Last round of xeloda I got horrible blisters on my feet. I could not walk, I had to crawl on the ground. Thanks for getting back to us. Sorry that your doctor(s) didn't have the knowledge/skill levels to prevent that last HFS part. Overall, I think you likely still had better results, even with tha...

after treatment he had a +49% increase in tumour size, prior to the subsequent shrinkage to zero . We had a somewhat similar warning about potential "tumor swelling" from our endocrinologist, JJ Prendergast (dec'd), about immune responses after 50k-100k megavitamin D tx for cancer patient...

The best lung surgery option may be in a specialty lung hospital in Coswig, Germany, near Dresden. They are radically more efficient in tissue sparing and more mets recovered in an operation than any North American hospital. Read/search on this forum for Rolles laser (lung) surgeries for lung mets. ...

OK, I got a letter from BCBS stating they put my capcetibine under review and it will be under review every year provided it be rx'd with in network provider. So, are they planning to exclude certain doctors outside of SOC? My onc is intergrative. I can see trouble coming with several scenarios for...

I will soon be six years out from my surgery. I am very glad that I refused both radiation and oxaliplatin, and only took four rounds of xeloda/capecitabine... 2.3 g twice daily. I am 176 cm 85 kg. Xeloda/capecitabine is far easier than 5FU (tablets at home vs iv at the hospital). Studies seem to i...

Sounds like something might be missing in communication - what did they see that they think that is so pessimistic - just the 0.6 cm met and its pathology alone or as a (biopsy) representative of multiple/multitudinous thingies on a CT? A big reason that I started digging out blood panel stats and i...

....if I should create a spreadsheet with these items or some sub-set and if there are tests not being performed that people here would recommend. A well formatted spreadsheet saves time, helps clear thinking, and communicates faster and better. I just spent some minutes updating it every few weeks...

...your research and advocacy on behalf of your wife are simultaneously daunting and inspiring. If you do the simple conversational interactions I've suggested with (y)our whole blood work, it shouldn't be so daunting - it really cuts the reading way down and allows normally delayed sequential acti...

Has anyone had longish term success where chemo has just kept the mets stable, but still visible on scans/similar. Looking for some nice stories that exclude NED :) We can only claim one lung nodule that disappeared, along with several liver nodules plus stability in multiple LN when immunochemo re...

1)Along with elevated ALP levels, some patients with bone mets may have ( not always ) hypercalcemia (elevated blood calcium). Has your blood calcium been elevated recently? We used menatetrenone (the vitamin K2 isoform also known as MK4) to knock down hypercalcemia, and based on her lab tissue tes...

I had a pet scan last week. I got the report today. There were 2 intensely avid lymph nodes in the prevascular and subcarinal region and also a shoulder acromion metastasis with an undisplaced fracture. I’ve had recent X-rays and a ct before this that showed nothing but bursitis. I don’t know what ...

Is there a particular brand or supplier that you prefer? McGuff in the US is the only FDA approved version of 500 mg/mL liquid C concentrate but 4x its 2010 price preFDA. The FDA now bullies US state based compounding pharmacies (bottlers) of vitamin C concentrate, usually 400 - 500 mg C/mL. Some E...

First, before settling on my current team of doctors I did engage a team from Memorial Sloan Kettering in NY. Initially their plan included Total Neo-adjuvant therapy of radiation/chemo/TME surgery. The lead doctor very explicitly outlined they would NOT be removing the two Common Iliac lymph nodes...

My gut feeling in asking the question was that the likely proper response is NOT to wait on surgery. Knowing what I've seen, read, and all we did, I would say the biggest question is about optimum - WHICH surgery and conditions. Because we took the initiative and aggressively went beyond "stan...

Quick update not that it matters a great deal, but just so future posters might learn from my experience. I was quite worried about the side effects of FOLFIRINOX, but I've finished the my first infusion and am scheduled for my second round tomorrow AM but my side effects from the first round were ...