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by jobasar
Sat Mar 28, 2015 1:57 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: STIVARGA (Regorafenib) - ONGOING PATIENT EXPERIENCES
Replies: 146
Views: 70883

Re: STIVARGA (Regorafenib) - ONGOING PATIENT EXPERIENCES

I've been on stivarga now for a week and I just am fatigue. I don't have other side effects right now. Don't know if that's good or bad?


Allie
by jobasar
Tue Mar 03, 2015 2:27 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: STIVARGA (Regorafenib) - ONGOING PATIENT EXPERIENCES
Replies: 146
Views: 70883

Re: STIVARGA (Regorafenib) - ONGOING PATIENT EXPERIENCES

Does your doctor revisit drugs in the past that worked on you. For me, folfiri worked and still does on my organs but not bones so stivarga will start soon. I've heard if you're off chemo for 6 months then you can re visit the previous one and it should work. My oncologist doesn't do that. Thanks Al...
by jobasar
Fri Feb 06, 2015 11:57 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: STIVARGA (Regorafenib) - ONGOING PATIENT EXPERIENCES
Replies: 146
Views: 70883

Re: STIVARGA (Regorafenib) - ONGOING PATIENT EXPERIENCES

Drebay,

You've been on stivarga since September? So this is working for you? I have 4 spots in liver and a few bone mets. I'll be starting this soon. Any input will be great. Thanks.


Allie
by jobasar
Thu Jan 29, 2015 4:44 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: STIVARGA (Regorafenib) - ONGOING PATIENT EXPERIENCES
Replies: 146
Views: 70883

Re: STIVARGA (Regorafenib) - ONGOING PATIENT EXPERIENCES

Omg! That's awesome news Janie. I'm so happy for you. I'm scared but I hope it will work. Did you do the folfox, folfiri, avastin, erbitux, and zaltrap? Just curious.

Allie
by jobasar
Thu Jan 29, 2015 10:14 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: STIVARGA (Regorafenib) - ONGOING PATIENT EXPERIENCES
Replies: 146
Views: 70883

Re: STIVARGA (Regorafenib) - ONGOING PATIENT EXPERIENCES

I was wondering how many are on Stivarga now as I see some stopped the drug and I was wondering who is on it now? How are you doing? Is it helping? I'll be starting it soon and I'm nervous.

Thanks,
Allie
by jobasar
Wed Jan 28, 2015 1:39 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: new plan with stivarga. help pleade.
Replies: 2
Views: 1055

new plan with stivarga. help pleade.

Hello all my friends! I've been lurking more than posting. I was dx Dec. 2008 and it was stage four. My colon ruptured in Sept of 08 and took the doctor 3 months to figure out I had cancer. I did surgery to remove my tumor in colon. I did 3 round d of folfox then liver wedge cut to remove one tumor ...
by jobasar
Sat Dec 06, 2014 7:20 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Monday scan
Replies: 18
Views: 2080

Re: Monday scan

Good luck Pollo. I have MRI on the 15th. I'll be thinking and sending you positive thoughts.
by jobasar
Fri Sep 12, 2014 6:41 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Calling all September birthdays!
Replies: 8
Views: 1326

Re: Calling all September birthdays!

My birthday is September 17th and I'll be 45 years old.
by jobasar
Wed Aug 20, 2014 7:54 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Irinotecan and hiccups
Replies: 6
Views: 1321

Re: Irinotecan and hiccups

I get hiccups when I'm connected to the 5fu pump. Maybe it's the irriteacan. Uuummm?
by jobasar
Sun Aug 17, 2014 8:49 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: zaltrap and blood related issues
Replies: 3
Views: 747

Re: zaltrap and blood related issues

I was on zaltrap and my arms would do the same thing you're describing. My oncologist would ask what happened and usually it was from my dogs scratching for attention. I also had high BP with zaltrap. I'm no longer on it since two weeks ago.

Alli
by jobasar
Sun Aug 17, 2014 8:43 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: My love has passed on
Replies: 84
Views: 12649

Re: My love has passed on

I'm so sorry for your loss. I'll pray for peace, healing, and comfort. I wish I had more words but I don't.
by jobasar
Thu Aug 22, 2013 11:41 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Scan today
Replies: 53
Views: 4300

Re: Scan today

Yay. So happy for you.

Allie
by jobasar
Sun Jul 21, 2013 1:48 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: There are some days I HATE calling this a journey...
Replies: 30
Views: 2147

Re: There are some days I HATE calling this a journey...

I need a break. Chemo non stop since January. I hope to get a small break to feel well in San Diego in sept.hugs to you all.
by jobasar
Tue Jun 25, 2013 11:22 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Celebrating Terry
Replies: 23
Views: 2983

Re: Celebrating Terry

I miss her too, she reached out to me as well. Feeling sad that I can't call her and just talk. Thinking of you Terry and I am keeping your family and friends in my heart today. Terry was one special woman that I met because of this disease. I am friends with some special people now because of this ...

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