Search found 935 matches

Go to advanced search

by betsydoglover
Sat Nov 17, 2018 12:47 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Stage 4 - liver mets disappeared
Replies: 13
Views: 402

Re: Stage 4 - liver mets disappeared

Your case sounds a lot like mine - solitary liver met that was gone from CT, PET and MRI after 6 treatments of Xeloda/oxaliplatin/Avastin - that was back in 2005 and I am still here. While I did have 1 lung recurrence, my liver has been clear since then. My oncologist did not think I should I should...
by betsydoglover
Wed Nov 07, 2018 10:39 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: KRAS G12V and Avastin
Replies: 9
Views: 413

Re: KRAS G12V and Avastin

Don't be too discouraged. I Have the same KRAS mutation. I have had lots of Avastin. And, as you can see from my signature, I have done really well. Both my onc and I agree that Avastin most likely had a significant (positive) impact on the course of my disease. Best wishes.
by betsydoglover
Wed Oct 31, 2018 4:46 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: What do you call this FOLFOX side effect?
Replies: 2
Views: 277

Re: What do you call this FOLFOX side effect?

This is probably not it, but might be worth thinking of. When I was on Xelox, it was sometimes hard to open my eyes in the AM - didn't last for long. I never felt it exactly as you describe, but there were times when I felt my eyes very temporarily hard to move. Not exactly the same thing. My onc at...
by betsydoglover
Sat Oct 20, 2018 3:57 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Confused Stage2 or Stage3
Replies: 16
Views: 1033

Re: Confused Stage2 or Stage3

It is frustrating not to know the stage. Sorry for that stress. But, I (although not being a medical person) strongly suggest that you have it treated as Stage 3. Sadly I have seen Stage 2 folks who did not do chemo and ended as Stage 3 and then even Stage 4. Since your data is sort of murky, it see...
by betsydoglover
Thu Oct 18, 2018 6:30 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: CBC Levels
Replies: 6
Views: 534

Re: CBC Levels

Sorry you have to worry about this. I don't have data on those specific numbers, but I think any primary care physician would refer even slightly abnormal blood results to your onc. You have a good general who is keeping on top of this. Good luck.
by betsydoglover
Wed Oct 10, 2018 2:29 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Stage 4 to NED- Please tell us
Replies: 46
Views: 4392

Re: Stage 4 to NED- Please tell us

See my signature also.

There is hope for Stage 4 folks.
by betsydoglover
Sat Oct 06, 2018 4:59 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Question about necessity of CEA labwork
Replies: 31
Views: 2378

Re: Question about necessity of CEA labwork

CEA is a cheap test - your doc/onc should be doing regular CBC/CMP, so no problem doing CEA also with the same sample. It's just another data point. Stage 4 and my first and all but one CEA has been less than 0.5 - once it was 0.9 - clearly it is not a good marker for me - and yet we test it every 3...
by betsydoglover
Fri Oct 05, 2018 12:21 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Aspirin
Replies: 6
Views: 1027

Re: Aspirin

I was just going to mention that it also can cause a bleeding ulcer - which it did for me after several years. It's a tough choice - in my case it did not prevent CRC, but that doesn't mean it won't for others. Just be aware that there is a possible stomach ulcer issue.
by betsydoglover
Thu Oct 04, 2018 7:07 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: RFA for lung met
Replies: 2
Views: 382

Re: RFA for lung met

I had VATS not RFA for my small lung met - easy surgery. In my case the met was deep, so nuclear material was inserted under CT guidance and then during surgery the surgeon went for the "hotspot" - that was back in 2008. Recovery was easy. I suspect, but do not know, that RFA recovery is a...
by betsydoglover
Mon Sep 24, 2018 2:46 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: [Update: Lung met confirmed] PET scan not good :(. Anybody's surgeon was able to find a 8mm lung nodule via VATS?
Replies: 25
Views: 8292

Re: [Update: Lung met confirmed] PET scan not good :(. Anybody's surgeon was able to find a 8mm lung nodule via VATS?

When I was in a similar situation, I decided that I could not live with myself if I had a recurrence and had not done chemo. We are all different when we consider the options. I elected for Xeloda/Avastin (my onc's recommendation and one I felt very comfortable with.) NED since 4/09. Who knows wheth...
by betsydoglover
Mon Sep 24, 2018 2:40 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: split prep question for scope ....
Replies: 4
Views: 377

Re: split prep question for scope ....

P.S. I went to bed around 11+ PM - slept all night and then started again 4 hours before my appt.
by betsydoglover
Mon Sep 24, 2018 2:37 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: split prep question for scope ....
Replies: 4
Views: 377

Re: split prep question for scope ....

In my case the split prep was wonderful (as wonderful as a prep can be!). Mine was 2 Dulcolax around 3PM, then at 6PM 1 quart of go-lytely spread out over 15 min intervals. The next AM another quart of go-lytely (this means only used half of the go-lytely). This was absolutely the easiest prep I hav...
by betsydoglover
Fri Sep 21, 2018 5:21 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Can tumors bleed big amounts at a time?
Replies: 11
Views: 970

Re: Can tumors bleed big amounts at a time?

In my experience, tumors can bleed, even a lot. I had several instances of blood in stool which is why I saw a gastroenterologist. Once I saw a toilet bowl full of blood. When my diagnostic scope was done, my GI doc poked repeatedly at the tumor and it never bled. So, it seems that the situation can...
by betsydoglover
Fri Sep 14, 2018 2:05 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Sorry, I can't do that, I have cancer....
Replies: 10
Views: 1879

Re: Sorry, I can't do that, I have cancer....

I've played the cancer card once that I can recall. However, age 65 does not mean you are cranky,cumugeonly, demanding, critical of young people or feel you are entitled to a seat reserved for the "elderly". Just finished painting 2 walls of my dining room and now I'm off for a 1 mi walk w...
by betsydoglover
Mon Sep 10, 2018 2:30 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: How Much Did You Sleep After Chemo? Chemo experiences :)
Replies: 7
Views: 701

Re: How Much Did You Sleep After Chemo? Chemo experiences :)

From what I have read on this site, it seems that 5FU causes more intense fatigue in the short term than Xeloda/capecitabine (which you could consider it's oral analog). I found that Xeloda fatigued me, but less intensely - more spread out for a week or two - never needed extra sleep and worked afte...

Go to advanced search