At least some people are able to eliminate HFS for Xeloda with IV vitamin C about twice a week, out to about 4-5 days interval. I first found this in a ~2000s case history by Riordan clinic and have seen other examples since then. IV vitamin C works best on KRAS mutants, and with additional mild adj...

My wife used daily chemo for 8 years with frequent IV vitamin C, and supplements for support of higher chemo dosages than possible without IVC, with a high quality of life and pretty good immune function e.g. WBC over 4 - 5. Frequent enough IV vitamin C can help with fatigue and some chemo side effe...

We use the 10,000 iu dose vitamin D3 too, and it's available as a single pill. Larger caps, like 50,000 can be useful for catchup or sick days. Sometimes 20,000 and 25,000 iu caps are available too. Above 10,000 iu, serious patients watch their vitamin K2, calcium and magnesium intakes. At much high...

...here is what medicine.net has to say: Shotty is very commonly used in describing the feel of lymph nodes (the lymph glands) when they are palpated (felt) through the skin. "Shotty" lymph nodes are ones that are not only hard and round but also small and surely of no consequence . "...

... was also given by my Dr at MSK a 'definitely' chemo for life option, I didn't take it well ...to say the least. ... MSK is not favorable towards maintenance chemo. ... I also go to MSK and have asked for it, they wouldn't give me claiming there isn't enough scientific data to suggest its effect...

I have been trying to convince my doctor to do maintenance chemo with no luck. They said they don't do maintenance chemo there as researches did not show enough evidence that it works. Their firm objection means find other, less common drs to help you. There is some circularity in their argument an...

I haven't stored PSK powder myself. For high humidity with other highly sensitive items, I have used multiple overpacks. Say a large, less permable plastic/metal outer jar, sealed. Flimsy plastic bag around that in the freezer. Then heavy, ziplocked freezer bags inside the main container with silica...

The major indicator of useful quantity and quality for PSK, is the assayed % beta-glucans content to get actual beta-glucan content. The major therapeutic PSK versions have ranged about 30% - 45%. Lower is not better. PSP is a different creature. Loose PSK powder is more vulnerable to storage condit...

5FU with dewormer compounds (e.g. levamisole, abendazole, mebendazole, fenbendazole etc) are tricky on nasty side effects and spacing (or combined) from what I've seen in the literature, and on members from these boards. 10 years ago I found some literature that showed harsh side effects for some de...

How long did you overlap (how much?) fenbendazole (etc) with (how much?) chemo?

Congratulations. Great to hear you're through the Big 10, Bill. And thanks for your insights and longitudinal comments on long term Folfox effects. NMS It's been a great bonus decade—both my daughters got married and I've seen the birth of 3 granddaughters, so I couldn't be more content. Just one an...

...CA 19-9 was 50 when he started and is now 27... ...It looks like these numbers are good and his treatment is working? Does this mean that a lot of the cancer has gone away? It could be an important start - markers going down vs up is a big deal, but still lots to go. In the Japanese papers I rea...

In the rational "alternative" and off label uses world, KRAS mutants may be more treatable. Like over a dozen decent additive candidates to 5FU (e.g. xeloda). Extra off label chemistry allowed us to get past surgical denials as well as oncological gloom and doom. I do believe in "bett...

My wife took celecoxib at 300-400 mg per day, with her daily chemo (and lots of carefully selected supplements), for over five years. Early in our chemo-supplements-celecoxib series, her markers rose but liver panels were good at 200 mg. At 300 mg her markers were stable or slightly depressed and li...

Low carb "FMD" diet + exercise + various chemo (oral 5FU, celecoxib, early CA199-cimetidine, aspirin at different times) + selected neutraceuticals and megavitamins appeared to work best together in my wife's case. There were clear incidents where dose reduction or loss of components, incl...