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by dianetavegia
Sun Dec 02, 2018 4:17 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Female Pains AFTER radiation, No Doc will Listen...
Replies: 48
Views: 10040

Re: Female Pains AFTER radiation, No Doc will Listen...

I'm not going to read 5 pages of replies so someone might have mentioned this. A church friend who is much younger than me has IC. I think it's interstitial cystitis. She has to cath herself three times a day and spray the inside of her bladder with a pain killer. A surgeon has offered to cut the ne...
by dianetavegia
Sun Dec 02, 2018 4:10 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: First Time Here - Anxiety is High
Replies: 23
Views: 1065

Re: First Time Here - Anxiety is High

It certainly is a good idea to go ahead and be checked, but I wanted to assure you that most shapes, sizes, flat, round, colors other than white as snow or black as fresh road tar are all fine. Even the best doctor may still believe 'pencil stool' means cancer. Nope. Now NO pooh and not able to pass...
by dianetavegia
Wed Nov 21, 2018 7:56 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Is colon cancer curable completely?
Replies: 11
Views: 932

Re: Is colon cancer curable completely?

I was discharged and pronounced cured this October. I started off Stage III and three years later had a tiny liver met. It’s been 10 years since my original diagnosis and just under 7 since my liver resection. Studies have shown that patients who remain cancer free at 6.48 years after surgery for a ...
by dianetavegia
Tue Nov 13, 2018 6:15 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: How young is too young for COLONOSCOPY
Replies: 12
Views: 762

Re: How young is too young for COLONOSCOPY

Not long after my original surgery I was at a middle school ball game and was talking with the lady coach. She told me one of her 7th graders had Stage IV colon cancer and they'd removed her whole colon but the parents were demanding it not be discussed, especially with the child because they didn't...
by dianetavegia
Tue Nov 13, 2018 6:00 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Yoga to Poop
Replies: 3
Views: 327

Re: Yoga to Poop

I was born constipated and it worsened after my colon resection. About a year ago my doctor told me a study had been done on using Miralax daily and it caused no problems (other that gas / bloating but you adjust dose) except in people in kidney failure even after the 7 year study. He gives his daug...
by dianetavegia
Tue Oct 23, 2018 8:42 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Stage 4 to NED- Please tell us
Replies: 46
Views: 4674

Re: Stage 4 to NED- Please tell us

I had no Chemo after my liver resection and today was offered 2 choices. One was a big hug and discharge or a big hug and one more CEA in Oct. 2019. I opted for the final CEA in a year. There are many studies that show cure is possible after surgery for certain size, location etc. mets. I’m living p...
by dianetavegia
Sat Oct 20, 2018 8:24 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: STAGE IV NED 6 1/2 years and 10 years out from dx
Replies: 12
Views: 1006

STAGE IV NED 6 1/2 years and 10 years out from dx

MRI: No evidence for recurrent or metastatic disease. CAT SCAN: Lung nodules are all stable going back many years. No new or enlarging nodules. (He actually says later benign since first scan in Jan. 2009). I can't begin to tell you how much this specific 'date' means to me! A study done in 2015 cit...
by dianetavegia
Sat Oct 20, 2018 8:11 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Stage 4 to NED- Please tell us
Replies: 46
Views: 4674

Re: Stage 4 to NED- Please tell us

I was Stage III from Jan. 2009 to Feb. 2012 when a liver met was found. It was 1.5 cm but smack dab middle of the back of the liver so the surgeon took 80% of the large side of the liver in April 2012 with no follow up chemo. As of 5 a.m. this morning when my Chest CT and Abdominal / pelvic scans we...
by dianetavegia
Sat Oct 20, 2018 8:06 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Lung nodule question
Replies: 5
Views: 538

Re: Lung nodule question

The radiologist measured and then sent my reports to the 'tumor table' and they all said stable since 2009 and made a note that these should all be considered benign for 10 years now!!!

Thanks, y'all! Posting my good news.
by dianetavegia
Fri Oct 19, 2018 10:16 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Lung nodule question
Replies: 5
Views: 538

Lung nodule question

I know we're not doctors, but I think many times we have so much experience and have read so much that we know as much as doctors. Here's my question: I have four lung nodules which were there 10 years ago when I was dx'd with Stage III colon cancer. Three have never changed and are minute. The four...
by dianetavegia
Fri Oct 19, 2018 10:07 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Scanxiety and missing Bev!
Replies: 16
Views: 1745

Re: Scanxiety and missing Bev!

Still waiting on scan results from Tuesday. The onc doesn't work Wednesday and only goes in for a few hours on Friday so I may not get them until I see him next Tuesday. He has to click that he's seen them before the hospital will release them to My Chart.
by dianetavegia
Tue Oct 16, 2018 3:59 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Scanxiety and missing Bev!
Replies: 16
Views: 1745

Re: Scanxiety and missing Bev!

Had my scans today. I'm never concerned during the scans and really only had anxiety waiting for my CEA. I'm on Medicare only, now, and they made my doctor change to Quest instead of Labcorp and no one told me. Doctor is HORRIBLE about communication but after 10 years, I'm not changing. My CEA was S...
by dianetavegia
Tue Oct 16, 2018 3:44 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Quality of life on Folfox and others
Replies: 19
Views: 2144

Re: Quality of life on Folfox and others

I completed FOLFOX 9 years 3 months ago and still feel like I'm walking on sand. My fingertips always tingle and I drop things easily. Several years after chemo ended, the tingle moved from my feet slowly up to my knees. I have L'Hermitte's Sign (or syndrome - same thing) and it's just part of my ne...
by dianetavegia
Tue Oct 16, 2018 3:35 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Good news on lung met
Replies: 8
Views: 553

Re: Good news on lung met

Howard, I should tell you I read a medical paper out of China that said people who became Stage IV and had a single lung met removed had a very high chance of remaining cancer free. I was Stage III for 3 years and then had a small liver met. No follow up chemo! That was 6 1/2 years ago. My CEA last ...

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