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by betsydoglover
Wed Oct 10, 2018 2:29 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Stage 4 to NED- Please tell us
Replies: 28
Views: 977

Re: Stage 4 to NED- Please tell us

See my signature also.

There is hope for Stage 4 folks.
by betsydoglover
Sat Oct 06, 2018 4:59 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Question about necessity of CEA labwork
Replies: 25
Views: 990

Re: Question about necessity of CEA labwork

CEA is a cheap test - your doc/onc should be doing regular CBC/CMP, so no problem doing CEA also with the same sample. It's just another data point. Stage 4 and my first and all but one CEA has been less than 0.5 - once it was 0.9 - clearly it is not a good marker for me - and yet we test it every 3...
by betsydoglover
Fri Oct 05, 2018 12:21 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Aspirin
Replies: 6
Views: 737

Re: Aspirin

I was just going to mention that it also can cause a bleeding ulcer - which it did for me after several years. It's a tough choice - in my case it did not prevent CRC, but that doesn't mean it won't for others. Just be aware that there is a possible stomach ulcer issue.
by betsydoglover
Thu Oct 04, 2018 7:07 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: RFA for lung met
Replies: 2
Views: 217

Re: RFA for lung met

I had VATS not RFA for my small lung met - easy surgery. In my case the met was deep, so nuclear material was inserted under CT guidance and then during surgery the surgeon went for the "hotspot" - that was back in 2008. Recovery was easy. I suspect, but do not know, that RFA recovery is a...
by betsydoglover
Mon Sep 24, 2018 2:46 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: [Update: Lung met confirmed] PET scan not good :(. Anybody's surgeon was able to find a 8mm lung nodule via VATS?
Replies: 25
Views: 7885

Re: [Update: Lung met confirmed] PET scan not good :(. Anybody's surgeon was able to find a 8mm lung nodule via VATS?

When I was in a similar situation, I decided that I could not live with myself if I had a recurrence and had not done chemo. We are all different when we consider the options. I elected for Xeloda/Avastin (my onc's recommendation and one I felt very comfortable with.) NED since 4/09. Who knows wheth...
by betsydoglover
Mon Sep 24, 2018 2:40 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: split prep question for scope ....
Replies: 4
Views: 215

Re: split prep question for scope ....

P.S. I went to bed around 11+ PM - slept all night and then started again 4 hours before my appt.
by betsydoglover
Mon Sep 24, 2018 2:37 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: split prep question for scope ....
Replies: 4
Views: 215

Re: split prep question for scope ....

In my case the split prep was wonderful (as wonderful as a prep can be!). Mine was 2 Dulcolax around 3PM, then at 6PM 1 quart of go-lytely spread out over 15 min intervals. The next AM another quart of go-lytely (this means only used half of the go-lytely). This was absolutely the easiest prep I hav...
by betsydoglover
Fri Sep 21, 2018 5:21 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Can tumors bleed big amounts at a time?
Replies: 11
Views: 696

Re: Can tumors bleed big amounts at a time?

In my experience, tumors can bleed, even a lot. I had several instances of blood in stool which is why I saw a gastroenterologist. Once I saw a toilet bowl full of blood. When my diagnostic scope was done, my GI doc poked repeatedly at the tumor and it never bled. So, it seems that the situation can...
by betsydoglover
Fri Sep 14, 2018 2:05 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Sorry, I can't do that, I have cancer....
Replies: 10
Views: 1555

Re: Sorry, I can't do that, I have cancer....

I've played the cancer card once that I can recall. However, age 65 does not mean you are cranky,cumugeonly, demanding, critical of young people or feel you are entitled to a seat reserved for the "elderly". Just finished painting 2 walls of my dining room and now I'm off for a 1 mi walk w...
by betsydoglover
Mon Sep 10, 2018 2:30 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: How Much Did You Sleep After Chemo? Chemo experiences :)
Replies: 7
Views: 498

Re: How Much Did You Sleep After Chemo? Chemo experiences :)

From what I have read on this site, it seems that 5FU causes more intense fatigue in the short term than Xeloda/capecitabine (which you could consider it's oral analog). I found that Xeloda fatigued me, but less intensely - more spread out for a week or two - never needed extra sleep and worked afte...
by betsydoglover
Fri Sep 07, 2018 4:36 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: SUV?
Replies: 3
Views: 392

Re: SUV?

In addition to the great info from the other poster, normal SUV varies by part of the body - e.g if you look at a PET, the bladder always "lights up". (Of course if there were cancer it would light up more.) So, in part, the radiologist looks at SUV as compared to expected SUV in different...
by betsydoglover
Thu Aug 30, 2018 2:52 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: First Meeting with Surgeon
Replies: 10
Views: 680

Re: First Meeting with Surgeon

One poster listed a great list of possible questions. However, I would caution you against discussing treatment options (beyond surgery), or how your disease might or might not progress, or how treatment would affect your life, or anything else that is not directly related to surgery. Your surgeon m...
by betsydoglover
Wed Aug 22, 2018 6:51 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Math Wizards-Xeloda (pills) vs 5FU (pump)
Replies: 3
Views: 415

Re: Math Wizards-Xeloda (pills) vs 5FU (pump)

Xeloda (capecitabine) has a pretty short half life. However, just because it is eliminated relatively rapidly, does not mean you should expect no side effects after that time. The drug has already "worked" and the side effects are a result of it's action. So, side effects continue for quit...
by betsydoglover
Mon Aug 13, 2018 2:17 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Head colds and chemo?
Replies: 3
Views: 573

Re: Head colds and chemo?

If you are concerned about catching the cold from him and how that might affect you, you should know if your immune system is actually compromised - e.g. are your WBC's low? Mine never were low and I was around 2 head colds without any issues myself.
by betsydoglover
Sun Aug 12, 2018 10:56 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Any Stage 4 long term survivors/cured ?
Replies: 23
Views: 6204

Re: Any Stage 4 long term survivors/cured ?

Stage 4 with 1 liver met. Resolved with chemo. Three years after diagnosis I had a lung recurrence. I've been free of disease for 9+ years now. It sounds like you have had a really good response, so just know that it is possible to be a long term survivor.

Take care,

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