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by rp1954
Mon Jun 17, 2019 3:21 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: A thought on chemo side effects
Replies: 4
Views: 256

Re: A thought on chemo side effects

Side effects simply reflect the particular regimen's characteristics and a person's particular reactions. Some regimens may have additional effects associated with success but that is not a general requirement. My wife did not suffer additional overt side effects at various times when things necrose...
by rp1954
Sun Jun 09, 2019 5:27 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Need thoughts
Replies: 20
Views: 1199

Re: Need thoughts

... and you won’t find it in any national guidelines (in the US or elsewhere)…. but never seems to provide advice on actual new developments in cancer care that are really revolutionizing how we treat patients (immunotherapy, targeted therapies, etc). In addition to MSI testing I would insist on ge...
by rp1954
Fri Jun 07, 2019 3:43 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Need thoughts
Replies: 20
Views: 1199

Re: Need thoughts

When I first met my oncologist, he stated that with stage 2, there are 3 scenerios. Surgery removed all cancer and chemo would not do anything, microsopic cells were left and chemo would erraticate the cancer, or microsopic cell were left and chemo did not work. Changes in chemo chemistry can chang...
by rp1954
Thu Jun 06, 2019 3:13 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Need thoughts
Replies: 20
Views: 1199

Re: Need thoughts

Indeed, there appears on average to only be a survival benefit from adjuvant chemo in a small number of Stage II patients; the challenge is in identifying which patients are most likely to benefit, given the risks and costs of doing chemotherapy. In principle, if targetable, different chemo formula...
by rp1954
Thu Jun 06, 2019 11:24 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Insurance Cos increasingly resistant to scans
Replies: 6
Views: 481

Re: Insurance Cos increasingly resistant to scans

Dam insurance companies. You can't live without them, but you can barely live with them! Actually some can theoretically live without them and prosper, we did totally without them for years 1, 6, 7, 8. Year 1 because claims and fights would slow us down, sap energy and frazzle nerves. You would lau...
by rp1954
Mon Jun 03, 2019 12:49 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: It has come back...in the LNs...
Replies: 14
Views: 1203

Re: It has come back...in the LNs...

… may I ask what this part actually means? We had later events that appeared to shift the cancer markers' degree of response amongst CEA, CA199 and AFP, perhaps individual lesions shedding different levels of markers. Also the other blood chemistry and extra but common labs can contain important hi...
by rp1954
Thu May 30, 2019 11:34 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Laid off before Dx
Replies: 21
Views: 1177

Re: Laid off before Dx

Your kids need to talk with financial aid counselors and rework their financial aid situation immediately before colleges finalize everything this summer. Have them do as much legwork for you as possible so you can manage corrections and oversight quicker, with less stress. Their plans will likely c...
by rp1954
Tue May 28, 2019 3:50 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Anyone pass out after abdominal cramping??? ER time
Replies: 81
Views: 6040

Re: Anyone pass out after abdominal cramping??? ER time

My wife got good Hgb mileage out of liverwurst, pate', and occasionally, real livers, from one TSB, up to several tablespoons per day on immunochemo, which is not as drastic as HAI-FUDR, or regular chemo. Sometimes a half or a whole can of Underwoods Liverwurst spread, or equal pate' amounts. 1-2 TS...
by rp1954
Tue May 28, 2019 2:23 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: It has come back...in the LNs...
Replies: 14
Views: 1203

Re: It has come back...in the LNs...

Got the PET report today, after it being clear for 10 months, it came back to hit me at liver 1.1cmx 1.1cm, one suspicious paraaortic LN and one suspicious near iliac and one suspicious one near thorax.... … I'm worried about Paraaortic LN, I saw someone had it removed before but did it help? We us...
by rp1954
Mon May 27, 2019 11:01 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Treatment break - advice sought!
Replies: 8
Views: 604

Re: Treatment break - advice sought!

I just finished long-course chemoradiation treatment prior to surgery on my primary rectal tumour, and I now have a 7 week break. I had previously discussed with my onc doing an additional 2 cycles of FOLFOX during this time, but he has now recommended deferring it until after the surgery in light ...
by rp1954
Mon May 27, 2019 8:22 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Possible lymph node metastasis
Replies: 15
Views: 1343

Re: Possible lymph node metastasis

Some of DH's relevant biology and risk information is still in the pre-, post surgical CEA, CA199, LDH and inflammation data (hsCRP and ESR/"sed"). The number of days for the blood draw(s) after surgery also is a factor in various analyses.
by rp1954
Sat May 25, 2019 9:41 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Looking for Options for un-resectable lung Mets
Replies: 7
Views: 677

Re: Looking for Options for un-resectable lung Mets

One Plan B, might be to try to stop cell clusters' circulation and seeding with some metronomic/maintenance scheme until you got to Germany. One example, might be Lin's ADAPT formula extended with PSK and/or baby aspirin. My wife actually took a lot more stuff to achieve/keep chemo sensitivity. A pr...
by rp1954
Fri May 24, 2019 4:46 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Distant Lymph nodes
Replies: 3
Views: 493

Re: Distant Lymph nodes

Has anyone had distant lymph nodes show up on their CT and PET scans that were enlarged and then they turned out to just be inflammation from the tumor and negative for cancer? My DH had some distant nodes show up on his scans that they were unable to biopsy during surgery and now we are waiting to...
by rp1954
Wed May 22, 2019 4:40 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Recurrence lung nodules/lymph nodes: (PET) CT vs. markers
Replies: 3
Views: 391

Re: Recurrence lung nodules/lymph nodes: (PET) CT vs. markers

There's almost no detail to comment on or to compare there. Standard US oncology practices aren't highly geared for accumulation, biochemical assessment of risk, or detection of recurrence much beyond to monitor single/several CEA values. Other places, they might combine several kind of data and ser...
by rp1954
Thu May 16, 2019 9:32 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Chemo break
Replies: 23
Views: 1210

Re: Chemo break

Maintenance is about what is tolerable and effective long term. If you can get extra immune and chemo activity, especially to dissolve lesions somewhere, that would be a plus. There are dramatic, published patients' success series with improved maintenance regimes, e.g. ADAPT (Xeloda + Celebrex). I ...

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