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by betsydoglover
Fri Sep 21, 2018 5:21 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Can tumors bleed big amounts at a time?
Replies: 5
Views: 100

Re: Can tumors bleed big amounts at a time?

In my experience, tumors can bleed, even a lot. I had several instances of blood in stool which is why I saw a gastroenterologist. Once I saw a toilet bowl full of blood. When my diagnostic scope was done, my GI doc poked repeatedly at the tumor and it never bled. So, it seems that the situation can...
by betsydoglover
Fri Sep 14, 2018 2:05 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Sorry, I can't do that, I have cancer....
Replies: 10
Views: 1169

Re: Sorry, I can't do that, I have cancer....

I've played the cancer card once that I can recall. However, age 65 does not mean you are cranky,cumugeonly, demanding, critical of young people or feel you are entitled to a seat reserved for the "elderly". Just finished painting 2 walls of my dining room and now I'm off for a 1 mi walk w...
by betsydoglover
Mon Sep 10, 2018 2:30 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: How Much Did You Sleep After Chemo? Chemo experiences :)
Replies: 7
Views: 349

Re: How Much Did You Sleep After Chemo? Chemo experiences :)

From what I have read on this site, it seems that 5FU causes more intense fatigue in the short term than Xeloda/capecitabine (which you could consider it's oral analog). I found that Xeloda fatigued me, but less intensely - more spread out for a week or two - never needed extra sleep and worked afte...
by betsydoglover
Fri Sep 07, 2018 4:36 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: SUV?
Replies: 3
Views: 300

Re: SUV?

In addition to the great info from the other poster, normal SUV varies by part of the body - e.g if you look at a PET, the bladder always "lights up". (Of course if there were cancer it would light up more.) So, in part, the radiologist looks at SUV as compared to expected SUV in different...
by betsydoglover
Thu Aug 30, 2018 2:52 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: First Meeting with Surgeon
Replies: 10
Views: 582

Re: First Meeting with Surgeon

One poster listed a great list of possible questions. However, I would caution you against discussing treatment options (beyond surgery), or how your disease might or might not progress, or how treatment would affect your life, or anything else that is not directly related to surgery. Your surgeon m...
by betsydoglover
Wed Aug 22, 2018 6:51 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Math Wizards-Xeloda (pills) vs 5FU (pump)
Replies: 3
Views: 315

Re: Math Wizards-Xeloda (pills) vs 5FU (pump)

Xeloda (capecitabine) has a pretty short half life. However, just because it is eliminated relatively rapidly, does not mean you should expect no side effects after that time. The drug has already "worked" and the side effects are a result of it's action. So, side effects continue for quit...
by betsydoglover
Mon Aug 13, 2018 2:17 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Head colds and chemo?
Replies: 3
Views: 514

Re: Head colds and chemo?

If you are concerned about catching the cold from him and how that might affect you, you should know if your immune system is actually compromised - e.g. are your WBC's low? Mine never were low and I was around 2 head colds without any issues myself.
by betsydoglover
Sun Aug 12, 2018 10:56 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Any Stage 4 long term survivors/cured ?
Replies: 23
Views: 2820

Re: Any Stage 4 long term survivors/cured ?

Stage 4 with 1 liver met. Resolved with chemo. Three years after diagnosis I had a lung recurrence. I've been free of disease for 9+ years now. It sounds like you have had a really good response, so just know that it is possible to be a long term survivor.

Take care,
by betsydoglover
Tue Jul 31, 2018 6:54 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Original colon cancer spread to peritoneal
Replies: 6
Views: 748

Re: Original colon cancer spread to peritoneal

MediCal or Medicare? Either way, if you want to self pay, then there is no way MediCal would know, right? It seems like just taking your $$$ and paying should work without any insurance co involvement (unless you are trying to get this to apply to your deductible). Good luck - in advanced cases like...
by betsydoglover
Wed Jul 25, 2018 1:44 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Scan Results 15 months post surgery. NDED vs NED?
Replies: 24
Views: 1949

Re: Scan Results 15 months post surgery. NDED vs NED?

Re: the lung "nodules" - they are VERY tiny. Diagnosed May/2005, in April 2006 I was evaluated at NIH for a potential clinical trial. Scans reported a few tiny (<3mm) lung nodules. I freaked out because my radiologist never mentioned them (I always use the same radiologist). Convinced NIH ...
by betsydoglover
Thu Jul 19, 2018 3:35 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: I need any suggestions
Replies: 13
Views: 782

Re: I need any suggestions

Dr. John Marshall at Georgetown (misspoke about Wash Hospital Center) is renowned for treatment of colorectal cancer..https://www.medstarhealth.org/doctor/dr-john-lindsay-marshall-md/ My local oncologist is wonderful. She practices in Wheaton and Silver Spring. http://marylandoncology.com/locations-...
by betsydoglover
Wed Jul 18, 2018 5:50 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: I need any suggestions
Replies: 13
Views: 782

Re: I need any suggestions

I'm In DC - Washington Hospital Center has the premier colorectal cancer specialist. I can also suggest a great local onc. You mentioned being afraid to eat or drink anything with sugar because it causes cancer. Sugar does not cause cancer. This myth comes from the fact that PET scan measures sugar ...
by betsydoglover
Thu Jul 05, 2018 2:53 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: [Update: Lung met confirmed] PET scan not good :(. Anybody's surgeon was able to find a 8mm lung nodule via VATS?
Replies: 18
Views: 1661

Re: PET scan not good :(. Anybody's surgeon was able to find a 8mm lung nodule via VATS?

Sorry for your news. I had a 9x11 mm met removed from inside right lower lobe, via VATS, in 2009. Someone said that the surgeon has to be able to feel the nodule with his/her hands in order to remove it with VATS. I want you to know that this is not necessarily true. In my case (deep in lower lobe a...
by betsydoglover
Fri Jun 22, 2018 1:52 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Areas of high density in lungs...infection or cancer? UPDATE: BAD NEWS
Replies: 6
Views: 873

Re: Areas of high density in lungs...infection or cancer?

Like Julie, I had NO symptoms from my lung met. Neither my onc nor my thoracic surgeon thought this was in any way abnormal. Of course you and your doc need to keep on top of this, but in my (non-medical) opinion, there is significant likelihood that it has nothing to do with cancer. Good luck.
by betsydoglover
Thu Jun 21, 2018 6:35 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: ADMIN Help - PM Reply
Replies: 3
Views: 274

Re: ADMIN Help - PM Reply

thx - was thinking it worked like most email clients where outbox is only for stuff that has not actually been sent. No problem. Thx for the prompt reply.

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