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by Lee
Mon Jan 15, 2018 10:10 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Miss Molly, Hope you are okay. . .
Replies: 18
Views: 1009

Re: Miss Molly, Hope you are okay. . .

It has never occurred to me to label anyone as a "periphery" member, Karen. Certainly Belle would have never considered it either when you made your promise to come on here & help folks out in her memory...And you do that quite well. Best Wishes Ethel :wink: Ditto to what BS said, wel...
by Lee
Mon Jan 15, 2018 7:28 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Colon Cancer Signs
Replies: 6
Views: 255

Re: Colon Cancer Signs

More than likely hemorrhoids or constipation. But do talk to your Dr.

Good luck,

Lee
by Lee
Mon Jan 15, 2018 7:26 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Tribute to my dear friend Anne - aka BeansMama
Replies: 24
Views: 1067

Re: Tribute to my dear friend Anne - aka BeansMama

I will miss her. I really thought she made it through the worst. I will be thinking of her on the 21st.

I feel so sorry for her kids (I believe she had 2). I hope they grow up and know what a wonderful person she was.

Rest in peace, Anne. Heaven just got a wonderful, beautiful soul.

Lee
by Lee
Mon Jan 15, 2018 7:20 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: GI appointment Wednesday
Replies: 5
Views: 156

Re: GI appointment Wednesday

Does Crohn's Disease or IBS run in your family. Your symptoms could be cause by many things, cancer is just one possibility. Butt I don't think you have cancer especially since a CAT scan came back normal. How old are you? Does colon cancer run in your family? Try to avoid Dr. Google. A lot of infor...
by Lee
Sun Jan 14, 2018 9:19 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Signet ring stage , Adenocarcinoma
Replies: 7
Views: 284

Re: Signet ring stage , Adenocarcinoma

HIPEC would be my only option. I'm not sold on it. I have gotten a second opinion from a #7 rated colon cancer hospital and am keeping them in the loop as far as how my current treatment is going. The seeding on my omentum is/was quite a Lot. That is the only place the metastasis is. If things chan...
by Lee
Sun Jan 14, 2018 9:05 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Signet ring stage , Adenocarcinoma
Replies: 7
Views: 284

Re: Signet ring stage , Adenocarcinoma

I'm stage IV and it is inoperable at this point. I'm really hoping that chemo can get rid of all the cancer. . Sorry that you had to find us. My understanding, chemo is a way to get to surgery, Sloan Kettering Memorial has put many people who were told surgery was off the table, to NEDville. Have y...
by Lee
Sun Jan 14, 2018 8:27 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Got good news today!
Replies: 12
Views: 509

Re: Got good news today!

I thought I posted something earlier, can't find it now. Anyway, good news is ALWAYS better than not so good news. Sometimes on this journey, we take what we can get.

Sorry for your ovarian cancer diagnoses, butt it good to know, the FOLFOX pulled double duty.

CONGRATULATION!

Lee
by Lee
Sun Jan 14, 2018 7:48 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Surgery scheduled, clinical study for Lifeseal, questions about recovery
Replies: 19
Views: 330

Re: Surgery scheduled, clinical study for Lifeseal, questions about recovery

I was about 3 yrs out from surgery, scan picked up some swollen nodes in my stomach area. My Onc was stressing to me not to worry. As she put it, you have 2 young kids, something tells me one of them brought some bug home and your nodes are doing their job, fighting off some infection. Yep, 6 months...
by Lee
Sun Jan 14, 2018 7:39 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: LAR June 20 2017 passing blood now!!
Replies: 3
Views: 206

Re: LAR June 20 2017 passing blood now!!

We are so fortunate to have Miss Molly here, she is a wealth of information. I have a permanent colostomy and sometimes I pass a bit of blood. I've had many scans and many colonoscopy with one issues (other than polyps) found. Try not to worry. Would it be possible to create a signature line so that...
by Lee
Sun Jan 14, 2018 7:30 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Afraid I have colon cancer
Replies: 10
Views: 528

Re: Afraid I have colon cancer

I too tend to run a temperature on the lower side, I can bounce around between 97.0 to 98.0. If my temperature was low when I was diagnosed, no one ever said anything. From what I understand 98.6 is just an average, many people can be lower than that and still be normal. Other thing I will say, earl...
by Lee
Sun Jan 14, 2018 7:00 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Colostomy
Replies: 4
Views: 226

Re: Colostomy

Glad you made it through surgery. I too have colostomy, best decision I ever made. I assume you will be on a low fiber diet for awhile.

Remember to keeping walking, it really does help with the healing process.

Lee
by Lee
Sun Jan 14, 2018 6:58 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Goblet Cell Carcinoid
Replies: 5
Views: 209

Re: Goblet Cell Carcinoid

Hi and welcome, so sorry for you diagnoses.

I am not familiar with Goblet Cell Carcinoid. Best advice I can give you, get second opinions at major cancer hospitals or major cancer treatment centers.

Good luck,

Lee
by Lee
Sun Jan 14, 2018 6:51 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Doc finally ok'd to try Maraviroc
Replies: 2
Views: 179

Re: Doc finally ok'd to try Maraviroc

Hi and welcome, I don't have any real answers as I am not familiar with Maraviroc. I hope by bumping this up to the top again, maybe someone who is familiar it can answer your question. Many people have found success with Keytruda. It has been approved for colon cancer. Maybe something to look into....
by Lee
Sun Jan 14, 2018 6:47 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Signet ring stage , Adenocarcinoma
Replies: 7
Views: 284

Re: Signet ring stage , Adenocarcinoma

Hi and welcome, sorry for the reason you are here. Yes there are many stage IV folks who are beating this cancer today. Usually surgery is the best course for beating it. Where are her mets? What is her overall health? Has she seen an Onc yet? Is there a plan of action yet? Sorry butt we need a bit ...
by Lee
Sun Jan 14, 2018 5:29 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Chemotherapy Journey
Replies: 27
Views: 908

Re: Chemotherapy Journey

I don't have any real advice, just want to wish you good luck. As others have said, drink lots of water day or two prior to infusion. May want to keep a journal of how certain foods effect you. I truly believe radiation changes our plumbing system. I'm almost 14 yrs out, and salads gives me the runs...

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