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by rp1954
Mon Sep 17, 2018 2:52 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rejected at mskcc because of 3mm possible ling met
Replies: 5
Views: 283

Re: Rejected at mskcc because of 3mm possible ling met

Wow, that's really sad with such low visible tumor count and volume on the lungs. People have dealt successfully with far worse liver and lung combinations. Just not with standard practices, the average Joe, or Dr. No. She needs to take immediate steps to preserve the low count. Most crucially, what...
by rp1954
Fri Sep 14, 2018 11:20 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Dang 1cm Liver Met!
Replies: 75
Views: 5741

Re: Dang 1cm Liver Met!

Well, whatever you have, at dx, pre-surgery, a pre-treatment peak is one kind of information; a post surgery and a low are other information. One value, whenever, answers the "less than 2 units?", Yes/No question. The more you post, the more there can be answers later. Other timings build ...
by rp1954
Fri Sep 14, 2018 5:13 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Dang 1cm Liver Met!
Replies: 75
Views: 5741

Re: Dang 1cm Liver Met!

Serum CA199 is pretty strongly associated with KRAS/BRAF mutants and is not the pancreatic cutoff (a value usually between 34 and 40 units, depending on vendor and location). I would try to get the CA199 value for future reference , and make a real decision with the surgeon about his informed safety...
by rp1954
Fri Sep 14, 2018 3:58 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Dang 1cm Liver Met!
Replies: 75
Views: 5741

Re: Dang 1cm Liver Met!

We reminded them verbally in the run up to surgery, but had agreed earlier lining the surgery up. IV cimetidine was not available anymore, so the surgeon okayed a big dose of oral cimetidine some hours before surgery, even though she was NPO. We happened to have our box of 400 mg cimetidine tablets,...
by rp1954
Fri Sep 14, 2018 1:56 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Dang 1cm Liver Met!
Replies: 75
Views: 5741

Re: Dang 1cm Liver Met!

I am currently looking up the benefits of using Tagamet after surgery to stop reoccurrence. If anyone knows anything on the subject, please chime in. For ongoing liver tolerance and performance from drugs and supplements, we watch extended liver panels. We have no liver surgery experience. For gene...
by rp1954
Fri Sep 14, 2018 12:49 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Dang 1cm Liver Met!
Replies: 75
Views: 5741

Re: Dang 1cm Liver Met!

FWIW, my integrative care doctor at MSK So far, MSK integrative medicine has yet to impress me, mostly based on two other individuals. It was (is?) originally headed for a long time by a politicized, weak or non-STEM PhD who was once openly and notoriously anti-supplement, who simply didn't have an...
by rp1954
Wed Sep 12, 2018 10:18 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Hernia? Nope, looks like cancer is back
Replies: 6
Views: 591

Re: Hernia? Nope, looks like cancer is back

Standard treatment is chemo forever. Multimodal treatment is a careful, integration of advanced treatments, like optional chemistry(s) and surgery(s) for complete local cancer removals where possible, and more effective use of nicer metronomic (immuno)chemo closer in to surgery. With some luck, you'...
by rp1954
Mon Sep 10, 2018 11:34 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: MRI shows 6 new liver Mets 2 weeks after clean CT scan? CEA normal.
Replies: 18
Views: 1469

Re: MRI shows 6 new liver Mets 2 weeks after clean CT scan? CEA normal.

Curcumin is a flavonoid mixture, one of several that we use, like quercetin, silymarin and EGCG too. I'm very favorable to flavonoids and other supplements disrupting cancer pathways and re-sensitizing chemo, at least 5FU. There are probably two dozen commonly used flavonoid anti-cancer extracts, an...
by rp1954
Sun Sep 09, 2018 5:02 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Two-Month Postop Update
Replies: 4
Views: 402

Re: Two-Month Postop Update

It's great that she's made such a full recovery. Sorry it was such hard trip on the yellow brick road (Oz?). Thanks for letting us know what's going on and what you're thinking. Your experience is an important lesson for others about getting written off prematurely. ... She knows full well that, wer...
by rp1954
Fri Sep 07, 2018 1:29 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Genetic Testing?
Replies: 20
Views: 1264

Re: Genetic Testing?

I think you're overanalyzing a problem that is likely beyond your control, now or in the future. 1. Life insurance wise for your kids, they already get a downcheck for you being under 60, since long ago. I doubt any honest actuarial system can justify much beyond that for all but the most lethal tra...
by rp1954
Thu Sep 06, 2018 2:23 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: MRI shows 6 new liver Mets 2 weeks after clean CT scan? CEA normal.
Replies: 18
Views: 1469

Re: MRI shows 6 new liver Mets 2 weeks after clean CT scan? CEA normal.

Two other common cancer markers, AFP ("for liver cancer") and CA199 ("for pancreatic cancer"), have been elevated, or a rising series of values, for a large percentage of advanced CRC patients, as published in other countries; CA125 is not common. We have had these markers' serie...
by rp1954
Thu Sep 06, 2018 2:14 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Concerned,,,,Elevated CA199
Replies: 7
Views: 385

Re: Concerned,,,,Elevated CA199

The CA199 can definitely react to cumulative cellular and organ damage after some initial rounds of heavy chemo, and go streaking higher, 100 - 150 - 200 units by the end of cyclical chemo [in 6 months]. Many other blood panels are whacked out by chemo too. Each can follow its own path higher, then ...
by rp1954
Tue Sep 04, 2018 3:58 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: DH had surgery consult yesterday for para aortic nodes
Replies: 10
Views: 795

Re: DH had surgery consult yesterday for para aortic nodes

We've used a different playbook for para-aortic nodes, one where fundamentals, prior successes, logic and economics have more sway. . F irst, we kept as much chemistry on the nodes as possible, continually for years; to a degree even through surgery - not this 2-3-4-6 week standoff stuff, before and...
by rp1954
Fri Aug 31, 2018 1:28 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Really worried. Stage 4 with increasing CEA despite of chemo
Replies: 3
Views: 421

Re: Really worried. Stage 4 with increasing CEA despite of chemo

. If folfiri is not working, then we don’t have anyway way out but keytruda, which is extremely expensive in Hong Kong. Seems that no more chemo way out... You might not have any oncological society accepted or regulator approved way out but keytruda, skipping over stivarga or Lonsurf, options with...
by rp1954
Sun Aug 26, 2018 9:40 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Folic acid / folate and 5FU dangers, L-glutamine and asian mushrooms - some questions
Replies: 8
Views: 337

Re: Folic acid / folate and 5FU dangers, L-glutamine and asian mushrooms - some questions

If you want to use cimetidine this late, the extra bloodwork with at least CA199 and LDH to look at, is key . Some people definitely should not use cimetidine and these markers help those odds a lot. Again watch for the irinotecan interaction, for which someone else on Folfiri-Avastin used IV vitami...

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