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by dianetavegia
Thu Jun 07, 2018 9:04 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Stage 3 Sigmoid colon cancer metastasized to ovary, bladder, intestines, pelvic mass, unable to do surgery!!!
Replies: 13
Views: 593

Re: Stage 3 Sigmoid colon cancer metastasized to ovary, bladder, intestines, pelvic mass, unable to do surgery!!!

The usual follow up for Stage III is CT or other imagining and CEA every 6 months for up to 5 years. I think not scanning was a huge mistake on your doctor's part. The massive spread could have been prevented if he/ she had done scans on a regular basis. I'm so sorry to hear of your mother's spread....
by dianetavegia
Thu Jun 07, 2018 8:51 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: CEA
Replies: 7
Views: 446

Re: CEA

My CEA jumped from 2.9 to 5.8 last fall and I asked for my thyroid to be checked. I was hypothyroid which causes a false high CEA. After 4 months on meds for my thyroid, my CEA dropped OVER 50%. They JUST got my thyroid to a normal/ healthy level this month. Might ask the doctor to check TSH levels.
by dianetavegia
Mon May 14, 2018 1:29 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Newbie here: gallbladder or recurrence? Anyone know if gallbladder issues are common after folofox?
Replies: 6
Views: 285

Re: Newbie here: gallbladder or recurrence? Anyone know if gallbladder issues are common after folofox?

I had emergency gall bladder surgery during FOLFOX! I'd never had symptoms prior to that either. My gall bladder pain was in my right side/ back. I thought it was muscle cramps but one night I went to the ER twice for the pain (All my children were natural childbirth and I have a high tolerance for ...
by dianetavegia
Wed May 09, 2018 4:23 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Colon cancer and dentistry questions and CEA question
Replies: 11
Views: 1460

Re: Colon cancer and dentistry questions and CEA question

I'm sorry that I didn't see the question earlier. About the CEA rise 4 to 8 months before a met can be found, mine had gone to 3.9 to 4.1, then 6.4 when my liver met was found. It was 8.5 on the day of my hepatic resection. Please be checked for hypothyroid. My CEA jumped to 5.8 this past Oct. and a...
by dianetavegia
Wed May 09, 2018 4:01 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Just diagnosed and it's EVERYWHERE...what to do now??
Replies: 24
Views: 2017

Re: Just diagnosed and it's EVERYWHERE...what to do now??

BTW, I'm not sure which side of Atlanta you're on, but I'm in Villa Rica and if you're near and need help in anyway, please let me know. As well as a Stage IV survivor, I'm a trained and certified Cancer Care Minister.

Diane
by dianetavegia
Wed May 09, 2018 3:57 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Just diagnosed and it's EVERYWHERE...what to do now??
Replies: 24
Views: 2017

Re: Just diagnosed and it's EVERYWHERE...what to do now??

This is just heartbreaking. In 9 years, I've never heard of anyone with so much spread.
My prayers will be for you to find comfort and pain control and that whomever you choose to treat you is honest and allows you to choose what to do.

Diane
by dianetavegia
Mon May 07, 2018 3:16 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Diagnosed 9 years ago TODAY! 1/2/2009
Replies: 19
Views: 2060

Re: Diagnosed 9 years ago TODAY! 1/2/2009

Diagnosed during a colonoscopy (partial obstruction had made me very ill) on 1/2/2009. Stage IIIB for 3 years. In April it will be 6 years since my liver resection. http://www.justalittletalk.com/2018/01/nine-years-ago-today/ You go, girl. You are such an ongoing inspiration to me, and one of the p...
by dianetavegia
Mon May 07, 2018 3:14 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: CEA increasing trend
Replies: 14
Views: 1078

Re: CEA increasing trend

My (limited) understanding of Cologuard is that it's a good test for a primary tumor in the colon or rectum but it won't indicate post-treatment metastisis since the sample is taken from cells within the G.I. tract. Isn't the CEA test strictly for mets? My CEA was 1.1 with my primary rectal tumor i...
by dianetavegia
Fri May 04, 2018 4:18 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: KRAS and BRAF MUTATIONS
Replies: 14
Views: 1602

Re: KRAS and BRAF MUTATIONS

Save money! Check out Modified Citrus Pectin which comes as a nasty powder, so I mixed it in Applesauce until it dissolved and used it for about four years. It cost about $60 on Amazon. It MUST BE MODIFIED to be absorbed properly in the intestine. Effects of daily oral administration of quercetin ch...
by dianetavegia
Fri May 04, 2018 4:14 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: KRAS Mutation- any one long term NED?
Replies: 21
Views: 2866

Re: KRAS Mutation- any one long term NED?

I'm KRAS mutant and have been in remission since 2009. See my signature - it is possible. Hi betsydoglover— Could you share what your specific KRAS mutation is? Also, is it MSS or MSI? I’m happy to hear you’re in remission! Fantastic! Thanks for the extra info! Sharing Hope, 9 years ago they only t...
by dianetavegia
Fri May 04, 2018 4:05 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Mystery Sepsis?
Replies: 5
Views: 646

Re: Mystery Sepsis?

My husband almost died in June of last year and then had another bout of sepsis the end of August. His was thought to be caused by exposure to black mold while he was visiting a sister in Oregon who lives on the river and her home floods several times a year. We were told he had a 30% chance of maki...
by dianetavegia
Fri May 04, 2018 3:55 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: CEA increasing trend
Replies: 14
Views: 1078

Re: CEA increasing trend

Mine did and it was a false positive. A year ago my CEA was around 2.9 or 3.1. It has never been lower than 2.4 in 9 years. Six months later it was 5.8. I'd read that hypothyroid can cause false positives and since my scans were clear, I asked for blood work and sure enough, my TSH showed I was hypo...
by dianetavegia
Fri May 04, 2018 3:47 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Stage IV - Off chemo two years
Replies: 4
Views: 1010

Re: Stage IV - Off chemo two years

I don't know if I fit your question, but..... I was Stage III in Jan. 2009 and had my colon resection and 6 months FOLFOX. In April 2012 I had a 1.5 cm liver met removed (80% of my liver) but NO FOLLOW UP CHEMO. That's 6 years since my liver resection with no recurrences. Stats show that at 6 1/2 ye...
by dianetavegia
Thu Apr 05, 2018 8:40 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Scanxiety: Anyone else having testing now?
Replies: 60
Views: 5412

Re: Scanxiety: Anyone else having testing now?

Thanks and congrats on the good news!

Diane
by dianetavegia
Wed Apr 04, 2018 11:57 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Scanxiety: Anyone else having testing now?
Replies: 60
Views: 5412

Re: Scanxiety: Anyone else having testing now?

CT/ MRI Cancelled! My CEA dropped over 50%, well into the normal range, and my cholesterol all dropped, too. My TSH had shown hypothyroidism and my scans 5 months ago were all clear. I've been on thyroid meds since the test in November and studies have shown that hypothyroidism is a well known caus...

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