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by rp1954
Mon Jan 15, 2018 7:05 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Wives of husbands with Stage IV Colon Freaking Cancer
Replies: 3512
Views: 483067

Re: Wives of husbands with Stage IV Colon Freaking Cancer

LPL, are you able to watch inflammation markers like ESR or hsCRP tends too? (inflammation maybe in ferritin too) A passing virus may spike both hsCRP and CA199 even if asymptomatic. ESR is less sensitive. If no inflammation markers, might be some value in the neutrophil:lymphocyte trend data from C...
by rp1954
Sun Jan 14, 2018 8:24 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Maintenance Chemo questions
Replies: 9
Views: 318

Re: Maintenance Chemo questions

....what are you on? How long have you been on it? How do you feel? Are you working? UFT or generic (Xeloda is the oral 5FU available in the US) + celecoxib + megavitamin D3 +PSK + WGP glucan + IV vitamin C, plus other supplements. over 7.5 years Fine, better than before the cancer, some chemo brai...
by rp1954
Sun Jan 14, 2018 1:20 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Family History
Replies: 10
Views: 176

Re: Family History

I have a similar family history. A sibling got scoped at age 35; half a dozen polyps were found and removed. There were no more for ~20 yrs.
by rp1954
Fri Jan 12, 2018 12:33 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Xeloda or 5fu only for adjuvant chemotherapy?
Replies: 7
Views: 161

Re: Xeloda or 5fu only for adjuvant chemotherapy?

Recent papers have two points: 1. For lower stage patients with no special risk factors, 3-4 months adjuvant chemo may be about as good as 6 months but oncologists are cautious about this; 2. For curative resections, chemo intensity counts, like you're trying to burn out a few cells. One might incre...
by rp1954
Wed Jan 10, 2018 6:54 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: any peeps with BRAF mutation on here?
Replies: 117
Views: 3374

Re: any peeps with BRAF mutation on here?

...She said if anything goes south she would start something else for him chemo wise, but wants to do what’s best and give this a chance to work We add something(s) to the chemo. The fact that CEA dropped 1600 points and his CA19-9 I just found out dropped 95,500 points (they said this one was actu...
by rp1954
Mon Jan 08, 2018 2:03 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Fasting During Chemo
Replies: 25
Views: 907

Re: Fasting During Chemo

....a load of crap...Cancer cells and your regular cells feed the same way. There is nothing you can do to specifically starve cancer cells only. PET scans show IV vitamin C patients quench the radioactive intensity of their Kras/Braf mutant cancer sites, where dehydroascorbate is competitively tra...
by rp1954
Sun Jan 07, 2018 7:07 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: any peeps with BRAF mutation on here?
Replies: 117
Views: 3374

Re: any peeps with BRAF mutation on here?

...He’s already weak and doesn’t move around much. It’s these nodules that are popping up everywhere.... it seems the nodes are kind of stable but the nodules are growing in different places and there’s more of them. For us, what happened with the distant lymph nodes is that they would blow up, one...
by rp1954
Fri Jan 05, 2018 1:43 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: any peeps with BRAF mutation on here?
Replies: 117
Views: 3374

Re: any peeps with BRAF mutation on here?

...What kind of doctor we should go to have the lab orders? Some kinds of orders might be specialized enough to require outside support e.g. the Lexington group I mentioned earlier; the lab tests we use do not - all are available through the Life Extension 800 number and probably most labs. We just...
by rp1954
Sun Dec 31, 2017 11:52 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: any peeps with BRAF mutation on here?
Replies: 117
Views: 3374

Re: any peeps with BRAF mutation on here?

So far we seem to be able to catch a lot more ("everything"?) with the expanded blood test, where CEA alone just does not hack it (e.g. CA19-9 and AFP; several indirect cancer markers are helpful too). If you can see markers move above the noise level (with noise reduction), you're more li...
by rp1954
Sun Dec 31, 2017 4:56 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: any peeps with BRAF mutation on here?
Replies: 117
Views: 3374

Re: any peeps with BRAF mutation on here?

Cetuximab (Erbitux) is the biologic, an engineered antibody. The other two are small molecule, targeted inhibitor drugs where "chemo" becomes a matter of semantics and marketing. While MrZ is on trial with active drugs, you're stuck with their requirements, practically and ethically. I wou...
by rp1954
Sat Dec 30, 2017 11:36 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Lung surgery advice
Replies: 15
Views: 1027

Re: Lung surgery advice

If you survey around internationally, a global list of surgeons currently using Rolle's laser technique would sound like an important option (please share) for preserving lung volume, removing more mets and preserving any later options as needed. Btw fellow CC members, in the annual goals area, perh...
by rp1954
Thu Dec 28, 2017 11:25 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: any peeps with BRAF mutation on here?
Replies: 117
Views: 3374

Re: any peeps with BRAF mutation on here?

You also mention Pepcid I believe... he had been taking that since FOLFOX but he had progressed anyway. Pepcid doesn't do anything for CRC, only cimetidine does - specifically for CRC tissues overexpressing CA19-9 (and CSLEX1) that are typically KRAS/BRAF mutants. Hence one of the reasons for CA19-...
by rp1954
Wed Dec 27, 2017 11:30 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Healthy 42 year old diagnosed with stage 4 colon cancer
Replies: 8
Views: 1057

Re: Healthy 42 year old diagnosed with stage 4 colon cancer

My usual initial suggestions are for newly dx'd patients with colon cancer, facing surgery before chemo. I would still do the expanded bloodwork asap, (best right before the next treatment) because each Folfiri treatment distorts the blood work more and more. We have had important lifesaving use wit...
by rp1954
Wed Dec 27, 2017 4:26 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: any peeps with BRAF mutation on here?
Replies: 117
Views: 3374

Re: any peeps with BRAF mutation on here?

The problem with both KRAS and BRAF mutants, for patients running out of options, is that they need to re-sensitize the cancer cells to previous medicines, like 5FU etc. This is made tougher by larger, more numerous mets that need more aggressive treatment. Usually oncology quits cold rather than tr...
by rp1954
Fri Dec 22, 2017 10:15 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: any peeps with BRAF mutation on here?
Replies: 117
Views: 3374

Re: any peeps with BRAF mutation on here?

...Should we get the CA199 done before use the cimetidine?....What kind of other things we use for stage IV. She is during the chemo treatment now. She is also using Vit D3, Calcium, CoQ10, Vit C, fish oil, herbal medicine and acupuncture right now. I've discussed several blood tests that have been...

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