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by rp1954
Thu Apr 18, 2019 11:51 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Anyone Managing Stage IV with Avastin Only?
Replies: 16
Views: 615

Re: Anyone Managing Stage IV with Avastin Only?

She wants a better offer, a means off the ledge taking fewer risks - a protocol, a treatment or even an analytical improvement, rather than that simple leap of faith based on some crude statistics with a lot of people not enough like her. This speaks volumes. Yes, it does. At best, you're not readi...
by rp1954
Wed Apr 17, 2019 12:17 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Weisenthal Cancer Center
Replies: 9
Views: 542

Re: Weisenthal Cancer Center

... I will say I’m all for investigation and expirmentation, but it needs to be done in a scientifically rigorous manner. That's fine for medical ethics and a pharma, university or a personal professional position. For individual patients, it's all about performance by any productive, reasonably ca...
by rp1954
Wed Apr 17, 2019 8:35 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Anyone Managing Stage IV with Avastin Only?
Replies: 16
Views: 615

Re: Anyone Managing Stage IV with Avastin Only?

One of the problems that individual mCRC survivors have is the difficulty of their oncologists to lift the hood, so to speak, to work an individual's problems, and then reconcile these treatment actions with rather crude statistical recommendations often meted out today. A lot of veterans here know ...
by rp1954
Tue Apr 16, 2019 6:15 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Weisenthal Cancer Center
Replies: 9
Views: 542

Re: Weisenthal Cancer Center

I think it’s clear he operates at the fringes of accepted science. Is this full-blown quackery? probably not, because he is quite upfront about the limitations of chemo sensitivity testing. Seems to be heavy on bias and negativity built on a solid lack of investigation or experimentation. Neverthel...
by rp1954
Sun Apr 14, 2019 11:42 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Stage 4 hope to share
Replies: 20
Views: 1048

Re: Stage 4 hope to share

Gee, Pyro70, the way you casually toss studies and papers, oncology sites, words n' phrases, strong opinions, and advice out here, you sound kind of medical. Almost like … well, some oncological MDs. Want to give us a hint on any residencies ?
by rp1954
Sun Apr 14, 2019 4:52 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Question about Xeloda scheduling/timing differences
Replies: 15
Views: 661

Re: Question about Xeloda scheduling/timing differences

...Has anyone been on a shorter cycle and then changed to a longer one - or vice versa? I'm getting ready to begin and my schedule is 2000 mg per day, 5 days on, 2 days off. I'm wondering if the shorter period on the front end will make it more tolerable but I'm also wondering if 2 days is enough t...
by rp1954
Sat Apr 13, 2019 2:00 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Weisenthal Cancer Center
Replies: 9
Views: 542

Re: Weisenthal Cancer Center

... Dr. Weisenthal in California:....Has anyone consulted with him? We originally consulted there but the travel time and distance were problems, and didn't ship there. Also I had difficulty with them on de novo testing of cheap, potentially controversial, off label items, like specific vitamers an...
by rp1954
Sat Apr 13, 2019 12:59 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Weisenthal Cancer Center
Replies: 9
Views: 542

Re: Weisenthal Cancer Center

I had the live tumor tissue tested with various chemo formulations by an outside lab. ... I'm going to ask… about finding a lab to do this kind of testing. It's something that somehow never occurred to me. Live and learn.... I’ve never heard of an oncologist recommending this approach nor of a clin...
by rp1954
Sat Apr 13, 2019 11:50 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: What options after chemo no longer effective?
Replies: 26
Views: 1046

Re: What options after chemo no longer effective?

rp1954: I had the live tumor tissue tested with various chemo formulations by an outside lab. zephyr: ... I'm going to ask her about finding a lab to do this kind of testing. It's something that somehow never occurred to me. Live and learn. I’ve never heard of an oncologist recommending this approa...
by rp1954
Sat Apr 13, 2019 10:42 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Question about Xeloda scheduling/timing differences
Replies: 15
Views: 661

Re: Question about Xeloda scheduling/timing differences

...I took Xeloda (by mouth) mono-therapy in 2016 following my surgery. I was on the normal cycle of 2 weeks on, 1 week off for the first 5 months, but was beginning to see a build-up in the side-effects, so I went digging. What I uncovered in several different medical reports from various sources w...
by rp1954
Fri Apr 12, 2019 1:06 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: What options after chemo no longer effective?
Replies: 26
Views: 1046

Re: What options after chemo no longer effective?

...biologies re-activate 5FU (re-sensitize) with various nice adjuncts e.g. IV vitamin C, potent supplement combinations, or mild drugs. ...I hit 5FU resistance a while back and have recently been wondering why anyone thinks Xeloda will work on me this time. My ND - who is not the doc prescribing t...
by rp1954
Thu Apr 11, 2019 10:41 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: What options after chemo no longer effective?
Replies: 26
Views: 1046

Re: What options after chemo no longer effective?

Several things make it difficult for chemo to work at the point of failure. The tumor mass, with sequential filtration of chemo out by sites in series or just a big mass; the spread of heterogenous, hardened cells; and immune failures, to the cancer itself or the immune system originally, and after ...
by rp1954
Thu Apr 11, 2019 1:31 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: What options after chemo no longer effective?
Replies: 26
Views: 1046

Re: What options after chemo no longer effective?

Technically the problem often is to reduce the resistant cancer mass by surgery without further spread, and to resensitize the remaining tumor cells enough to respond to 5FU by some additional chemistry. The only problem is getting surgery if too many surgeons consider surgery futile (too narrowly);...
by rp1954
Mon Apr 08, 2019 2:21 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: MRI before chemo
Replies: 3
Views: 169

Re: MRI before chemo

... CA199, LDH, with hsCRP and ESR, GGT, 25 hydroxy vitamin D, cerruloplasin, ferritin, AFP, quantitative D-dimer, and maybe the markers CA125, CA72-4 and prolactin. TSH, fT3, HgbA1C, [PT/INR] are used for other common support, and potential interferences, like with CA199. ... which blood work appl...
by rp1954
Mon Apr 08, 2019 12:33 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: MRI before chemo
Replies: 3
Views: 169

Re: MRI before chemo

I would try to do more extensive bloodwork now, before his chemo starts, so that it can be compared in the months and years after his chemo. Also that first CA199 test can generate a discussion about a milder treatment than Folfox, that potentially has better statistics when done right. We used fewe...

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