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by Lee
Tue Dec 12, 2017 12:51 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: A Difficult Year
Replies: 19
Views: 1092

Re: A Difficult Year

I hope the New Year brings you better news. That is a lot to take in. So sorry about your daughter, I can't imagine going through something like that. Pets, they are family too. So sorry to hear about your husband.

Again, I hope next year is better, hugs to you and your husband,

Lee
by Lee
Tue Dec 12, 2017 12:45 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Mymom- clean scan
Replies: 2
Views: 191

Re: Mymom- clean scan

Congratulation to your Mom, sounds like she is in NEDville. May she always reside there. What a wonderful holiday present.

Congratulations,

Lee
by Lee
Tue Dec 12, 2017 12:41 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Nephrostomy tube
Replies: 1
Views: 135

Re: Nephrostomy tube

(((Steph20021)))

Hope you are feeling better soon,

Lee
by Lee
Tue Dec 12, 2017 12:39 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Mass in cecum / liver mets
Replies: 16
Views: 517

Re: Mass in cecum / liver mets

You might find this sticky helpful. First page and last page.

viewtopic.php?f=1&t=5366

Lee
by Lee
Tue Dec 12, 2017 12:36 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: I'm NED!
Replies: 21
Views: 562

Re: I'm NED!

So very happy for you, congratulation.

You've had some pretty rough months, with your divorce and all. So happy that you are getting some good news.

AWESOME!

Lee
by Lee
Tue Dec 12, 2017 12:33 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Why would my Oncologist say Surgery is no longer an option
Replies: 9
Views: 660

Re: Why would my Oncologist say Surgery is no longer an option

Ditto to what Mike said. Surgeon should make surgical calls, Onc should make chemo calls. If you have not already done so, get opinions at major cancer treatment centers or major cancer hospitals. I'm passing this along, but something tells me you probably have already done this.

good luck,

Lee
by Lee
Sun Dec 10, 2017 6:21 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: New on the forum
Replies: 48
Views: 1855

Re: New on the forum

I think so, they did it because I had a blockage, but the tumor is still in the rectum, because they want it to shrink after radiation for 7 more weeks. When they remove the tumor they will make a new stomy so that the connection between colon and rectum can heal. Claudia Sorry about the emergency ...
by Lee
Sun Dec 10, 2017 6:12 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Mass in cecum / liver mets
Replies: 16
Views: 517

Re: Mass in cecum / liver mets

Hi and welcome. Glad you found us, yes you will find a lot of information and support here. Sounds like you are in good hands. Know that are many options available where people are living long lives with a stage IV diagnoses. Many of the stage IV folks are NED (No Evidence Detected), so do not give ...
by Lee
Sun Dec 10, 2017 6:05 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Supplements to help/resolve LARS clustering
Replies: 8
Views: 266

Re: Supplements to help/resolve LARS clustering

I have a permanent colostomy today because I was tied to the toilet as a result of radiation (destroyed 2/3 of my rectal muscles). It would help if you could create a signature line and give us some background info on where you are at on this journey. Have you had surgery (reversal) recently? If it ...
by Lee
Sun Dec 10, 2017 5:56 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Stage IV 2 years later... keeping the HOPE
Replies: 5
Views: 404

Re: Stage IV 2 years later... keeping the HOPE

Thank you for the updated, so sorry this thread was over looked. Two years is a VERY good sign. Here's hoping, DH always resides in NEDville.

Bumping this back up to the top for I know we have a few new people.

Lee
by Lee
Sun Dec 10, 2017 4:50 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: New Member here on the forum
Replies: 7
Views: 373

Re: New Member here on the forum

Because you are dealing with rectal cancer, make sure you have a board certified "Colon Rectal" surgeon doing your surgery. They have the extra training you will need be3cause it is rectal cancer. Glad you found us. There is a lot of information on this forum. You will also find a lot of s...
by Lee
Sun Dec 10, 2017 2:48 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Lung met growth but low CEA?
Replies: 2
Views: 229

Re: Lung met growth but low CEA?

Sorry to read your latest news. For many people, CEA is not always an indication of cancer activity. Especially with lung mets. Not sure where you are, butt there is a Dr, Rolle in Germany who has been successful with inoperable lung mets. He's has a procedure that has not been approved in the USA y...
by Lee
Sun Dec 10, 2017 2:40 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Help with Disability please!
Replies: 7
Views: 344

Re: Help with Disability please!

. . . I was approved on the first round but I had a really terrific disability attorney who guided me and held my hand. One of my doctors advised me to use an attorney because he had seen several patients run into problems and be denied when they tried to do it themselves. . . https://www.brrlaw.co...
by Lee
Thu Dec 07, 2017 11:00 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: 30 Years Old - Colonscopy w/ Polyps Found
Replies: 5
Views: 201

Re: 30 Years Old - Colonscopy w/ Polyps Found

Good that you caught it early, if you have any sibling, they too might want to get scoped. Do you know if colon cancer runs in your family?

Lee
by Lee
Thu Dec 07, 2017 10:57 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Bowel "Urgency" - help!
Replies: 21
Views: 966

Re: Bowel "Urgency" - help!

Has anyone else experienced this? I have a theory that it's because the radiation "cooked" my rectal muscles, but I also see that fecal incontinence can be a result of neuropathy, which I also have. Are there any treatments for this, that I can ask my doctor about? --Stardust I lost 2/3rd...

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