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by rp1954
Fri May 18, 2018 2:48 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Isolated Retroperitoneal Metastases with Unelevated Markers
Replies: 3
Views: 235

Re: Isolated Retroperitoneal Metastases with Unelevated Markers

I'm a bit confused about the relevance of your response.....CEA and CA 19-9 ought to be particularly sensitive for such a substantial mass if this were cancer . . [CEA/CA199]...only if the tissues are certain types of CRC or gastrointestinal cancer, AND communicate well to the blood. Also some met ...
by rp1954
Thu May 17, 2018 7:20 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Isolated Retroperitoneal Metastases with Unelevated Markers
Replies: 3
Views: 235

Re: Isolated Retroperitoneal Metastases with Unelevated Markers

There are several possible attacks on diagnostics. 1. An expanded, less specific approach of panels associated with cancer, or even other conditions, measured before and after surgery. The nonspecific panels' meanings were pursued from the literature to avoid being blindsided. More cancer markers, s...
by rp1954
Wed May 16, 2018 3:44 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: New to forum - CEA trending up while on adjuvant chemo
Replies: 14
Views: 445

Re: New to forum - CEA trending up while on adjuvant chemo

I asked about my CA19-9 level when I was first diagnosed, but was told that it is not normally tested... Correct, but a potentially costly omission for the many patients that would respond to added cimetidine, maybe IV vitamin C and/or MK4(a vit K2), or show a drug response in CA199 data earlier or...
by rp1954
Tue May 15, 2018 7:34 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: New member with Xeloda question for Stage II
Replies: 9
Views: 353

Re: New member with Xeloda question for Stage II

Here are some possibilities. - It's possible that you have DPD inhibition (genetic or chemically induced) which makes 5FU more potent, where lower doses act like higher doses in other people. - It is possible that you have toxicity associated with folic acid or some drugs. Toxicity means it harms yo...
by rp1954
Sat May 12, 2018 7:04 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Back to hospital for ascites
Replies: 11
Views: 767

Re: Back to hospital for ascites

, the CT scan showed significant disease progression, and metastasis into new areas. It also showed pleural effusion and ascites. She had thoracentesis, where they drained 1.5L of fluid from her chest, and at least that has helped with her shortness of breath... However her AST/ALT are too high (~7...
by rp1954
Fri May 11, 2018 3:53 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: ADAPT - Dr. Lin ONGOING Thread
Replies: 94
Views: 11727

Re: ADAPT - Dr. Lin ONGOING Thread

Could you elaborate on "extra stress to liver markers"? My wife's liver panels have typically been pretty well in the normal range, and we aim to keep them there, stepping on serious deviations by withdrawing something suspicious or adding nutrients or intensifying immunochemo. I think al...
by rp1954
Fri May 11, 2018 10:58 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: ADAPT - Dr. Lin ONGOING Thread
Replies: 94
Views: 11727

Re: ADAPT - Dr. Lin ONGOING Thread

I am re-surfacing this ADAPT thread for new members about an important treatment component, celecoxib. Please read it all if you haven't already, especially if you need more chemo or chances. ----------------------- Note: Many of my wife's supplements and her cimetidine have been at stronger doses i...
by rp1954
Thu May 10, 2018 11:06 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Peritoneal CA secondary to Colon CA
Replies: 5
Views: 474

Re: Peritoneal CA secondary to Colon CA

No port is usually pretty difficult for oxi- over just a few times bare, or else some aggravation with a Picc line installed in the arm for a while. A few have done okay for longer stretches with oxi- but most going bare stop sooner than later. Otherwise, without a port, your bff might go mostly wit...
by rp1954
Thu May 10, 2018 6:28 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Anemia while taking xeloda and avastin UPDATE Elevated CA125
Replies: 11
Views: 755

Re: Anemia while taking xeloda and avastin UPDATE Elevated CA125

How? Could be a lab mistake for one test only, or when you do something good (e.g. 2+ TSB liver daily or whatever), plug/heal a loss of RBC, lots of improvement in a week or two is possible. Without seeing the entire blood tests occasionally, there's too much info missing for a lot of questions. Abo...
by rp1954
Wed May 09, 2018 10:12 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Long-term survival with spine mets??
Replies: 8
Views: 760

Re: Long-term survival with spine mets??

Most of our limited background is with patient-members who were in recurrances and/or had multiple treatments already. You still have more initial potential to have dramatic response to immune treatments or chemo, albeit CSF penetration adds uncertainties. For radiation with that much load and fine ...
by rp1954
Wed May 09, 2018 1:30 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Chemotherapy Sensitivity and Resistance Assays
Replies: 5
Views: 319

Re: Chemotherapy Sensitivity and Resistance Assays

Shana, we haven't waited on new immune treatment developments to get therapeutic immune benefits now. We have gotten distinct, incrementally improved immunochemo results with PSK, WGP and megavitamin D3 where the highest doses of vitamin D3 require some magnesium and vitamin K2 (menetetrenone) conte...
by rp1954
Wed May 09, 2018 7:57 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: New to forum - CEA trending up while on adjuvant chemo
Replies: 14
Views: 445

Re: New to forum - CEA trending up while on adjuvant chemo

Your low pre- and post surgerical CEA, and lack of CEA rise or detection for two months after, should be somewhat reassuring. Pre-op, you did have a good solid CEA response, and hopefully a curative surgery. The cumulative toxicity of capacitabine and oxaliplaten on cells and organs is common and ty...
by rp1954
Wed May 09, 2018 3:44 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Just diagnosed and it's EVERYWHERE...what to do now??
Replies: 24
Views: 1732

"Today"

We had 1st day and 1st week actions for an immediate , strong counterattack with some of the best "luck". My wife's colon cancer was far worse than we knew but we made it work anyway. I'll list important tools we've used and improved on, that you can do yourself, today. 1. Get a superchemi...
by rp1954
Mon May 07, 2018 6:42 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Chemotherapy Sensitivity and Resistance Assays
Replies: 5
Views: 319

Re: Chemotherapy Sensitivity and Resistance Assays

We had this done on a limited basis for conventional chemo binaries and a triplet (for 5FU-iri-oxi-gem mixtures) and then for some truly experimental mixtures. Chemo sensitivity tests appeared to work okay for my comparison of relative effectiveness, even with a subset of the full suite of tests. Of...
by rp1954
Mon May 07, 2018 2:28 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Introduction/News
Replies: 4
Views: 329

Re: Introduction/News

Don't despair. There are several possible avenues of advance, perhaps 2-3 steps to NED. Hepatic arterial infusion, possibly a re-operation, ordinary chemo options, experimental, metronomic or immunochemo options and newer biologicals. Even two years out (6 yrs ago) we were shrinking and dissolving l...

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