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by horizon
Thu Dec 05, 2019 11:22 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: 7 Year cancerversary
Replies: 8
Views: 235

Re: 7 Year cancerversary

My man! Sending you a high five from the other side of the world.
by horizon
Sun Dec 01, 2019 10:26 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Please help, input needed
Replies: 35
Views: 1456

Re: Please help, input needed

Sorry you're going through this. I did the exact same thing you did and upset myself horribly by what I found on Google. You have to remember that much of those stats are for people that are much older than you who get CC. What I predicted would go wrong didn't happen (and I upset myself over terrib...
by horizon
Sat Nov 23, 2019 10:37 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Phuong is the new ColonClub President !
Replies: 19
Views: 3808

Re: Phuong is the new ColonClub President !

My eye tends to jump down past the stickies so I completely missed this. I can't think of a better choice. Congratulations!!! We are in the process of making some very exciting (but currently behind the scenes) changes to our website, so please hang tight. I promise that when we are ready for the re...
by horizon
Thu Nov 21, 2019 10:35 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Exercise
Replies: 5
Views: 590

Re: Exercise

Nice! My (sedentary) friends thought that I was nuts for hitting the gym during chemo but it was a great stress reliever for me.
by horizon
Thu Nov 21, 2019 10:33 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Airline experiences?
Replies: 10
Views: 456

Re: Airline experiences?

Flying with points is far and away the most flexible option. If you have top tier status you can cancel minutes before the flight and get all your mileage back! That's good to know! I don't have status with any airlines. I just earn Chase UR points through my organic spend and transfer them to what...
by horizon
Wed Nov 20, 2019 9:14 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Airline experiences?
Replies: 10
Views: 456

Re: Airline experiences?

I don't know about the International part but Southwest is incredibly flexible. They don't care if you cancel up to ten minutes before the flight. You could use them for the Chicago to New York part. I love flying with points but this always is in the back of my head. I don't know what happens if yo...
by horizon
Tue Nov 19, 2019 11:48 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: End of treatment and anxiety!
Replies: 10
Views: 544

Re: End of treatment and anxiety!

_Jelen90 wrote: How do you guys survive this crazy anxiety each time before a scan ?


It really sucks but it got better from me the further I got from the end of my treatment. When I was where you're at the wait was unbearable.
by horizon
Thu Nov 14, 2019 10:11 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: 10 Years and Counting
Replies: 29
Views: 1547

Re: 10 Years and Counting

I understand where you are coming from with the survivor's guilt but I hope that it passes. Because you were a survivor you were able to help a lot of people. I don't even know if you remember me but you're one of the people I really looked up to you as a mentor when I was going through my treatment...
by horizon
Wed Nov 13, 2019 8:57 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Quick intro -- diagnosed Friday
Replies: 147
Views: 18405

Re: Quick intro -- diagnosed Friday

Just wanted to give an update. Been doing chemo, on my third round of Xelox (Capox). Side effects are mostly just really annoying, my body seems to be tolerating everything well. Nausea and I'm not interested in any food practically (but i'm eating). Completely not myself, low energy, out of it, bu...
by horizon
Wed Nov 06, 2019 9:04 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Need help metallic taste
Replies: 15
Views: 502

Re: Need help metallic taste

I was really weird in that I had the metallic taste in my mouth but it didn't make food taste bad.

If I go through chemo again I'm going to try mberry tablets. They're not expensive on Amazon.

https://www.youtube.com/watch?v=0yMHkYl6EHM
by horizon
Wed Nov 06, 2019 9:01 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: For Stage III's: NED for how long now?
Replies: 774
Views: 284701

Re: For Stage III's: NED for how long now?

disco nap wrote:I remember you too, Horizon, and I was glad to see you are also doing well! We should make a pact to celebrate the 10 year mark :)


I'm in. We got this!
by horizon
Fri Oct 11, 2019 8:21 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: For Stage III's: NED for how long now?
Replies: 774
Views: 284701

Re: For Stage III's: NED for how long now?

disco nap wrote:Hello!
I'm now 9 years NED. I haven't been on the forum for ages but suddenly felt like checking in. I am glad to see so many familiar "faces" still here and still doing well.


Def remember you. Glad you're doing so well!
by horizon
Tue Sep 24, 2019 10:18 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Quick intro -- diagnosed Friday
Replies: 147
Views: 18405

Re: Quick intro -- diagnosed Friday

Zackattack wrote:Having the port was a savior, had to have blood drawn twice to check those weird liver enzymes and the oxaliplatin went in smooth, like a fine cognac.


You'll also use if for CT scans. I didn't like having it initially but it was lifesaver during the whole process for me.
by horizon
Sat Sep 21, 2019 9:04 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Quick intro -- diagnosed Friday
Replies: 147
Views: 18405

Re: Quick intro -- diagnosed Friday

Sounds weird to say but I just want to know how it feels, make sure I don't have a terrible adverse reaction physically etc. That doesn't sound weird at all to me. I was terrified before my first infusion because I had no idea what it would be like. Once I got one under my belt it was so much bette...
by horizon
Sat Sep 21, 2019 4:09 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Questions regarding Folfox treatments
Replies: 15
Views: 1491

Re: Questions regarding Folfox treatments

First - Make sure that you tell them in detail about any and all symptoms. They dialed back my dosage of Oxi when I started having neuropathy. Second - I feel you so much on this. Between the multiple preps and surgery I lost so much weight and it was completely disheartening. I did get back into li...

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