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by usopen
Sat Aug 10, 2013 11:43 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Moving forward with a clinical trial
Replies: 16
Views: 3327

Re: Moving forward with a clinical trial

That's great Michelle. Nice drop in CEA. While I was in Ny a few weeks ago, I realized I would be right across the street from where Dr. Smith's office is located. We had made arrangements a few days before, to talk about the trial. I really liked Dr. Smith. For now we decided to go forward with ano...
by usopen
Thu Jul 11, 2013 8:19 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: FOR ALL ON CLINICAL TRIALS (edited name)
Replies: 373
Views: 64769

Re: FOR ALL ON CLINICAL TRIALS (edited name)

Dianne, you did it.....finished he trial and no progression. I am so happy for you. Sorry about the rash. I know that can be aggravating. Would something like Benadryl help, or an antibiotic? There has to be something. Wow, I did not know you had that much chemo. I thought I was going to set a recor...
by usopen
Wed Jun 19, 2013 6:06 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: My Dear Husband is Cancer Free and with God
Replies: 58
Views: 8819

Re: My Dear Husband is Cancer Free and with God

Niki, I am so sorry to hear this, but Matt is no longer struggling. With reading the obituary, I feel like I know your family better and you all have so much to be proud of. Every night I light a candle for someone, and tonight it will be for you and your family. You will continue to be in my though...
by usopen
Wed Jun 12, 2013 8:11 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: FUDR no longer working - Question about revisiting old chemo
Replies: 7
Views: 1204

Re: FUDR no longer working - Question about revisiting old c

DeAnn....... I'm an RN, and I have good discussions with my new local oncologist (specializing in trials). I am not completely medical-terminology deficient, but I am sure not treated that way At Sloan. With progressing Stage 4, I do not have time to waste. When I was on chemo break with sky-high li...
by usopen
Wed Jun 12, 2013 2:05 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: FUDR no longer working - Question about revisiting old chemo
Replies: 7
Views: 1204

Re: FUDR no longer working - Question about revisiting old c

Will send you a PM tomorrow. I had mitomycin & fudr in the pump back in november. Have almost identical situation. NOT giving up. Did you see Maia's latest thread? Try to watch that ET show tonight for starters. I will miss it. I think i was the cause of Dr. K mentioning clinical trials. When i ...
by usopen
Sat Jun 01, 2013 4:53 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: News on MPDL3280A (anti PD-L1) 2013 ASCO (UPDATED ESMO)
Replies: 12
Views: 5481

Re: News on MPDL3280A 2013 ASCO

Thank you Maia. You are so caring, upbeat, intelligent.....i won't go on and on (but i could), because I don't want to embarrass you (I can tell you are humble, too). Ok, I'll stop. I, too, have been thinking about you and your daughter. My nightly ritual is to light a (flameless) candle and dedicat...
by usopen
Thu May 30, 2013 5:36 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Has anyone heard of the drug Lentinan?
Replies: 10
Views: 1103

Re: Has anyone heard of the drug Lentinan?

Thank you for sharing that, CR.
I hope your relative does exceptionally well.
(I suppose you have to be KRAS wild to be in the trial ) ???

Joan
by usopen
Thu May 23, 2013 10:41 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: A new kind of journey for Midnight_Engineer
Replies: 26
Views: 3863

Re: A new kind of journey for Midnight_Engineer

I am extremely saddened to hear this. I was following your dad's story. I had inquired about 6 months ago about the liver tumors trial in R.I., but decided not to do it mainly because I did have the hai pump....but that failed me, and I had a failed liver surgery, too. I then saw where your dad had ...
by usopen
Mon May 13, 2013 5:09 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Stage IV Follow Up CT After Liver Resection UPDATE 1/14/14
Replies: 10
Views: 1020

Re: UPDATE: Stage IV Follow Up CT After Liver Resection

Hi Cynthia,
Thats great that the liver is clear.
Do u mind sharing what the new systemic chemo will be?
Thanks.
by usopen
Mon May 13, 2013 3:16 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Roswell Park
Replies: 4
Views: 830

Re: Roswell Park

I remember reading about that trial approx. 1 year ago. I believe they accepted 20 recruits at the time. There were many others who were hoping to be one of the twenty. I later tried to inquire more about it, mostly about results they were seeing, but was unable to talk with anyone. It was probably ...
by usopen
Mon May 13, 2013 3:16 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Roswell Park
Replies: 4
Views: 830

Re: Roswell Park

I remember reading about that trial approx. 1 year ago. I believe they accepted 20 recruits at the time. There were many others who were hoping to be one of the twenty. I later tried to inquire more about it, mostly about results they were seeing, but was unable to talk with anyone. It was probably ...
by usopen
Sun May 12, 2013 3:47 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Immunotherapy conference - Questions anyone
Replies: 9
Views: 1855

Re: Immunotherapy conference - Questions anyone

Thank you so much Pete for all of your effort. I am sure you will be a tremendous advocate for all those with this d@mn. disease. I would like to see a little more action in the cancer world and a little less conferencing. Not that that isn't crucial, but being hooked up to 5FU (what...is it a 40 ye...
by usopen
Sat May 11, 2013 6:49 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Hubby Going on Hospice - Update - Thank you to all!
Replies: 42
Views: 6998

Re: Hubby Going on Hospice

Niki, I really, really admire you and Matt. I only knew about you both for about 5 months. You are so kind to share and to try and help others. We will all be at this juncture some day. It was good that you made those memories....i can't seem to do that, yet. But one must. And continue to do so. I a...
by usopen
Mon May 06, 2013 11:23 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: No-Joe Miracle
Replies: 15
Views: 2086

Re: No-Joe Miracle

Thanks for sharing that. I have been wanting to give up that cup of coffee. But lately, I am having more intestinal issues, etc., so this is my kick-in-the-behind to just go ahead and drink more water and tea. So glad you shared this.....any and all info is key. Would you mind updating this thread a...

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