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by sailbd
Tue Jun 05, 2018 4:11 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Washington Post art. today on NIH trial with "SLEEN"
Replies: 4
Views: 383

Washington Post art. today on NIH trial with "SLEEN"

Hello everyone: I saw an uplifting article in the Washington Post today regarding advances in adoptive cell therapy, including tumor-infiltrating lymphocytes (TILs as we know it) at NIH. Sorry - I don't know how to link the article. But, guess what? Our very own Sleen (Celine) is named in the articl...
by sailbd
Mon May 01, 2017 12:23 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: newly diagnosed newbie
Replies: 110
Views: 12134

Re: newly diagnosed newbie

This thread screams for Gaelen! Miss her and her in-put.
by sailbd
Fri Nov 04, 2016 9:07 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Newly Diagnosed wife - Stage 4 w Liver Mets
Replies: 19
Views: 2417

Re: Newly Diagnosed wife - Stage 4 w Liver Mets

The best advise I can give you is to go take your wife to an NCI designated hospital now and before any treatment - there are over 60 of them but the major CC players are Sloan, Hopkins, Faber, etc., - you can find one hopefully close to where you live. There are reasons that these facilities are de...
by sailbd
Tue Mar 15, 2016 8:49 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Need Johns Hopkins colorectal surgeon recommendation
Replies: 6
Views: 916

Re: Need Johns Hopkins colorectal surgeon recommendation

Hey Charley: Sorry you're in this position. Dr. Efron is very well known, respected and recommended. So, you have a good name. My wife treated at Hopkins. She presented as stage 4 with 2 mets to the liver. After a lot of phone calls, we got into see Dr. Choti (who was referenced in a prior post). He...
by sailbd
Wed Dec 09, 2015 9:41 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Surgical oncologist vs colorectal surgeon?
Replies: 17
Views: 3055

Re: Surgical oncologist vs colorectal surgeon?

Chayo: Sorry you're dealing with this diagnosis. Simply put, best advice is to go to a large NCI designated medical center. Find out whether you have liver involvement prior to developing any surgical plan for the colon. If you have liver or other distant involvement, see a surgical oncologist to de...
by sailbd
Fri Dec 12, 2014 1:57 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Where can I get mistletoe extract injection in us?
Replies: 12
Views: 1056

Re: Where can I get mistletoe extract injection in us?

Dr. Diaz at Johns Hopkins was going to or did a study/trial on mistletoe. I believe there is a Johns Hopkins Youtube video out there on the topic. You may wish to check directly with Hopkins but, as others have already stated, follow the directions of your oncologist if you're currently undergoing t...
by sailbd
Fri Sep 26, 2014 11:20 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Really need your helpful input!
Replies: 8
Views: 1107

Re: Really need your helpful input!

If there is no diagnosis for the continued symptoms, I'd get the scope - at least you can rule cc out. The odds of having cc are long but the "odds" are irrelevant if you're the one with the disease. Be your own best advocate.
by sailbd
Thu Sep 04, 2014 8:16 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: 1cm Spot On Liver, Stage 4???
Replies: 8
Views: 2218

Re: 1cm Spot On Liver, Stage 4???

Hey Meatie: I don't know all the facts about your mother's condition and I am certainly not a physician - neither are most of the people posting on this board. With that said, resection of the liver is generally recognized as the only viable way to a cure for colon cancer. It may be possible that yo...
by sailbd
Fri Jun 27, 2014 10:52 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: New to posting and freaked out, need advice!
Replies: 16
Views: 2101

Re: New to posting and freaked out, need advice!

Hey Jen: You inquired how to pick another surgeon, and Bev nailed it. You should seek a second opinion from a major/nci cancer center. Reading this board over the years, you'll note some familiar names - Hopkins, Sloan, MD Anderson, etc. - for a reason. Your current surgeon will not care that you se...
by sailbd
Fri Jan 17, 2014 11:04 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: O/T …. the softer YIN side ..FINAL update
Replies: 83
Views: 10348

Re: O/T …. the softer YIN side ..FINAL update

CRguy - Peace and love, our hearts, thoughts and prayers to you and your family!
by sailbd
Fri Aug 30, 2013 8:31 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: BEER AND CHEMO
Replies: 136
Views: 9914

Re: BEER AND CHEMO

Great thread. I think beer and wine cured my wife - just kidding but it certainly helped her feel better. Her oncologist basically told her she could do, eat or drink whatever she could tolerate. During chemo, she switched from beer to red wine due to cold sensitivity. Tip - avoid excessive red wine...
by sailbd
Fri Aug 30, 2013 8:15 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: My Mom
Replies: 12
Views: 1176

Re: My Mom

Lilly: My condolences to you and your family for the loss of your mom. Thoughts and prayers to you.
by sailbd
Mon Jul 01, 2013 9:34 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Liver Resection or No Liver Resection?
Replies: 20
Views: 5581

Re: Liver Resection or No Liver Resection?

Hi Tiffany: Resection is the standard. The majority of Stage IV patients do not initially present re-sectable and spend considerable time attempting to reach that goal, if ever. If you are a viable candidate now, there should be no question not to proceed provided you are otherwise relatively health...
by sailbd
Sat Nov 17, 2012 8:28 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Lauren's journey is over
Replies: 109
Views: 10985

Re: Lauren's journey is over

Our thoughts and prayers are with Lauren, you and your family.

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