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by rp1954
Mon Apr 12, 2021 7:20 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Managing HFS side effects
Replies: 8
Views: 525

Re: Managing HFS side effects

At least some people are able to eliminate HFS for Xeloda with IV vitamin C about twice a week, out to about 4-5 days interval. I first found this in a ~2000s case history by Riordan clinic and have seen other examples since then. IV vitamin C works best on KRAS mutants, and with additional mild adj...
by rp1954
Sun Mar 07, 2021 6:27 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Anyone on daily Xeloda?
Replies: 12
Views: 2568

Re: Anyone on daily Xeloda?

My wife used daily chemo for 8 years with frequent IV vitamin C, and supplements for support of higher chemo dosages than possible without IVC, with a high quality of life and pretty good immune function e.g. WBC over 4 - 5. Frequent enough IV vitamin C can help with fatigue and some chemo side effe...
by rp1954
Sat Jan 02, 2021 5:16 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: COVID and Vitamin D
Replies: 5
Views: 1529

Re: COVID and Vitamin D

We use the 10,000 iu dose vitamin D3 too, and it's available as a single pill. Larger caps, like 50,000 can be useful for catchup or sick days. Sometimes 20,000 and 25,000 iu caps are available too. Above 10,000 iu, serious patients watch their vitamin K2, calcium and magnesium intakes. At much high...
by rp1954
Sat Dec 26, 2020 6:55 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Doing a 180 with oncology
Replies: 12
Views: 2925

Re: Doing a 180 with oncology

...here is what medicine.net has to say: Shotty is very commonly used in describing the feel of lymph nodes (the lymph glands) when they are palpated (felt) through the skin. "Shotty" lymph nodes are ones that are not only hard and round but also small and surely of no consequence . "...
by rp1954
Sun Sep 27, 2020 11:50 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: My CRC with liver mets journey
Replies: 375
Views: 94694

Re: My CRC with liver mets journey

... was also given by my Dr at MSK a 'definitely' chemo for life option, I didn't take it well ...to say the least. ... MSK is not favorable towards maintenance chemo. ... I also go to MSK and have asked for it, they wouldn't give me claiming there isn't enough scientific data to suggest its effect...
by rp1954
Thu Sep 03, 2020 10:11 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Stg 4 para aortic and Iliac Lymph Nodes
Replies: 41
Views: 10394

Re: Stg 4 para aortic and Iliac Lymph Nodes

I have been trying to convince my doctor to do maintenance chemo with no luck. They said they don't do maintenance chemo there as researches did not show enough evidence that it works. Their firm objection means find other, less common drs to help you. There is some circularity in their argument an...
by rp1954
Fri Aug 21, 2020 11:37 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: PSK supplements
Replies: 10
Views: 1968

Re: PSK supplements

I haven't stored PSK powder myself. For high humidity with other highly sensitive items, I have used multiple overpacks. Say a large, less permable plastic/metal outer jar, sealed. Flimsy plastic bag around that in the freezer. Then heavy, ziplocked freezer bags inside the main container with silica...
by rp1954
Fri Aug 21, 2020 11:19 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: PSK supplements
Replies: 10
Views: 1968

Re: PSK supplements

The major indicator of useful quantity and quality for PSK, is the assayed % beta-glucans content to get actual beta-glucan content. The major therapeutic PSK versions have ranged about 30% - 45%. Lower is not better. PSP is a different creature. Loose PSK powder is more vulnerable to storage condit...
by rp1954
Tue Aug 11, 2020 2:22 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Had Seizure- in Hospital 4 days
Replies: 10
Views: 3367

Re: Had Seizure- in Hospital 4 days

5FU with dewormer compounds (e.g. levamisole, abendazole, mebendazole, fenbendazole etc) are tricky on nasty side effects and spacing (or combined) from what I've seen in the literature, and on members from these boards. 10 years ago I found some literature that showed harsh side effects for some de...
by rp1954
Wed Aug 05, 2020 10:18 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Had Seizure- in Hospital 4 days
Replies: 10
Views: 3367

Re: Had Seizure- in Hospital 4 days

How long did you overlap (how much?) fenbendazole (etc) with (how much?) chemo?
by rp1954
Wed Aug 05, 2020 1:48 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: For Stage III's: NED for how long now?
Replies: 808
Views: 347319

Re: For Stage III's: NED for how long now?

Congratulations. Great to hear you're through the Big 10, Bill. And thanks for your insights and longitudinal comments on long term Folfox effects. NMS It's been a great bonus decade—both my daughters got married and I've seen the birth of 3 granddaughters, so I couldn't be more content. Just one an...
by rp1954
Wed Aug 05, 2020 1:12 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: CEA and CA 19-9
Replies: 5
Views: 977

Re: CEA and CA 19-9

...CA 19-9 was 50 when he started and is now 27... ...It looks like these numbers are good and his treatment is working? Does this mean that a lot of the cancer has gone away? It could be an important start - markers going down vs up is a big deal, but still lots to go. In the Japanese papers I rea...
by rp1954
Tue Jul 21, 2020 12:44 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: No longer NED- back in right ovary
Replies: 8
Views: 2098

Re: No longer NED- back in right ovary

In the rational "alternative" and off label uses world, KRAS mutants may be more treatable. Like over a dozen decent additive candidates to 5FU (e.g. xeloda). Extra off label chemistry allowed us to get past surgical denials as well as oncological gloom and doom. I do believe in "bett...
by rp1954
Mon Jul 20, 2020 5:11 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: ADAPT and Celebrex - What happened?
Replies: 28
Views: 8277

Re: ADAPT and Celebrex - What happened?

My wife took celecoxib at 300-400 mg per day, with her daily chemo (and lots of carefully selected supplements), for over five years. Early in our chemo-supplements-celecoxib series, her markers rose but liver panels were good at 200 mg. At 300 mg her markers were stable or slightly depressed and li...
by rp1954
Tue Jun 02, 2020 12:21 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Interesting paper about fasting and vitamin C
Replies: 17
Views: 2444

Re: Interesting paper about fasting and vitamin C

Low carb "FMD" diet + exercise + various chemo (oral 5FU, celecoxib, early CA199-cimetidine, aspirin at different times) + selected neutraceuticals and megavitamins appeared to work best together in my wife's case. There were clear incidents where dose reduction or loss of components, incl...

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