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by dianetavegia
Sat Oct 20, 2018 8:24 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: STAGE IV NED 6 1/2 years and 10 years out from dx
Replies: 3
Views: 77

STAGE IV NED 6 1/2 years and 10 years out from dx

MRI: No evidence for recurrent or metastatic disease. CAT SCAN: Lung nodules are all stable going back many years. No new or enlarging nodules. (He actually says later benign since first scan in Jan. 2009). I can't begin to tell you how much this specific 'date' means to me! A study done in 2015 cit...
by dianetavegia
Sat Oct 20, 2018 8:11 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Stage 4 to NED- Please tell us
Replies: 33
Views: 1603

Re: Stage 4 to NED- Please tell us

I was Stage III from Jan. 2009 to Feb. 2012 when a liver met was found. It was 1.5 cm but smack dab middle of the back of the liver so the surgeon took 80% of the large side of the liver in April 2012 with no follow up chemo. As of 5 a.m. this morning when my Chest CT and Abdominal / pelvic scans we...
by dianetavegia
Sat Oct 20, 2018 8:06 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Lung nodule question
Replies: 5
Views: 157

Re: Lung nodule question

The radiologist measured and then sent my reports to the 'tumor table' and they all said stable since 2009 and made a note that these should all be considered benign for 10 years now!!!

Thanks, y'all! Posting my good news.
by dianetavegia
Fri Oct 19, 2018 10:16 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Lung nodule question
Replies: 5
Views: 157

Lung nodule question

I know we're not doctors, but I think many times we have so much experience and have read so much that we know as much as doctors. Here's my question: I have four lung nodules which were there 10 years ago when I was dx'd with Stage III colon cancer. Three have never changed and are minute. The four...
by dianetavegia
Fri Oct 19, 2018 10:07 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Scanxiety and missing Bev!
Replies: 14
Views: 967

Re: Scanxiety and missing Bev!

Still waiting on scan results from Tuesday. The onc doesn't work Wednesday and only goes in for a few hours on Friday so I may not get them until I see him next Tuesday. He has to click that he's seen them before the hospital will release them to My Chart.
by dianetavegia
Tue Oct 16, 2018 3:59 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Scanxiety and missing Bev!
Replies: 14
Views: 967

Re: Scanxiety and missing Bev!

Had my scans today. I'm never concerned during the scans and really only had anxiety waiting for my CEA. I'm on Medicare only, now, and they made my doctor change to Quest instead of Labcorp and no one told me. Doctor is HORRIBLE about communication but after 10 years, I'm not changing. My CEA was S...
by dianetavegia
Tue Oct 16, 2018 3:44 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Quality of life on Folfox and others
Replies: 6
Views: 388

Re: Quality of life on Folfox and others

I completed FOLFOX 9 years 3 months ago and still feel like I'm walking on sand. My fingertips always tingle and I drop things easily. Several years after chemo ended, the tingle moved from my feet slowly up to my knees. I have L'Hermitte's Sign (or syndrome - same thing) and it's just part of my ne...
by dianetavegia
Tue Oct 16, 2018 3:35 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Good news on lung met
Replies: 8
Views: 267

Re: Good news on lung met

Howard, I should tell you I read a medical paper out of China that said people who became Stage IV and had a single lung met removed had a very high chance of remaining cancer free. I was Stage III for 3 years and then had a small liver met. No follow up chemo! That was 6 1/2 years ago. My CEA last ...
by dianetavegia
Tue Oct 16, 2018 3:28 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Good news on lung met
Replies: 8
Views: 267

Re: Good news on lung met

That's wonderful news!!! Congrats!
by dianetavegia
Sat Oct 13, 2018 10:34 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Is my Mom the longest colon-cancer survivor?
Replies: 3
Views: 571

Re: Is my Mom the longest colon-cancer survivor?

That's quite amazing! I think you'd need to contact the hospital where she was treated and get her paperwork to prove it was colon cancer and what Stage. I'm assuming it was Stage 1 to 3 and hadn't spread to other organs. Truett Cathy, founder of Chick fil A had colon cancer at the age of 38 and liv...
by dianetavegia
Mon Oct 08, 2018 6:30 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Question about necessity of CEA labwork
Replies: 31
Views: 1535

Re: Question about necessity of CEA labwork

It might be his age. CEA is elevated (false positives) for a number of things, including age! One study of 'healthy people' in senior living facilities found most had elevated CEA's. After death, autopsies found NO cancer or cause for the elevation. I'd still demand a baseline and regular CEA's. Unl...
by dianetavegia
Mon Oct 08, 2018 6:26 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Baseline CEA correlation with metastasis and survival??
Replies: 12
Views: 767

Re: Baseline CEA correlation with metastasis and survival??

Because of steady weight gain, I begged my onc to check my thyroid. My CEA was 5.8 and had only been over 4 when I had pneumonia or liver met but my scans were clear. While waiting for blood work, I found many articles on HYPOthyroid causing elevated CEA. I recall one account of a woman whose scans ...
by dianetavegia
Mon Oct 01, 2018 4:06 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Progresions in liver mets :(((
Replies: 4
Views: 533

Re: Progresions in liver mets :(((

I'm so sorry about the liver mets. Your husband is 'aggressive' when he has chemo because they give him large doses of steroids to keep him from having reactions to the chemo. My family said I was grumpy and I know I couldn't sleep and had headaches. So, he's not mad at you but it's the medication. ...
by dianetavegia
Mon Oct 01, 2018 3:52 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: can stage 1 colon cancer post colectomy spread to the lungs?
Replies: 3
Views: 402

Re: can stage 1 colon cancer post colectomy spread to the lungs?

Stats show that Stage I to Stage IV is more common than Stage II or Stage III to Stage IV because the spots were probably already there and microscopic, then no follow up chemo and many have no scans. That's why many people will urge a Stage I to please accept chemo! My liver met showed up 3 years a...
by dianetavegia
Mon Oct 01, 2018 11:06 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Cancer Again: Not Colon?
Replies: 29
Views: 8411

Re: Cancer Again: Not Colon?

Was it Brown Bagger or Traveler whose onc didn't scan and when he went in at 5 years mentioned a cough after his bike rides and they found it was in his lungs. Wish your onc had scanned you regularly and this could have been found very early in the game. I agree with you about the brain. It's funny ...

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