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by Pam Mcall
Fri Feb 03, 2012 5:38 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Looking for some insight ....
Replies: 9
Views: 1353

Re: Looking for some insight ....

Does she have free mucin in the abdomen? If so she needs to consult with a specialist in pseudomyxoma peritonei. There are now many in the US in contrast to when I was diagnosed when there was only 2 in the country treating this. I suggest you go to the webpage of PMPPals (http://www.pmppals.org) an...
by Pam Mcall
Fri Feb 03, 2012 5:26 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Prophylactic colectomy?
Replies: 17
Views: 3329

Re: Prophylactic colectomy?

It is probably worth consideration since it is very possible that you will have several cancers. I know several individuals with Lynch Syndrome and some have had more than one bout with colon cancer and lost so much that removal of what remained was an easy choice. You could consider keeping the rec...
by Pam Mcall
Fri Feb 03, 2012 5:16 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Lymph Nodes and HIPEC
Replies: 3
Views: 910

Re: Lymph Nodes and HIPEC

HIPEC is used to treat those who have cancer in the peritoneal cavity. That is, inside the abdomen but not in an organ. The most common use of HIPEC is for treatment of mucinous cancer of the appendix in cases when the body cavity contains free mucin, which is a gelatinous material made by the cance...
by Pam Mcall
Fri Feb 03, 2012 5:04 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: FUDR?
Replies: 7
Views: 1240

Re: FUDR?

FUDR is floxuridine is a prodrug of 5-FU and is used to treat metastatic colon cancer. Usually 5-FU, fluorouracil, is used with oxaliplatin and leucovorin. I don't know why they choose to use FUDR.
Pam
by Pam Mcall
Thu Aug 25, 2011 7:04 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Looking for advice
Replies: 5
Views: 1010

Re: Looking for advice

I have a leakage problem as well and have been dealing with it for many years. My gastroenterologist believes it is caused by bacterial overgrowth that I have due to surgical adhesions causing a partial blockage of my small intestine. I have found that the leakage stops when I take a course of antib...
by Pam Mcall
Tue Feb 08, 2011 4:37 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: CEA's are teasing us! Anyone experience this?
Replies: 12
Views: 3427

Re: CEA's are teasing us! Anyone experience this?

An increase in the CEA value can be caused by a very large number of things. Certainly anything that may be going on in the colon can lead to an increase. What is important is not any single value but rather the trend. If the CEA is bouncing around the changes probably mean nothing at all. If there ...
by Pam Mcall
Tue Feb 08, 2011 4:20 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Stage 4 cancer survivors: HOW DID YOU DO IT?????????????????
Replies: 15
Views: 7920

Re: Stage 4 cancer survivors: HOW DID YOU DO IT?????????????????

You are clearly in a state of panic even before being diagnosed. This is the most difficult time. There are so many ways to approach liver mets, if you have them, that it would be imposible to list them all. HIPEC is not a treatment you would be considering if you have colon cancer with liver mets. ...
by Pam Mcall
Tue Feb 08, 2011 3:56 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Crohn's Disease and CRC?
Replies: 11
Views: 1577

Re: Crohn's Disease and CRC?

While there is an increase in colon cancer risk, most patients with Crohn's do not develop colon cancer. After 22 years after the onset of symptoms in those with extensive disease, the risk of colon cancer is about 8%. More than 90% never develop cancer. That said, it is important to be on a program...
by Pam Mcall
Mon Feb 07, 2011 3:13 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Terminology and abbreviations
Replies: 57
Views: 369536

Re: Terminology and abbreviations

a few additional definitions that may be seen by patients RFS=relapse-free survival, time to any event regardless of cause except second primary cancers TTR=time to relapse, time to any event related to the same cancer TTF=time to treatment failure, time to any event except non-cancer related death ...

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