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by betsydoglover
Mon Aug 13, 2018 2:17 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Head colds and chemo?
Replies: 3
Views: 144

Re: Head colds and chemo?

If you are concerned about catching the cold from him and how that might affect you, you should know if your immune system is actually compromised - e.g. are your WBC's low? Mine never were low and I was around 2 head colds without any issues myself.
by betsydoglover
Sun Aug 12, 2018 10:56 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Any Stage 4 long term survivors/cured ?
Replies: 16
Views: 703

Re: Any Stage 4 long term survivors/cured ?

Stage 4 with 1 liver met. Resolved with chemo. Three years after diagnosis I had a lung recurrence. I've been free of disease for 9+ years now. It sounds like you have had a really good response, so just know that it is possible to be a long term survivor.

Take care,
by betsydoglover
Tue Jul 31, 2018 6:54 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Original colon cancer spread to peritoneal
Replies: 6
Views: 562

Re: Original colon cancer spread to peritoneal

MediCal or Medicare? Either way, if you want to self pay, then there is no way MediCal would know, right? It seems like just taking your $$$ and paying should work without any insurance co involvement (unless you are trying to get this to apply to your deductible). Good luck - in advanced cases like...
by betsydoglover
Wed Jul 25, 2018 1:44 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Scan Results 15 months post surgery. NDED vs NED?
Replies: 19
Views: 753

Re: Scan Results 15 months post surgery. NDED vs NED?

Re: the lung "nodules" - they are VERY tiny. Diagnosed May/2005, in April 2006 I was evaluated at NIH for a potential clinical trial. Scans reported a few tiny (<3mm) lung nodules. I freaked out because my radiologist never mentioned them (I always use the same radiologist). Convinced NIH ...
by betsydoglover
Thu Jul 19, 2018 3:35 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: I need any suggestions
Replies: 13
Views: 641

Re: I need any suggestions

Dr. John Marshall at Georgetown (misspoke about Wash Hospital Center) is renowned for treatment of colorectal cancer..https://www.medstarhealth.org/doctor/dr-john-lindsay-marshall-md/ My local oncologist is wonderful. She practices in Wheaton and Silver Spring. http://marylandoncology.com/locations-...
by betsydoglover
Wed Jul 18, 2018 5:50 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: I need any suggestions
Replies: 13
Views: 641

Re: I need any suggestions

I'm In DC - Washington Hospital Center has the premier colorectal cancer specialist. I can also suggest a great local onc. You mentioned being afraid to eat or drink anything with sugar because it causes cancer. Sugar does not cause cancer. This myth comes from the fact that PET scan measures sugar ...
by betsydoglover
Thu Jul 05, 2018 2:53 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: [Update: Lung met confirmed] PET scan not good :(. Anybody's surgeon was able to find a 8mm lung nodule via VATS?
Replies: 15
Views: 892

Re: PET scan not good :(. Anybody's surgeon was able to find a 8mm lung nodule via VATS?

Sorry for your news. I had a 9x11 mm met removed from inside right lower lobe, via VATS, in 2009. Someone said that the surgeon has to be able to feel the nodule with his/her hands in order to remove it with VATS. I want you to know that this is not necessarily true. In my case (deep in lower lobe a...
by betsydoglover
Fri Jun 22, 2018 1:52 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Areas of high density in lungs...infection or cancer? UPDATE: BAD NEWS
Replies: 6
Views: 766

Re: Areas of high density in lungs...infection or cancer?

Like Julie, I had NO symptoms from my lung met. Neither my onc nor my thoracic surgeon thought this was in any way abnormal. Of course you and your doc need to keep on top of this, but in my (non-medical) opinion, there is significant likelihood that it has nothing to do with cancer. Good luck.
by betsydoglover
Thu Jun 21, 2018 6:35 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: ADMIN Help - PM Reply
Replies: 3
Views: 230

Re: ADMIN Help - PM Reply

thx - was thinking it worked like most email clients where outbox is only for stuff that has not actually been sent. No problem. Thx for the prompt reply.
by betsydoglover
Thu Jun 21, 2018 5:35 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: ADMIN Help - PM Reply
Replies: 3
Views: 230

ADMIN Help - PM Reply

Hi -

I replied to a PM, but the response is still sitting in my OUTBOX. Been a while since I did this - do I need some sort of re-authorization to reply to mail, or does it just take a while to finally get sent?

Thx
by betsydoglover
Mon Jun 18, 2018 7:52 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal Cancer: Is chemotherapy advisable for 68 years old Heart patient after LAR surgery
Replies: 6
Views: 424

Re: Rectal Cancer: Is chemotherapy advisable for 68 years old Heart patient after LAR surgery

I understand your concern in that your father has some other medical issues. BUT, I am 68------God forbid I should have to do chemo again, but I'd be running to the start line if it was necessary and might / would save my life. Not saying your Dad needs it, but 68 is no where near as old as it may s...
by betsydoglover
Mon Jun 18, 2018 7:36 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: pet scan result...what the .....?
Replies: 19
Views: 1368

Re: pet scan result...what the .....?

My perspective on getting radiology reports before seeing oncologist: Stage 4 - many scans over many years. The stress of waiting for results (even though my radiologist and onc are very prompt) is intense. At one point a few years ago I told my onc I wanted to get results from radiologist first (be...
by betsydoglover
Mon Jun 18, 2018 5:20 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: A cautionary tale
Replies: 15
Views: 1375

Re: A cautionary tale

I'm not at all saying that "natural" methods cannot help, but one should be aware of internet sites / purveyors who have highly detailed explanations of what needs to be done, and then it turns out that their special supplements will do the job - entire books even. (If it smells like snake...
by betsydoglover
Thu Jun 14, 2018 4:10 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: What are the risks of PET scan?
Replies: 10
Views: 549

Re: What are the risks of PET scan?

I was monitored by both PET and CT every 2/3/4 months. When I had my lung recurrence I was monitored by PET only every 4 months. When ins cos started getting more nasty about PETs, we went to CTs only. CT scans are great, but without a simultaneous PET, I doubt my lung recurrence would have been det...
by betsydoglover
Tue Jun 12, 2018 7:31 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Does anyone have a little drinky drink during chemo?
Replies: 16
Views: 1036

Re: Does anyone have a little drinky drink during chemo?

I had the off and on occasional drink (or 2 every once in a while) - no problem. My onc said it, as with most things, was fine in moderation. Still here 13 years later, so I am pretty sure a bit is ok.

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