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by Lee
Thu Aug 06, 2020 7:37 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Covid and the non-believers
Replies: 18
Views: 1891

Re: Covid and the non-believers

I am taking nominations for Darwin Awards :evil: I have seen a few hundred THOUSAND lately in my beloved USA I do NOT know what is wrong with people Lee. If you have any insight ..... let 'er rip !! Cheers my friend STAY SAFERIST !!!!!! CRguy Yes I too have a few nominations for that Darwin Award. ...
by Lee
Thu Aug 06, 2020 6:41 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Not tolerating Xeloda. Are there any options?
Replies: 11
Views: 533

Re: Not tolerating Xeloda. Are there any options?

Yes FOLFOX with a 5FU pump for about 2 days. This was about 16 yrs ago when FOLFOX was still experimental, I got 12 full cycles with no reductions. I was able to do it, but I will be honest, the side effects are accumulative. By the 12th cycle, the day after disconnect, I was lucky if I could get my...
by Lee
Fri Jul 24, 2020 6:54 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: (Somewhat Delayed) Five Year Anniversary
Replies: 5
Views: 554

Re: (Somewhat Delayed) Five Year Anniversary

Congratulation on your 5 year mark. That is a MAJOR milestone. I was scoped earlier this year, and yes they found a precancerous polyp. Surprise, surprise, surprise, NOT!!! I'm with you 3 year mark is fine with me.

Lee
by Lee
Fri Jul 24, 2020 6:45 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Covid and the non-believers
Replies: 18
Views: 1891

Re: Covid and the non-believers

I believe in wearing a mask. I was told by my Onc that my immune system is compromised and advised me to be current with my flu shots. That was long before all this covid virus. Here in Arizona, our governor made it mandatory to wear a mask outside of your home months ago. Most stores have a sign st...
by Lee
Thu Jul 16, 2020 6:49 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: STIVARGA (Regorafenib) - ONGOING PATIENT EXPERIENCES
Replies: 145
Views: 58625

Re: STIVARGA (Regorafenib) - ONGOING PATIENT EXPERIENCES

Hey everyone . . . just wanted to chime in here, as my husband starts Stivarga (full dose) this weekend . . . the goal is simply to shrink down this para aortic lymph node that is inoperable, but wreaking havoc on his body . . . I will definitely post any thoughts or observations that we have, but ...
by Lee
Thu Jul 16, 2020 6:03 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Personal question ... how do YOU do it?
Replies: 13
Views: 1453

Re: Personal question ... how do YOU do it?

I SSDI is an option and that MEDICARE is automatic BUT... there is a 2 yr wait from approval before it covers... Moni Get an lawyer who specializes dealing with SSDI. Because your husband is a stage IV, I believe he can/should be fast tracked (not a 2yr wait period), butt again he will need a lawye...
by Lee
Thu Jul 16, 2020 5:50 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Personal question ... how do YOU do it?
Replies: 13
Views: 1453

Re: Personal question ... how do YOU do it?

I am SO SORRY for what you and your family are going through. Your insurance should not be a problem that you have to deal with right now. I don't have any personal experience, maybe some advice, hopefully others who have been down this road can offer their expert opinion. Does your husband get trea...
by Lee
Mon Jul 13, 2020 3:05 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: GYN appt
Replies: 4
Views: 593

Re: GYN appt

Agree to what CR Guy wrote. My surgeon was nice enough to take out my female organs during my surgery. Radiation threw me into menopause with in the first week of radiation. But I was prepared. I already had a GYN tell me a few years prior that I should get everything out in 10 yrs. I suffered a mis...
by Lee
Wed Jul 08, 2020 6:08 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: 3 year scan. Wish me luck!
Replies: 14
Views: 1036

Re: 3 year scan. Wish me luck!

Swing chickens in your favor that the news is good.

Lee
by Lee
Wed Jul 08, 2020 6:05 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Appt with surgeon
Replies: 2
Views: 346

Re: Appt with surgeon

I think I am missing something here. Why is a "plastic surgeon" looking at your ct scan? Is this an issue that is cancer related or something else?

I wish you lots of luck thought,

Lee
by Lee
Wed Jul 08, 2020 6:00 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Tea, and other warm beverages while on FOLFOX
Replies: 9
Views: 697

Re: Tea, and other warm beverages while on FOLFOX

Coffee drinker here too. I would always stop by burger king on way to infusion. Would get an egg cheese breakfast sandwich and coffee. No problems, one I had orange juice and was throwing it up 10 mins later. We all decided I should probably OJ until after I was completely down with chemo treatment....
by Lee
Sun Jul 05, 2020 5:33 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Bone Density / Females
Replies: 9
Views: 1737

Re: Bone Density / Females

And as a throway line "oh, by the way your periods might stop". I was 42 . . . r. I was told the same thing. Started my last period just prior to my first radiation treatment, within days, my period stopped and has never returned. That was back in 2004. Thanks to radiation, most of my rec...
by Lee
Sat Jul 04, 2020 1:16 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: HAPPY 4TH OF JULY!!!
Replies: 3
Views: 323

Re: HAPPY 4TH OF JULY!!!

Happy 4th of July, We are laying low this year. Was suppose to get together with some friends later today, pot luck dinner. Butt we found out yesterday, their daughter has got the virus. She is not doing well as of yesterday. Nausea and the worst headache she has ever had. She got it from her cowork...
by Lee
Sat Jul 04, 2020 12:55 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: For Stage III's: NED for how long now?
Replies: 798
Views: 328569

Re: For Stage III's: NED for how long now?

justin case wrote:Radiation damage is something to behold, not. It has altered my existence for 7 years now. I'm still kicking !


Good to see your post. Be safe, be healthy.

Lee
by Lee
Mon Jun 29, 2020 4:33 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: If you want prayer stop in here!
Replies: 649
Views: 108941

Re: If you want prayer stop in here!

jep wrote:My beautiful husband is in surgery right now having another bypass (4th surgery in just over 3 years)....please pray for him and for all of us...
<3
jep


You and your husbands are in my thoughts and prayers. I hope he is out of surgery by now and on the road to recovery

Hugs to you both,

Lee

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