Search found 946 matches

Go to advanced search

by betsydoglover
Mon Feb 11, 2019 4:37 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: smallest tumors that turned up on your PET, PET/CT or PET/MRI ??
Replies: 8
Views: 230

Re: smallest tumors that turned up on your PET, PET/CT or PET/MRI ??

The size you mention can definitely be detected on PET by a good radiologist. My lung nodule was 9x11mm - uptake only 1.0 on PET, but my wonderful radiologist could see that it was ever so slightly brighter than surrounding tissue (I looked at it with him) - it was very subtle, but detectable and di...
by betsydoglover
Wed Jan 30, 2019 7:10 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Raw Stomach - Quick Thread
Replies: 1
Views: 226

Re: Raw Stomach - Quick Thread

Xeloda does cause GI irritation - I know exactly what you mean. Compazine or other anti-nausea drugs will not help (as you have discovered) because the source is actually irritation of GI system as opposed to brain reacting to what it sees a poison (which causes nausea). I tried to eat a really mild...
by betsydoglover
Sat Jan 12, 2019 12:28 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Stage IV 31 Year Old Male currently Fighting
Replies: 5
Views: 998

Re: Stage IV 31 Year Old Male currently Fighting

I am so sorry that you have to be here, but it a great support board and also a wealth of information. I also was diagnosed Stage 4 - sigmoid tumor and liver met. You can see my treatments below. My CEA, by the way has never been higher than 0.9 so clearly it is not a marker for me and it sounds lik...
by betsydoglover
Sat Jan 05, 2019 3:02 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Stage II but puzzle with the chemo.. : (
Replies: 42
Views: 4019

Re: Stage II but puzzle with the chemo.. : (

My take on this is colored by the fact that I was initially diagnosed Stage 4, so the decision to do chemo was obvious. However, ask yourself how you would feel if you recurred as a Stage 4 and hadn't done everything you could have to possibly prevent a recurrence. Not to scare you, but we have all ...
by betsydoglover
Wed Jan 02, 2019 10:03 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: To test or not to test?
Replies: 3
Views: 439

Re: To test or not to test?

When I was on chemo, I had blood work every session - which included CEA. My CEA has never been greater than 0.9 and yet still we test every 6 months, and I am 13+ years out from diagnosis and 9+ years out from being NED the second time. One important thing about CEA is that the trend really matters...
by betsydoglover
Wed Dec 12, 2018 5:40 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: CEA Levels
Replies: 12
Views: 1654

Re: CEA Levels

I understand your concern, but my oncologist told me that when CEA is within normal range, they are taught to not be concerned at all, even if it has gone up. So, things are most likely fine, and as you say if your onc was concerned, he wouldn't have just mailed you the results.

Take care,
by betsydoglover
Fri Dec 07, 2018 5:26 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Lymphedema
Replies: 8
Views: 683

Re: Lymphedema

I know nothing about lymphedema, but I do know that I was in PT for knee replacement, they had brochures lying around for lymphedema PT - geared toward mastectomy patients, but I suspect PT might help with any kind.

Wishing you the best.
by betsydoglover
Tue Nov 20, 2018 3:41 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Job Hunting After Treatment?
Replies: 3
Views: 391

Re: Job Hunting After Treatment?

At least where I worked, the applicant was always seen first by HR, and HR discussed benefits with them and gave them a pkg of detailed info. Hopefully that is the case many places. I do think (fair or not), that if he were to try to schedule an interview by phone / email and say that he first neede...
by betsydoglover
Tue Nov 20, 2018 2:07 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Choosing between Georgetown, John Hopkins, or George Washington
Replies: 6
Views: 450

Re: Choosing between Georgetown, John Hopkins, or George Washington

While I have not seen him, John Marshall at GW has a great reputation as a GI oncologist. My onc is a huge fan and would have referred me to him immediately if it seemed necessary - no matter what you decide, I think you should consult with him.
by betsydoglover
Sun Nov 18, 2018 7:56 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: How to support my husband??
Replies: 8
Views: 666

Re: How to support my husband??

I am sorry for your situation - the early part of diagnosis is very difficult. Many have given good advice to you. I know you want to support your husband and make things easier. But I think the best thing you can do is just be there - it is even more difficult to get your head around this diagnosis...
by betsydoglover
Sat Nov 17, 2018 12:47 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Stage 4 - liver mets disappeared
Replies: 16
Views: 1526

Re: Stage 4 - liver mets disappeared

Your case sounds a lot like mine - solitary liver met that was gone from CT, PET and MRI after 6 treatments of Xeloda/oxaliplatin/Avastin - that was back in 2005 and I am still here. While I did have 1 lung recurrence, my liver has been clear since then. My oncologist did not think I should I should...
by betsydoglover
Wed Nov 07, 2018 10:39 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: KRAS G12V and Avastin
Replies: 9
Views: 718

Re: KRAS G12V and Avastin

Don't be too discouraged. I Have the same KRAS mutation. I have had lots of Avastin. And, as you can see from my signature, I have done really well. Both my onc and I agree that Avastin most likely had a significant (positive) impact on the course of my disease. Best wishes.
by betsydoglover
Wed Oct 31, 2018 4:46 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: What do you call this FOLFOX side effect?
Replies: 2
Views: 391

Re: What do you call this FOLFOX side effect?

This is probably not it, but might be worth thinking of. When I was on Xelox, it was sometimes hard to open my eyes in the AM - didn't last for long. I never felt it exactly as you describe, but there were times when I felt my eyes very temporarily hard to move. Not exactly the same thing. My onc at...
by betsydoglover
Sat Oct 20, 2018 3:57 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Confused Stage2 or Stage3
Replies: 16
Views: 1299

Re: Confused Stage2 or Stage3

It is frustrating not to know the stage. Sorry for that stress. But, I (although not being a medical person) strongly suggest that you have it treated as Stage 3. Sadly I have seen Stage 2 folks who did not do chemo and ended as Stage 3 and then even Stage 4. Since your data is sort of murky, it see...

Go to advanced search