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by dianetavegia
Mon Oct 21, 2019 2:49 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: 7 1/2 years post Stage IV liver resection
Replies: 10
Views: 572

7 1/2 years post Stage IV liver resection

I finally got my CEA results and it remains well within normal range 7 1/2 years after 80% of my liver was removed (Stage IVa) and almost 11 years since my original diagnosis (Stage III). I see the oncologist for my final time tomorrow morning and will be discharged as 'cured'. After the first year,...
by dianetavegia
Fri Oct 18, 2019 6:11 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Help with bowels
Replies: 65
Views: 5809

Re: Help with bowels

Gastro told me to take 1 full cap of Miralax daily until I had a large BM and then lower dosage to 1/2 cap to see if that would keep me regular. Studies of long term use of Miralax shows no concerns. I've been doing it for about 2 years now and haven't had any more concerns. I put it in my first cup...
by dianetavegia
Tue Oct 01, 2019 3:18 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Newly diagnosed rectal cancer
Replies: 218
Views: 18937

Re: Newly diagnosed rectal cancer

Low thyroid can cause false elevated CEA so might want to work on that, too.

Best of luck,
Diane
by dianetavegia
Tue Oct 01, 2019 2:57 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Thoughts on Stage IV...
Replies: 24
Views: 2506

Re: Thoughts on Stage IV...

I go in 13 days for my CEA and if that's still nice and 'low norm', I'll be discharged from my onc's care and will have been cancer free for 7 1/2 years and just under 11 years since original Stage III dx.
by dianetavegia
Sun May 12, 2019 11:15 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: HAPPY MOTHER'S DAY!
Replies: 6
Views: 602

Re: HAPPY MOTHER'S DAY!

Happy Mother's Day to all the moms here!
by dianetavegia
Sun May 12, 2019 11:14 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Mild ascites and jaundice - cancer spread to liver?
Replies: 20
Views: 3100

Re: Mild ascites and jaundice - cancer spread to liver?

Main Findings In this older population-based Rancho Bernardo study cohort, small but incremental increases in bilirubin occurred with increasing age. This association between age and bilirubin was observed in the cross-sectional analyses of the baseline cohort and over time in longitudinal analyses...
by dianetavegia
Sun May 12, 2019 8:36 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Peggy Lipton, 'The Mod Squad' colon cancer 2004 RIP 5/2019
Replies: 1
Views: 720

Peggy Lipton, 'The Mod Squad' colon cancer 2004 RIP 5/2019

The article says she was dx'd and treated for colon cancer 15 years ago and she died of cancer yesterday. Her tumor was found during a routine colonoscopy. News reports only discuss her Stage III dx, surgery and 22 treatments of chemo in 2004. One daughter says she died of colon cancer.
by dianetavegia
Mon Apr 15, 2019 10:53 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Finally reached the 'forgot I had cancer' spot!
Replies: 16
Views: 2152

Re: Finally reached the 'forgot I had cancer' spot!

You are cured but I definitely recommend getting CEA tests at least annually as it never hurts be cautious. I'll have my final CEA with my onc this October and then I've asked my primary to continue once a year until I've passed 10 years since my liver resection. It's already been 10 years 4 months...
by dianetavegia
Sat Apr 13, 2019 7:47 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Finally reached the 'forgot I had cancer' spot!
Replies: 16
Views: 2152

Finally reached the 'forgot I had cancer' spot!

I thought I'd never forget about Stage IV cancer but I go weeks and when it does come to mind I think it must have been a dream. April 11th was 7 years since my liver resection and the rib pain is pretty much gone. I had to look up the date! My TSH for my thyroid is finally stable and my energy is b...
by dianetavegia
Sun Dec 02, 2018 4:17 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Female Pains AFTER radiation, No Doc will Listen...
Replies: 53
Views: 14944

Re: Female Pains AFTER radiation, No Doc will Listen...

I'm not going to read 5 pages of replies so someone might have mentioned this. A church friend who is much younger than me has IC. I think it's interstitial cystitis. She has to cath herself three times a day and spray the inside of her bladder with a pain killer. A surgeon has offered to cut the ne...
by dianetavegia
Sun Dec 02, 2018 4:10 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: First Time Here - Anxiety is High
Replies: 26
Views: 4643

Re: First Time Here - Anxiety is High

It certainly is a good idea to go ahead and be checked, but I wanted to assure you that most shapes, sizes, flat, round, colors other than white as snow or black as fresh road tar are all fine. Even the best doctor may still believe 'pencil stool' means cancer. Nope. Now NO pooh and not able to pass...
by dianetavegia
Wed Nov 21, 2018 7:56 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Is colon cancer curable completely?
Replies: 11
Views: 1857

Re: Is colon cancer curable completely?

I was discharged and pronounced cured this October. I started off Stage III and three years later had a tiny liver met. It’s been 10 years since my original diagnosis and just under 7 since my liver resection. Studies have shown that patients who remain cancer free at 6.48 years after surgery for a ...
by dianetavegia
Tue Nov 13, 2018 6:15 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: How young is too young for COLONOSCOPY
Replies: 12
Views: 1610

Re: How young is too young for COLONOSCOPY

Not long after my original surgery I was at a middle school ball game and was talking with the lady coach. She told me one of her 7th graders had Stage IV colon cancer and they'd removed her whole colon but the parents were demanding it not be discussed, especially with the child because they didn't...
by dianetavegia
Tue Nov 13, 2018 6:00 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Yoga to Poop
Replies: 3
Views: 773

Re: Yoga to Poop

I was born constipated and it worsened after my colon resection. About a year ago my doctor told me a study had been done on using Miralax daily and it caused no problems (other that gas / bloating but you adjust dose) except in people in kidney failure even after the 7 year study. He gives his daug...
by dianetavegia
Tue Oct 23, 2018 8:42 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Stage 4 to NED- Please tell us
Replies: 54
Views: 10613

Re: Stage 4 to NED- Please tell us

I had no Chemo after my liver resection and today was offered 2 choices. One was a big hug and discharge or a big hug and one more CEA in Oct. 2019. I opted for the final CEA in a year. There are many studies that show cure is possible after surgery for certain size, location etc. mets. I’m living p...

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