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by secriswell
Fri Dec 13, 2013 6:49 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: If you want prayer stop in here!
Replies: 630
Views: 93930

Re: If you want prayer stop in here!

Really need your prayers and thoughts--my wife went into the hospital yesterday for fluids to treat dehydration. We found out she has a blockage. This morning she passed out, vomited, and aspirated. She's now in ICU and still unconscious. Her vitals are okay, but they haven't explained why she is un...
by secriswell
Mon Nov 04, 2013 6:52 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: STIVARGA (Regorafenib) - ONGOING PATIENT EXPERIENCES
Replies: 142
Views: 53269

Re: STIVARGA (Regorafenib) - ONGOING PATIENT EXPERIENCES

Both of you have gone back to earlier chemos before trying Stivarga, yes? Did you have any improvement during those second tries?
by secriswell
Sun Nov 03, 2013 8:33 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Bad scan, questions, advice needed
Replies: 1
Views: 899

Bad scan, questions, advice needed

This is probably going to be long and go off on a rant, so let me ask my questions up front. I’d be very grateful if anyone here has insights on any of the following: Has anyone had success returning to a previous chemo (IN my wife’s case, going back to Folfox with Avastin after Irinotecan with Erbi...
by secriswell
Sat Aug 17, 2013 5:05 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Irinotecan side effect of diarrhea
Replies: 11
Views: 1195

Re: Irinotecan side effect of diarrhea

Kathryn, What you describe about immodium dosage is what I read online. Wish I could find the page again. Thanks for the two hour dosage directions. On that same site I remember reading something about glutamine helping with chemo-induced diarrhea. Anyone tried it? My wife is getting hit pretty hard...
by secriswell
Fri Aug 16, 2013 8:01 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Irinotecan side effect of diarrhea
Replies: 11
Views: 1195

Re: Irinotecan side effect of diarrhea

Questran can help as well. It's a cholesteroll-lowering powder you mix with water (or in my wife's case Gatorade), but it has an effect on bile salts that help with diarrhea. On bad days, we're finding two to four immodium, followed by a lomotil, and a Questran chaser seems to do the trick. I did re...
by secriswell
Mon Aug 05, 2013 2:10 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Any advice for stimulating appetite?
Replies: 16
Views: 1966

Re: Any advice for stimulating appetite?

Thanks for these responses. The good news is that I think I figured out the timing on the Marinol to get it to be most effective. Last night my wife had a peach, a whole bunch of grapes, half a bowl of vegetable soup, and an ice cream sandwich (along with a small bowl of cereal earlier in the day). ...
by secriswell
Sun Aug 04, 2013 3:15 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Any advice for stimulating appetite?
Replies: 16
Views: 1966

Any advice for stimulating appetite?

Between restarting Irintican and her pain meds, my wife has completely lost her appetite and is losing weight rapidly. She can't take Megace since she has had blood clots, but the oncologist gave her Marinol (we are not in a Medical Marijuana state). He gave her 5 mgs to take twice a day. The first ...
by secriswell
Thu Jun 27, 2013 5:49 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: it's five years today
Replies: 39
Views: 4251

Re: it's five years today

Congratulations! And, at the risk of sounding selfish, I needed to read something like this today.
S.
by secriswell
Thu Jun 27, 2013 5:45 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Update aka Husbands of Wives with F-ing Cancer
Replies: 1
Views: 895

Update aka Husbands of Wives with F-ing Cancer

It's been a rough few months for my wife, so I haven't posted in a while. Her scan in November showed suspicious activity, but her oncologist at Duke suggested that she wait until after the holidays to rescan and, if necessary, restart chemotherapy. Unfortunately, she continued to have worsening pai...
by secriswell
Sat Mar 16, 2013 1:14 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Anyone from Charlotte, NC?
Replies: 3
Views: 665

Re: Anyone from Charlotte, NC?

I'm near Charlote. I would recommend you take the two or three hour dive up to Duke--at least for an initial consult. My wife has an oncologist at Duke who us working with a Presbyterian affiliated local onc.
by secriswell
Wed Mar 06, 2013 3:30 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: DUKE Referral needed! Anyone have a good ONC there?UPDATE
Replies: 5
Views: 815

Re: DUKE Referral needed! Anyone have a good ONC there?

We really like Yousef Zafar for medical oncology, Trey Blazer for surgery, and Brian Czito for radiation oncology.
by secriswell
Tue Feb 05, 2013 12:55 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Radiation--Supportive Spouse Advice
Replies: 4
Views: 652

Re: Radiation--Supportive Spouse Advice

Thanks all. This is very helpful. We'll make sure to get some good lotion and soap after my wife's set-up appointment tomorrow.
S.
by secriswell
Mon Feb 04, 2013 6:55 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Radiation--Supportive Spouse Advice
Replies: 4
Views: 652

Radiation--Supportive Spouse Advice

My wife is getting a daily course of radiation on her shoulder for the next couple of weeks to shrink some lymph nodes that have been pressing on her ulnar nerve (it's not SBRT, which she's had before--I think it's external beam therapy covering a wider area around her brachial plexus). I want to be...
by secriswell
Wed Jan 30, 2013 12:37 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Question for the Olymphians--Nodes vs. tumors
Replies: 3
Views: 763

Question for the Olymphians--Nodes vs. tumors

Anyone know when or if a cancerous node becomes a tumor? When the GI doc told me that my wife likely had swollen nodes pressing on her bile duct and that these nodes likely had cancer in them, i asked him this question. But I was a little confused by his response--something about nodes holding the c...
by secriswell
Wed Jan 30, 2013 12:31 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Hospital Stay and Bile Duct Stent
Replies: 2
Views: 729

Hospital Stay and Bile Duct Stent

We took my wife to the emergency room Thursday because she was running a fever, her back and shoulder were killing her (we found out last week that she has some mediastinal nodes that might be pressing on a shoulder nerve), and she hasn't been eating or drinking. she's been off chemo since August bu...

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