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by rp1954
Fri Dec 07, 2018 6:40 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Newly diagnosed stage 4 colon cancer at 42. Looking for hope and inspiration.
Replies: 24
Views: 1733

Re: Newly diagnosed stage 4 colon cancer at 42. Looking for hope and inspiration.

My wife was dx'd ~8.7 years ago, what turned out to be stage 4b (AJCC 6th)/4c (7th ed) colon cancer - mets in the omentum, various deposits, para aortic biopsied; unbiopsied immune/chemoreactive objects in the liver and lungs. We used the best regional surgeons we could find (region = 20m - 100m), a...
by rp1954
Fri Dec 07, 2018 6:24 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Supplements post treatment
Replies: 4
Views: 166

Re: Supplements post treatment

Here is a thread about this with a wealth of information on this subject Much of that wealth of information in the link has gone missing; the contents of my links to those Life Extension cancer protocols have been abridged and damaged by the FDA's latest round of censorship and attack against LEF. ...
by rp1954
Thu Dec 06, 2018 8:43 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: CEA as a marker during chemo?
Replies: 11
Views: 565

Re: CEA as a marker during chemo?

Eleda wrote:...My CA19/9 had increased from 6 to 17

Eleda, if cost is an issue, I'd suspend CA199 until 6+ months after Folfox stops, maybe get one more near the end of Folfox just to see the approximate peak.
by rp1954
Thu Dec 06, 2018 8:36 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Mixed bag kinda day: progression, genomic results, and trial
Replies: 17
Views: 859

Re: Mixed bag kinda day: progression, genomic results, and trial

Anyway, I asked my onc about testing for CA199. She kinda poo-poo'ed it as not being very useful for me. We'd considered it when we believed my CEA markers were no longer reliable. But, CEA is increasing and correlating with my new liver mets and growth. Yeah, standard wrong or non-informative onco...
by rp1954
Thu Nov 29, 2018 7:37 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Mixed bag kinda day: progression, genomic results, and trial
Replies: 17
Views: 859

Re: Mixed bag kinda day: progression, genomic results, and trial

I hope that you are able to track some of the extra blood markers and panels that I've talked about, at least before and after any treatments, particularly CA199 (especially at least once), AFP, LDH, with hsCRP(and ESR) for an inflammation level(s). Also the trial is likely to be tracking more blood...
by rp1954
Thu Nov 29, 2018 7:22 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Tropical travel after FOLFOX?
Replies: 8
Views: 364

Re: Tropical travel after FOLFOX?

On 8 years metronomic immunochemo, we never had my wife's platelets under 100 k, they have been floating around 150k for years now. We chose the PSK type of water extracted mushroom extract from Coriolus Versicolor, because of its demonstrable ability to raise WBC and platelets for us. Basically at ...
by rp1954
Tue Nov 27, 2018 10:07 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Tropical travel after FOLFOX?
Replies: 8
Views: 364

Re: Tropical travel after FOLFOX?

My wife uses IV vitamin C, larger scale vitamin D3 (+K2) and various antiviral and immune supplements to eliminate tropical and weird viral challenges. At least my wife, who takes lots more stuff, shrugs these things off, when the rest of us don't always shrug them off. This includes a gardener work...
by rp1954
Tue Nov 27, 2018 9:46 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Folfiri A Second Time
Replies: 3
Views: 457

Plans B and C

Since no one else has tackled this, I'm going to take a shot at this. First, I view these things as a spectrum of individual problems to be solved, and coordinated in the attack if possible. A. more chemo intensity but less chemo side effects B. more chemo continuity e.g. everyday vs cycles and clos...
by rp1954
Tue Oct 30, 2018 2:59 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: 23 years old with stage 4 colon cancer
Replies: 12
Views: 1972

Re: 23 years old with stage 4 colon cancer

I have a few suggestions that may be different but important. A lot of our younger members have had very dangerous mutations, like BRAF, and are not well controlled by conventional oncology. One, do some extra blood testing yourselves. This is as simple as picking up the phone and dialing an 800 num...
by rp1954
Sat Oct 27, 2018 7:54 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Frankicense?
Replies: 4
Views: 874

Re: Frankicense?

We have used boswellia with 5FU fine, but never used oxaliplaten. So no special specific research or insights on oxi+boswellic acids here.
by rp1954
Mon Oct 22, 2018 4:26 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: DH had surgery consult yesterday for para aortic nodes
Replies: 17
Views: 4401

Re: DH had surgery consult yesterday for para aortic nodes

His initial recurrent lymph node states it is an interaortocaval node. The new ones are stated with one as same description and other as left paraaortic retroperitoneal lymph node. The dr really only stated more than one node negates surgery. Cea is 1.5. CA-199 is 7.55. He is MSS with no KRAS mutat...
by rp1954
Thu Oct 18, 2018 12:39 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Worried -genetic results are in. KRAS MSS
Replies: 18
Views: 1389

Re: Worried -genetic results are in. KRAS MSS

Take a deep breath. I would look very hard now at CEA, LDH and CA199 (you probably need to order these your self for speed and convenience, at least a first time). It may be that a choice could be made between normal Xeloda treatment, Xeloda+mild, generic adjuncts, and Folfox. The results from some ...
by rp1954
Mon Oct 15, 2018 11:07 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: MCV blood test
Replies: 4
Views: 457

Re: MCV blood test

MCV is typically raised by chemo. Various degrees of elevation during chemo are considered by some doctors as an indication of good response to chemo. There is some prior discussion in the archives. Not so sure about raised MCV after heavy duty chemo or damage, but with our immunochemo, MCV falls at...
by rp1954
Mon Oct 15, 2018 12:33 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Stage 3 to 4
Replies: 23
Views: 2713

Re: Stage 3 to 4

What's your CEA, CA199 and LDH?
by rp1954
Fri Oct 12, 2018 12:46 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: lymph node tested positive :(
Replies: 14
Views: 1722

Re: lymph node tested positive :(

oral chemo+supplemental chemistry asap, + 2nd surgery + later adding celecoxib (from ADAPT) is what we did. I do suggest noting CEA, CA199, LDH as minimal markers for this approach if they are even "average" - e.g. CA199 over 12 or 22 and LDH over 170. We do something more like CBC and ext...

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