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by rp1954
Thu Jul 11, 2019 11:55 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Please allow me to introduce myself
Replies: 17
Views: 2082

Re: Please allow me to introduce myself

I didn't believe anything was really wrong) who found blood in a stool sample. He also measured CEA and CA19-9, both of which were in the low normal range, I'd say the two of the most important values you could mention here or in your signature are the CEA, CA199, with inflammation marker(s) at dx ...
by rp1954
Sun Jun 30, 2019 5:05 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: What do you think?
Replies: 34
Views: 2734

Re: What do you think?

[(2) I think that antidepressants are compatible with all of the chemo drugs that you are taking -- at least that's the impression I get from doing searches with the Drug-Drug Interaction Detector. However, I read somewhere that there is a possible problem with bad reactions between certain antidep...
by rp1954
Mon Jun 17, 2019 3:21 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: A thought on chemo side effects
Replies: 10
Views: 1239

Re: A thought on chemo side effects

Side effects simply reflect the particular regimen's characteristics and a person's particular reactions. Some regimens may have additional effects associated with success but that is not a general requirement. My wife did not suffer additional overt side effects at various times when things necrose...
by rp1954
Sun Jun 09, 2019 5:27 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Need thoughts
Replies: 20
Views: 1790

Re: Need thoughts

... and you won’t find it in any national guidelines (in the US or elsewhere)…. but never seems to provide advice on actual new developments in cancer care that are really revolutionizing how we treat patients (immunotherapy, targeted therapies, etc). In addition to MSI testing I would insist on ge...
by rp1954
Fri Jun 07, 2019 3:43 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Need thoughts
Replies: 20
Views: 1790

Re: Need thoughts

When I first met my oncologist, he stated that with stage 2, there are 3 scenerios. Surgery removed all cancer and chemo would not do anything, microsopic cells were left and chemo would erraticate the cancer, or microsopic cell were left and chemo did not work. Changes in chemo chemistry can chang...
by rp1954
Thu Jun 06, 2019 3:13 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Need thoughts
Replies: 20
Views: 1790

Re: Need thoughts

Indeed, there appears on average to only be a survival benefit from adjuvant chemo in a small number of Stage II patients; the challenge is in identifying which patients are most likely to benefit, given the risks and costs of doing chemotherapy. In principle, if targetable, different chemo formula...
by rp1954
Thu Jun 06, 2019 11:24 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Insurance Cos increasingly resistant to scans
Replies: 6
Views: 757

Re: Insurance Cos increasingly resistant to scans

Dam insurance companies. You can't live without them, but you can barely live with them! Actually some can theoretically live without them and prosper, we did totally without them for years 1, 6, 7, 8. Year 1 because claims and fights would slow us down, sap energy and frazzle nerves. You would lau...
by rp1954
Mon Jun 03, 2019 12:49 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: It has come back...in the LNs...
Replies: 16
Views: 2551

Re: It has come back...in the LNs...

… may I ask what this part actually means? We had later events that appeared to shift the cancer markers' degree of response amongst CEA, CA199 and AFP, perhaps individual lesions shedding different levels of markers. Also the other blood chemistry and extra but common labs can contain important hi...
by rp1954
Thu May 30, 2019 11:34 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Laid off before Dx
Replies: 21
Views: 1706

Re: Laid off before Dx

Your kids need to talk with financial aid counselors and rework their financial aid situation immediately before colleges finalize everything this summer. Have them do as much legwork for you as possible so you can manage corrections and oversight quicker, with less stress. Their plans will likely c...
by rp1954
Tue May 28, 2019 3:50 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Anyone pass out after abdominal cramping??? ER time
Replies: 81
Views: 7379

Re: Anyone pass out after abdominal cramping??? ER time

My wife got good Hgb mileage out of liverwurst, pate', and occasionally, real livers, from one TSB, up to several tablespoons per day on immunochemo, which is not as drastic as HAI-FUDR, or regular chemo. Sometimes a half or a whole can of Underwoods Liverwurst spread, or equal pate' amounts. 1-2 TS...
by rp1954
Tue May 28, 2019 2:23 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: It has come back...in the LNs...
Replies: 16
Views: 2551

Re: It has come back...in the LNs...

Got the PET report today, after it being clear for 10 months, it came back to hit me at liver 1.1cmx 1.1cm, one suspicious paraaortic LN and one suspicious near iliac and one suspicious one near thorax.... … I'm worried about Paraaortic LN, I saw someone had it removed before but did it help? We us...
by rp1954
Mon May 27, 2019 11:01 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Treatment break - advice sought!
Replies: 8
Views: 885

Re: Treatment break - advice sought!

I just finished long-course chemoradiation treatment prior to surgery on my primary rectal tumour, and I now have a 7 week break. I had previously discussed with my onc doing an additional 2 cycles of FOLFOX during this time, but he has now recommended deferring it until after the surgery in light ...
by rp1954
Mon May 27, 2019 8:22 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Possible lymph node metastasis
Replies: 15
Views: 1876

Re: Possible lymph node metastasis

Some of DH's relevant biology and risk information is still in the pre-, post surgical CEA, CA199, LDH and inflammation data (hsCRP and ESR/"sed"). The number of days for the blood draw(s) after surgery also is a factor in various analyses.
by rp1954
Sat May 25, 2019 9:41 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Looking for Options for un-resectable lung Mets
Replies: 7
Views: 967

Re: Looking for Options for un-resectable lung Mets

One Plan B, might be to try to stop cell clusters' circulation and seeding with some metronomic/maintenance scheme until you got to Germany. One example, might be Lin's ADAPT formula extended with PSK and/or baby aspirin. My wife actually took a lot more stuff to achieve/keep chemo sensitivity. A pr...
by rp1954
Fri May 24, 2019 4:46 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Distant Lymph nodes
Replies: 3
Views: 732

Re: Distant Lymph nodes

Has anyone had distant lymph nodes show up on their CT and PET scans that were enlarged and then they turned out to just be inflammation from the tumor and negative for cancer? My DH had some distant nodes show up on his scans that they were unable to biopsy during surgery and now we are waiting to...

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