I had radiation damage after rectal cancer treatment in 2011 as my pelvic bones started to crumble in 2016. Multiple fractures in my sacrum shown on CT and I couldn't sit or stand without pain and it got worse. My research indicated that HBOT could cure it so I asked my onc to refer me. We have a go...
I had my reconnection with a j pouch 7 years ago and for most of that time I have had digestion issues, diarrhoea, constipation, stomach cramps, vomiting. I have gradually eliminated foods that irritate and ended up with a list of things I cut out - No fruit except a few berries and limited amount o...
Not quite the same but I have been taking xeloda plus celecoxib (avastin isn't funded here in New Zealand) for over 4 years, currently on round 70 and still NED. I have minimal side effects, some fatigue, sensitive hands (which may be from oxi 7 years ago) and my oncologist plans for me to stay on t...
Hi Sara, your mothers pain might be due to radiation damage from rectal cancer treatment. I developed this about 5 years after radiation, my sacral ilia (join between pelvis and spine) started to fracture with normal life, no falls or accidents, and not repair itself. It was very painful and only ly...
Updating on my journey - still NED and still so grateful to friends here for showing me how to keep it that way - thanks CT scan this week showing I am still NED getting on for 4 years since my last lung laser surgery. I feel like a very lucky person :D As always, I am so grateful to those here on t...
That's great you have a plan and a helpful onc on your side. Hoping that the Keytruda will work well for you and wishing you and your family all the best Sophy
Hi Steve sorry to hear about your dagnosis but glad they are taking good care of you at Cch hospital and Daffodil House, they are lovely, I spent 8 weeks staying there on my own in 2016. Do PM me if there is anything I can help with, as you can see from my signature I have spent quite a few years be...
From my research back in 2013 the lung laser is widely used in German hospitals with much success but it seems to be very little known of in other countries. From what members here have said there is one machine in Canada and the one in London which was used in my surgery, otherwise it is a German p...
That is interesting to hear about laser treatment, Tigerpaw. When I spoke with Professor Rolle he told me that he had developed his laser himself because it is just at the right frequency for lung tissue - to cauterise and cut withour damage to surrounding lung tissue. I have not heard of another la...
Zephyr - I found it best to phone instead of email, the number is +44 20 3553 2620, his secretary Justine is very helpful. I was very impressed by Ladas, I think he did a great job and is kindly as well. I would also recommend phoning Coswig instead of emailing, if you or a friend speak German that ...