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by betsydoglover
Wed Jul 18, 2018 5:50 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: I need any suggestions
Replies: 8
Views: 217

Re: I need any suggestions

I'm In DC - Washington Hospital Center has the premier colorectal cancer specialist. I can also suggest a great local onc. You mentioned being afraid to eat or drink anything with sugar because it causes cancer. Sugar does not cause cancer. This myth comes from the fact that PET scan measures sugar ...
by betsydoglover
Thu Jul 05, 2018 2:53 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: PET scan not good :(. Anybody's surgeon was able to find a 8mm lung nodule via VATS?
Replies: 11
Views: 555

Re: PET scan not good :(. Anybody's surgeon was able to find a 8mm lung nodule via VATS?

Sorry for your news. I had a 9x11 mm met removed from inside right lower lobe, via VATS, in 2009. Someone said that the surgeon has to be able to feel the nodule with his/her hands in order to remove it with VATS. I want you to know that this is not necessarily true. In my case (deep in lower lobe a...
by betsydoglover
Fri Jun 22, 2018 1:52 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Areas of high density in lungs...infection or cancer? UPDATE: BAD NEWS
Replies: 6
Views: 692

Re: Areas of high density in lungs...infection or cancer?

Like Julie, I had NO symptoms from my lung met. Neither my onc nor my thoracic surgeon thought this was in any way abnormal. Of course you and your doc need to keep on top of this, but in my (non-medical) opinion, there is significant likelihood that it has nothing to do with cancer. Good luck.
by betsydoglover
Thu Jun 21, 2018 6:35 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: ADMIN Help - PM Reply
Replies: 3
Views: 183

Re: ADMIN Help - PM Reply

thx - was thinking it worked like most email clients where outbox is only for stuff that has not actually been sent. No problem. Thx for the prompt reply.
by betsydoglover
Thu Jun 21, 2018 5:35 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: ADMIN Help - PM Reply
Replies: 3
Views: 183

ADMIN Help - PM Reply

Hi -

I replied to a PM, but the response is still sitting in my OUTBOX. Been a while since I did this - do I need some sort of re-authorization to reply to mail, or does it just take a while to finally get sent?

Thx
by betsydoglover
Mon Jun 18, 2018 7:52 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal Cancer: Is chemotherapy advisable for 68 years old Heart patient after LAR surgery
Replies: 6
Views: 364

Re: Rectal Cancer: Is chemotherapy advisable for 68 years old Heart patient after LAR surgery

I understand your concern in that your father has some other medical issues. BUT, I am 68------God forbid I should have to do chemo again, but I'd be running to the start line if it was necessary and might / would save my life. Not saying your Dad needs it, but 68 is no where near as old as it may s...
by betsydoglover
Mon Jun 18, 2018 7:36 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: pet scan result...what the .....?
Replies: 19
Views: 1229

Re: pet scan result...what the .....?

My perspective on getting radiology reports before seeing oncologist: Stage 4 - many scans over many years. The stress of waiting for results (even though my radiologist and onc are very prompt) is intense. At one point a few years ago I told my onc I wanted to get results from radiologist first (be...
by betsydoglover
Mon Jun 18, 2018 5:20 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: A cautionary tale
Replies: 13
Views: 883

Re: A cautionary tale

I'm not at all saying that "natural" methods cannot help, but one should be aware of internet sites / purveyors who have highly detailed explanations of what needs to be done, and then it turns out that their special supplements will do the job - entire books even. (If it smells like snake...
by betsydoglover
Thu Jun 14, 2018 4:10 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: What are the risks of PET scan?
Replies: 10
Views: 473

Re: What are the risks of PET scan?

I was monitored by both PET and CT every 2/3/4 months. When I had my lung recurrence I was monitored by PET only every 4 months. When ins cos started getting more nasty about PETs, we went to CTs only. CT scans are great, but without a simultaneous PET, I doubt my lung recurrence would have been det...
by betsydoglover
Tue Jun 12, 2018 7:31 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Does anyone have a little drinky drink during chemo?
Replies: 16
Views: 905

Re: Does anyone have a little drinky drink during chemo?

I had the off and on occasional drink (or 2 every once in a while) - no problem. My onc said it, as with most things, was fine in moderation. Still here 13 years later, so I am pretty sure a bit is ok.
by betsydoglover
Tue Jun 12, 2018 7:20 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Help! I’m scared!
Replies: 5
Views: 346

Re: Help! I’m scared!

I haven't had a right hemicolectomy, but I had a sigmoid resection. After a few weeks I was perfectly normal in the colon department. Nothing I couldn't do until chemo started, but even then - tolerable. I would suspect that the surgery should leave you just fine once you are healed.

Good luck,
by betsydoglover
Tue Jun 12, 2018 7:16 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Stage 4 support?
Replies: 12
Views: 511

Re: Stage 4 support?

I know how you feel about wanting to hear good news - that's how I felt in 2005.

See my signature - 13 years+ since Stage 4 diagnosis. NED since April 2009. Know that things can work out.

Please take care,
by betsydoglover
Tue Jun 12, 2018 12:53 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Stage 2- no follow up care???
Replies: 16
Views: 855

Re: Stage 2- no follow up care???

Sorry you have to be here. Stage 2 is definitely better than some other stages, but you should definitely see an oncologist - surgeons, no matter how good, are not equipped to handle ongoing cancer care following surgery. I think that you should always consult an oncologist when deciding post-surger...
by betsydoglover
Wed Jun 06, 2018 5:58 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: No, we don't have the best healthcare system
Replies: 24
Views: 1186

Re: No, we don't have the best healthcare system

Not saying that our health care system doesn't have issues. But the issue is what ins co pay, not the billed amt. My onc (no surprise) told me she has no clue where those billed amts come from. Maybe they are the most any ins co would pay under exceptional circumstances - maybe the "prices"...
by betsydoglover
Fri May 25, 2018 12:34 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Feeling really sad and in need of support
Replies: 53
Views: 2534

Re: Feeling really sad and in need of support

Sorry for your side effects. You should ask your doctor to consider Xeloda (capecitibine) tablets as an alternative to the pump ( different people experience and many find Xeloda easier (if only because you don't have to bother with pump)). Surprised you don't have Avastin your mix - common for Stag...

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