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by rp1954
Sun Oct 08, 2017 3:16 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: immuno chemotherapy
Replies: 1
Views: 316

immuno chemotherapy

I've been asked about our immuno chemotherapy. Basically we stack immune adjuncts, mostly oral supplements, along with IV vitamin C, cimetidine and celecoxib (Celebrex), higher and deeper. We started early on while WBC counts were still high and have worked to maintain WBC levels even while on daily...
by rp1954
Sat Oct 07, 2017 11:51 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Colon cancer and dentistry questions and CEA question
Replies: 6
Views: 514

Re: Colon cancer and dentistry questions and CEA question

Our experience has been that nutrients associated with collagen and bone formation slow or reverse bone and tooth loss while on metronomic chemo. Perhaps supportive supplementation in general is beneficial too since lack of salivation with too much chemo damage, aids tooth decay. These nutrients inc...
by rp1954
Sat Oct 07, 2017 4:49 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Anyone with Stage IVa just do Xelolda or 5-fu?
Replies: 42
Views: 1351

Re: Anyone with Stage IVa just do Xelolda or 5-fu?

We've held lymph nodes and unbiopsied lung/liver features at bay for over seven years with (metronomic, daily) immunochemo including an oral 5FU derivative without oxi-, iri- etc. The apparent issue is achieving chemo intensity, multiple inhibitions, or hitting individuals' targets with multiple, mi...
by rp1954
Sun Oct 01, 2017 5:03 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Cimetidine anyone?
Replies: 13
Views: 578

Re: Cimetidine anyone?

I would encourage you to get, and discuss the extra bloodwork done to productively compare experiences and improve results. My wife used 1600 mg/day of cimetidine, along with a number of supplements before and after two surgeries; cimetidine explicitly during the second surgery for her para aortic l...
by rp1954
Wed Sep 27, 2017 3:35 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Avastin yes, Avastin NO!
Replies: 4
Views: 370

Re: Avastin yes, Avastin NO!

We've always used extra nutrients for GI wound healing after surgery or chemo, with quick recovery. Things like glutamine, glucosamine, vitamin C - oral and IV, zinc gluconate or carnosine, magnesium chelates, vitamin K2, niacinamide, the non minerals in amounts "well above RDA". Oral comp...
by rp1954
Sat Sep 16, 2017 5:10 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: NEW-Need some positivity here.
Replies: 274
Views: 10448

Re: NEW-Need some positivity here.

What did you do differently? Didn't screw around. Started an anti-cancer diet and immune building process immediately to prepare for pre-surgery. Cimetidine, lower sugar diet, strong supplements, starting some within the day and adding on asap. It's a big deal, one time opportunity - use-it-or-lose...
by rp1954
Mon Sep 11, 2017 6:57 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: is it possible having a cancer and not losing weight?
Replies: 11
Views: 2033

Re: is it possible having a cancer and not losing weight?

Weight gain before diagnosis is very common and in fact is associated with initiation and aggravation of both (pre)diabetes and CRC. My wife lost at least 30 kg with obstructive CRC's onset right before dx, then diet and (post) surgeries' effects the first year or so. Right after her 2nd surgery, co...
by rp1954
Mon Sep 11, 2017 6:43 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: All you need to know about Biomarkers - Webinar
Replies: 5
Views: 1571

Re: All you need to know about Biomarkers - Webinar

Thanks. I watched this after the webinar so I didn't get to ask any questions. The post webinar link changed to here This webinar leans toward PD-1 research,testing and education, and also recent genetic testing . He also noted that stage 1-3 patients with PD-1 indications may substantially benefit ...
by rp1954
Sun Sep 10, 2017 1:37 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: NEW-Need some positivity here.
Replies: 274
Views: 10448

Re: NEW-Need some positivity here.

We found that there was such a thing as " immediate first aid" for colon cancer to drastically improve the situation; even with metastatic stage 4b. I read these articles, mostly in the first 24 hrs: Life Extension Foundation's intro to CRC , cancer surgery , Beyond colonscopy , Preventing...
by rp1954
Sat Sep 09, 2017 11:31 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: New scan on Keytruda. Need opinion.
Replies: 3
Views: 1416

Re: New scan on Keytruda. Need opinion.

Hi all. Asking for some input. I have been on Keytruda exclusively since early this year and things have been going well. Extrahepatic lesions (supraclavicular, paraaortic) have gone. Liver lesions have shrunk and are PET negative. I have been gaining weight and am asymptomatic... That sounds like ...
by rp1954
Fri Sep 08, 2017 2:15 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: new member (stage 4)
Replies: 3
Views: 719

Re: new member (stage 4)

Realistically, trying to resensitize your cancer to xeloda and improving your quality of life on chemo are the options that they are leaving open if none of the newest stuff is an option or an available trial. Basically, what some of us do, is to treat one doctor as a source for (daily) chemo pills ...
by rp1954
Thu Sep 07, 2017 7:08 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Has anyone heard of this
Replies: 10
Views: 1813

Re: Has anyone heard of this

Your oncologist probably views this in terms of 5FU, Folfox, Folfiri, Folfoxiri, or their xeloda versions being the primary standard chemo backbones available for stage IV (there's also irinotecan without 5FU), and trying to get the maximum effect within 2-3 of those choices. Oxi- tolerance is a spe...
by rp1954
Wed Sep 06, 2017 2:36 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Onco's opinion
Replies: 8
Views: 833

Re: Onco's opinion

His offer of a next scan sounds like a good start to me but I'd investigate additional precautions since there is a possibility that you're actually dealing with an early stage IV, rather than the normal stats of recurrence for stage I RC. Since you haven't had chemo or radiation, your bloodwork sho...
by rp1954
Wed Sep 06, 2017 2:04 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Has anyone heard of this
Replies: 10
Views: 1813

Re: Has anyone heard of this

The issue is what is your plan - are you going to try to achieve a durable NED through surgery(s) and chemo, some form of chemo forever, or whack a mole' episodes of treatments ? You either +- drift along with your oncologist's choices or you have to move purposefully to plot an escape orbit. Althou...
by rp1954
Sat Sep 02, 2017 3:10 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Lung cancer spots ... Chemo for life?
Replies: 11
Views: 2756

Re: Lung cancer spots ... Chemo for life?

There are several things that are possible, depending on your circumstances. For enough money and international travel, many lung mets may be removed in a laser surgery pioneered by Rolle. Rolle has removed up to 100 lung mets for a patient and there are several sites that have adopted or adapted hi...

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