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by rp1954
Sat Aug 18, 2018 2:15 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: New here...feeling hopeless and sad about my father
Replies: 7
Views: 596

Re: New here...feeling hopeless and sad about my father

It doesn't have to be that way. You can probably get him physically going again with a potent supplement and diet plan, well chosen. It doesn't have to be super expensive, and fast mail handles local availability problems. The right combination of chemo and supplements has literally gotten people ou...
by rp1954
Sat Aug 18, 2018 1:49 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Increased CEA
Replies: 3
Views: 501

Re: Increased CEA

There are two reasons to look at IV vitamin C + other selected, strong supplements, which have been used successfully by another member with Folfiri-Avastin for several years. She had started to quit after less than a year of Folfiri. Her clinic in BC apparently had a lot of patients like her. First...
by rp1954
Thu Aug 16, 2018 5:00 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Stage 4 currently NED- what would you do now?
Replies: 3
Views: 514

Re: Stage 4 currently NED- what would you do now?

"[CA199] then dropped to normal. uh, "normal" on CA199 is not really useful discussion for you, since they model it on pancreatic cancer detection. Specific CEA and CA199 value series are the things to compare. Vs CRC detection, response and biology. CA199 probably will drop for a wh...
by rp1954
Thu Aug 16, 2018 1:30 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: RANDOM QUESTIONS
Replies: 8
Views: 647

Re: RANDOM QUESTIONS

The CEA-PSK correlation is from a paper as treatment predictive biomarker, entirely different from detection of CRC. The paper simply showed which people did best with PSK. Your CEA still has potential for detection but will be somewhat increasingly distorted by chemo and months after; CA199 is even...
by rp1954
Thu Aug 16, 2018 5:56 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: RANDOM QUESTIONS
Replies: 8
Views: 647

Re: RANDOM QUESTIONS

Researching, I found that Matsumoto's 2002 survival stats for daily, oral chemo (straight 5FU!) with cimetidine based on CA199 targeting were better than the oxi- added stats, but perhaps less favorable than without it, if CA199 values were low. Matsumoto's markers were from tumor tissues' pathology...
by rp1954
Thu Aug 16, 2018 5:40 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Increased CEA
Replies: 3
Views: 501

Re: Increased CEA

A number of people have used glutamine for iri- diarrhea. IV vitamin C with K2 or K3 has been used to improve quality of life for some, when they were ready to quit, worn out on Folfiri .
by rp1954
Fri Aug 10, 2018 2:58 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Abdominal Pains
Replies: 4
Views: 305

Re: Abdominal Pains

When we want to reduce the odds of being months late on detection or surprises, we add extra biomarkers to the basic bloodwork (CBC + CEA + CMP or Chem20). We add some extra chemistry panels to see how stable potential noise factors like inflammation (ESR, hsCRP), sugar (FBG, HgbA1C) and thyroid (TS...
by rp1954
Sat Aug 04, 2018 11:51 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: T3cN2a, refusing chemotherapy?
Replies: 74
Views: 13140

Re: T3cN2a, refusing chemotherapy?

My wife has always been mCRC. We have always turned down oxi- and iri- ( ! ) but used an oral 5FU drug with celecoxib and/or targeted cimetidine (let's say CA199 over 18 or 22), with IV vitamin C (best for KRAS/BRAF mutants) and select high potency supplements. We did not include celecoxib long term...
by rp1954
Fri Aug 03, 2018 4:39 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: First post on colon talk, just a few questions
Replies: 16
Views: 724

Re: First post on colon talk, just a few questions

Right sided colon cancer is recently recognized as more risky. Side matters I have some pre-op preparations you can do right now, we used to these improve my wife's health and wealth starting with a better initial bloodtest and pre-op treatments . We do these to reduce the unknowns, find or reduce a...
by rp1954
Wed Aug 01, 2018 10:22 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: stubborn like a mule
Replies: 6
Views: 416

Re: stubborn like a mule

A lot of people are missed or misdiagnosed for months and wind up with some degree of blockage. There are three things you might separate in your mind about the full blockage. One, size of the blockage mass is only weakly prognostic because size doesn't really tell you much about the biology of the ...
by rp1954
Tue Jul 31, 2018 5:59 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Original colon cancer spread to peritoneal
Replies: 6
Views: 571

Re: Original colon cancer spread to peritoneal

Subject to whatever deductibles and copays, I would think Medicare coverage would handle capecitabine (generic of Xeloda), celecoxib (generic of Celebrex) and maybe cimetidine pretty easily but talk with other Mecicare patients. Also cross border may have some advantages. I would get some of the ext...
by rp1954
Mon Jul 30, 2018 5:12 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Original colon cancer spread to peritoneal
Replies: 6
Views: 571

Re: Original colon cancer spread to peritoneal

The 2nd sugery happened this June and there were clear margins per the surgeon after the pathology report. But the oncologist made a remark saying "but it was up against <something>" and nothing could be done about that.. Read my archived comments on blood testing and oral (immuno)chemo, ...
by rp1954
Sat Jul 28, 2018 1:27 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Recurrence confirmed: Para aortic nodes are positive for cancer
Replies: 4
Views: 454

Re: Recurrence confirmed: Para aortic nodes are positive for cancer

We did things differently on surgery, testing, chemo and chemistry. The metastatic para-aortic lymph nodes, in a conglomerated cluster, were dissected near the aorta above the renals in under 45 minutes with two highly skilled surgeons, in their 50s. One I think of as "Zorro", he had had l...
by rp1954
Thu Jul 26, 2018 9:51 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: A cautionary tale
Replies: 15
Views: 1389

Re: A cautionary tale

I'm sorry, what is UFT? Can't find it in the terminology thread. I missed this earlier. Maybe O Stoma Mia can add UFT and UFUR, branded names for the 5FU prodrug, tegafur-uracil , to her updated abbreviations and acronyms list . UFT was the original branded drug from Japan, fashioned from the pharm...
by rp1954
Wed Jul 25, 2018 10:50 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Signet Ring Cell Colon Cancer
Replies: 4
Views: 366

Re: Signet Ring Cell Colon Cancer

Signet Ring Cell colon cancer is rare, like 0.5-2%. So colorectal cancers with SRC components fundamentally have less familiarity and experience. The papers I've read indicate it is often highly mutated including BRAF. I would definitely want MSI and KRAS/BRAF genetic profile information. I would po...

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