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by ams5796
Mon May 28, 2018 3:55 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Stoma Reversal or Not
Replies: 23
Views: 700

Re: Stoma Reversal or Not

I loved NWGirl. I miss her. I'm eleven years out from an ileostomy reversal and I still think about going back to the bag almost every day. It has not been an easy adjustment from the bag. I have bouts of constipation that end in episodes of "clustering" bowel movements that go on for days...
by ams5796
Thu May 17, 2018 9:53 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: How can I help my family watch me die?
Replies: 20
Views: 1377

Re: How can I help my family watch me die?

You truly seem like a beautiful person. I wish love and peace for you and your loved ones.




Ann
by ams5796
Mon Feb 26, 2018 2:45 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Ileostomy reversal experience?
Replies: 15
Views: 1422

Re: Ileostomy reversal experience?

I hate to be Debbie Downer :wink: but I agree with you. If she's doing well with the ostomy maybe she would be better off keeping it. Since she's 78 I could see her having trouble with recovery. The surgery itself isn't that bad. It's the time afterwards that can very tough to deal with. I got rever...
by ams5796
Fri Feb 09, 2018 4:55 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: The Daily Enema
Replies: 44
Views: 8649

Re: The Daily Enema

Hi. I'm not sure who you've emailed but this is a really old thread. You can put enema in the search box on this forum and you will get LOTS of great helpful information. There's also a private group on facebook for LARS sufferers. I always found this to be a really helpful thread. http://coloncance...
by ams5796
Tue Dec 12, 2017 9:20 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Supplements to help/resolve LARS clustering
Replies: 8
Views: 686

Re: Supplements to help/resolve LARS clustering

Also, there's a great LARS group on facebook. Lots of information there.





Ann
by ams5796
Fri Dec 08, 2017 5:52 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Lung met growth after SBRT??
Replies: 3
Views: 488

Re: Lung met growth after SBRT??

After SBRT I had a lot of scarring which made it difficult for the medical professionals to read a scan for about a year. They kept scanning and my oncologist was not very happy with what he could see. There was a lot of scarring which looked like cancer to him. My CEA was good so we waited it out f...
by ams5796
Tue Nov 14, 2017 5:38 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Low rectal tumor without LARS?
Replies: 9
Views: 842

Re: Low rectal tumor without LARS?

I think many of our problems result from radiation as well as how low the tumor was.
by ams5796
Tue Oct 31, 2017 8:29 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: A Difficult Year
Replies: 19
Views: 1982

Re: A Difficult Year

You have such a beautiful soul. I can tell that when I read your post. You have had the toughest of years. I hope you and your wonderful husband have many more great years together.




Ann
by ams5796
Wed Oct 18, 2017 7:22 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Something mentioned in my scan
Replies: 9
Views: 891

Re: Something mentioned in my scan

Scans do pick up everything and some radiologists mention more than others. Unless the radiologist recommends a follow up or further testing I try not to worry. I know it's easier said than done.

Glad the rest of it was clear, Susie!



Ann
by ams5796
Wed Oct 18, 2017 4:09 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: I am now five years cancer free after my lung recurrence
Replies: 13
Views: 1362

Re: I am now five years cancer free after my lung recurrence

That's great news. Being a lung recurrence member I'm always pleased to see this news. Happy when folks come back on here with success stories.

Happy for you too, Susie. Good news all around!


Ann
by ams5796
Tue Oct 17, 2017 5:56 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: From cancer and a blog to a book
Replies: 13
Views: 2243

Re: From cancer and a blog to a book

Julie, That is so impressive. I'm not surprised at all. So many times I would read your inspiring posts and think "wow, she should write a book." I have read most of your blog and have marveled at how well written it is. It will be a beautiful lasting legacy for your girls and for Josh. I ...
by ams5796
Fri Oct 13, 2017 5:57 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Peri mets, Stage IV --- Need advice
Replies: 27
Views: 3208

Re: Peri mets, Stage IV --- Need advice

You can fight this. I've never had HIPEC, but I know that there is lots of information on here about it. I think there's an ongoing thread right now about it. Also, use the search option and you'll find lots. The first thing I would do would be to get to a major cancer center such as Memorial Sloan ...
by ams5796
Wed Oct 04, 2017 3:31 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: BeansMama, you are not far from my thoughts and prayers.
Replies: 31
Views: 3009

Re: BeansMama, you are not far from my thoughts and prayers.

We're all thinking of you. This will be so great when it's all done and you are NED. I am sending along my very best wishes and healing thoughts.


Ann
by ams5796
Mon Oct 02, 2017 9:15 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: NEW-Need some positivity here.
Replies: 416
Views: 36614

Re: NEW-Need some positivity here.

That news can sure be overwhelming. You will get through it. It's a lot, but it's doable. Take it one step at a time. That sounds like such a cliche, but it's really the way I got through it. Think about it in small steps. You can do it.



Ann
by ams5796
Mon Oct 02, 2017 9:01 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Stella (vilca11) went home (more than a month ago)
Replies: 21
Views: 2625

Re: Stella (vilca11) went home (more than a month ago)

I was always drawn to Stella's brilliant and interesting posts. She will be missed by many.



Ann

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