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by Lee
Thu Oct 29, 2020 10:51 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Weight loss and hair loss
Replies: 5
Views: 146

Re: Weight loss and hair loss

DE

I am so sorry you are dealing with this type of issues, considering all that you when through with colon colon cancer. i hope ( & pray) the medicals professional can find a solution to your problems.

((((DE))))

Lee
by Lee
Tue Oct 27, 2020 8:41 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: New stage 4 colon cancer diagnosis
Replies: 19
Views: 1692

Re: New stage 4 colon cancer diagnosis

I agree with boxhill here. I was 46 when I was diagnosed (5 yrs older than your DH), again stage IIIC. My team threw the kitchen sink at me. FOLFOX & Avastin were experimental drugs, had not been approved by the FDA for stage III yet. My Onc got me on board with FOLFOX through a trial. We had Ma...
by Lee
Sun Oct 25, 2020 4:00 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: HAI Pump w/ liver, lung and node involvement
Replies: 1
Views: 223

Re: HAI Pump w/ liver, lung and node involvement

Not sure which hospitals can do that, butt I believe Memorial Sloan Kettering in NYC can work with patients that have liver & lung mets.

Good luck,

Lee
by Lee
Fri Oct 23, 2020 4:36 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Total Pelvic Exenteration
Replies: 11
Views: 1239

Re: Total Pelvic Exenteration

Shaina, I'm in awe. And so happy that you have won through to a good life. The same is true for you, Lee and Cynthia. I have had so much easier a time than so many, thanks to many pieces of luck, but foremost that of being MSI and responsive to Keytruda, my miracle drug. I feel guilty at times. Bes...
by Lee
Fri Oct 23, 2020 4:32 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: My CRC with liver mets journey
Replies: 374
Views: 89823

Re: My CRC with liver mets journey

I too agree, congratulations

Lee
by Lee
Fri Oct 23, 2020 4:31 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Need Support - Told today I'm on Palliative Care
Replies: 67
Views: 27778

Re: Need Support - Told today I'm on Palliative Care

Claudine wrote:I’m sorry nynessie but I forgot what happened to your husband? Mine had back surgery last Friday so I know all about walkers, braces and reduced mobility!
Glad to read that you are doing well :)


Hope your husband has a speedy recovery.

Lee
by Lee
Fri Oct 23, 2020 4:21 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Please Help With Weight Loss/Endless Painful Constipation
Replies: 24
Views: 1519

Re: Please Help With Weight Loss/Endless Painful Constipation

If I have to go through the idea of LAR and bag situation all over again, I'm sure I won't be taking it well. Perhaps as someone without kids, nothing will ever reassure me that the bag is okay unitl I actually have the bag ? But I hope the day never comes and I know I will not be okay if it did. I...
by Lee
Tue Oct 20, 2020 6:22 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: 3 months left of life
Replies: 21
Views: 2348

Re: 3 months left of life

You continue to be in my thoughts & prayers,

Lee
by Lee
Tue Oct 20, 2020 6:19 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Please Help With Weight Loss/Endless Painful Constipation
Replies: 24
Views: 1519

Re: Please Help With Weight Loss/Endless Painful Constipation

Oh dear, this sounds terrible. I am shocked that MSK hasn't stepped up at all given how well known they are for their bowel cancer studies? How about writing something official to their medical board directors direclty and bringing it to their attention if your healthcare team couldn't be bothered ...
by Lee
Sat Oct 17, 2020 9:50 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Is W&W an option for a partial response
Replies: 20
Views: 1147

Re: Is W&W

While it is a bit long, it is several years of input from different people on this forum. Maybe something to look at when you have the time.

viewtopic.php?f=1&t=53498

Hope it helps,

Lee
by Lee
Fri Oct 16, 2020 6:47 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Brother with hx of colorectal cancer now has Mets to bladder
Replies: 10
Views: 1841

Re: Brother with hx of colorectal cancer now has Mets to bladder

Did you learn anything with the Urologist visit today?

Here is that other site I mentioned yesterday.

https://www.uoaa.org/forum/index.php

Hope it helps,

Lee
by Lee
Thu Oct 15, 2020 8:33 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Brother with hx of colorectal cancer now has Mets to bladder
Replies: 10
Views: 1841

Re: Brother with hx of colorectal cancer now has Mets to bladder

Please let us know, that would be a 1st. I just assumed in was radiation damage. He could end up with a 2nd bag for his bladder, many people live this way and live a life. Give me a bit of time, there is a site you might want to consider/look at with information from people like us here. UOAA, Unite...
by Lee
Thu Oct 15, 2020 6:57 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Brother with hx of colorectal cancer now has Mets to bladder
Replies: 10
Views: 1841

Re: Brother with hx of colorectal cancer now has Mets to bladder

When my husband had SBRT for his spinal met, they did warn us about a small possibility to develop leukemia... The expression is "you hope you live long enough to experience that 2nd cancer". When I thought I did have bladder cancer, I thought of all of those people who did not make it, b...
by Lee
Thu Oct 15, 2020 6:28 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Please Help With Weight Loss/Endless Painful Constipation
Replies: 24
Views: 1519

Re: Please Help With Weight Loss/Endless Painful Constipation

I will be honest, I'm not sure what to say. MSK is usually more on top with people having side effects. I believe they have a team of experts that help people deal with cancer and ALL THE ISSUES associated with it. Like nutritionist, counselors, etc. They attack the cancer from many different direct...
by Lee
Thu Oct 15, 2020 6:11 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: 3 months left of life
Replies: 21
Views: 2348

Re: 3 months left of life

Trying, words can not express the sadness I feel for this latest news. I hope & pray you still have good days ahead. One thing I am going to recommend, write letters, special cards of special event to your son, experiences he will have in his life, especially growing up. Do it now & give to ...

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