I had my reconnection with a j pouch 7 years ago and for most of that time I have had digestion issues, diarrhoea, constipation, stomach cramps, vomiting. I have gradually eliminated foods that irritate and ended up with a list of things I cut out - No fruit except a few berries and limited amount o...

So pleased to hear this is working for you, wonderful news. Well done and thank you for sharing the information about it.

Not quite the same but I have been taking xeloda plus celecoxib (avastin isn't funded here in New Zealand) for over 4 years, currently on round 70 and still NED. I have minimal side effects, some fatigue, sensitive hands (which may be from oxi 7 years ago) and my oncologist plans for me to stay on t...

I am still on ADAPT and CT last week shows still NED since last surgery in August 2014.

I have a good quality of life and so will probably carry on with this. I take cimetedine as well.

So happy to hear that, Zephyr, great result! Hope you will be continuing NED

I had routine CT last week and I am still NED since last lung laser surgery August 2014. Hope you are doing well too Stevieb.

I have found urea cream and petroleum jelly (vaseline) neutralise the xeloda/5fu side effects when used together.

Hi Sara, your mothers pain might be due to radiation damage from rectal cancer treatment. I developed this about 5 years after radiation, my sacral ilia (join between pelvis and spine) started to fracture with normal life, no falls or accidents, and not repair itself. It was very painful and only ly...

Updating on my journey - still NED and still so grateful to friends here for showing me how to keep it that way - thanks CT scan this week showing I am still NED getting on for 4 years since my last lung laser surgery. I feel like a very lucky person :D As always, I am so grateful to those here on t...

That's great you have a plan and a helpful onc on your side. Hoping that the Keytruda will work well for you and wishing you and your family all the best
Sophy

Hi Steve sorry to hear about your dagnosis but glad they are taking good care of you at Cch hospital and Daffodil House, they are lovely, I spent 8 weeks staying there on my own in 2016. Do PM me if there is anything I can help with, as you can see from my signature I have spent quite a few years be...

From my research back in 2013 the lung laser is widely used in German hospitals with much success but it seems to be very little known of in other countries. From what members here have said there is one machine in Canada and the one in London which was used in my surgery, otherwise it is a German p...

That is interesting to hear about laser treatment, Tigerpaw. When I spoke with Professor Rolle he told me that he had developed his laser himself because it is just at the right frequency for lung tissue - to cauterise and cut withour damage to surrounding lung tissue. I have not heard of another la...

Zephyr - I found it best to phone instead of email, the number is +44 20 3553 2620, his secretary Justine is very helpful. I was very impressed by Ladas, I think he did a great job and is kindly as well. I would also recommend phoning Coswig instead of emailing, if you or a friend speak German that ...

Hoping all goes well for your surgery and recovery.

Congratulations, great news and thanks for sharing