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by betsydoglover
Thu Aug 15, 2019 1:23 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Newly diagnosed
Replies: 10
Views: 969

Re: Newly diagnosed

Sorry you have to be here. Given that the omentum spot is a met, have you asked your onc why Avastin is not being added to your regimen? Definitely something to ask.
by betsydoglover
Tue Aug 13, 2019 4:37 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: cat vs mri vs pet scan
Replies: 6
Views: 635

Re: cat vs mri vs pet scan

Wow - a good radiologist should be well able to read a PET only. I did that for a while. Plenty of radiologists who specialize in advanced imaging - find one of those.

If it is the onc's opinion about these scans, then don't listen to it. If the radiologist's, then find another one.
by betsydoglover
Sun Aug 04, 2019 4:24 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: How often should a colonoscopy be done?
Replies: 2
Views: 438

Re: How often should a colonoscopy be done?

It depends on your situation. Do you have colon cancer? If so, then with no polyps 5 years would be a likely recommendation from your GI doc. If no colon cancer then 10 years is typical. When there are one or more polyps found on scope, then 3 years is not unusual.

Take care,
by betsydoglover
Sat Jul 27, 2019 7:13 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Opinions on alternative treatments?
Replies: 40
Views: 2470

Re: Opinions on alternative treatments?

I meant to also add that doxycycline is one of the few drugs that actually becomes toxic rather than just ineffective past it's expiration date - can damage kidneys, so that's also a good thing to know if you take it.
by betsydoglover
Sat Jul 27, 2019 7:04 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Opinions on alternative treatments?
Replies: 40
Views: 2470

Re: Opinions on alternative treatments?

Hi Tina - Based on my personal experience as a 14+ year Stage 4 survivor, I would be very suspicious of the value of this 4-drug addition to your conventional treatment. I looked at their website, and I am always skeptical when I see a treatment that can apply to all cancers. Metformin, for example,...
by betsydoglover
Sat Jun 15, 2019 6:37 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Things I should know about Avastin
Replies: 13
Views: 1078

Re: Things I should know about Avastin

Not sure where you heard that Avastin was worse. I've been on Avastin twice - once just 6 treatments and then another time for 2 years. It definitely did not seem like I was getting chemo - popped in the chair, 30 min infusion and then off to work. Side effects - nasal congestion after several round...
by betsydoglover
Mon May 06, 2019 6:12 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Immunotherapy in Switzerland
Replies: 40
Views: 3238

Re: Immunotherapy in Switzerland

There is absolutely no clinical trial data to support their claims - even if there was, only 100 patients (according to them) were evaluated. It would be great if their treatment results were true, but it sounds like a scam to me.
by betsydoglover
Mon May 06, 2019 9:32 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Neuropathy improvement: individual experience
Replies: 25
Views: 2774

Re: Neuropathy improvement: individual experience

It's not always that bad. I had 6 infusions (the every 3 weeks amount) in my arm. I stopped the week after Thanksgiving and my finger tips, as well as the cold sensitivity, cleared up almost immediately. The tingling in my feet (which was never terrible) ended within a few weeks. However, that winte...
by betsydoglover
Wed Apr 17, 2019 4:44 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Anyone Managing Stage IV with Avastin Only?
Replies: 17
Views: 1639

Re: Anyone Managing Stage IV with Avastin Only?

I really do not want to sound like an Avastin advocate - no axe to grind - other than my survival. Obviously there are no truths to be found in individual experiences - but this board is pretty much about individual experiences. Pyro70 referenced an interesting trial comparing Avastin only to monito...
by betsydoglover
Mon Apr 15, 2019 5:12 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Anyone Managing Stage IV with Avastin Only?
Replies: 17
Views: 1639

Re: Anyone Managing Stage IV with Avastin Only?

Regarding the comment that Avastin only "does not work" - I am skeptical of any statement that is so definitive. Given how Avastin works, it makes sense that it alone could prevent recurrence in a person who is NED. Might be different in a person who is on "maintenance" in order ...
by betsydoglover
Sun Apr 14, 2019 1:09 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Anyone Managing Stage IV with Avastin Only?
Replies: 17
Views: 1639

Re: Anyone Managing Stage IV with Avastin Only?

As you can see from my signature, I did Avastin only for nearly 2 years. We discontinued it in May 2011 because I had a very minor GI bleed (over almost before it started and in spite of EGD, small intestine capsule camera study and colonoscopy the location was never found). I was on strong arthriti...
by betsydoglover
Sat Apr 13, 2019 2:50 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: O/T - my furbaby has cancer....hard last weekend - UPDATED
Replies: 18
Views: 1371

Re: O/T - my furbaby has cancer....hard last weekend

So very sorry. I have been through this a few years ago, and it is so hard. But, you are doing the right thing to not let her get to the point of extreme suffering. My dog, Casey, went downhill very suddenly - Saturday he was found with fluid around his lungs and was given Lasix which made him much ...
by betsydoglover
Wed Apr 10, 2019 6:57 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Targeted Therapies
Replies: 0
Views: 420

Targeted Therapies

Someone asked about targeted therapies - can't seem to find the post.

Here is a great link from NCI explaining this:
https://www.cancer.gov/about-cancer/tre ... fact-sheet

Avastin and Erbitux, for example, are targeted therapies.

Take care,
by betsydoglover
Wed Apr 10, 2019 6:22 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Question about Xeloda scheduling/timing differences
Replies: 15
Views: 1416

Re: Question about Xeloda scheduling/timing differences

I've been on Xeloda twice - each time 4000 mg/day. The 2nd time I was having really bad hf syndrome and more fatigue that I expected. We decided to try the 5 days on / 2 days off plan. Those 2 days off felt so good, BUT it didn't give me enough recovery time, so we opted to reduce the dose to 3000mg...
by betsydoglover
Mon Apr 08, 2019 12:48 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Anyone doing xelox and xeloda. Please help
Replies: 59
Views: 10554

Re: Anyone doing xelox and xeloda. Please help

1) Did I work? Took Xelox + Avastin. Infusions on Mon every 3 weeks - Xeloda 14 days on / 7 days off. I went to work on Tuesday post infusion - might have shortened my day a little but I can't remember. Skipped work on Wed. Worked about half time from home on Th/Fr. Not sure if some of your job can ...

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