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by rp1954
Thu Oct 18, 2018 12:39 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Worried -genetic results are in. KRAS MSS
Replies: 12
Views: 434

Re: Worried -genetic results are in. KRAS MSS

Take a deep breath. I would look very hard now at CEA, LDH and CA199 (you probably need to order these your self for speed and convenience, at least a first time). It may be that a choice could be made between normal Xeloda treatment, Xeloda+mild, generic adjuncts, and Folfox. The results from some ...
by rp1954
Mon Oct 15, 2018 11:07 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: MCV blood test
Replies: 4
Views: 253

Re: MCV blood test

MCV is typically raised by chemo. Various degrees of elevation during chemo are considered by some doctors as an indication of good response to chemo. There is some prior discussion in the archives. Not so sure about raised MCV after heavy duty chemo or damage, but with our immunochemo, MCV falls at...
by rp1954
Mon Oct 15, 2018 12:33 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Stage 3 to 4
Replies: 8
Views: 605

Re: Stage 3 to 4

What's your CEA, CA199 and LDH?
by rp1954
Fri Oct 12, 2018 12:46 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: lymph node tested positive :(
Replies: 8
Views: 792

Re: lymph node tested positive :(

oral chemo+supplemental chemistry asap, + 2nd surgery + later adding celecoxib (from ADAPT) is what we did. I do suggest noting CEA, CA199, LDH as minimal markers for this approach if they are even "average" - e.g. CA199 over 12 or 22 and LDH over 170. We do something more like CBC and ext...
by rp1954
Fri Oct 12, 2018 12:26 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Internal Iliac Node involvement??
Replies: 15
Views: 694

Re: Internal Iliac Node involvement??

The real issues are keeping the nodes contained, and destroying or removing them. In the US traditionally this is "chemo forever" territory - chemo until the drs run out of protocols or chemo itself is too much for the patient to handle. However, like the article says, surgical removal of ...
by rp1954
Sat Oct 06, 2018 3:58 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Anyone with peri mets who survived?
Replies: 12
Views: 1124

Re: Anyone with peri mets who survived?

We got rid of the peri mets between the initial diagnosis and first surgery, with likely several different circumstances. The peritoneum is a macrophage rich area of the body. Macrophages, a type of granulocyte, can be helpful or harmful depending on their immune properties. So in many cases, perito...
by rp1954
Sat Oct 06, 2018 3:15 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Question about necessity of CEA labwork
Replies: 31
Views: 1600

Re: Question about necessity of CEA labwork

Stage 2 CC, 87 and needs chemo but not a CEA ?!? He needs more informed, more broad minded drs. To a degree this may express some kind of cost contained medicine, perceived age futility on more surgery, or personal dr preference, but I would view it as wholly inadequate. To me, bad attitude means fi...
by rp1954
Tue Oct 02, 2018 1:40 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Such a blow!
Replies: 9
Views: 978

Re: Such a blow!

Have you had them check for MSI-H? You've had 3 brushes with different cancers and that may suggest MSI-H. If so, then you could focus on getting some kind of PD-1 inhibitor treatments, which have a pretty good batting average.
by rp1954
Mon Oct 01, 2018 5:28 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: New diagnosis and scared
Replies: 30
Views: 1918

Re: New diagnosis and scared

The more specifics you can measure or document here, (extra) blood tests , pathology, and scans, the more chances you might find more answers. Many people use their signature to summarize these. It is important to not let any potential mets or micromets grow unchecked, some kind of chemo ASAP is imp...
by rp1954
Mon Oct 01, 2018 2:04 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: DH had surgery consult yesterday for para aortic nodes
Replies: 16
Views: 3763

Re: DH had surgery consult yesterday for para aortic nodes

Gringo, why did MSK say surgery is off the table? Location? Conventionally, para-aortic lymph nodes are usually considered systemic, "chemo forever" territory, and futile for radiation or surgery. Since 2010, when we started, the surgical literature has grown. Papers show big improvements...
by rp1954
Thu Sep 27, 2018 1:42 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: IMMUNOTHERAPY
Replies: 25
Views: 6786

qualities

qualit ies There are several aspects that should be considered. Specific proteo-glucans content are one aspect of strength and quality and the differences between PSK, PSP, and clones. The bulk of the CRC, chemo and mushroom extract data that are available, are for PSK, the hot water extract of a p...
by rp1954
Thu Sep 27, 2018 5:32 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: IMMUNOTHERAPY
Replies: 25
Views: 6786

Re: IMMUNOTHERAPY

It is early Thursday morning in various US time zones, I'm not sure about Saturday (Fedex, UPS) vs Sunday deliveries (USPS Express mail?) from the manufacturer. It is sometimes possible to redirect or return packages in flight with the tracking number.
by rp1954
Thu Sep 27, 2018 1:21 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: IMMUNOTHERAPY
Replies: 25
Views: 6786

Re: IMMUNOTHERAPY

FYI: JHS and Mushroom Science are the two faces of the same coin for "Coriolus Super Strength" that is the PSK clone (you have to differentiate the PSP clones, alcohol extracted). JHS sells bottles of 150 caps x 600 mg to medical practitioners (e.g. MD, ND, DC) with advertising restriction...
by rp1954
Mon Sep 24, 2018 3:41 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: 2 swollen nodes in abdomen...
Replies: 15
Views: 1568

Re: 2 swollen nodes in abdomen...

We opted for daily oral chemo beyond ADAPT, with mild extras to control spread and para-aortic LN before a surgery for the PALN. We also applied this oral chemo after surgery. For us, this also had the advantage of chemo much closer in to abdominal surgery, so the cancer cells just never got a break...
by rp1954
Fri Sep 21, 2018 1:07 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Anyone with Kras and her2 mutations?
Replies: 2
Views: 369

Re: Anyone with Kras and her2 mutations?

I replied to your PM but it is unopened. There are a lot of lab studies that show various flavonoids reduce overexpression of ErbB2/HER2 in cancer cells and related pathways, or killing them, mostly for breast cancer. For over sixty years there has been been argumentation between ascorbate and flavo...

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