I'm not going to read 5 pages of replies so someone might have mentioned this. A church friend who is much younger than me has IC. I think it's interstitial cystitis. She has to cath herself three times a day and spray the inside of her bladder with a pain killer. A surgeon has offered to cut the ne...

It certainly is a good idea to go ahead and be checked, but I wanted to assure you that most shapes, sizes, flat, round, colors other than white as snow or black as fresh road tar are all fine. Even the best doctor may still believe 'pencil stool' means cancer. Nope. Now NO pooh and not able to pass...

I was discharged and pronounced cured this October. I started off Stage III and three years later had a tiny liver met. It’s been 10 years since my original diagnosis and just under 7 since my liver resection. Studies have shown that patients who remain cancer free at 6.48 years after surgery for a ...

Not long after my original surgery I was at a middle school ball game and was talking with the lady coach. She told me one of her 7th graders had Stage IV colon cancer and they'd removed her whole colon but the parents were demanding it not be discussed, especially with the child because they didn't...

I was born constipated and it worsened after my colon resection. About a year ago my doctor told me a study had been done on using Miralax daily and it caused no problems (other that gas / bloating but you adjust dose) except in people in kidney failure even after the 7 year study. He gives his daug...

I had no Chemo after my liver resection and today was offered 2 choices. One was a big hug and discharge or a big hug and one more CEA in Oct. 2019. I opted for the final CEA in a year. There are many studies that show cure is possible after surgery for certain size, location etc. mets. I’m living p...

Bumping for new member

MRI: No evidence for recurrent or metastatic disease. CAT SCAN: Lung nodules are all stable going back many years. No new or enlarging nodules. (He actually says later benign since first scan in Jan. 2009). I can't begin to tell you how much this specific 'date' means to me! A study done in 2015 cit...

I was Stage III from Jan. 2009 to Feb. 2012 when a liver met was found. It was 1.5 cm but smack dab middle of the back of the liver so the surgeon took 80% of the large side of the liver in April 2012 with no follow up chemo. As of 5 a.m. this morning when my Chest CT and Abdominal / pelvic scans we...

The radiologist measured and then sent my reports to the 'tumor table' and they all said stable since 2009 and made a note that these should all be considered benign for 10 years now!!!

Thanks, y'all! Posting my good news.

I know we're not doctors, but I think many times we have so much experience and have read so much that we know as much as doctors. Here's my question: I have four lung nodules which were there 10 years ago when I was dx'd with Stage III colon cancer. Three have never changed and are minute. The four...

Still waiting on scan results from Tuesday. The onc doesn't work Wednesday and only goes in for a few hours on Friday so I may not get them until I see him next Tuesday. He has to click that he's seen them before the hospital will release them to My Chart.

Had my scans today. I'm never concerned during the scans and really only had anxiety waiting for my CEA. I'm on Medicare only, now, and they made my doctor change to Quest instead of Labcorp and no one told me. Doctor is HORRIBLE about communication but after 10 years, I'm not changing. My CEA was S...

I completed FOLFOX 9 years 3 months ago and still feel like I'm walking on sand. My fingertips always tingle and I drop things easily. Several years after chemo ended, the tingle moved from my feet slowly up to my knees. I have L'Hermitte's Sign (or syndrome - same thing) and it's just part of my ne...

Howard, I should tell you I read a medical paper out of China that said people who became Stage IV and had a single lung met removed had a very high chance of remaining cancer free. I was Stage III for 3 years and then had a small liver met. No follow up chemo! That was 6 1/2 years ago. My CEA last ...