Stage IVa

Good for you, Diane, you are fighting a good fight :-) and you are winning! Wishing you continued peace and many blessings.
Mary Ann
by sadysue
Wed Nov 08, 2017 1:01 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Question about colonoscopy
Replies: 3
Views: 733

Re: Question about colonoscopy

Hemorrhoids. Don't worry too much and good luck!
by sadysue
Tue Nov 07, 2017 2:40 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Bowel "Urgency" - help!
Replies: 23
Views: 3484

Re: Bowel "Urgency" - help!

P.S. about the daily enema. Do you use a disposable enema or one of the big hanging bags. I've tried the large size disposable enema (I think 9 oz) and they help a little. They only get stool close to the anal verge. How do you do it? Lay on the floor in the bathroom or stay close to the bathroom un...
by sadysue
Tue Nov 07, 2017 1:59 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Bowel "Urgency" - help!
Replies: 23
Views: 3484

Re: Bowel "Urgency" - help!

This sounds so familiar to me. Most of the time I am constipated but at some point, every several days, the constipation ends abruptly. I start to feel very crampy and then pass hard stool. It gets softer after each trip to the bathroom, usually 4-5 times. The finale is what I call a "blow out....
by sadysue
Tue Nov 07, 2017 1:37 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Surgery
Replies: 6
Views: 1118

Re: Surgery

I think everyone has "severe psycological" issues when first presented with the fact they might need to wear a plastic bag to hold their bodily waste. It's so un-natural. I had one after my surgery. My surgeon told me ahead of time that it was absolutely necessary for my butt to heal after...

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