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by Lee
Sun Oct 21, 2018 6:56 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Quality of life on Folfox and others
Replies: 10
Views: 470

Re: Quality of life on Folfox and others

Hi (((Lydia))) I did 12 rounds of FOLFOX, at full dose. I got FOLFOX when it was still an experimental drug approved for stage IV folks only (I was IIIC at the time). I was part of trial that my Onc got me on board with. For the most part I recovered. My feet suffer the worst. When they are cold, it...
by Lee
Sun Oct 21, 2018 2:55 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Confused Stage2 or Stage3
Replies: 14
Views: 339

Re: Confused Stage2 or Stage3

Know that you and your husband are never alone here. We've walked in your shoes, and understand you and your fears and frustrations. So when some of your friends don't get what you are going through, know that we do.

All the best,

Lee
by Lee
Sun Oct 21, 2018 2:49 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Anyone on here from Nova Scotia Canada?
Replies: 2
Views: 53

Re: Anyone on here from Nova Scotia Canada?

My understanding we have people here from all parts of the planet today. This forum was started in the USA to help one of the founders, Molly. To cheer her on as she roller skated across the USA to help raise money and awareness for getting colon cancer under the age of 50. From there it evolved int...
by Lee
Sun Oct 21, 2018 2:41 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: private message question.
Replies: 7
Views: 135

Re: private message question.

Thank you, and yes this really is a wonderful forum with lots of information and support. Wish it have been around when I was in active treatment. Sure would have helped me a lot. There was another forum then that is mostly non active today because it had a lot of censorship. You were very limited o...
by Lee
Sun Oct 21, 2018 2:30 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Weight
Replies: 5
Views: 163

Re: Weight

My understand being overweight puts you at a "higher" risk for developing certain cancers and other medical issues like diabetes. Not sure how it plays a roles with recurrences. My assumption (coming from a non medical person), it probably does not help being overweight. I was not overweig...
by Lee
Sun Oct 21, 2018 2:24 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: private message question.
Replies: 7
Views: 135

Re: private message question.

Deann wrote:..... because it doesn't say my name online when I am on the board, for some reason.


I suspect that has something to do with your settings. My name will show up, butt I understand it is possible to make you name hidden.

Lee
by Lee
Sun Oct 21, 2018 1:37 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: private message question.
Replies: 7
Views: 135

Re: private message question.

Deann wrote:Hi,
If private messages are in my 'outbox' does that mean they were sent but the person hasn't read them?.


Yes, it will stay in your outbox until they have read it.

Lee
by Lee
Sun Oct 21, 2018 1:26 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Isolation
Replies: 11
Views: 314

Re: Isolation

Hi Dan and welcome, So sorry for what you are going through. I too have a permanent colostomy, butt for me, it gave me my life back. My question to you, did you have a choice or did you wake up from surgery and learn of it? Sometimes that can impact how you feel about a colostomy. How long have you ...
by Lee
Sat Oct 20, 2018 2:01 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Confused Stage2 or Stage3
Replies: 14
Views: 339

Re: Confused Stage2 or Stage3

. . . .don't take medical oncology advice from a surgeon ! etc. etc. etc. CRguy That is the best advice, Know in your heart, your husband can beat this. Whether it is stage 2 or stage 3, it is treatable. The chemo he is about to get is to clean up/mop up any floater cancer cells that might be in hi...
by Lee
Fri Oct 19, 2018 9:09 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: New here. Bleeding from bum
Replies: 13
Views: 280

Re: New here. Bleeding from bum

Hello everyone,. . . . II finally found one. The colonoscopy was scheduled for yesterday. To make an incredibly long story short. I did the prep perfectly. But I drank water before the procedure because my paperwork did NOT say I wasn't allowed to and I wasn't to have the colonoscopy. I was in my h...
by Lee
Fri Oct 19, 2018 7:54 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Confused Stage2 or Stage3
Replies: 14
Views: 339

Re: Confused Stage2 or Stage3

. . . Our new oncologist, on the other hand, believes that, CT scans are 99% accurate and my husband's enlarged lymph nodes shown on CT scan before chemoradiation and surgery were in fact cancerous and the reason all his lymph nodes tested negative for cancer is because his preop chemoradiation kil...
by Lee
Mon Oct 15, 2018 3:56 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: stoma colonoscopy
Replies: 7
Views: 360

Re: stoma colonoscopy

I normally use the non drainable bags (disposal bags, one time use), butt I always keep drainable bags on hand for situations like prepping for colonoscopy, or if I'm sick, ie diarrhea, non normal situations.

Good luck

Lee
by Lee
Mon Oct 15, 2018 12:13 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Friends, i am struggling, news of cancer are awful
Replies: 15
Views: 1520

Re: Friends, i am struggling, news of cancer are awful

Laura,

I am so sorry to read this. I wish I had some words of wisdom other than one day at a time. Know that you are in my thoughts and prayers.

Lee
by Lee
Sat Oct 13, 2018 12:19 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: stoma colonoscopy
Replies: 7
Views: 360

Re: stoma colonoscopy

I am a 14 yrs survivor and have a permanent colostomy. I've had MANY scopes through the years, yes you have to use prep solution as if you had a rectum, butt in my case I don't always need to finish that 2nd dose of the that wonderful prep solution. When my output turns a yellowish color, I'm done. ...
by Lee
Sat Oct 06, 2018 10:38 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Robino1 has left us today at 6:40pm.
Replies: 23
Views: 1646

Re: Robino1 has left us today at 6:40pm.

NOOO :cry:

I am so sorry to read this. She was a super person around here. My thoughts and prayer go to her family and friends. Know that she was a special friend around here and will be missed by many, including me.

(((HUGS))) to her family,

Lee

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