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by horizon
Wed Feb 24, 2021 3:22 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Covid 19 vaccine
Replies: 79
Views: 12667

Re: Covid 19 vaccine

I am not on active chemo, but I have read extensively on this subject, and oncologists are nearly uniform in recommending the COVID-19 vaccines for cancer patients (including those on active chemo). And when I was on active chemo, my team told me to get a flu shot (I did). They actually were able t...
by horizon
Mon Feb 22, 2021 12:50 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Stage 3, likelihood of recurrence after resection & chemotherapy
Replies: 74
Views: 16676

Re: Stage 3, likelihood of recurrence after resection & chemotherapy

It's a really hard position because we should be so excited for the end of active treatment but we've realised active treatment feels like a 'safe place' because he's constantly monitored and has very regular contact with the professionals! The gap inbetween surveillance tests/scans feels very scar...
by horizon
Mon Feb 22, 2021 12:47 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Covid 19 vaccine
Replies: 79
Views: 12667

Re: Covid 19 vaccine

I got so excited when I saw my caller ID say that my care center was calling me. I thought for certain it was going to be for a vaccine appointment. They wanted to move my colonoscopy appointment. :|
by horizon
Fri Feb 19, 2021 3:28 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Stage 3, likelihood of recurrence after resection & chemotherapy
Replies: 74
Views: 16676

Re: Stage 3, likelihood of recurrence after resection & chemotherapy

Thank you so much and thank you for being so honest! I'm slowly realising it's never going to go away, I just pray we get to a point like you have, where it isn't a paralysing fear that makes up second guess decisions :(. We'd love to be able to have a care free life like we used to, that just isn'...
by horizon
Fri Feb 19, 2021 11:34 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Stage 3, likelihood of recurrence after resection & chemotherapy
Replies: 74
Views: 16676

Re: Stage 3, likelihood of recurrence after resection & chemotherapy

He's got a CEA tracker blood test in April, then every 6m for 3yrs. A CT scan in July, then another in 9m. A Colonoscopy in October. So the aim is for them to all confirm NED and stay that way, we just can't help feeling that we're waiting for bad news, please tell me this feeling gets easier over ...
by horizon
Wed Feb 17, 2021 7:04 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Covid 19 vaccine
Replies: 79
Views: 12667

Re: Covid 19 vaccine

roadrunner wrote:For those with any concern about needles (I have to believe most of us have overcome that, but just in case)


Oh how I wish that were true for me. :(
by horizon
Sun Feb 07, 2021 10:14 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Cured it is then !
Replies: 23
Views: 2734

Re: Cured it is then !

5 years is a huge milestone. Congrats to her!
by horizon
Sat Feb 06, 2021 11:13 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: 1st Chemo; Day 2
Replies: 11
Views: 2776

Re: 1st Chemo; Day 2

No one warned me about "first bite pain". I learned about it on this forum. I got advice to swish with apple juice before eating. It did seem to help. Might have been a placebo effect but that was fine with me.

viewtopic.php?t=27973
by horizon
Tue Feb 02, 2021 6:29 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Approaching 3 years NED Soon but CEA at 5.9 recently..
Replies: 6
Views: 1573

Re: Approaching 3 years NED Soon but CEO at 5.9 recently..

utahgal7 wrote:If your doctor is saying not to worry, I would trust what he is telling you.


Second this advice.
by horizon
Tue Jan 19, 2021 11:25 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Constant bowel movement and burning bottom!!!
Replies: 9
Views: 1510

Re: Constant bowel movement and burning bottom!!!

After every bowel movement he has to take a shower and rinse off then uses a hair dryer to ensure his bottom is dry. Then moments later he’s back to square one with no relief. Would a bidet help with this? I've never felt cleaner after using one and it would hopefully negate the need for a shower a...
by horizon
Tue Jan 12, 2021 4:43 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Stage 3, likelihood of recurrence after resection & chemotherapy
Replies: 74
Views: 16676

Re: Stage 3, likelihood of recurrence after resection & chemotherapy

Basil wrote:My signature tells my story. Stage 3 and will be released from surveillance at MDAnderson if/when my summer scans come back clean.


Got my fingers crossed for you!
by horizon
Sat Jan 09, 2021 11:27 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Stage 3, likelihood of recurrence after resection & chemotherapy
Replies: 74
Views: 16676

Re: Stage 3, likelihood of recurrence after resection & chemotherapy

Hi all, Thank you for your posts - I have read them but things have all been a bit busy over Christmas and New Year! Hope you're all well and had a nice restful festive period! My husband had his 2nd Oxaliplatin infusion this week. So far so good again, no major side effects, no neuropathy, no naus...
by horizon
Tue Jan 05, 2021 3:33 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Oxaliplatin Dosage - Call Off
Replies: 24
Views: 3129

Re: Oxaliplatin Dosage - Call Off

I can't remember details but several rounds in I started experiencing neuropathy. I immediately told my onc and he lowered my dosage. Didn't happen again. I finished the 6 months and don't have issues today.
by horizon
Thu Dec 31, 2020 2:49 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Stage 3, likelihood of recurrence after resection & chemotherapy
Replies: 74
Views: 16676

Re: Stage 3, likelihood of recurrence after resection & chemotherapy

I have had sharp pains, coughs, and all kinds of things that made me worry. My oncologist told me not to worry unless there is pain that wakes me up. I have stuck with that and try not to worry about every little pain and cough. That's something that really sucks about our situation. Something such...

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