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by Lee
Mon Oct 14, 2019 7:15 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Opinions on alternative treatments?
Replies: 44
Views: 3318

Re: Opinions on alternative treatments?

This is Celine's journey, a bit long, butt very informational. She too was only given a few months, but is very much NED (No Evidence Detected) today. This thread is to help other who may want to follow this path. https://coloncancersupport.colonclub.com/viewtopic.php?f=1&t=49736&hilit=celin...
by Lee
Mon Oct 14, 2019 7:07 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Opinions on alternative treatments?
Replies: 44
Views: 3318

Re: Opinions on alternative treatments?

I find the outright dismissals of non-standard cancer interventions disappointing. She’s obviously under the care of a properly trained and licensed professional and it’s just asking for some advice on some alternatives. And what is this nonsense about “western medicine”?? Ancient Chinese and indig...
by Lee
Mon Oct 14, 2019 6:06 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Tailgate Party @ BS's!!...Menu=SUPREP, Juice & CANDY!
Replies: 12
Views: 1052

Re: Tailgate Party @ BS's!!...Menu=SUPREP, Juice & CANDY!

Glad everything is okay. I get to get mine real soon. Suppose to be done by the end of the year, may put off to January.

Butt isn't it nice when it's in the rear view mirror.

Lee
by Lee
Mon Oct 14, 2019 5:58 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Emergency HIPEC, possible?
Replies: 2
Views: 303

Re: Emergency HIPEC, possible?

How old is the person who needs to have this procedure done? How healthy is the person? Is the person currently on chemo? HIPEC surgery is MAJOR surgery. It's not something that can be done at a local hospital. It would have to be done at a major cancer hospital. Do you have access to that type of h...
by Lee
Sat Oct 12, 2019 11:23 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Screw Cancer, Hospice is Here
Replies: 25
Views: 3578

Re: Screw Cancer, Hospice is Here

Pyro, You continue to be in my thoughts and prayers. I hope Hawaii was totally AWESOME!!!

Never far from my thoughts and prayers,

Lee
by Lee
Sat Oct 12, 2019 6:40 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: For Stage III's: NED for how long now?
Replies: 768
Views: 281161

Re: For Stage III's: NED for how long now?

I have had a rocky week... Had my CT scan last Thursday at an outside radiology clinic and met with my oncologist on Tuesday. He told me my CT looked good but later called and said he was looking at a scan in the system from TWO years ago. He was an oncologist from Mayo filling in at my clinic and ...
by Lee
Wed Oct 02, 2019 7:55 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Scared of surgery in need of wisdom...
Replies: 19
Views: 1701

Re: Scared of surgery in need of wisdom...

Agree with Juliej, talk to the anesthesiologist. I have this fear that I will wake up during surgery. It's never happened, butt saw an episode on a "Outer Limits" or "Twilight Zone" when I was a kid, where someone woke up during surgery. Always bothered me since. That and the epi...
by Lee
Mon Sep 30, 2019 9:45 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: CRC Veteran Check-In! LAR Syndrome question
Replies: 34
Views: 2602

Re: CRC Veteran Check-In! LAR Syndrome question

The coloplast is it this one 6211472 - Coloplast SenSura® Mio Click Two-Piece Drainable Pouch, Wide Outlet, 50mm Coupling, Maxi, Integrated Closure, Neutral Gray with Clear Inspection Window. Box says it comes with 10 pieces. Does that mean is comes with bag that sticks to stomach and snap on bag t...
by Lee
Sun Sep 29, 2019 2:37 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: CRC Veteran Check-In! LAR Syndrome question
Replies: 34
Views: 2602

Re: CRC Veteran Check-In! LAR Syndrome question

Hi Riki, I prefer the 2 piece system, even with the drainable bags. Works like a tupperware lid. I prefer the disposal bags, (ie separate used bag from wafer, throw into a zip lock bag, put on new bag. Ready to go). I keep drainable on hand. I used them when on chemo, if I'm prepping for a scope or ...
by Lee
Sat Sep 28, 2019 9:32 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Take me away to that special place - Picture Thread
Replies: 136
Views: 16991

Re: Take me away to that special place - Picture Thread

Hi Everyone, Don't have a picture to share, maybe one of these days. Thought I would fill in my last few months. Dear Hubby ended up in the hospital over the 4th of July. Was in for 5 days, he's doing much better now. He kept me busy for most of July. August and a few weeks in September were months ...
by Lee
Sat Sep 28, 2019 6:13 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Phuong is the new ColonClub President !
Replies: 16
Views: 2618

Re: Phuong is the new ColonClub President !

Congratulations on your new position. I know you will do an awesome job!!

Lee
by Lee
Sat Sep 28, 2019 3:57 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: CRC Veteran Check-In! LAR Syndrome question
Replies: 34
Views: 2602

Re: CRC Veteran Check-In! LAR Syndrome question

Mike, Your comment alone makes me even want the bag more. For you to even have 27 bowel movements at this timeframe of your journey really makes me wonder if it will get better. The most bowel movements I have now is probably 12 max one bad days. 27 just doesn't seem right, perhaps food? I know you...
by Lee
Sat Sep 28, 2019 2:21 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: My wife, 10 years NED - stage IV
Replies: 15
Views: 1689

Re: My wife, 10 years NED - stage IV

CONGRATULATIONS!!

Ten years is a MAJOR milestone.

All the best,

Lee
by Lee
Sat Sep 28, 2019 2:19 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: colonoscopy screening early
Replies: 4
Views: 677

Re: colonoscopy screening early

I was diagnosed when I was 46. If my PCP had not referred me to get scoped, I hate to think what would have happened if I waited until I was 50 or beyond. All my blood work was good, no symptoms, just bleeding hemorrholds.

Lee
by Lee
Sat Sep 28, 2019 2:14 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: CRC Veteran Check-In! LAR Syndrome question
Replies: 34
Views: 2602

Re: CRC Veteran Check-In! LAR Syndrome question

I had the pain for a few months - I believe that it was severed nerve that quieted down over time. I don't have any pain today. I too had butt pain back there for about 3-4 months. Felt like my tail bone was broken. I have no pain today and can sit on a hard surface. Rob so sorry you are dealing wi...

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