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by betsydoglover
Sun Feb 18, 2018 1:53 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Health Insurance Help
Replies: 12
Views: 403

Re: Health Insurance Help

Here's a crazy idea. I don't know how your husband's company works, but in many/most(?) companies, 24 hours per week qualifies you for benefits, including insurance - even 30 hrs/week is probably doable. FMLA is unpaid, anyway. So perhaps if he went officially part time for a while, then he could re...
by betsydoglover
Thu Jan 11, 2018 5:12 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Advice for first appointment with oncologist after diagnosis
Replies: 6
Views: 339

Re: Advice for first appointment with oncologist after diagnosis

Sorry to hear this...... Did either your GI doc or surgeon order a CT scan of chest/abdomen/pelvis? If not (do not want to scare you), then it is not completely to rule out possible metastatic disease. Ask your oncologist if he/she agrees with the staging or thinks further tests should be done. (Bef...
by betsydoglover
Tue Jan 09, 2018 7:13 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Questions about blood on tissue......
Replies: 2
Views: 218

Re: Questions about blood on tissue......

I get how worried you are, but with a clean scope, it is almost impossible that anything super serious is wrong (ie - cancer). That said, make an appt with your Gi doc and let him know your symptoms. If nothing else it will make you feel better if a qualified doc tells you that you are OK - which ag...
by betsydoglover
Fri Jan 05, 2018 6:30 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: 1st CT since diagnosis - question
Replies: 14
Views: 792

Re: 1st CT since diagnosis - question

Rachel2017 - Check out Dr. Cheryl Aylesworth in Silver Spring. She is my oncologist and is wonderful. Head of clinical trials at Holy Cross, very well connected at NIH/NCI. I could not imagine a better oncologist. Not sure where in DC you are, but it is at least worth talking with her. Take care,
by betsydoglover
Wed Jan 03, 2018 2:27 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Anyone doing xelox and xeloda. Please help
Replies: 23
Views: 748

Re: Anyone doing xelox and xeloda. Please help

You may need a stronger anti-nausea med, but when I was on Xeloda/oxaliplatin, I found it REALLY helped to be VERY proactive with the compazine. If I took it before things got bad on a fairly regular basis, it worked and I mostly had no nausea (did still have that slightly irritated GI tract that Xe...
by betsydoglover
Tue Nov 14, 2017 5:16 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: How long to followup Stage 4 ?
Replies: 10
Views: 926

Re: How long to followup Stage 4 ?

Thanks All - As Julie said, we are in uncharted territory - my onc would be the first to say that. I guess I will keep getting blood work (CEA, however, has never been a marker - highest ever was 0.9 - normally <0.5. And, even with my liver met, liver function was normal.) Maybe one more scan - I'll...
by betsydoglover
Tue Nov 07, 2017 4:57 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: 20% co pay for colonscopy on Medicare?
Replies: 3
Views: 390

Re: 20% co pay for colonscopy on Medicare?

Do you have a Medicare Supplement policy? If not, there is a 20% copay for Medicare Part B (doc visits, chemo etc). If you do have a supplement then depending upon whether or not your supplement has a deductible and how much, the 20% may be covered. In my case, Medicare + Supplement picks up all cha...
by betsydoglover
Sun Nov 05, 2017 6:28 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Thoughts on chemo for stage II patients?
Replies: 16
Views: 919

Re: Thoughts on chemo for stage II patients?

Since I am Stage 4, I have a somewhat different perspective - I'd be dead if I had not done chemo. That said, when I had a lung resection in 2009 - NED after surgery -, my oncologist wanted me to do Xeloda + Avastin for "mop-up". She readily admitted that I could do nothing and things migh...
by betsydoglover
Sun Nov 05, 2017 6:17 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: How long to followup Stage 4 ?
Replies: 10
Views: 926

How long to followup Stage 4 ?

Hi all - I know that every stage 4 person is different, different start of disease, different progression, different response to treatment, different treatments - the list goes on. You can see from my signature how lucky I've been - the 2nd round of NED has been 8.5 years. If there is anyone who has...
by betsydoglover
Sat Oct 28, 2017 1:36 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Solitary Lung Met - Looking for Positive Experiences
Replies: 19
Views: 1179

Re: Solitary Lung Met - Looking for Positive Experiences

That was exactly my situation - 9mm nodule deep in right lower lobe - SUV 1.0. Prior to VATS, under CT guidance, an interventional radiologist inserted some radioactive material in the nodule (kind of like a reverse biopsy) - then ran me thru some kind of nuclear med scanner to make sure it was in t...
by betsydoglover
Fri Oct 13, 2017 1:17 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Looking for HIPEC Experiences
Replies: 15
Views: 1156

Re: Looking for HIPEC Experiences

I have not had HIPEC although I know 2 people who have had it. Dr. Sugerbaker at Washington Hospital Center (in DC) developed the procedure. He and 2 other surgeons perform the surgery there. It is a good place to look into if you live anywhere near DC or can travel there.

Take care,
by betsydoglover
Fri Oct 06, 2017 6:07 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Anyone with Stage IVa just do Xelolda or 5-fu?
Replies: 90
Views: 6437

Re: Anyone with Stage IVa just do Xelolda or 5-fu?

Remember, you can always stop the oxaliplatin, but I think you should give the initial onc recommendation a try, especially for Stage 4. It's not an irreversible decision.

Take care,
by betsydoglover
Sun Oct 01, 2017 4:31 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: A friend who passed formCRC
Replies: 8
Views: 954

A friend who passed formCRC

The wife of my son's boss just passed from colorectal cancer - she had mets in peritoneum- had HIPEC 2 years ago.

She was only 49 and has kids - 13, 15 and 17.

Very difficult to understand why I am still OK and she has passed. I know there is no answer - please keep your family in your thoughts.
by betsydoglover
Tue Sep 19, 2017 6:26 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Health insurance coverage
Replies: 6
Views: 626

Re: Health insurance coverage

When I was working I had great United insurance, (and also great Cigna insurance), but I assume the coverage varies according to employer. It's been quite a while, but when my company had Aetna, they made tons of claim mistakes. Huge hassle for us "covered" folks. My employer ended up drop...
by betsydoglover
Sat Aug 12, 2017 2:50 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: CT Scan said, "colon consistent with cancer"
Replies: 16
Views: 1927

Re: CT Scan said, "colon consistent with cancer"

You have been given great advice. Have the colonoscopy and the resultant biopsy. If it confirms cancer, then you will definitely need a surgical removal. After that you can decide upon whether or not you want to do chemotherapy. There are many different paths to a possible cure, but (I've been at th...

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