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by Sophy
Fri Jan 12, 2024 9:40 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: YAG laser qualifying criteria questions - Germany
Replies: 7
Views: 1546

Re: YAG laser qualifying criteria questions - Germany

Hi from New Zealand, Rob My experience may be out of date now but when I had this surgery back in January 2014 I was told that the surgery is only considered feasible when there is no disease except for in the lungs. It doesn't matter if the nodules are causing symptoms so long as they are all insid...
by Sophy
Sun Aug 06, 2023 3:35 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: updates from Germany [in between and 2nd lung surgery with Rolles laser]
Replies: 7
Views: 1544

Re: updates from Germany [in between and 2nd lung surgery with Rolles laser]

Congratulations on your successful surgery and arrival home, that's great you got through it all. I hope that it will encourage you that I had my last lung laser surgery in August 2014 and have been NED ever since. Surgery was followed by ADAPT and all my scans have been clear so I was discharged fr...
by Sophy
Fri Apr 28, 2023 7:54 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Generations X, Y, Z . . .
Replies: 8
Views: 2130

Re: Generations X, Y, Z . . .

I am another gen X diagnosed under 45
by Sophy
Tue Mar 28, 2023 2:52 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rolles in England
Replies: 11
Views: 1564

Re: Rolles in England

That is great news, I do hope that you can have the surgery, Coswig is a really good hospital and they will usually operate with curative intent.

Sophy
by Sophy
Sat Mar 18, 2023 4:15 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Cured of MCRC after 12 years
Replies: 13
Views: 2372

Cured of MCRC after 12 years

I haven’t posted here much recently but today I am happy to happy dance share that my 12 year journey with metastatic bowel cancer has finally ended – and with a happy ending . After multiple surgeries, radiation, over 100 chemo cycles my oncologist (who is head of Oncology in my city) said last wee...
by Sophy
Sun Aug 15, 2021 12:19 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Treatment For Multiple Lung Nodules In Europe?
Replies: 14
Views: 2798

Re: Treatment For Multiple Lung Nodules In Europe?

Roadrunner - I think the hospital charged about 25,000 Euros in total for all medical costs, fully catered 2 week stay in private room for me plus a second room for my companion. Probably very cheap compared to US medical but expensive for New Zealanders used to free healthcare. I hope that you won'...
by Sophy
Sat Aug 14, 2021 9:08 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: I'm officially 10 years NED!
Replies: 24
Views: 7286

Re: I'm officially 10 years NED!

Well done! That is good to hear, congratulations.
by Sophy
Sat Aug 14, 2021 9:03 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Still NED 7 years after lung laser surgery
Replies: 4
Views: 1857

Still NED 7 years after lung laser surgery

Hi all, just wanted to share that PET scan last week shows I am still NED after surgery for multiple lung mets in Germany and UK in 2014.

A huge thank you to the people on this forum who provided information and support when I needed it, especially Maia and CB75.

Thanks
Sophy
by Sophy
Sat Aug 14, 2021 8:57 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Treatment For Multiple Lung Nodules In Europe?
Replies: 14
Views: 2798

Re: Treatment For Multiple Lung Nodules In Europe?

I had the lung laser surgery 3 times in 2014 to remove multiple mets. The location of the mets doesn't seem to rule out surgery, I had one about a cm from my heart and it was successfuly removed which Dr Ladas said could not have been done with traditional surgery. Up to 100 mets can be removed from...
by Sophy
Sat Dec 05, 2020 3:13 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Hyperbaric Oxygen Therapy After CRT
Replies: 10
Views: 4079

Re: Hyperbaric Oxygen Therapy After CRT

I had radiation damage after rectal cancer treatment in 2011 as my pelvic bones started to crumble in 2016. Multiple fractures in my sacrum shown on CT and I couldn't sit or stand without pain and it got worse. My research indicated that HBOT could cure it so I asked my onc to refer me. We have a go...
by Sophy
Wed Jun 24, 2020 1:56 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: 7.5 years stage 4B; now NED for 21 months!
Replies: 15
Views: 5658

Re: 7.5 years stage 4B; now NED for 21 months!

Congratulations, that is great news for you and your family, very pleased to hear it :D
by Sophy
Sat Dec 01, 2018 1:17 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Is LARS a foregone conclusion? Anyone doing W&W?
Replies: 29
Views: 7060

Re: Is LARS a foregone conclusion? Anyone doing W&W?

I had my reconnection with a j pouch 7 years ago and for most of that time I have had digestion issues, diarrhoea, constipation, stomach cramps, vomiting. I have gradually eliminated foods that irritate and ended up with a list of things I cut out - No fruit except a few berries and limited amount o...
by Sophy
Sat Nov 17, 2018 7:37 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Keytruda....Working for MSS....Mutation Burden is the Key
Replies: 152
Views: 44964

Re: Keytruda....Working for MSS....Mutation Burden is the Key

So pleased to hear this is working for you, wonderful news. Well done and thank you for sharing the information about it. :D
by Sophy
Mon Nov 12, 2018 4:12 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Xeloda + Avastin Maintenance for NED people
Replies: 7
Views: 1682

Re: Xeloda + Avastin Maintenance for NED people

Not quite the same but I have been taking xeloda plus celecoxib (avastin isn't funded here in New Zealand) for over 4 years, currently on round 70 and still NED. I have minimal side effects, some fatigue, sensitive hands (which may be from oxi 7 years ago) and my oncologist plans for me to stay on t...
by Sophy
Tue Oct 09, 2018 3:12 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: ADAPT and Celebrex - What happened?
Replies: 37
Views: 13050

Re: ADAPT and Celebrex - What happened?

I am still on ADAPT and CT last week shows still NED since last surgery in August 2014.

I have a good quality of life and so will probably carry on with this. I take cimetedine as well.

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