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by horizon
Sat Apr 03, 2021 6:29 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Applying for New Jobs Advice
Replies: 5
Views: 883

Re: Applying for New Jobs Advice

I did XELOX and handled the side effects pretty well. I kept working and going to the gym (not several days after an infusion though). If you've got the ability to wait I would. Everyone has a different experience with side effects. Starting a new job is the last thing I would have wanted to do when...
by horizon
Tue Mar 09, 2021 6:45 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Clear scan & deporting (stage IV)
Replies: 15
Views: 2720

Re: Clear scan & deporting (stage IV)

Another port gone. Congrats!
by horizon
Tue Mar 09, 2021 6:44 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Moving to every 6 months, port removal
Replies: 18
Views: 3020

Re: Moving to every 6 months, port removal

Congrats. It is such a big day when that thing comes out!
by horizon
Tue Mar 02, 2021 12:26 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: New to the Club
Replies: 14
Views: 3190

Re: New to the Club

Sorry that you joined our club. That sounds pretty similar to what I remember happening. Waiting for tests and appointments at the beginning is completely nerve wracking. Hang in there. You'll get a lot of support here.
by horizon
Thu Feb 25, 2021 10:20 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: This cancer is getting to my head and I need some help
Replies: 10
Views: 1497

Re: This cancer is getting to my head and I need some help

I don't think anyone that hasn't been through cancer can fully know how awful it is and what it can do to your psyche. I can't imagine anyone going through it unscathed. The time before a scan absolutely awful. You're not alone and we're rooting for you! Hi Paul, For me, Mike (MM) summed it up with ...
by horizon
Wed Feb 24, 2021 3:22 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Covid 19 vaccine
Replies: 98
Views: 27318

Re: Covid 19 vaccine

I am not on active chemo, but I have read extensively on this subject, and oncologists are nearly uniform in recommending the COVID-19 vaccines for cancer patients (including those on active chemo). And when I was on active chemo, my team told me to get a flu shot (I did). They actually were able t...
by horizon
Mon Feb 22, 2021 12:50 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Stage 3, likelihood of recurrence after resection & chemotherapy
Replies: 75
Views: 20247

Re: Stage 3, likelihood of recurrence after resection & chemotherapy

It's a really hard position because we should be so excited for the end of active treatment but we've realised active treatment feels like a 'safe place' because he's constantly monitored and has very regular contact with the professionals! The gap inbetween surveillance tests/scans feels very scar...
by horizon
Mon Feb 22, 2021 12:47 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Covid 19 vaccine
Replies: 98
Views: 27318

Re: Covid 19 vaccine

I got so excited when I saw my caller ID say that my care center was calling me. I thought for certain it was going to be for a vaccine appointment. They wanted to move my colonoscopy appointment. :|
by horizon
Fri Feb 19, 2021 3:28 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Stage 3, likelihood of recurrence after resection & chemotherapy
Replies: 75
Views: 20247

Re: Stage 3, likelihood of recurrence after resection & chemotherapy

Thank you so much and thank you for being so honest! I'm slowly realising it's never going to go away, I just pray we get to a point like you have, where it isn't a paralysing fear that makes up second guess decisions :(. We'd love to be able to have a care free life like we used to, that just isn'...
by horizon
Fri Feb 19, 2021 11:34 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Stage 3, likelihood of recurrence after resection & chemotherapy
Replies: 75
Views: 20247

Re: Stage 3, likelihood of recurrence after resection & chemotherapy

He's got a CEA tracker blood test in April, then every 6m for 3yrs. A CT scan in July, then another in 9m. A Colonoscopy in October. So the aim is for them to all confirm NED and stay that way, we just can't help feeling that we're waiting for bad news, please tell me this feeling gets easier over ...
by horizon
Wed Feb 17, 2021 7:04 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Covid 19 vaccine
Replies: 98
Views: 27318

Re: Covid 19 vaccine

roadrunner wrote:For those with any concern about needles (I have to believe most of us have overcome that, but just in case)


Oh how I wish that were true for me. :(
by horizon
Sun Feb 07, 2021 10:14 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Cured it is then !
Replies: 28
Views: 6800

Re: Cured it is then !

5 years is a huge milestone. Congrats to her!
by horizon
Sat Feb 06, 2021 11:13 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: 1st Chemo; Day 2
Replies: 11
Views: 3113

Re: 1st Chemo; Day 2

No one warned me about "first bite pain". I learned about it on this forum. I got advice to swish with apple juice before eating. It did seem to help. Might have been a placebo effect but that was fine with me.

viewtopic.php?t=27973
by horizon
Tue Feb 02, 2021 6:29 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Approaching 3 years NED Soon but CEA at 5.9 recently..
Replies: 9
Views: 2606

Re: Approaching 3 years NED Soon but CEO at 5.9 recently..

utahgal7 wrote:If your doctor is saying not to worry, I would trust what he is telling you.


Second this advice.
by horizon
Tue Jan 19, 2021 11:25 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Constant bowel movement and burning bottom!!!
Replies: 9
Views: 2177

Re: Constant bowel movement and burning bottom!!!

After every bowel movement he has to take a shower and rinse off then uses a hair dryer to ensure his bottom is dry. Then moments later he’s back to square one with no relief. Would a bidet help with this? I've never felt cleaner after using one and it would hopefully negate the need for a shower a...

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