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by Lee
Thu Nov 28, 2019 11:16 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Sad news about Miss Molly/Karen
Replies: 7
Views: 914

Re: Our Miss Molly/Karen has passed on

CR Guy,

Feel free to take my other thread down. I did not see the this thread until just now.

Lee
by Lee
Thu Nov 28, 2019 11:10 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Did my first at home disconnect today.
Replies: 3
Views: 251

Re: Did my first at home disconnect today.

Congratulations on getting to almost the end of treatment, that is a major milestone. I had to disconnect once. Actually it was on Thanksgiving Day about 15 yrs ago. I did not want to delay treatment due to the holidays. My hair did get thin, but never really lost it all. It was supper frizzie thoug...
by Lee
Thu Nov 28, 2019 11:01 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Sad news about Miss Molly/Karen
Replies: 7
Views: 914

Our Miss Molly/Karen has passed on

It is with sadness that I announce that Karen has passed on. I believe it was several days ago. I know that I missed her comments here and the UOAA forum and will continue to miss her for some time. Here is from the UOAA site https://www.uoaa.org/forum/viewtopic.php?f=2&t=26968 May you rest in p...
by Lee
Mon Oct 14, 2019 7:15 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Opinions on alternative treatments?
Replies: 44
Views: 3936

Re: Opinions on alternative treatments?

This is Celine's journey, a bit long, butt very informational. She too was only given a few months, but is very much NED (No Evidence Detected) today. This thread is to help other who may want to follow this path. https://coloncancersupport.colonclub.com/viewtopic.php?f=1&t=49736&hilit=celin...
by Lee
Mon Oct 14, 2019 7:07 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Opinions on alternative treatments?
Replies: 44
Views: 3936

Re: Opinions on alternative treatments?

I find the outright dismissals of non-standard cancer interventions disappointing. She’s obviously under the care of a properly trained and licensed professional and it’s just asking for some advice on some alternatives. And what is this nonsense about “western medicine”?? Ancient Chinese and indig...
by Lee
Mon Oct 14, 2019 6:06 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Tailgate Party @ BS's!!...Menu=SUPREP, Juice & CANDY!
Replies: 12
Views: 1283

Re: Tailgate Party @ BS's!!...Menu=SUPREP, Juice & CANDY!

Glad everything is okay. I get to get mine real soon. Suppose to be done by the end of the year, may put off to January.

Butt isn't it nice when it's in the rear view mirror.

Lee
by Lee
Mon Oct 14, 2019 5:58 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Emergency HIPEC, possible?
Replies: 7
Views: 741

Re: Emergency HIPEC, possible?

How old is the person who needs to have this procedure done? How healthy is the person? Is the person currently on chemo? HIPEC surgery is MAJOR surgery. It's not something that can be done at a local hospital. It would have to be done at a major cancer hospital. Do you have access to that type of h...
by Lee
Sat Oct 12, 2019 11:23 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Screw Cancer, Hospice is Here
Replies: 27
Views: 4520

Re: Screw Cancer, Hospice is Here

Pyro, You continue to be in my thoughts and prayers. I hope Hawaii was totally AWESOME!!!

Never far from my thoughts and prayers,

Lee
by Lee
Sat Oct 12, 2019 6:40 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: For Stage III's: NED for how long now?
Replies: 774
Views: 284712

Re: For Stage III's: NED for how long now?

I have had a rocky week... Had my CT scan last Thursday at an outside radiology clinic and met with my oncologist on Tuesday. He told me my CT looked good but later called and said he was looking at a scan in the system from TWO years ago. He was an oncologist from Mayo filling in at my clinic and ...
by Lee
Wed Oct 02, 2019 7:55 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Scared of surgery in need of wisdom...
Replies: 24
Views: 2406

Re: Scared of surgery in need of wisdom...

Agree with Juliej, talk to the anesthesiologist. I have this fear that I will wake up during surgery. It's never happened, butt saw an episode on a "Outer Limits" or "Twilight Zone" when I was a kid, where someone woke up during surgery. Always bothered me since. That and the epi...
by Lee
Mon Sep 30, 2019 9:45 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: CRC Veteran Check-In! LAR Syndrome question
Replies: 34
Views: 3117

Re: CRC Veteran Check-In! LAR Syndrome question

The coloplast is it this one 6211472 - Coloplast SenSura® Mio Click Two-Piece Drainable Pouch, Wide Outlet, 50mm Coupling, Maxi, Integrated Closure, Neutral Gray with Clear Inspection Window. Box says it comes with 10 pieces. Does that mean is comes with bag that sticks to stomach and snap on bag t...
by Lee
Sun Sep 29, 2019 2:37 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: CRC Veteran Check-In! LAR Syndrome question
Replies: 34
Views: 3117

Re: CRC Veteran Check-In! LAR Syndrome question

Hi Riki, I prefer the 2 piece system, even with the drainable bags. Works like a tupperware lid. I prefer the disposal bags, (ie separate used bag from wafer, throw into a zip lock bag, put on new bag. Ready to go). I keep drainable on hand. I used them when on chemo, if I'm prepping for a scope or ...
by Lee
Sat Sep 28, 2019 9:32 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Take me away to that special place - Picture Thread
Replies: 142
Views: 19080

Re: Take me away to that special place - Picture Thread

Hi Everyone, Don't have a picture to share, maybe one of these days. Thought I would fill in my last few months. Dear Hubby ended up in the hospital over the 4th of July. Was in for 5 days, he's doing much better now. He kept me busy for most of July. August and a few weeks in September were months ...
by Lee
Sat Sep 28, 2019 6:13 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Phuong is the new ColonClub President !
Replies: 19
Views: 3815

Re: Phuong is the new ColonClub President !

Congratulations on your new position. I know you will do an awesome job!!

Lee
by Lee
Sat Sep 28, 2019 3:57 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: CRC Veteran Check-In! LAR Syndrome question
Replies: 34
Views: 3117

Re: CRC Veteran Check-In! LAR Syndrome question

Mike, Your comment alone makes me even want the bag more. For you to even have 27 bowel movements at this timeframe of your journey really makes me wonder if it will get better. The most bowel movements I have now is probably 12 max one bad days. 27 just doesn't seem right, perhaps food? I know you...

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