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by Mastan
Sat Jun 18, 2016 5:20 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Blood clots, leg pain and shortness of breath
Replies: 7
Views: 1682

Re: Blood clots, leg pain and shortness of breath

I have had 2 DVTs and a large saddle embolism. I don't have a history of heart problems though. I can say that it took months to get my breathing back after the embolism. I have metastic disease to the lungs however so I see a pulmonolgist from time to time to track changes in breathing. I assume th...
by Mastan
Sat May 07, 2016 9:21 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: First oxi infusion
Replies: 2
Views: 783

Re: First oxi infusion

I have done FOLFOX Twice. Once about six yrs. ago and I am doing it again. The first time I developed back spasms after 6 cycles and they continued to get worse with the next two cycles. I had to stop at eight. This time around I has started out at half doses for a couple of cycles and gradually the...
by Mastan
Sat May 07, 2016 9:02 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Alkaline diet and body's pH level.
Replies: 14
Views: 1860

Re: Alkaline diet and body's pH level.

Thanks everybody for their input. I really appreciate everyone giving me their honest answers. Im just trying to help my wife any way I can because I do feel helpless and doing research and trying to find holistic approaches to help her in conjuction with her treatments. But I honestly don't know h...
by Mastan
Thu May 05, 2016 9:39 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Alkaline diet and body's pH level.
Replies: 14
Views: 1860

Re: Alkaline diet and body's pH level.

One cannot change your systems pH by what you eat. Your body has a feedback mechanism to maintain neutrality. It does this by ion exchange to and from your bones. I don't recall how close to 7.0 it must stay but it cannot deviate too much otherwise life is not sustainable. That said eating healthy g...
by Mastan
Tue May 03, 2016 9:31 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Folfiri
Replies: 10
Views: 1659

Re: Folfiri

I have done both. FOLFIRI is the lesser of two evils in my experience. It does cause hair loss. My experience with digestive issues varies between constipation and diarrhea. The anti-nausea meds cause constipation and the chemo drugs cause diarrhea. Also, I have found that the amount of nausea for m...
by Mastan
Mon Apr 18, 2016 6:30 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Oncologist - what questions to ask?
Replies: 3
Views: 904

Re: Oncologist - what questions to ask?

Since you are really seeing the Onc for the first time post surgery they should give you a detailed treatment plan. Since you have metastatic disease you will staged as a IV. You will undoubtably be put on a chemo regimen. Prior administering chemo they will need to know if your tumor is KRAS wild o...
by Mastan
Mon Apr 18, 2016 8:26 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: New Lung Mets ... VATs/Chemo advice?
Replies: 5
Views: 1443

Re: New Lung Mets ... VATs/Chemo advice?

I had the procedure at the University Clinic in Freiburg Germany. The surgeon was Prof. Bernward Passlick. That procedure is done at a variety of Hospitals in Germany. I happen to know some folks in Freiburg so that played into my choice of the location. That coupled with the fact that I am not remo...
by Mastan
Sun Apr 17, 2016 10:38 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Has anyone heard this re:low rectal tumor
Replies: 11
Views: 1752

Re: Has anyone heard this re:low rectal tumor

I had a T3 tumor 1 cm from the anal verge. During the time between the radiation/chemo and the APR surgery the pain went away. So I would say that the devil is in the details and those are different for each of us. If having to live with a permanent colostomy is your only future health problem consi...
by Mastan
Sat Apr 16, 2016 12:30 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Nerve Pain - post resection surgery
Replies: 13
Views: 10265

Re: Nerve Pain - post resection surgery

I had a full open colon resection no lasting nerve damage around incision. Have had 3 thoracotomies, 2 yrs ago, still have some very uncomfortable nerve pain. In the ranking of problems nerve pain is a distant second to on-going metastatic disease. There are reasonable meds for pain management there...
by Mastan
Sat Apr 16, 2016 9:08 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: To Xeloda or not to Xeloda
Replies: 58
Views: 5828

Re: To Xeloda or not to Xeloda

I have done Xeloda in combination with Celebrix, that is the ADAPT Protocol the Dr. Lin uses at the Seatle Cancer Care Alliance. Xeloda is 2 weeks on 1 week off. For a month or so side effects were not too problematic. Then the hand/foot syndrome kicked in and things got nasty. A lot of skin peeling...
by Mastan
Fri Apr 15, 2016 9:25 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: New Lung Mets ... VATs/Chemo advice?
Replies: 5
Views: 1443

Re: New Lung Mets ... VATs/Chemo advice?

There are a few of us that went to Germany to have many mets resected with a laser. I had 8 removed from one lung and 6 from the other. This was done because with that number of mets, no one in the states is willing to tackle that job. I had it done two years ago. It is a difference in treatment phi...
by Mastan
Thu Apr 14, 2016 8:38 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Pain & scan...
Replies: 4
Views: 990

Re: Pain & scan...

Well my Dad has been off chemo since Feb & has been in acute pain for last 5-6 days, right side rib cage area. Mainly when breaths in or coughs etc. Admitted for hospital & embolism ruled out. Weren't able to do full scan. Onc has managed to Bring scan forward to this Friday rather then as ...
by Mastan
Thu Apr 14, 2016 8:27 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: New drug for stage IV
Replies: 10
Views: 3316

Re: New drug for stage IV

The std. Use of chemo is FOLOFOX (first line), FOLFIRI (second line), and after that Stivarga ( tough side effects), and now Lonsurf ( Effectivity TBD). This sequence is for KRAS mutant which I have. The KRAS wild type will have some variant that will include Erbitux.
by Mastan
Wed Apr 13, 2016 11:55 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Wart or mole protruding from stoma
Replies: 6
Views: 1218

Re: Wart or mole protruding from stoma

I had a skin met in the groin. It was small and sort of looked like an infected hair follicle. My Onc did not recognize it and even the dermatologist could not say what it was by visual inspection. I had it biopsied and it came back as a met. In my case I did not use a Mohs dermatologist and that re...

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